Prostate cancer
Discussion
surgery now scheduled for 25th June for a PAE (Prostate artery embolisation) as a first step in my treatment 'journey'
hopefully that will help the prostate contract sufficiently for a subsequent Holep surgery if required.
having been front row of a comedy gig on Tuesday and needing to pee (again) 20 minutes in; this can't come soon enough. I'm now on first name terms with Kevin Bridges; the irony was his 42 year old warm up joking about his first prostate exam! Art imitating life!
hopefully that will help the prostate contract sufficiently for a subsequent Holep surgery if required.
having been front row of a comedy gig on Tuesday and needing to pee (again) 20 minutes in; this can't come soon enough. I'm now on first name terms with Kevin Bridges; the irony was his 42 year old warm up joking about his first prostate exam! Art imitating life!
I’ve been reading up on PAE as that’s the likely future for me.
Urologist said my prostate is ‘humongous’ explaining the high PSA. Too big for most options so I think PAE will be inevitable when it’s time. I have an appointment next week to discuss my IPSS and other symptoms.
I understand the method of PAE but once the blood is cut off, how far does it shrink/die?
I visualise a dead prostate hanging around the base of my bladder!
Urologist said my prostate is ‘humongous’ explaining the high PSA. Too big for most options so I think PAE will be inevitable when it’s time. I have an appointment next week to discuss my IPSS and other symptoms.
I understand the method of PAE but once the blood is cut off, how far does it shrink/die?
I visualise a dead prostate hanging around the base of my bladder!
mark387mw said:
I’ve been reading up on PAE as that’s the likely future for me.
Urologist said my prostate is ‘humongous’ explaining the high PSA. Too big for most options so I think PAE will be inevitable when it’s time. I have an appointment next week to discuss my IPSS and other symptoms.
I understand the method of PAE but once the blood is cut off, how far does it shrink/die?
I visualise a dead prostate hanging around the base of my bladder!
I'm also in team 'humungous'. I've been referred from my local major hospital to a adjoining trust with better facilities for Holep; they immediately passed me onto the department that do the PAE.Urologist said my prostate is ‘humongous’ explaining the high PSA. Too big for most options so I think PAE will be inevitable when it’s time. I have an appointment next week to discuss my IPSS and other symptoms.
I understand the method of PAE but once the blood is cut off, how far does it shrink/die?
I visualise a dead prostate hanging around the base of my bladder!
I'm then going to have a follow up MRI a few months later to measure the reduction and then maybe holep the rest of it. Hopefully will find out the extent they expect it to reduce but i think it depends on the individual reaction; hopefully a lot!
Morning guys i am now just over 4 weeks post Radiotherapy and apart from the occasional hot flush no other side effects , approx 10 days ago i started sleeping right through the night which was brilliant , on the 29th of May i had my second 3mthly Hormone injection and immediately i was back to waking up after a couple of hrs and significantly more hot flushes , is this to be expected , will the effects of the Hormone injections reduce over time , many thanks Geoff .
Geoff-agmsd said:
Morning guys i am now just over 4 weeks post Radiotherapy and apart from the occasional hot flush no other side effects , approx 10 days ago i started sleeping right through the night which was brilliant , on the 29th of May i had my second 3mthly Hormone injection and immediately i was back to waking up after a couple of hrs and significantly more hot flushes , is this to be expected , will the effects of the Hormone injections reduce over time , many thanks Geoff .
It depends on each individual and the injection you are on. I had hot flushes for two years from start to finish. You may also start to have some of the other side effects such as depression or man boobs as you progress. If you find you are really struggling with them you can ask to try a different drug.
Well two sessions in now. The most arduous part is delays sitting in the waiting room for up to 90 minutes trying to manage the water inflow/outflow to maintain a reasonably full bladder whilst five other guys in slippers and dressing gown (mostly old hands at this) discuss bladder management. It's so easy to get sent back to the waiting room if your bladder isn't suitably full. I had to empty out a cup and a half yesterday as mine was too full. Such fun.
Last week, one of the three radiotherapy machines broke down because a guy had to let go whilst lying on the bed and his urine had shorted out the electrics. I can't imagine how embarrassing that must have been.
Last week, one of the three radiotherapy machines broke down because a guy had to let go whilst lying on the bed and his urine had shorted out the electrics. I can't imagine how embarrassing that must have been.
BoomerPride said:
Well two sessions in now. The most arduous part is delays sitting in the waiting room for up to 90 minutes trying to manage the water inflow/outflow to maintain a reasonably full bladder whilst five other guys in slippers and dressing gown (mostly old hands at this) discuss bladder management. It's so easy to get sent back to the waiting room if your bladder isn't suitably full. I had to empty out a cup and a half yesterday as mine was too full. Such fun.
Last week, one of the three radiotherapy machines broke down because a guy had to let go whilst lying on the bed and his urine had shorted out the electrics. I can't imagine how embarrassing that must have been.
it's hard enough controlling your bladder with a healthy sized prostate!Last week, one of the three radiotherapy machines broke down because a guy had to let go whilst lying on the bed and his urine had shorted out the electrics. I can't imagine how embarrassing that must have been.
feel for the fella the blew the fuse; good luck with the treatment
westberks said:
BoomerPride said:
Well two sessions in now. The most arduous part is delays sitting in the waiting room for up to 90 minutes trying to manage the water inflow/outflow to maintain a reasonably full bladder whilst five other guys in slippers and dressing gown (mostly old hands at this) discuss bladder management. It's so easy to get sent back to the waiting room if your bladder isn't suitably full. I had to empty out a cup and a half yesterday as mine was too full. Such fun.
Last week, one of the three radiotherapy machines broke down because a guy had to let go whilst lying on the bed and his urine had shorted out the electrics. I can't imagine how embarrassing that must have been.
it's hard enough controlling your bladder with a healthy sized prostate!Last week, one of the three radiotherapy machines broke down because a guy had to let go whilst lying on the bed and his urine had shorted out the electrics. I can't imagine how embarrassing that must have been.
feel for the fella the blew the fuse; good luck with the treatment
My MRI was booked for last Friday but postponed at the last moment because the pre scan form identified that, back in 1985 I had had a metal fragment removed from my eye. I had to have my eyes X rayed and the film reviewed by a specialist.
Scan re-scheduled for tomorrow and appointment on Friday to review findings with consultant
Scan re-scheduled for tomorrow and appointment on Friday to review findings with consultant
Geoff-agmsd said:
Afternoon guys had a PSA test on Tue and just have the result , when i started my Prostate journey last Nov i was at 8.73 now i am at 0.14 , only side effects are hot flushes even those are reducing also sleeping well , all the best to everyone just starting their journey , Geoff .
excellent newsNot sure if this has been mentioned before, but is it worth splitting this thread into 2. People who have, or think they might have Prostate Cancer in one thread, and then people who don't have cancer but have prostate issues in the other thread. Personally, I'm in the 2nd bucket, and am quite happy to read about everything prostate related, but I was thinking that people who have the worst of problems possibly don't want to read about people who have relatively minor issues.
What are the options available for treatment of an enlarged prostate?
Thanks to my enlarged prostate my bladder is gradually getting worse in that I'm now waking up between 4am-5am to pee, and I can never get back to sleep again so i'm often tired during the day. Needing to pee more often through the day too. Got another PSA test in a few days (had lone last year with MRI & biopsy but thankfully all clear).
I'm hoping for another high PSA result to trigger another appointment with Urology Dept and MRI so I can discuss it further with them.
Thanks to my enlarged prostate my bladder is gradually getting worse in that I'm now waking up between 4am-5am to pee, and I can never get back to sleep again so i'm often tired during the day. Needing to pee more often through the day too. Got another PSA test in a few days (had lone last year with MRI & biopsy but thankfully all clear).
I'm hoping for another high PSA result to trigger another appointment with Urology Dept and MRI so I can discuss it further with them.
Just 'checking in.' Now 5 months in since discontinuing my principal drug Enzalutamide (on Consultant's instruction).
PSA holding at zero! Staying on Tamsilosin though, probably indefinitely. I am told that it may take up to a year for the effects of the drug to go completely but my energy levels are already improving. The whole process of 'getting back to normal' is quite enjoyable.
I am an avid follower of this thread and seeing people share experiences at all levels I find to be useful and reassuring, therefore I'm against splitting the thread for that reason.
Viper - Thank you for your wise words from time to time. I was devastated top hear about your problems with NHS. A load of grief you don't need at a difficult time.
Crankedup - Where are you? I think we started on here at around the same time and I'd love to hear how you're doing.
PSA holding at zero! Staying on Tamsilosin though, probably indefinitely. I am told that it may take up to a year for the effects of the drug to go completely but my energy levels are already improving. The whole process of 'getting back to normal' is quite enjoyable.
I am an avid follower of this thread and seeing people share experiences at all levels I find to be useful and reassuring, therefore I'm against splitting the thread for that reason.
Viper - Thank you for your wise words from time to time. I was devastated top hear about your problems with NHS. A load of grief you don't need at a difficult time.
Crankedup - Where are you? I think we started on here at around the same time and I'd love to hear how you're doing.
The Gauge said:
What are the options available for treatment of an enlarged prostate?
Thanks to my enlarged prostate my bladder is gradually getting worse in that I'm now waking up between 4am-5am to pee, and I can never get back to sleep again so i'm often tired during the day. Needing to pee more often through the day too. Got another PSA test in a few days (had lone last year with MRI & biopsy but thankfully all clear).
I'm hoping for another high PSA result to trigger another appointment with Urology Dept and MRI so I can discuss it further with them.
Was posted a couple of months agoThanks to my enlarged prostate my bladder is gradually getting worse in that I'm now waking up between 4am-5am to pee, and I can never get back to sleep again so i'm often tired during the day. Needing to pee more often through the day too. Got another PSA test in a few days (had lone last year with MRI & biopsy but thankfully all clear).
I'm hoping for another high PSA result to trigger another appointment with Urology Dept and MRI so I can discuss it further with them.
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At my last consultation I was told as active surveillance, Gleason 6 , no change in lump/ nodule in 4 yrs they were moving me to psa 18 months , mri 36 months .
Received letter today saying as above no change but psa would be 6 monthly , mri 24 monthly .
Much happier with that and as I have mri for kidney at 1 yr , 3 yrs & 5 yrs , it will mean I’ll have a mri every year , they picked up kidney issue from prostrate biopsy so I’d guess they could see a change in prostrate from kidney mri .
Received letter today saying as above no change but psa would be 6 monthly , mri 24 monthly .
Much happier with that and as I have mri for kidney at 1 yr , 3 yrs & 5 yrs , it will mean I’ll have a mri every year , they picked up kidney issue from prostrate biopsy so I’d guess they could see a change in prostrate from kidney mri .
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