Prostate cancer

Author
Discussion

westberks

974 posts

137 months

Friday 17th May
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surgery now scheduled for 25th June for a PAE (Prostate artery embolisation) as a first step in my treatment 'journey'

hopefully that will help the prostate contract sufficiently for a subsequent Holep surgery if required.

having been front row of a comedy gig on Tuesday and needing to pee (again) 20 minutes in; this can't come soon enough. I'm now on first name terms with Kevin Bridges; the irony was his 42 year old warm up joking about his first prostate exam! Art imitating life!

mark387mw

2,180 posts

269 months

Friday 17th May
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I’ve been reading up on PAE as that’s the likely future for me.
Urologist said my prostate is ‘humongous’ explaining the high PSA. Too big for most options so I think PAE will be inevitable when it’s time. I have an appointment next week to discuss my IPSS and other symptoms.

I understand the method of PAE but once the blood is cut off, how far does it shrink/die?
I visualise a dead prostate hanging around the base of my bladder!

westberks

974 posts

137 months

Sunday 19th May
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mark387mw said:
I’ve been reading up on PAE as that’s the likely future for me.
Urologist said my prostate is ‘humongous’ explaining the high PSA. Too big for most options so I think PAE will be inevitable when it’s time. I have an appointment next week to discuss my IPSS and other symptoms.

I understand the method of PAE but once the blood is cut off, how far does it shrink/die?
I visualise a dead prostate hanging around the base of my bladder!
I'm also in team 'humungous'. I've been referred from my local major hospital to a adjoining trust with better facilities for Holep; they immediately passed me onto the department that do the PAE.

I'm then going to have a follow up MRI a few months later to measure the reduction and then maybe holep the rest of it. Hopefully will find out the extent they expect it to reduce but i think it depends on the individual reaction; hopefully a lot!

Geoff-agmsd

19 posts

68 months

Morning guys i am now just over 4 weeks post Radiotherapy and apart from the occasional hot flush no other side effects , approx 10 days ago i started sleeping right through the night which was brilliant , on the 29th of May i had my second 3mthly Hormone injection and immediately i was back to waking up after a couple of hrs and significantly more hot flushes , is this to be expected , will the effects of the Hormone injections reduce over time , many thanks Geoff .

AstonZagato

12,769 posts

212 months

I think everyone is a bit different (and there are different injections). I'd say that my hot flushes have become less extreme but i do notice them a bit more after my Decapeptyl injection.

BoomerPride

3,977 posts

259 months

Geoff-agmsd said:
Morning guys i am now just over 4 weeks post Radiotherapy and apart from the occasional hot flush no other side effects .
That is interesting to hear. I start my twenty sessions on Wednesday morning.

Viper201

7,899 posts

145 months

Geoff-agmsd said:
Morning guys i am now just over 4 weeks post Radiotherapy and apart from the occasional hot flush no other side effects , approx 10 days ago i started sleeping right through the night which was brilliant , on the 29th of May i had my second 3mthly Hormone injection and immediately i was back to waking up after a couple of hrs and significantly more hot flushes , is this to be expected , will the effects of the Hormone injections reduce over time , many thanks Geoff .
It depends on each individual and the injection you are on. I had hot flushes for two years from start to finish. You may also start to have some of the other side effects such as depression or man boobs as you progress. If you find you are really struggling with them you can ask to try a different drug.

Geoff-agmsd

19 posts

68 months

Wednesday
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BoomerPride said:
That is interesting to hear. I start my twenty sessions on Wednesday morning.
Morning all the best with your sessions , the Oncology center i was at was Clatterbridge/Wirral and without exception everybody there was brilliant .

BoomerPride

3,977 posts

259 months

Wednesday
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Thank you! Just preparing bowel and bladder bounce

BoomerPride

3,977 posts

259 months

Yesterday (13:49)
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Well two sessions in now. The most arduous part is delays sitting in the waiting room for up to 90 minutes trying to manage the water inflow/outflow to maintain a reasonably full bladder whilst five other guys in slippers and dressing gown (mostly old hands at this) discuss bladder management. It's so easy to get sent back to the waiting room if your bladder isn't suitably full. I had to empty out a cup and a half yesterday as mine was too full. Such fun.

Last week, one of the three radiotherapy machines broke down because a guy had to let go whilst lying on the bed and his urine had shorted out the electrics. I can't imagine how embarrassing that must have been.