Bowel surgery for Cronh's, any experience

Bowel surgery for Cronh's, any experience

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Rick_1138

Original Poster:

3,691 posts

180 months

Thursday 6th February 2014
quotequote all
Think I got injections in side of abdomen too so that helps. Just lack of sleep that's a pest, getting some bursts but not tired just symptoms of it

Rick_1138

Original Poster:

3,691 posts

180 months

Thursday 6th February 2014
quotequote all
richtea78 said:
Fentonil is pretty good as well

Glad it went well

I had the same a few years ago after an emergency admission due to a perforation.
Oddly an old school mate had exact same thing as you and was telling me which nurses to look out for lol

Rick_1138

Original Poster:

3,691 posts

180 months

Thursday 6th February 2014
quotequote all
Cheers Eskilo I hope all goes fine with the newborn and your Mrs :-).

Starting to get tender now and morphine button getting more use. However I believe the word Tremadol has been mentioned!

Rick_1138

Original Poster:

3,691 posts

180 months

Thursday 6th February 2014
quotequote all
Cheers Eskilo I hope all goes fine with the newborn and your Mrs :-).

Starting to get tender now and morphine button getting more use. However I believe the word Tremadol has been mentioned!

Rick_1138

Original Poster:

3,691 posts

180 months

Thursday 6th February 2014
quotequote all
Well its the proper pain/drug specialist that suggests tramadol. I find bus company never works for me.

Rick_1138

Original Poster:

3,691 posts

180 months

Friday 7th February 2014
quotequote all
Well once I'm recovered Mrs 1138 and I are getting guinea pigs so one of them could warm lol. Worst bit now is the pain as it gets worse as drugs wear off. Pain button helps but had a fresh blood pat have under dressing but not pooling but was worrying. Nurses have been fab though and relax me a lot. God I need a sleep though. 1 hour at most just now.

Rick_1138

Original Poster:

3,691 posts

180 months

Friday 7th February 2014
quotequote all
Nothing yet. Just had shower now dressing change and onto tablet pain relief soon.eating okay though and no nausea so will just have to wait. Doc says seeing wind come through will be fine

Rick_1138

Original Poster:

3,691 posts

180 months

Friday 7th February 2014
quotequote all
Nothing yet. Just had shower now dressing change and onto tablet pain relief soon.eating okay though and no nausea so will just have to wait. Doc says seeing wind come through will be fine

Rick_1138

Original Poster:

3,691 posts

180 months

Saturday 8th February 2014
quotequote all
Night 3 after surgery....its a bit stingy. Getting up to pea every few hours in a jar loses its appeal quickly. Wound if fine apart from 3 areas, 1 just above the groin hurts like feck especially when walking.

A chest x-ray at midnight was an interesting trip. As was a shot load of blood being taken and new venflon.

This is to check for any chest infections. So tired but tender so hard to relax. Nurses are er friendly and gave me painkillers just now.

It's at this time you realise tablets and bowel pain may have been acceptable to live with lol.

Rick_1138

Original Poster:

3,691 posts

180 months

Saturday 8th February 2014
quotequote all
I had a catheter for the first 2 days, was fitted during surgery. Removing was weird but not especially painful, more burning. Had some wind. Surgeon came to see me, gave the juniors a bit of a bking for giving me chest infection antibiotics and not regular ones as no real evidence to suggest.

He says I look great and all went well so I get to walk about ward and have some tea now snacks and all being well with an x-ray last night I may get home tomorrow!

Rick_1138

Original Poster:

3,691 posts

180 months

Saturday 8th February 2014
quotequote all
Cheers chief. Feeling much calmer now. Hopefully get home soon and won't be too many dramas. Looking forward to breaking bad dvd :-).

Rick_1138

Original Poster:

3,691 posts

180 months

Saturday 8th February 2014
quotequote all
Yeah only in since Wednesday and docs are very happy. Seems doing stuff on right hand side has less complications etc with blood vessels etc.

Hopefully will get good pain relief stuff and plan of action before leaving.

Also bed space is at a premium so if I am okay after tonight what with getting up to pee etc I should be okay. Only issue is I haven't had a no2 yet but have passed wind.

Seems it was less of the small bowel than expected. More the ileum, appendix and start of large. This may make it simpler.

Rick_1138

Original Poster:

3,691 posts

180 months

Saturday 8th February 2014
quotequote all
That sounds pretty harsh. Luckily mine was well planned and had prep etc. So hopefully went well and they knew what to look for from previous MRI and scans. Fingers crossed it's as routine as it seems and take each day as it comes.
Does the first time you go for no2 does it hurt or is it more normal?

Rick_1138

Original Poster:

3,691 posts

180 months

Saturday 8th February 2014
quotequote all
Nope am on paracetamol and a tablet painkiller. They were quick to get me off the morphine. I don't expect the world's smoothest poo but we will hope it's not too painful.

Rick_1138

Original Poster:

3,691 posts

180 months

Sunday 9th February 2014
quotequote all
Well after being very distended and the nurse hadn't known I was supposed to get morphine replacement I ended up going to loo to pass wind. Was in fact the whole event. No dramas just visit loose and asked for a pad incase I miss the next departure. Feel much happier but still very tender. You forget that you are not supposed to be in pain so don't think to ask for pain relief when obviously in distress.

Hopefully can move onto wound pain levelling and getting home in the next week

Rick_1138

Original Poster:

3,691 posts

180 months

Monday 10th February 2014
quotequote all
Well that's everything back to normal working order at least. Hopefully getting home tomorrow. Just tight and painful under the skin but docs happy with wound.

Main thing now is to relax and for the love of god try not to cough :-.

:-)

Rick_1138

Original Poster:

3,691 posts

180 months

Tuesday 11th February 2014
quotequote all
Well got home fine. Be in looked after by the Mrs.

Sleeping in spare room to avoid fidgeting, got 1989 batman on, heaps of pillows holding me up.

Main issues are indigestion, groin throbbing, and still very tender but happy to be home.

Lots of tablets in a bag.

Rick_1138

Original Poster:

3,691 posts

180 months

Tuesday 18th March 2014
quotequote all
nail_it said:
Any update?
Hope all is okay
Yeah, sorry not been keeping up my notes during my 4 week incarceration in my flat hehe.

All seems pretty good, no pain in the abdomen that I used to get so in that respect the surgery is a complete success.

The only issues now are tenderness in the scar (obviously) so sleeping on my front is still too sore but my body wants to do this when I fall asleep so I wake up in the night so tired a lot.

The other issue is that now I no longer have bowel pain, I find that I need the loo suddenly but its not often the runs, so going on trips is stressful, like it was some 10 years ago when I just had diarrhea etc, but hopefully when I go back on my Azathioprene in a few weeks that will settle down again as it worked before it just couldn't stop the scar area pain.

Other thing is just slightly below the base of the scar I get a tender\sharp twinge in the muscle, a friend thinks this could be an anchor stitch for the bowel that's dissolving and movement is still tender in that area but otherwise I get around fine.

Back to work now, doing 3 half days, then 3 full days next week and full time on the 31st boss has been ace and knows I am not taking the piss etc. I was off painkillers 2 weks ago so just take paracetamol or ibuprofen if needs be but that's rare.

Looking forward to seeing the specialist again and getting my meds back so I can plan holidays with mrs and not be so stressed as I have been for over a decade.

Its been great, just hoping the stinging pain I get now and then subsides, buying 3 guinea pigs was maybe a bad move with all the cleaning and bending, but its good exercise, and they are awful cute.

Titanfall is now taking up most of my free time till I go back to work properly, much to my GF's eye rolling smile

Glad I did it though, feel less painful, lost weight\no bloating, and feel more agile.

Rick_1138

Original Poster:

3,691 posts

180 months

Tuesday 1st April 2014
quotequote all
Got blood test today, but phoned the specialist last week myself as my GP hadn't, he was happy days for me starting again, so should start tomorrow.

Only thing pissing me off now is the dry skin on my arm I thought was dry skin is in fact ringworm...sigh, never had it before but was driving me barmy this morning, I now have a cream to apply....

Rick_1138

Original Poster:

3,691 posts

180 months

Wednesday 14th May 2014
quotequote all
Hi folks,

Looking for some experience on this.

Its been 3 months since my surgery and after talking with the IBD nurse and Cronhs specialist they are very happy with my recovery, they say I look confident walking along the corridor and not in any pain which is surprising after full surgery, not just keyhole.

However I am scheduled to start getting Vitamin B12 injections, and I said I was feeling lethargic and have been having mild headaches a lot of the time, which is unusual for me, and they took blood tests to see if I am okay to carry on with azathioprine.

Apparently my B12 levels are okay, anything between 200 and 700, and I am sitting at 400, so they say I am doing okay there but she did say a nurse in the dept has the same as me and had a right heliocolectomy and had normal B12 levels but was like me and got worse, once she had the injections she flipped back to being normal.

I just wondered if anyone here is on the B12 and what their experience is like on it.

I feel just now that even after 8 hours sleep I am tired, and my forehead and behind the eyes hurts a bit most of the day.

Anyone had similar and found the B12 works. I am getting first shot tomorrow if doctor is happy to give it.