What's wrong with me?!
Discussion
E65Ross said:
Edit - lots of people keep saying they're proud, I'm doing so well and coping amazingly, I'm being inspirational etc but I'm not exactly sure why? How would others be? I've had my moments, mostly in the 1st week but now I don't see how moping is going to help, this has happened, it's s
t but I need to deal with it. Do I want to get better? Bloody right.... So may as well take things on board and try. You just grit your teeth and get on with it, what the f
k else you gonna do? Looking from the outside in you may look all heroic and whatnot but from your perspective it's just getting on with it. Again, what the f
k else you gonna do!Anyway, good luck and keep plugging away
Great stuff Ross. It must be an arse having the tube etc. however, you are doing brilliantly.
You are still being an impatient sod and that will only serve you well!
Time is the healer, but the more you go for it and the more you try to get better, then the fasteryour recovery.
Keep it up,I expect you to beat the expected norm and get yourself home before 2015.
You are still being an impatient sod and that will only serve you well!
Time is the healer, but the more you go for it and the more you try to get better, then the fasteryour recovery.
Keep it up,I expect you to beat the expected norm and get yourself home before 2015.
E65Ross said:
Edit - lots of people keep saying they're proud, I'm doing so well and coping amazingly, I'm being inspirational etc but I'm not exactly sure why? How would others be? I've had my moments, mostly in the 1st week but now I don't see how moping is going to help, this has happened, it's st but I need to deal with it. Do I want to get better? Bloody right.... So may as well take things on board and try.
Because I get my knickers in a twist and bite the head off anyone who crosses my path if my drive home is st but I need to deal with it. Do I want to get better? Bloody right.... So may as well take things on board and try. t or if the milk goes off. If I had gone through wht you've gone through, with all the waiting, wondering, puking, stty side effects, major surgery, being dumped in l'hopital at Chrimbo, given a trach, eating through a tube etc, I'd be as narky as fk with all and sundry, especially a bunch of faceless geeks on the internet. 
At the very least, this thread has put things in to perspective for a lot of people, which I'd say is pretty inspirational.
Happy Christmas, get well soon
SydneyBridge said:
You must be feeling a bit better when you start to notice how attractive the nurses are..
Some of them are really nice!! Updates for this morning....
Feeling a bit better still. Stomach peg seems easy enough to care for and at rest there is no discomfort. On deep breathing in there is some marked discomfort over the insertion point but I'm sure I'll cope. Saw the physios and walked up some steps and back down. They were happy to take my crutches away and said keep doing what I'm doing because I'm doing really well and they are happy to not see me again unless I need it.
My calves are stiff as f
k so been doing a few stretches. Went to go to the shower but it's bloody occupied so I'll try again in a bit. st nights sleep last night so think after the shower I'll get some more sleep. Haven't had a s
t since Saturday and dietician put me on a higher fibre feed.... Too bad the fking nurse didn't put it up last night so hopefully that'll help. Also had some laxatives this morning.... Speech valve went in yesterday and felt uncomfortable after a few mins, but this morning I had it in from 8-10 and wasn't too bad. Speech also seems a touch better.
AppaaApparenthey will have to change the trachy tube type before I go home, and being Xmas and boxing day I'm now doubtful of a new year return but we'll see. I suppose 1 benefit of staying here longer I'd that when I do go home I know I'll definitely be ok...
As ever, will keep you posted.
See.... All this stuff, you wouldn't get it anywhere else except PH (or perhaps mumsnet).
BlackVanDyke said:
You're gonna feel like some fker's punched you hard in the stomach when your new PEG's in. Surgeon never warned me, but it gets better really fast afterwards - you'll be able to forget it's there in a couple of days.
Keep going matey.
You weren't wrong. Just went for a 10-15min walk and added a couple of flights of stairs in too and that peg started fker's punched you hard in the stomach when your new PEG's in. Surgeon never warned me, but it gets better really fast afterwards - you'll be able to forget it's there in a couple of days. Keep going matey.
king killing me! Guess I'll just do a shorter walk later and take it easier. Lots of visitors later and my brother (coming in 4-8) is bringing a few board games which will be good. I can't take a full deep breath in without the peg being quite sore which isn't ideal when I need to cough with relative frequency!
Feeling in the wars but I know I'm more than over the worst of it so I must keep positive!
I'm in a right state now i know but looking back I was a right mess 3 weeks ago. Cannot believe it's day 24 now. The days seem to be passing a bit quicker now. In icu visiting was 10-8 and I was basically a cabbage. Now visiting is 3-8 but I've got a bit of a routine (ish) now..... Get up around 9, nebulise myself, by the time I then get a few drugs down me, my night feed had finished and I have a shower usually around 10. Finish that and get back, go for a walk it's about 11,quick nap for an hour or so and then maybe another walk, feed my self etc, have another nap and it's almost visiting time. After that I'm pretty much ready for bed so the time goes quicker here I think.
Sucks being here over Xmas but I'm not a massive Xmas person anyway. I don't even celebrate new year, the reason I want out by new year is because I didn't want to spend over a month here but we'll see.
Just came across this thread and read through the whole thing. All I'm going to say is thank you for posting this. speaking selfishly I've been struggling with my own personal issues and you forget how much you get caught up in your own little bundle. It takes reading something like this to wake you up and realise your own problems are nothing and to suck it up and get on with it.
I wish you all the best with your recovery my friend.
I wish you all the best with your recovery my friend.
[quote=E65Ross
Edit - lots of people keep saying they're proud, I'm doing so well and coping amazingly, I'm being inspirational etc but I'm not exactly sure why? How would others be? I've had my moments, mostly in the 1st week but now I don't see how moping is going to help, this has happened, it's st but I need to deal with it. Do I want to get better? Bloody right.... So may as well take things on board and try.
[/quote]
People find it hard to imagine themselves in your shoes and therefore put you on a bit of a pedestal. They don't realise that there's essentially no choice, certainly no decision involving bravery etc (that one I refer to those who willingly walk into burning buildings, lines of fire etc despite their own fear in order to help others) - you keep going cos that's what humans do, mostly. Which isn't to say you aren't awesome, cos you are. But I think people say things to set you aside as different from themselves, because they can't imagine going through it themselves.
You are doing well though, in that you've made good progress from where you were immediately post-op to now, and that's worth celebrating but it's a bit different from 'inspiration' etc.
Have a great Christmas. Hope you're not on too many booze-incompatible drugs.
Edit - lots of people keep saying they're proud, I'm doing so well and coping amazingly, I'm being inspirational etc but I'm not exactly sure why? How would others be? I've had my moments, mostly in the 1st week but now I don't see how moping is going to help, this has happened, it's s
t but I need to deal with it. Do I want to get better? Bloody right.... So may as well take things on board and try. [/quote]
People find it hard to imagine themselves in your shoes and therefore put you on a bit of a pedestal. They don't realise that there's essentially no choice, certainly no decision involving bravery etc (that one I refer to those who willingly walk into burning buildings, lines of fire etc despite their own fear in order to help others) - you keep going cos that's what humans do, mostly. Which isn't to say you aren't awesome, cos you are. But I think people say things to set you aside as different from themselves, because they can't imagine going through it themselves.
You are doing well though, in that you've made good progress from where you were immediately post-op to now, and that's worth celebrating but it's a bit different from 'inspiration' etc.
Have a great Christmas. Hope you're not on too many booze-incompatible drugs.
Been a mixed bag at home. Seem a little bit more dizzy and still have the headache when I cough or sit for two long so I'll mention that when I go back to the hospital in a minute.
Has been nice to be home but I had to lie down a lot and couldn't enjoy myself as much as if have liked.
Because I hadn't been to the loo from ages I managed to get some all-bran with milk and water mixed in a blender shoved down my tube got extra fibre
Oh well, 5 mins and time to get packed up to go back. I still haven't showered and need to shave when I get back too it now it's visiting hours so I'll still be quite busy.
Struggling to get some actual sleep at the moment too, it's largely just shut eye.
Has been nice to be home but I had to lie down a lot and couldn't enjoy myself as much as if have liked.
Because I hadn't been to the loo from ages I managed to get some all-bran with milk and water mixed in a blender shoved down my tube got extra fibre
Oh well, 5 mins and time to get packed up to go back. I still haven't showered and need to shave when I get back too it now it's visiting hours so I'll still be quite busy.
Struggling to get some actual sleep at the moment too, it's largely just shut eye.
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