5 Year Old Cancer Patient Abducted By Parents From Hospital!

5 Year Old Cancer Patient Abducted By Parents From Hospital!

Author
Discussion

supersingle

3,205 posts

219 months

Monday 23rd March 2015
quotequote all
Andy Zarse said:
mph1977 said:
grumbledoak said:
Bill said:
The NHS were predicting a 90+% (I can't remember the exact figure...) chance of a cure.
Oh give over. The NHS were offering a 90% chance of turning the kid into a vegetable. He clearly has had better treatment than was being threatened by the NHS.

Well done the parents for not being bullied, and best of luck to the kid on his continued recovery.
were you there when the treatment was explained? ( and possibly willfully misunderstood by the parents )

again another PHer wasted on here and who can obviously do much better than actual oncologists with access to all the clinical information ...

unfortunately the demands for full information giving in healthcare can and do backfire when patients / parents willfully misunderstand the full and correct but rather technical both clinically and statistically information demanded by the vocal minority ...


Edited by mph1977 on Monday 23 March 08:19
I have followed your contribution to this thread over the months and I think from a clinical perspective it has, to me at least, added some very worthwhile insight.

However, you demonstrate a lack of understanding, or any empathy for, the family's plight. You express yourself with a unique coldness and absence of compassion. Your refusal to accept medical perspectives other than your own and your antagonism and condescension towards other posters, presumably from a position of greater knowledge, diminishes your clinical contributions.

Consequently I find you a somewhat sinister individual.
Prepare to be accused of sociopathy and narcissism hehe

tdog7

236 posts

151 months

Monday 23rd March 2015
quotequote all
eldar said:
My understanding is that proton beam therapy, in this case, would not improve the chances of 'cure', but could reduce the likelihood and/or severity of any side effects. Is there truth in that, or have I misunderstood?
Possibly, as proton beam therapy is more targeted than conventional radiotherapy, but this benefit comes at a risk. The problem with medulloblastoma is that it can spread through the cerebrospinal fluid, with tiny deposits of cancerous cells away from the 'primary' cancer. Therefore the benefit of conventional radiotherapy is that the spinal column and rest of the brain are irradiated as well, potentially killing these cells distant to the primary tumour site. Now this may lead to more side effects, but is also likely to lead to less recurrence. Targeted therapy such as proton beam therapy may lead to less side effects, but if you don't irradiate the whole brain and spinal cord you risk missing cancerous cells that have spread. The cancers that proton beam therapy is of proven benefit are those where it is beneficial for the irradiation to be precisely targeted, such as retinal tumours, which don't spread in the same way.

eldar

21,763 posts

196 months

Monday 23rd March 2015
quotequote all
tdog7 said:
Possibly, as proton beam therapy is more targeted than conventional radiotherapy, but this benefit comes at a risk. The problem with medulloblastoma is that it can spread through the cerebrospinal fluid, with tiny deposits of cancerous cells away from the 'primary' cancer. Therefore the benefit of conventional radiotherapy is that the spinal column and rest of the brain are irradiated as well, potentially killing these cells distant to the primary tumour site. Now this may lead to more side effects, but is also likely to lead to less recurrence. Targeted therapy such as proton beam therapy may lead to less side effects, but if you don't irradiate the whole brain and spinal cord you risk missing cancerous cells that have spread. The cancers that proton beam therapy is of proven benefit are those where it is beneficial for the irradiation to be precisely targeted, such as retinal tumours, which don't spread in the same way.
Thanks, a clear explanation. Makes things a lot more understandable for me.

Lost soul

8,712 posts

182 months

Monday 23rd March 2015
quotequote all
I find it unfair that the parents are saying if he stayed in the UK he would be dead , apparently his form of cancer has a 79% cure rate with NHS treatment

youngsyr

14,742 posts

192 months

Monday 23rd March 2015
quotequote all
TwigtheWonderkid said:
HenryJM said:
the bottom line in my view is that reporting on from the Mail is scandalously bad done by journalists who have no clue what this is about.
Wow. And here's me thinking they only employed the finest medical journalists!
I really don't understand why people (a) read the Mail and (b) having read the Mail, expect to be anything but annoyed by the way a story is reported.

The Mail's entire strategy is to peddle sensationalism, more often that not at the expense of the (whole) truth.

HenryJM

6,315 posts

129 months

Monday 23rd March 2015
quotequote all
youngsyr said:
I really don't understand why people (a) read the Mail and (b) having read the Mail, expect to be anything but annoyed by the way a story is reported.

The Mail's entire strategy is to peddle sensationalism, more often that not at the expense of the (whole) truth.
Sure, it's just a shame that they publish it and people with little knowledge seem to believe it.

youngsyr

14,742 posts

192 months

Monday 23rd March 2015
quotequote all
HenryJM said:
youngsyr said:
I really don't understand why people (a) read the Mail and (b) having read the Mail, expect to be anything but annoyed by the way a story is reported.

The Mail's entire strategy is to peddle sensationalism, more often that not at the expense of the (whole) truth.
Sure, it's just a shame that they publish it and people with little knowledge seem to believe it.
The only contact I have with it is indirect through Pistonheads, where every other "news" story being discussed seems to be from the Dail Mail, simply because the paper has succeeded in winding a gullible member up.

Octoposse

2,161 posts

185 months

Monday 23rd March 2015
quotequote all
tdog7 said:
. . . . but to suggest that this case demonstrates that the NHS doctors were wrong, and the parents right is nothing short of ridiculous.
Perhaps, but - for me - the most concerning part of the story was the huge abuse by the state of its power (and I'm an employee of the state!).

Insider or not, we are familiar on a daily basis with the complete fking uselessness of 'authority' . . . we ignore paedophiles, we can't find anybody who has anything to do with FGM, we can't convict rapists, terrorists come and go with little inconvenience . . . but disagree with your child's doctor and we'll chuck Police resources pan-Europe at it untill you're secure in a foreign jail (and it is conceivable that their child could have died surrounded by strangers as a result).


Edited by Octoposse on Monday 23 March 12:16

Lost soul

8,712 posts

182 months

Monday 23rd March 2015
quotequote all
Octoposse said:
Insider or not, we are familiar on a daily basis with the complete fking uselessness of 'authority' . . . we ignore paedophiles, we can't find anybody who has anything to do with FGM, we can't convict rapists, terrorists come and go with little inconvenience . . . but disagree with your child's doctor and we'll chuck Police resources pan-Europe at it untill you're secure in a foreign jail (and it is conceivable that their child could have died surrounded by strangers as a result).
clap

TwigtheWonderkid

43,387 posts

150 months

Monday 23rd March 2015
quotequote all
youngsyr said:
TwigtheWonderkid said:
HenryJM said:
the bottom line in my view is that reporting on from the Mail is scandalously bad done by journalists who have no clue what this is about.
Wow. And here's me thinking they only employed the finest medical journalists!
I really don't understand why people (a) read the Mail and (b) having read the Mail, expect to be anything but annoyed by the way a story is reported.

The Mail's entire strategy is to peddle sensationalism, more often that not at the expense of the (whole) truth.
That's completely unfair. They normally start with a grain of truth, but then distort it and misreport it so the end story bears little resemblance to the actuality.

They usually get the date right.

Mojocvh

16,837 posts

262 months

Monday 23rd March 2015
quotequote all
Lost soul said:
Octoposse said:
Insider or not, we are familiar on a daily basis with the complete fking uselessness of 'authority' . . . we ignore paedophiles, we can't find anybody who has anything to do with FGM, we can't convict rapists, terrorists come and go with little inconvenience . . . but disagree with your child's doctor and we'll chuck Police resources pan-Europe at it untill you're secure in a foreign jail (and it is conceivable that their child could have died surrounded by strangers as a result).
clap
have a couple more

clapclap

mph1977

12,467 posts

168 months

Monday 23rd March 2015
quotequote all
supersingle said:
Prepare to be accused of sociopathy and narcissism hehe
why ?

Andy appears to, perhaps, confuse empathy and compassion with sympathy, which is fairly common among none Health Professionals when looking at what Health Professionals say and write ... (apologies to Andy if he is a Health professional but I get the impression not)

To an extent this is about professional socialisation and to some extent part of the psychological self protection mechanisms of health professionals by maintaining a degree of emotional seperation.

QuantumTokoloshi

4,164 posts

217 months

Monday 23rd March 2015
quotequote all
Octoposse said:
tdog7 said:
. . . . but to suggest that this case demonstrates that the NHS doctors were wrong, and the parents right is nothing short of ridiculous.
Perhaps, but - for me - the most concerning part of the story was the huge abuse by the state of its power (and I'm an employee of the state!).

Insider or not, we are familiar on a daily basis with the complete fking uselessness of 'authority' . . . we ignore paedophiles, we can't find anybody who has anything to do with FGM, we can't convict rapists, terrorists come and go with little inconvenience . . . but disagree with your child's doctor and we'll chuck Police resources pan-Europe at it untill you're secure in a foreign jail (and it is conceivable that their child could have died surrounded by strangers as a result).


Edited by Octoposse on Monday 23 March 12:16
Nail meet head. clap

BlackVanDyke

9,932 posts

211 months

Monday 23rd March 2015
quotequote all
QuantumTokoloshi said:
Octoposse said:
tdog7 said:
. . . . but to suggest that this case demonstrates that the NHS doctors were wrong, and the parents right is nothing short of ridiculous.
Perhaps, but - for me - the most concerning part of the story was the huge abuse by the state of its power (and I'm an employee of the state!).

Insider or not, we are familiar on a daily basis with the complete fking uselessness of 'authority' . . . we ignore paedophiles, we can't find anybody who has anything to do with FGM, we can't convict rapists, terrorists come and go with little inconvenience . . . but disagree with your child's doctor and we'll chuck Police resources pan-Europe at it untill you're secure in a foreign jail (and it is conceivable that their child could have died surrounded by strangers as a result).


Edited by Octoposse on Monday 23 March 12:16
Nail meet head. clap
This, exactly.

Add in some actual outright lies from the hospital to exaggerate the situation around the little lad's feeding needs and potential risks/problems thereof... and we have a pretty nasty picture.

I've had some similar problems on a much, much smaller and less dramatic scale. A tiny tiny minority of doctors (I dare say broadly the same proportion as the general population, but with too much power) become immensely aggressive in the face of any kind of disagreement and if you're unlucky enough, things can escalate extremely suddenly with absolutely no warning, with the potential for utterly horrific consequences.

carinaman

21,298 posts

172 months

Monday 23rd March 2015
quotequote all
BlackVanDyke said:
This, exactly.

Add in some actual outright lies from the hospital to exaggerate the situation around the little lad's feeding needs and potential risks/problems thereof... and we have a pretty nasty picture.

I've had some similar problems on a much, much smaller and less dramatic scale. A tiny tiny minority of doctors (I dare say broadly the same proportion as the general population, but with too much power) become immensely aggressive in the face of any kind of disagreement and if you're unlucky enough, things can escalate extremely suddenly with absolutely no warning, with the potential for utterly horrific consequences.
I'd like to see those parents get away with fleeing to France this week:

http://www.dailymail.co.uk/news/article-3006792/10...

As part of NATO the US Navy accept European Arrest Warrants?

Jasandjules

69,913 posts

229 months

Monday 23rd March 2015
quotequote all
BlackVanDyke said:
Add in some actual outright lies from the hospital to exaggerate the situation around the little lad's feeding needs and potential risks/problems thereof... and we have a pretty nasty picture.

If that is the case then I trust those liars are currently under arrest.....

BlackVanDyke

9,932 posts

211 months

Monday 23rd March 2015
quotequote all
Jasandjules said:
BlackVanDyke said:
Add in some actual outright lies from the hospital to exaggerate the situation around the little lad's feeding needs and potential risks/problems thereof... and we have a pretty nasty picture.

If that is the case then I trust those liars are currently under arrest.....
Course not, although if I'd the time and inclination (fraid I have neither, my daughter's in hospital) I could provide video clips and referenced evidence to refute what they said - it was stuff about his feeding pump.

johnxjsc1985

15,948 posts

164 months

Monday 23rd March 2015
quotequote all
what I remember is the heavy handed state arresting parents trying to do what they felt was best for their own son.

grumbledoak

31,536 posts

233 months

Monday 23rd March 2015
quotequote all
johnxjsc1985 said:
what I remember is the heavy handed state arresting parents trying to do what they felt was best for their own son.
yes An arrogant man with Doctor Complex threatening to take the decision/child from them, prompting them to flee, then straight onto the Stasi and the parents are not even safe abroad. A frightening insight into our future current situation.

johnxjsc1985

15,948 posts

164 months

Monday 23rd March 2015
quotequote all
grumbledoak said:
yes An arrogant man with Doctor Complex threatening to take the decision/child from them, prompting them to flee, then straight onto the Stasi and the parents are not even safe abroad. A frightening insight into our future current situation.
We like to poke fun at Russia and their freedoms yet this seems to have been swept under the Carpet by the great and the good.
Good news the boy and the family seem to be doing well