5 Year Old Cancer Patient Abducted By Parents From Hospital!
Discussion
grumbledoak said:
johnxjsc1985 said:
what I remember is the heavy handed state arresting parents trying to do what they felt was best for their own son.
An arrogant man with Doctor Complex threatening to take the decision/child from them, prompting them to flee, then straight onto the Stasi and the parents are not even safe abroad. A frightening insight into our What parents think is best is sometimes not what is actually best.
hairykrishna said:
What about the rights of the kid?
What parents think is best is sometimes not what is actually best.
it would appear in this situation the parents were correct.great news to hear the lad is free of cancer, i hope the family can get back to living a normal life free of constant worry now.What parents think is best is sometimes not what is actually best.
hairykrishna said:
grumbledoak said:
johnxjsc1985 said:
what I remember is the heavy handed state arresting parents trying to do what they felt was best for their own son.
An arrogant man with Doctor Complex threatening to take the decision/child from them, prompting them to flee, then straight onto the Stasi and the parents are not even safe abroad. A frightening insight into our What parents think is best is sometimes not what is actually best.
wc98 said:
it would appear in this situation the parents were correct.great news to hear the lad is free of cancer, i hope the family can get back to living a normal life free of constant worry now.
I don't think they were. At best he's got basically equivalent quality treatment to IMRT here. At worst they delayed the start of treatment enough that it was worse. What they did was certainly irresponsible and, in my opinion, foolish.I hope the kid continues to do well.
hairykrishna said:
I don't think they were. At best he's got basically equivalent quality treatment to IMRT here. At worst they delayed the start of treatment enough that it was worse. What they did was certainly irresponsible and, in my opinion, foolish.
I hope the kid continues to do well.
they didnt come across as idiots or people who would make a rash judgement and knowing far more than we do about their own child's ilness I would go with their decision as the right one and if recent reports are correct they have been vindicated.I hope the kid continues to do well.
the more worrying situation was the heavy handed state intervention which simply doesn't sit well with lots of us.
hairykrishna said:
They came across as making a very rash judgement to me. They know more than us but not more than the oncologist who was treating him.
They didnt just take him in the hope that they could find someone to treat him they already had knowledge of available treatments and where they could access them. That is not the action of "rash" people rather parents who believed better options were available after making exhaustive enquiries. it also appears that they made a good choice of treatment for their son as he is making good progress.
Jasandjules said:
I see all the anecdotes about the LCP are coming out again ... it is very convenient to blamce the LCP rather than address the issues with Nursign and medical management who implemented it as a protocol not a pathway and do not encourage ward staff to use guidelines and pathways intelligently , but this reflects the last gasps of a dying breed of clinicians those who were taught that the Doctor is all mighty and Nurses are good little handmaidens ...
we'll leave the fact that Farage wants to turn Nurses back into good little handmaidens for another topic.
johnxjsc1985 said:
They didnt just take him in the hope that they could find someone to treat him they already had knowledge of available treatments and where they could access them. That is not the action of "rash" people rather parents who believed better options were available after making exhaustive enquiries. it also appears that they made a good choice of treatment for their son as he is making good progress.
They took him to Spain to sell their house so they could afford to take him to the Czech Republic. And at a time when speed was important. There was an overreaction and they should never have been arrested but what they did was rash.
HenryJM said:
I unfortunately have a lot of experience of brain tumour and I have to say that what has been reported is quite dreadful. I hope I am wrong, I hope he is fine.
Firstly 5 months is nowhere near long enough to to know what is going to happen. Personally I had a brain tumour diagnosed in November 2013 and removed at the start of December 2013. It was September 2014 before there was any sign of it reoccurring, that is not unusual, albeit every case being different. (It is worth noting that variation in tumours is huge, comparing one to another is in itself or dubious scope).
There is a comment that the NHS were talking about a 90% chance of turning the kid into a vegetable - I didn't see that but it rings true in that is precisely what can happen depending on the treatment. A key issue, and a major positive about the NHS, is their understanding of that. A very significant danger in surgical removal of a tumour is that it can result in a patient who remains alive but has very doubtful life quality ahead. Now that is a massively hard issue, in my case I have had surgery in the UK twice and on both occasions they have done so with little impact on my mental capability. Now that is huge, it cannot be misunderstood or down treated and some of the surgeons that we have working here are world leaders in their ability to do that. (I am fortunate, a multi-millionaire who can afford whatever it takes, although most of what is best comes from the NHS). Now there is a balance, they want to remove 100% or the tumour and retain 100% of the real brain, but a that's far from easy. A route is to take some brain with the tumour, makes it more likely to remove the whole tumour but also likely/certain to remove some ability of the patient. So coming out of it with no ability to remember, or to speak, or to control their limbs or be a person is a major issue. Being alive isn't it, it's being alive with a quality of life that matters.
I could go on for a long time on this, but the bottom line in my view is that reporting on from the Mail is scandalously bad done by journalists who have no clue what this is about. I hope that in this case the kid recovers well, doesn't have another tumour and is able to lead a good life. But to print something that may influence other people against what is happening here is just wrong. Knowing, as I do, people like Neil Kitchen - Lead Neurosurgeon at the National Surgery for Neurology and Neurosurgery - gives me a perspective and understanding of this that perhaps many others do not glean.
This.Firstly 5 months is nowhere near long enough to to know what is going to happen. Personally I had a brain tumour diagnosed in November 2013 and removed at the start of December 2013. It was September 2014 before there was any sign of it reoccurring, that is not unusual, albeit every case being different. (It is worth noting that variation in tumours is huge, comparing one to another is in itself or dubious scope).
There is a comment that the NHS were talking about a 90% chance of turning the kid into a vegetable - I didn't see that but it rings true in that is precisely what can happen depending on the treatment. A key issue, and a major positive about the NHS, is their understanding of that. A very significant danger in surgical removal of a tumour is that it can result in a patient who remains alive but has very doubtful life quality ahead. Now that is a massively hard issue, in my case I have had surgery in the UK twice and on both occasions they have done so with little impact on my mental capability. Now that is huge, it cannot be misunderstood or down treated and some of the surgeons that we have working here are world leaders in their ability to do that. (I am fortunate, a multi-millionaire who can afford whatever it takes, although most of what is best comes from the NHS). Now there is a balance, they want to remove 100% or the tumour and retain 100% of the real brain, but a that's far from easy. A route is to take some brain with the tumour, makes it more likely to remove the whole tumour but also likely/certain to remove some ability of the patient. So coming out of it with no ability to remember, or to speak, or to control their limbs or be a person is a major issue. Being alive isn't it, it's being alive with a quality of life that matters.
I could go on for a long time on this, but the bottom line in my view is that reporting on from the Mail is scandalously bad done by journalists who have no clue what this is about. I hope that in this case the kid recovers well, doesn't have another tumour and is able to lead a good life. But to print something that may influence other people against what is happening here is just wrong. Knowing, as I do, people like Neil Kitchen - Lead Neurosurgeon at the National Surgery for Neurology and Neurosurgery - gives me a perspective and understanding of this that perhaps many others do not glean.
Octoposse said:
tdog7 said:
. . . . but to suggest that this case demonstrates that the NHS doctors were wrong, and the parents right is nothing short of ridiculous.
Perhaps, but - for me - the most concerning part of the story was the huge abuse by the state of its power (and I'm an employee of the state!). Insider or not, we are familiar on a daily basis with the complete f
king uselessness of 'authority' . . . we ignore paedophiles, we can't find anybody who has anything to do with FGM, we can't convict rapists, terrorists come and go with little inconvenience . . . but disagree with your child's doctor and we'll chuck Police resources pan-Europe at it untill you're secure in a foreign jail (and it is conceivable that their child could have died surrounded by strangers as a result).Two years ago, a very good friend was diagnosed with a brain tumor. After surgery to remove the tumor, he was given radio therapy.
This therapy absolutely, totally, utterly and completely buggered up his final few months. It didn't prolong his life- it shortened it.
don4l said:
Very well said.
Two years ago, a very good friend was diagnosed with a brain tumor. After surgery to remove the tumor, he was given radio therapy.
This therapy absolutely, totally, utterly and completely buggered up his final few months. It didn't prolong his life- it shortened it.
I still believe the parents should have the final say in their childs healthcare.I think we all or at least those of us of a certain age have lost friends to cancer so I know that there are no guarantees with any treatment.Two years ago, a very good friend was diagnosed with a brain tumor. After surgery to remove the tumor, he was given radio therapy.
This therapy absolutely, totally, utterly and completely buggered up his final few months. It didn't prolong his life- it shortened it.
I think the NHS respect religous values when administering care,so why not the people who brought him into this world
johnxjsc1985 said:
I still believe the parents should have the final say in their childs healthcare.I think we all or at least those of us of a certain age have lost friends to cancer so I know that there are no guarantees with any treatment.
I think the NHS respect religous values when administering care,so why not the people who brought him into this world
as if by magic someone who appears to demonstrate the attitude that dogs, staff, children and wives are chattels ... I think the NHS respect religous values when administering care,so why not the people who brought him into this world
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