The Cancer Kiss off - being dumped after diagnosis
Discussion
205alive said:
OP, have you heard of DCA (dichloroacetate) and it's use against cancers? It's a very cheap drug which has shown a lot of promise, with a very well informed online community based at http://www.thedcasite.com/
Specifically, have a look at http://www.thedcasite.com/Laurine_Kress_colon_canc...
and
http://www.thedcasite.com/Colo_rectal_to_liver.htm...
http://www.thedcasite.com/dca-forum/topic/new-idea...
There is a huge amount of good info at the above site - give it a good read through, eh?
Edited to add, this is the first paper which was published about the use of this drug against cancer and the results:
http://www.sciencedirect.com/science/article/pii/S...
Please don't push pseudoscience to someone and tout it as some amazing drug, all sensible cancer societies say there's no evidence, remember the plural of anecdote is not data.Specifically, have a look at http://www.thedcasite.com/Laurine_Kress_colon_canc...
and
http://www.thedcasite.com/Colo_rectal_to_liver.htm...
http://www.thedcasite.com/dca-forum/topic/new-idea...
There is a huge amount of good info at the above site - give it a good read through, eh?
Edited to add, this is the first paper which was published about the use of this drug against cancer and the results:
http://www.sciencedirect.com/science/article/pii/S...
Edited by 205alive on Saturday 9th February 21:24
Here's some reading on it from a science based medicine point of view:
http://www.sciencebasedmedicine.org/index.php/the-...
http://scienceblogs.com/pharyngula/2011/05/16/dich...
Silent1 said:
Please don't push pseudoscience to someone and tout it as some amazing drug, all sensible cancer societies say there's no evidence, remember the plural of anecdote is not data.
Here's some reading on it from a science based medicine point of view:
http://www.sciencebasedmedicine.org/index.php/the-...
http://scienceblogs.com/pharyngula/2011/05/16/dich...
The phrases I used were 'showed promise' and 'some people have had success', or very similar. The 'pseudoscience' you accuse me of pedalling was in the form of links to a site which gave a good introduction to DCA as well as offering a sort of repository for additional external links - touting? As in I have something to gain from it? Nope, you're missing the point.Here's some reading on it from a science based medicine point of view:
http://www.sciencebasedmedicine.org/index.php/the-...
http://scienceblogs.com/pharyngula/2011/05/16/dich...
But thank you for providing the links to the very well presented/researched and written articles.
As you know, seeing as you've read them, the first rightly asks questions about some of the results you'd expect to see published on the site I linked to. It also asks questions about the commercial aspect of that site selling DCA. But along with other detailed aspects about DCA and developments in recent years, the author refers to some results of tests which were undertaken state:
"The first part of the study was something quite fascinating that I don’t recall ever having seen before in a clinical trial. Michelakis and colleagues studied 49 consecutive surgically excised glioblastomas. Glioblastoma is an aggressive form of brain cancer known to exhibit the Warburg effect and thus a good candidate for the first attempts at testing DCA in humans. These tumors were then tested in vitro with DCA. The excised tumors did demonstrate evidence of the Warburg effect, and treatment with DCA resulted in significant reversal of some of these features in the excised tumors, particularly mitochondrial hyperpolarization, while not having any effect on normal tissues excised with the cancers."
The second linked article starts off by completely laying into one particular article which claimes DCA was a magic bullet cure for cancer, which of course, it should not have claimed. But that same second linked article also states:
"But there is a germ of truth to the story, in that DCA does have potential"
"DCA also seems like a relatively safe drug. This is encouraging. It means there is a body of work already published on the effects of DCA, which should simplify the process of moving it into clinical trials. The authors, however, very clearly indicate that it won’t be a magic bullet affecting all cancers..."
And:
"We should be urging further investigation of this promising drug with the beginning of clinical trials, but it’s far too early to be babbling about “cancer cures”"
So again, your articles clearly surmise that DCA shows promise, and further reaearch must be undertaken.
As far as my opinion on self medication goes - as you'll know, one in five people is diagnosed with cancer, and given it's severity, I feel that staying informed about alternative treatments which might not appear in NHS treatment protocols is a good course of action. A significant number of my close and extended family have had cancer, or are currently undergoing treatment, hence my interest in off the radar developments. Nothing wrong with sharing that, as long as it's supported by a 'proceed with caution' attitude - hence my request to the OP to familiarise himself with potential drawbacks or dangers.
205alive said:
The phrases I used were 'showed promise' and 'some people have had success', or very similar. The 'pseudoscience' you accuse me of pedalling was in the form of links to a site which gave a good introduction to DCA as well as offering a sort of repository for additional external links - touting? As in I have something to gain from it? Nope, you're missing the point.
But thank you for providing the links to the very well presented/researched and written articles.
As you know, seeing as you've read them, the first rightly asks questions about some of the results you'd expect to see published on the site I linked to. It also asks questions about the commercial aspect of that site selling DCA. But along with other detailed aspects about DCA and developments in recent years, the author refers to some results of tests which were undertaken state:
"The first part of the study was something quite fascinating that I don’t recall ever having seen before in a clinical trial. Michelakis and colleagues studied 49 consecutive surgically excised glioblastomas. Glioblastoma is an aggressive form of brain cancer known to exhibit the Warburg effect and thus a good candidate for the first attempts at testing DCA in humans. These tumors were then tested in vitro with DCA. The excised tumors did demonstrate evidence of the Warburg effect, and treatment with DCA resulted in significant reversal of some of these features in the excised tumors, particularly mitochondrial hyperpolarization, while not having any effect on normal tissues excised with the cancers."
The second linked article starts off by completely laying into one particular article which claimes DCA was a magic bullet cure for cancer, which of course, it should not have claimed. But that same second linked article also states:
"But there is a germ of truth to the story, in that DCA does have potential"
"DCA also seems like a relatively safe drug. This is encouraging. It means there is a body of work already published on the effects of DCA, which should simplify the process of moving it into clinical trials. The authors, however, very clearly indicate that it won’t be a magic bullet affecting all cancers..."
And:
"We should be urging further investigation of this promising drug with the beginning of clinical trials, but it’s far too early to be babbling about “cancer cures”"
So again, your articles clearly surmise that DCA shows promise, and further reaearch must be undertaken.
As far as my opinion on self medication goes - as you'll know, one in five people is diagnosed with cancer, and given it's severity, I feel that staying informed about alternative treatments which might not appear in NHS treatment protocols is a good course of action. A significant number of my close and extended family have had cancer, or are currently undergoing treatment, hence my interest in off the radar developments. Nothing wrong with sharing that, as long as it's supported by a 'proceed with caution' attitude - hence my request to the OP to familiarise himself with potential drawbacks or dangers.
Certainly seems the most promising of the alternative therapies that I've tried or researched. I'm doing a little more research on it. Also found some stuff on GcMaf, a immune system booster but again in initial testing stage and horrendously expensive. I appreciate your time in researching this for me...many hands make light work and all that But thank you for providing the links to the very well presented/researched and written articles.
As you know, seeing as you've read them, the first rightly asks questions about some of the results you'd expect to see published on the site I linked to. It also asks questions about the commercial aspect of that site selling DCA. But along with other detailed aspects about DCA and developments in recent years, the author refers to some results of tests which were undertaken state:
"The first part of the study was something quite fascinating that I don’t recall ever having seen before in a clinical trial. Michelakis and colleagues studied 49 consecutive surgically excised glioblastomas. Glioblastoma is an aggressive form of brain cancer known to exhibit the Warburg effect and thus a good candidate for the first attempts at testing DCA in humans. These tumors were then tested in vitro with DCA. The excised tumors did demonstrate evidence of the Warburg effect, and treatment with DCA resulted in significant reversal of some of these features in the excised tumors, particularly mitochondrial hyperpolarization, while not having any effect on normal tissues excised with the cancers."
The second linked article starts off by completely laying into one particular article which claimes DCA was a magic bullet cure for cancer, which of course, it should not have claimed. But that same second linked article also states:
"But there is a germ of truth to the story, in that DCA does have potential"
"DCA also seems like a relatively safe drug. This is encouraging. It means there is a body of work already published on the effects of DCA, which should simplify the process of moving it into clinical trials. The authors, however, very clearly indicate that it won’t be a magic bullet affecting all cancers..."
And:
"We should be urging further investigation of this promising drug with the beginning of clinical trials, but it’s far too early to be babbling about “cancer cures”"
So again, your articles clearly surmise that DCA shows promise, and further reaearch must be undertaken.
As far as my opinion on self medication goes - as you'll know, one in five people is diagnosed with cancer, and given it's severity, I feel that staying informed about alternative treatments which might not appear in NHS treatment protocols is a good course of action. A significant number of my close and extended family have had cancer, or are currently undergoing treatment, hence my interest in off the radar developments. Nothing wrong with sharing that, as long as it's supported by a 'proceed with caution' attitude - hence my request to the OP to familiarise himself with potential drawbacks or dangers.
sk7ine man said:
Certainly seems the most promising of the alternative therapies that I've tried or researched. I'm doing a little more research on it. Also found some stuff on GcMaf, a immune system booster but again in initial testing stage and horrendously expensive. I appreciate your time in researching this for me...many hands make light work and all that
Yep, there's tons of stuff which is absolute and utter bull but this DCA does *seem* to show some promise - obviously there are some pretty significant implications regarding self medication - it's not something you should just jump into; but you know this already. I'm just glad to be able to share something which might help - maybe another weapon you can draw on, you know?
Anyway, regardless - very best of luck with access, etc!
Just a quick update. I'm finally getting to see my son this Saturday, do really looking forward to it 
I got a letter from the Mentals solicitor, it's said that's she's ill able to look after my son and needs £400 a month, oh how I laughed. It says As my sons father, I should be wanting to pay.right.....so as my sons father he should be able to have a relationship with me , she can't swing this as she's sees fit, anyhoooo....
I wrote a strong but concise 3 page letter stating that I receive just disability benefit and with £309, which covers my expenses,fuel, travelling, pre existing debts/commitments, she needs to apply through the correct channels i. Child support agency for maintenance. A quick calculator shows she would only get £5 a week due to my circumstances. A far cry from the £400 a month she thinks she can get by getting her solicitor to write a letter. I also pointed out that from day 1 have have paid and upheld every single penny of the mortgage even through my illness and hav.e been responsible for all maintenance and cost associated with the upkeep and running of the property....etc etc
Game on I say!
On a side note I've taken up a new hobby which has kept me upbeat and in good spirits, and also helps pass the time. Radio controlled racing. I brushed the dust of my old Schumacher Cat and with a few swift upgrades kindly donated by a family member is all up and running ready to race.
I got a letter from the Mentals solicitor, it's said that's she's ill able to look after my son and needs £400 a month, oh how I laughed. It says As my sons father, I should be wanting to pay.right.....so as my sons father he should be able to have a relationship with me , she can't swing this as she's sees fit, anyhoooo....
I wrote a strong but concise 3 page letter stating that I receive just disability benefit and with £309, which covers my expenses,fuel, travelling, pre existing debts/commitments, she needs to apply through the correct channels i. Child support agency for maintenance. A quick calculator shows she would only get £5 a week due to my circumstances. A far cry from the £400 a month she thinks she can get by getting her solicitor to write a letter. I also pointed out that from day 1 have have paid and upheld every single penny of the mortgage even through my illness and hav.e been responsible for all maintenance and cost associated with the upkeep and running of the property....etc etc
Game on I say!
On a side note I've taken up a new hobby which has kept me upbeat and in good spirits, and also helps pass the time. Radio controlled racing. I brushed the dust of my old Schumacher Cat and with a few swift upgrades kindly donated by a family member is all up and running ready to race.
sk7ine man said:
Just a quick update. I'm finally getting to see my son this Saturday, do really looking forward to it
I got a letter from the Mentals solicitor, it's said that's she's ill able to look after my son and needs £400 a month, oh how I laughed. It says As my sons father, I should be wanting to pay.right.....so as my sons father he should be able to have a relationship with me , she can't swing this as she's sees fit, anyhoooo....
I wrote a strong but concise 3 page letter stating that I receive just disability benefit and with £309, which covers my expenses,fuel, travelling, pre existing debts/commitments, she needs to apply through the correct channels i. Child support agency for maintenance. A quick calculator shows she would only get £5 a week due to my circumstances. A far cry from the £400 a month she thinks she can get by getting her solicitor to write a letter. I also pointed out that from day 1 have have paid and upheld every single penny of the mortgage even through my illness and hav.e been responsible for all maintenance and cost associated with the upkeep and running of the property....etc etc
Game on I say!
On a side note I've taken up a new hobby which has kept me upbeat and in good spirits, and also helps pass the time. Radio controlled racing. I brushed the dust of my old Schumacher Cat and with a few swift upgrades kindly donated by a family member is all up and running ready to race.
That sounds pretty bloody brilliant, all things considered. You're absolutely right - stick to your guns. PS radio controlled racing sounds hilarious, I'd love to have a go sometime - are you in an organised league or something?I got a letter from the Mentals solicitor, it's said that's she's ill able to look after my son and needs £400 a month, oh how I laughed. It says As my sons father, I should be wanting to pay.right.....so as my sons father he should be able to have a relationship with me , she can't swing this as she's sees fit, anyhoooo....
I wrote a strong but concise 3 page letter stating that I receive just disability benefit and with £309, which covers my expenses,fuel, travelling, pre existing debts/commitments, she needs to apply through the correct channels i. Child support agency for maintenance. A quick calculator shows she would only get £5 a week due to my circumstances. A far cry from the £400 a month she thinks she can get by getting her solicitor to write a letter. I also pointed out that from day 1 have have paid and upheld every single penny of the mortgage even through my illness and hav.e been responsible for all maintenance and cost associated with the upkeep and running of the property....etc etc
Game on I say!
On a side note I've taken up a new hobby which has kept me upbeat and in good spirits, and also helps pass the time. Radio controlled racing. I brushed the dust of my old Schumacher Cat and with a few swift upgrades kindly donated by a family member is all up and running ready to race.
BlackVanDyke said:
That sounds pretty bloody brilliant, all things considered. You're absolutely right - stick to your guns. PS radio controlled racing sounds hilarious, I'd love to have a go sometime - are you in an organised league or something?
Thanks chap. No I'm popping down to an offroad club to join up and race on Sunday, plenty of clubs all over the country if you have a look at the BRCA website, so just club racing for now, whilst I can overcome being a mobile chicane Hi guys, sorry I haven't updated you all but it's nice to know I'm being thought of!
I saw my little one for the first time on the 9th March for the allotted 1.5 hours. Was fantastic, just like old times, he was straight into his presents (Xmas presents from last year where shed refused to accept them) and he loved them. He was happy, talkative - actually a little motor mouth now and so suprised how much he can string proper sentences together now, he was hugging me kissing me and being a cheeky little monkey that i know and not at all "distressed" as she made out. So all good and well until a few days after....
After I'd left to go home and the mental had arrived to collect my son, she apparently stayed behind and talked to the lady who runs the centre. (I'm recounting what the lady told me after). The mental was just b
hing and moaning to her about me, like how I hadn't told her I had IBS when I was younger, wtf that has to do with anything I don't know but she seems to think I withheld it because it developed into cancer 15 years later.
Anyway, the lady at the centre said coming here is a good way to perhaps you and your husband open up communication on mutual ground and build a foundation for the welfare of your son, a valid and reasonable point I would have thought. The mental then went back and told her solicitor that the lady at the centre had made certain comments. Que solicitor phoning lady at the centre and all hell breaking loose. So now the lady at the centre has refused to allow contact at her centre because the way Mentals solicitor spoke to her etc etc....I'm completely out of this and the mental still managed to f@&k this up as well! So Mentals solicitor is in now a panic in fear of breaching the contact order and has written to me twice explaining she's trying to get an urgent commencement at another centre....so now I'm waiting for that!
I got some advice from the lady at the contact centre as she's been in the field 30 years and knows a lot of the judges, solicitors etc and recommended me one of the best solicitors in her view to assist me going forward. Hopefully now that I have DwP ESA i should be entitled to legal aid and have better representation when I push for further contact.
In terms of my health, I had my 5th of 6 chemo last week and was pretty poorly. Developed horrible cold/night sweats and nausea a few hours after being sent home with the infusion and had to be hospitalised for a day. The disconnected the chemo as the Flouraracil wad the likely cause. All bloods, urine and chest x-rays came back fine as they suspected a infected hickman line. All well now and looking forward to the final session but my oncologist has suggested she may delay or cancel the last infusion dependant on my blood results.
To be honest I've been pretty down and depressed past 2-3 weeks, apart from seeing my son, I've had a little cry to myself now and then from what she did to me. Hey it's probably not manly or whatever but I've kept so much in and it still feels surreal that she could do this to me that's its slowly all coming out.
I saw my little one for the first time on the 9th March for the allotted 1.5 hours. Was fantastic, just like old times, he was straight into his presents (Xmas presents from last year where shed refused to accept them) and he loved them. He was happy, talkative - actually a little motor mouth now and so suprised how much he can string proper sentences together now, he was hugging me kissing me and being a cheeky little monkey that i know and not at all "distressed" as she made out. So all good and well until a few days after....
After I'd left to go home and the mental had arrived to collect my son, she apparently stayed behind and talked to the lady who runs the centre. (I'm recounting what the lady told me after). The mental was just b
hing and moaning to her about me, like how I hadn't told her I had IBS when I was younger, wtf that has to do with anything I don't know but she seems to think I withheld it because it developed into cancer 15 years later.Anyway, the lady at the centre said coming here is a good way to perhaps you and your husband open up communication on mutual ground and build a foundation for the welfare of your son, a valid and reasonable point I would have thought. The mental then went back and told her solicitor that the lady at the centre had made certain comments. Que solicitor phoning lady at the centre and all hell breaking loose. So now the lady at the centre has refused to allow contact at her centre because the way Mentals solicitor spoke to her etc etc....I'm completely out of this and the mental still managed to f@&k this up as well! So Mentals solicitor is in now a panic in fear of breaching the contact order and has written to me twice explaining she's trying to get an urgent commencement at another centre....so now I'm waiting for that!
I got some advice from the lady at the contact centre as she's been in the field 30 years and knows a lot of the judges, solicitors etc and recommended me one of the best solicitors in her view to assist me going forward. Hopefully now that I have DwP ESA i should be entitled to legal aid and have better representation when I push for further contact.
In terms of my health, I had my 5th of 6 chemo last week and was pretty poorly. Developed horrible cold/night sweats and nausea a few hours after being sent home with the infusion and had to be hospitalised for a day. The disconnected the chemo as the Flouraracil wad the likely cause. All bloods, urine and chest x-rays came back fine as they suspected a infected hickman line. All well now and looking forward to the final session but my oncologist has suggested she may delay or cancel the last infusion dependant on my blood results.
To be honest I've been pretty down and depressed past 2-3 weeks, apart from seeing my son, I've had a little cry to myself now and then from what she did to me. Hey it's probably not manly or whatever but I've kept so much in and it still feels surreal that she could do this to me that's its slowly all coming out.
Edited by sk7ine man on Friday 29th March 01:29
Edited by sk7ine man on Friday 29th March 01:31
Gassing Station | The Lounge | Top of Page | What's New | My Stuff