The Ice Bucket Challenge
Discussion
TinyCappo said:
Basically Macmillan have Hijacked the ALS Icebucket challenge in the UK. #tag thing is now used by them and lots of "text ICE to this number" has been set up and their CEO has nominated lots of other high profile to do this. So far they have in my opinion stolen over £250,000 from the MND. Before people get all shirty with me for this comment. This charity is tiny in comparison. Macmillan raised 14X more than MND last year. At one event alone they raised more than the entire years fund raising for the MND charity.
This was a perfect opportunity for MND and other Neuro degenerative diseases to get some exposure and much needed funding.
I have no vent for this and I am at Beyond Daily Mail levels of anger at the moment
So please if you are going to do this make sure you are doing it for the right charity which is MND.
Have to agree with you on this one. Was really shocked at the way Macmillan have done it, very bad call.This was a perfect opportunity for MND and other Neuro degenerative diseases to get some exposure and much needed funding.
I have no vent for this and I am at Beyond Daily Mail levels of anger at the moment
So please if you are going to do this make sure you are doing it for the right charity which is MND.
For those saying why throw water or water is not a challenge, the idea is it has to be freezing cold iced water.
The reason for this is the shock your body goes through is supposed to be a representation of what sufferers of the disease permanently feel but much worse.
It is to raise awareness for an awful incurable disease.
The reason for this is the shock your body goes through is supposed to be a representation of what sufferers of the disease permanently feel but much worse.
It is to raise awareness for an awful incurable disease.
DaveH23 said:
For those saying why throw water or water is not a challenge, the idea is it has to be freezing cold iced water.
The reason for this is the shock your body goes through is supposed to be a representation of what sufferers of the disease permanently feel but much worse.
It is to raise awareness for an awful incurable disease.
Raising awareness is one thing, but it's not worth a great deal unless people donate money to fund research into a cure, is it?The reason for this is the shock your body goes through is supposed to be a representation of what sufferers of the disease permanently feel but much worse.
It is to raise awareness for an awful incurable disease.
I know I'll get a nomination for the Ice Bucket Challenge this weekend, from a friend of a friend whom I've never met. Thanks for that, biatch.
Devilstreak said:
Is it true that one of the guys that started this has (quite ironically) drowned? Or just internet myth?
http://www.independent.co.uk/news/people/als-ice-b...
In November it'll be 8 years since my grandfather died from Motor Neurone Disease.
In that time cancer treatments have come on leaps and bounds, but MND is still incurable. Most people don't even know what it is. Watching someone die from it is a nightmare, second only to being the person going through it. My grandfather was healthy and active, a perfect example of what a good retirement was. Within a year of diagnosis he had become a shadow of his former self, he struggled to speak and even something as simple as smiling was almost impossible. He was dead after 15 months, which is as long as most MND sufferers get.
If you don't want to take part, then don't, but please go and read up on MND first and see if it's something you think you'd be able to cope with. Don't cover yourself in ice, don't brain yourself with a bucket, but if you've got £1 spare then please think about donating it to the MND Association.
The level of awareness that this has raised has been incredible, for a disease and a charity that has been in the shadows for years it is completely mindblowing. Like others above I'm really angry that Macmillan have hijacked this, they do a lot of good work but frankly they can find their own sodding meme.
If you want more information about the MND Association, which is the main UK charity for this disease, you can check their website - http://www.mndassociation.org/
In that time cancer treatments have come on leaps and bounds, but MND is still incurable. Most people don't even know what it is. Watching someone die from it is a nightmare, second only to being the person going through it. My grandfather was healthy and active, a perfect example of what a good retirement was. Within a year of diagnosis he had become a shadow of his former self, he struggled to speak and even something as simple as smiling was almost impossible. He was dead after 15 months, which is as long as most MND sufferers get.
If you don't want to take part, then don't, but please go and read up on MND first and see if it's something you think you'd be able to cope with. Don't cover yourself in ice, don't brain yourself with a bucket, but if you've got £1 spare then please think about donating it to the MND Association.
The level of awareness that this has raised has been incredible, for a disease and a charity that has been in the shadows for years it is completely mindblowing. Like others above I'm really angry that Macmillan have hijacked this, they do a lot of good work but frankly they can find their own sodding meme.
If you want more information about the MND Association, which is the main UK charity for this disease, you can check their website - http://www.mndassociation.org/
TinyCappo said:
This is an awesome thing If only it gets people to talk about it. ALS is a collective name for whats called Motor Neurone Disease here in the UK.
It was started by a guy with ALS who was trying to raise money for this disease which basically shuts down the body by killing off the nerves that transmit Motor signals. legs ares speech e.t.c effectively trapping you in a shell. But then you cant swallow and eventually the neurons that tell you to instinctively breathe stop transmitting properly....Horrific way to die.......And there is no cure.
So seeing such amazing exposure and so many people getting behind this in the USA I was really glad to see it starting to happen in the UK. Few high profile people in the UK started doing it Richard Branson and the like.
Then I posted up today I would be getting this done and making a donation too on my facebook only to get a Barrage of posts saying I was doing it for the wrong charity.
Basically Macmillan have Hijacked the ALS Icebucket challenge in the UK. #tag thing is now used by them and lots of "text ICE to this number" has been set up and their CEO has nominated lots of other high profile to do this. So far they have in my opinion stolen over £250,000 from the MND. Before people get all shirty with me for this comment. This charity is tiny in comparison. Macmillan raised 14X more than MND last year. At one event alone they raised more than the entire years fund raising for the MND charity.
This was a perfect opportunity for MND and other Neuro degenerative diseases to get some exposure and much needed funding.
I have no vent for this and I am at Beyond Daily Mail levels of anger at the moment
So please if you are going to do this make sure you are doing it for the right charity which is MND.
I had no idea about this. For what its worth, I've just made a point of posting this on my facebook account and will be donating (and not tipping a bucket over my head).It was started by a guy with ALS who was trying to raise money for this disease which basically shuts down the body by killing off the nerves that transmit Motor signals. legs ares speech e.t.c effectively trapping you in a shell. But then you cant swallow and eventually the neurons that tell you to instinctively breathe stop transmitting properly....Horrific way to die.......And there is no cure.
So seeing such amazing exposure and so many people getting behind this in the USA I was really glad to see it starting to happen in the UK. Few high profile people in the UK started doing it Richard Branson and the like.
Then I posted up today I would be getting this done and making a donation too on my facebook only to get a Barrage of posts saying I was doing it for the wrong charity.
Basically Macmillan have Hijacked the ALS Icebucket challenge in the UK. #tag thing is now used by them and lots of "text ICE to this number" has been set up and their CEO has nominated lots of other high profile to do this. So far they have in my opinion stolen over £250,000 from the MND. Before people get all shirty with me for this comment. This charity is tiny in comparison. Macmillan raised 14X more than MND last year. At one event alone they raised more than the entire years fund raising for the MND charity.
This was a perfect opportunity for MND and other Neuro degenerative diseases to get some exposure and much needed funding.
I have no vent for this and I am at Beyond Daily Mail levels of anger at the moment
So please if you are going to do this make sure you are doing it for the right charity which is MND.
Hrpmh. Thanks for the heads up on that. Have tweeted this to someone who I know was challenged. http://bit.ly/1qsEUo0
I may have accidentally tweeted to Macmillan as well.
I may have accidentally tweeted to Macmillan as well.
Flip Martian said:
TinyCappo said:
Basically Macmillan have Hijacked the ALS Icebucket challenge in the UK. #tag thing is now used by them and lots of "text ICE to this number" has been set up and their CEO has nominated lots of other high profile to do this. So far they have in my opinion stolen over £250,000 from the MND. Before people get all shirty with me for this comment. This charity is tiny in comparison. Macmillan raised 14X more than MND last year. At one event alone they raised more than the entire years fund raising for the MND charity.
This was a perfect opportunity for MND and other Neuro degenerative diseases to get some exposure and much needed funding.
I have no vent for this and I am at Beyond Daily Mail levels of anger at the moment
So please if you are going to do this make sure you are doing it for the right charity which is MND.
I had no idea about this. For what its worth, I've just made a point of posting this on my facebook account and will be donating (and not tipping a bucket over my head).This was a perfect opportunity for MND and other Neuro degenerative diseases to get some exposure and much needed funding.
I have no vent for this and I am at Beyond Daily Mail levels of anger at the moment
So please if you are going to do this make sure you are doing it for the right charity which is MND.
Reading this though has really annoyed me.
So much it is about to cost me £20. It is a 5 minute thing to donate it to MND - http://www.mndassociation.org/get-involved/donatio...
Do it, I feel better already!
Flip Martian said:
Just reading online and seeing how Macmillan has hijacked this. Pretty despicable, really.
By all accounts the Ice Bucket Challenge was originally started to support cancer charities (ie. what Macmillan are for), not ALS/MND. So the ALS ice bucket challenge is the one doing the hijacking.But be honest, does it really matter? They're both bringing awareness of major illnesses, and hopefully bringing a fair bit of money into their coffers to allow further research into potential cures or relief for those suffering.
clonmult said:
By all accounts the Ice Bucket Challenge was originally started to support cancer charities (ie. what Macmillan are for), not ALS/MND. So the ALS ice bucket challenge is the one doing the hijacking.
But be honest, does it really matter? They're both bringing awareness of major illnesses, and hopefully bringing a fair bit of money into their coffers to allow further research into potential cures or relief for those suffering.
Interesting but not what my 10 minutes on Google was suggesting. But be honest, does it really matter? They're both bringing awareness of major illnesses, and hopefully bringing a fair bit of money into their coffers to allow further research into potential cures or relief for those suffering.
Does it matter? Yes it does actually. Macmillan and many of the big cancer charities earn huge sums ever single year, year in, year out. Most people have only an awareness of MND due to Proff. Hawkins. Sometimes the little guys have a fund raising idea that shoots them to the front of the queue for a few weeks but otherwise they are forgotten. When one of the bigger charities appears to take that fund raising idea and make it theirs it angers me deeply. You're doing alright and will be known to millions, how about letting some other cause have a few pennies for a change?
As this is Pistonheads, a racing driver called Neil Cunningham has been struck down with this awful disease..
His website is here: http://www.racing4mnd.org/index.html
His website is here: http://www.racing4mnd.org/index.html
Rude-boy said:
clonmult said:
By all accounts the Ice Bucket Challenge was originally started to support cancer charities (ie. what Macmillan are for), not ALS/MND. So the ALS ice bucket challenge is the one doing the hijacking.
But be honest, does it really matter? They're both bringing awareness of major illnesses, and hopefully bringing a fair bit of money into their coffers to allow further research into potential cures or relief for those suffering.
Interesting but not what my 10 minutes on Google was suggesting. But be honest, does it really matter? They're both bringing awareness of major illnesses, and hopefully bringing a fair bit of money into their coffers to allow further research into potential cures or relief for those suffering.
Does it matter? Yes it does actually. Macmillan and many of the big cancer charities earn huge sums ever single year, year in, year out. Most people have only an awareness of MND due to Proff. Hawkins. Sometimes the little guys have a fund raising idea that shoots them to the front of the queue for a few weeks but otherwise they are forgotten. When one of the bigger charities appears to take that fund raising idea and make it theirs it angers me deeply. You're doing alright and will be known to millions, how about letting some other cause have a few pennies for a change?
clonmult said:
Flip Martian said:
Just reading online and seeing how Macmillan has hijacked this. Pretty despicable, really.
By all accounts the Ice Bucket Challenge was originally started to support cancer charities (ie. what Macmillan are for), not ALS/MND. So the ALS ice bucket challenge is the one doing the hijacking.But be honest, does it really matter? They're both bringing awareness of major illnesses, and hopefully bringing a fair bit of money into their coffers to allow further research into potential cures or relief for those suffering.
And before anyone says about how well ALS are doing there is no financial link between the ALS association and MND. I hope they will share research.
From what I've read the origin of the ice bucket challenge is New Zealand where people were doing it but with no associated charity. This article on Mashable explains what happened next in the US in terms of linking it to ALS and then it becoming huge http://mashable.com/2014/08/15/ice-bucket-challeng...
However separately it jumped from NZ to the UK, and specifically the deaf community. Charlie Swinborne blogged about it on 11th July http://limpingchicken.com/2014/07/11/the-facebook-... but rather than donate to a hearing loss charity the trend seemed to be for water aid. Personally the first time i saw it was when an ex colleague from Macmillan posted a video on facebook.
In terms of why the backlash, yes they may have been the first UK charity to do something about it but i don't think people see that way, i.e in the US it's for this and in the UK it's for that. Where it has jumped the transatlantic since being tagged to ALS people have naturally gone to the related charity MND.
That aside, I wonder if the timing might have something to do with it as well. In addition to this I've seen three separate Macmillan fundraisers being advertised on my way into work at the moment - 'Shave or Style', 'The Lido Swim' and the classic 'Coffee Morning'. Unlike the ice bucket challenge these have all been planned months in advance and are very much Macmillan's events.
So if you suddenly them also promoting the ice bucket challenge when there is a strong link to another condition, which is comparatively tiny in terms of brand and income, you might feel like they are just dominating the market. Could it have been different at a quieter period? Or perhaps if it was a smaller charity that doesn’t have other big fundraisers..
Its like bad sportsmanship. It leaves a bad taste in your mouth and whilst its difficult to tangibly put across whats been lost or deprived from another charity the momentum gained cannot be transferred.
Edited by TinyCappo on Thursday 21st August 11:47
jamescodriver said:
As this is Pistonheads, a racing driver called Neil Cunningham has been struck down with this awful disease..
His website is here: http://www.racing4mnd.org/index.html
Good call. He's a top bloke and Karen is one of the loveliest people on earth.His website is here: http://www.racing4mnd.org/index.html
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