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khushy

Original Poster:

3,386 posts

88 months

[news] 
Friday 11th May 2012 quote quote all
well, I have been reading all about FlutiForm, soon to be released in the UK and reported as the new Asthma WonderDrug.

Having suffered from Asthma all my life (45 years) its been pretty mild up until the last 12 months when its been getting worse and I am totally reliant on Ventolin 2-3 times a day which is not good, considering I also take the preventative inhalers too. Ventolin's effectiveness for me is deteriorating fast!

I cycle 3-4 times a week, twice out side + about 5 hours in total around a velodrome every week so I am not a fat-lazy-unfit fker either.

So - I bought some FlutiForm on the old interweb and it arrived at the beginning of this week - its generic and from India!

Today is day 3 of a 2-a-day doseage and I am absolutely stunned by the results - I can now breathe without any weazing, I can take the deepest breath ever without bringing on my asthma, I havent even looked at my ventolin inhaler and feel fantaistic.

The only side effect, so far, a slightly tickly throat.

THE BIG TEST will be this afternoon as I am just off for 3 hours at Newport VeloDrome with the (VERY fast) vets! - I can usually do the 3 hours - but my breathing is ste during and after and ventolin makes no difference!

Will report back soon.

khushy

PS - I know I know - self medicating - risky and all that, but until the UK Health service and drugs people sort out Flutiform for me and everyone else in this country, I decided to take the risk.

aero93

328 posts

105 months

[news] 
Friday 11th May 2012 quote quote all
Watching this one with interest.. Cant wait for an update..

khushy

Original Poster:

3,386 posts

88 months

[news] 
Friday 11th May 2012 quote quote all
aero93 said:
Watching this one with interest.. Cant wait for an update..
join my FaceBook Group "FlutiForm" :-)

khushy

khushy

Original Poster:

3,386 posts

88 months

[news] 
Friday 11th May 2012 quote quote all
BIG TEST TONIGHT - 3 hours at the VeloDrome - NO ASTHMA, no weezing, no attacks, full breaths for the first time that I can remember - I am stunned, this is what it must feel like for people who havent got Asthma - Iam a very happy bunny and fast as hell!

khushy

Original Poster:

3,386 posts

88 months

[news] 
Saturday 12th May 2012 quote quote all
DAY 4 - up at 5am, out for 6am and off to CalShot VeloDrome for acouple of hours of posing with an MTV film crew - ooops I mean a hard workout LOL - 2 hours of fast, fun and furious droming - no weezing, no asthma, no symptoms NOTHING - deep breathing, longer efforts, faster . . . . its like my life has been given a boost and I might be racing on Friday too!!!!

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Farmerpalmer

162 posts

33 months

[news] 
Sunday 13th May 2012 quote quote all
To the OP: Flutiform metered dose inhaler is a fixed-dose combination of formoterol (a long-acting beta-agonist) and fluticasone (a corticosteroid), being developed for the treatment of asthma.

Now both formeterol and fluticasone are available in the uk, but as separate inhalers. All this product is, is a combination product ( long acting beta-agonist and steroid), of which there are many currently on the uk market.
Glad it works for you. ( i also have asthma, so i understand the relief this product has given you, but there are very similar products already on the uk market)

rog3k

126 posts

76 months

[news] 
Sunday 13th May 2012 quote quote all
^^^ a bit like Seretide then?

khushy

Original Poster:

3,386 posts

88 months

[news] 
Sunday 13th May 2012 quote quote all
cheers - I didnt know about the alternatives - so how come GP's stick only to the old-favs and offer nothing new until (maybe) trauma hits???

The "relief" is indescribable - after 45years of, what I am told, is actually chronic Asthma - self-medication has changed my health (right now) completely. I didnt know about the alternatives and my GP is nothing short of fking useless. Yes I have also changed GP's too, without anychange in performance/service.

Will be back on track tomorrow, out again on my bike for a mid-week hill-assault and then racing on friday.

Instead of worrying about my capacity for breathing through all of this "action" I have to learn to concentrate on squeezing more out of my body, for the first time ever, without the worry of an Asthma attack or the inability to draw enough breath.

smilesmilesmile


Khushy

Edited by khushy on Sunday 13th May 21:02

Farmerpalmer

162 posts

33 months

[news] 
Monday 14th May 2012 quote quote all
rog3k said:
^^^ a bit like Seretide then?
And there are more... Fostair & Symbicort

To the OP - your GP should add in a long acting beta agonist inhaler (e.g salmeterol, formoterol), if your asthma is not controlled by a steroid inhaler (and when required short acting beta agonist e.g. salbutamol).
Do you monitor your peak flow?
Suggest returning to your GP for a discussion on how to optimise your asthma. This really is bread n butter to a GP
May be worth mentioning your experience with Flutiform, as alternatives are available in the uk, all for a prescription charge.
HTH thumbup

br d

2,453 posts

95 months

[news] 
Monday 14th May 2012 quote quote all
A great, positive story op, your joy at this development really leaps out.
Good luck for the future.

And watch out for the sore bum from all that cycling!

rog3k

126 posts

76 months

[news] 
Monday 14th May 2012 quote quote all
Farmerpalmer said:
Suggest returning to your GP for a discussion on how to optimise your asthma. This really is bread n butter to a GP
May be worth mentioning your experience with Flutiform, as alternatives are available in the uk, all for a prescription charge.
HTH thumbup
As a fellow asthma sufferer (not too bad now but may be that's because it is being controlled better) but I went through a series of tests with a hospital consultant & tried one or two different preventers to find the one that suited best. IMHO you shouldn't have to use your ventolin every day - I think the asthma ought to be generally controlled by a proper preventer.

DaveH23

949 posts

39 months

[news] 
Tuesday 15th May 2012 quote quote all
Can I ask a pretty naive question?

Is this Flutiform for relief like that of an inhaler not a cure?

rog3k

126 posts

76 months

[news] 
Tuesday 15th May 2012 quote quote all
as far as I am aware there is no cure for asthma.

khushy

Original Poster:

3,386 posts

88 months

[news] 
Tuesday 15th May 2012 quote quote all
well DAY 7 today and no symptoms at all - none whatsoever - I have also had the heaviest week of cycling for a long time too - 4 track-session (nosorearseeither LOL) not even thought once of having to take Ventolin at any point in the past 7 days - even when my lungs were burning last night at 40+ kph!!!

The Flutiform I am taking is preventative I believe.

Wont be going back to the GP about this - waste of time IMHO after 45 years of suffering and listening to their drivel - I fail to see the point seeing as the transformation has been nothing short of miraculous over the course of the last week - even from the very first dose IMHO.

Thanks for all the comments/advice- much appreciated and informative too.

Edited by khushy on Tuesday 15th May 17:31

964Cup

430 posts

106 months

[news] 
Tuesday 15th May 2012 quote quote all
Another vote for Seretide here (serevent and fluticasone combined inhaler). I'm astonished your GP hasn't prescribed something like that (or at least a steroid prophylactic alongside your reliever) along with self-monitoring of peak flow. Complain, loudly.

Worth looking at montelukast ("Singulair") tablets as well, in case a leukotriene receptor antagonist can help with the underlying cause of your asthma, but I wouldn't self-medicate that. As a cautionary word in case you do carry on self-prescribing, don't be tempted by theophylline. It can be very effective, but you need careful monitoring of your Ka levels and getting it wrong can properly mess you up. Even properly monitored it made me feel terrible, so I reverted to Seretide and montelukast. Make sure you have the right combined inhaler so you're getting an appropriate dose of steroids; you don't want any more of those than you need, however much they claim it's purely topical.

DarrenL

459 posts

44 months

[news] 
Tuesday 15th May 2012 quote quote all
OP, have you got a link by any chance please- i've done some googling, but i'd rather buy from a source which has been tried and tested by a "trusted" guy on the interwebz lol.

Thanks

Darren

Paul Dishman

2,058 posts

106 months

[news] 
Tuesday 15th May 2012 quote quote all
DarrenL said:
OP, have you got a link by any chance please- i've done some googling, but i'd rather buy from a source which has been tried and tested by a "trusted" guy on the interwebz lol.

Thanks

Darren
You ought to go to your GP if you've a problem with asthma. Buying stuff off the web is most unwise, especially as it (or the equivalent) is freely available on the NHS

Paul Dishman

2,058 posts

106 months

[news] 
Tuesday 15th May 2012 quote quote all
964Cup said:
Another vote for Seretide here (serevent and fluticasone combined inhaler). I'm astonished your GP hasn't prescribed something like that (or at least a steroid prophylactic alongside your reliever) along with self-monitoring of peak flow. Complain, loudly.
This.

Are we getting the full picture from the OP?

khushy

Original Poster:

3,386 posts

88 months

[news] 
Tuesday 15th May 2012 quote quote all
Paul Dishman said:
This.

Are we getting the full picture from the OP?
what do you mean "the full picture" I have nothing to hide - have had Astham all my life - born and live in the UK - been to the GP on a regular basis - been taking my prescribed inhalers on a regular basis and they have become ineffective - no inspiration from the GP's that I have been to (just fking hard work and perspiration!!!) so, not being a medical fkwit myself, someone has alerted me to an alternative that is not-yet available in the UK.

God love the interweb - 4 day delivery from India and hey presto I feel like I have a new pair of lungs!

Ask me some questions and I answer . . . .

khushy

khushy

Original Poster:

3,386 posts

88 months

[news] 
Tuesday 15th May 2012 quote quote all
DarrenL said:
OP, have you got a link by any chance please- i've done some googling, but i'd rather buy from a source which has been tried and tested by a "trusted" guy on the interwebz lol.

Thanks

Darren
http://www.medstore.biz/

brilliant service - 4 day delivery - REMEMBER TO ASK FOR A ROTAHALER in the notes on your order as they will only send you the capsules!!!!!
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