Discussion
Hi guys
was wondering if any others on here were fighting this f
king horrible condition
i was told last october that i had it, and its been a horrible journey since ,all of december and jan was spent having chemo , 5 days on and two weeks to recover that was hell on earth,everything you have ever heard about it is true,after that i was in for the first tumour to be removed at which piont i was told it has spread to my lymph glands
Am now waiting to go back in on the 18th june to have my lynph glands removed ! i have been told this is not good and will effect me for the rest of my life (how ever long that is).
it wasnt until i was told that i realized just how widespread it is ,now nearly everyone i speak to knows someone or is related to someone who has it. WTF !
so i was wondering if anyone else was going through this aswell ?
was wondering if any others on here were fighting this f
king horrible conditioni was told last october that i had it, and its been a horrible journey since ,all of december and jan was spent having chemo , 5 days on and two weeks to recover that was hell on earth,everything you have ever heard about it is true,after that i was in for the first tumour to be removed at which piont i was told it has spread to my lymph glands
Am now waiting to go back in on the 18th june to have my lynph glands removed ! i have been told this is not good and will effect me for the rest of my life (how ever long that is).
it wasnt until i was told that i realized just how widespread it is ,now nearly everyone i speak to knows someone or is related to someone who has it. WTF !
so i was wondering if anyone else was going through this aswell ?
Sorry to hear this fella.
Regarding the lymph glands, from what I understand, once removed the body will not have as much immunity to things and injuries on that side of the body will take longer to heal.
Good luck with the operation and keep your chin up. Your attitude will affect more than you think. Positive all the way.
Regarding the lymph glands, from what I understand, once removed the body will not have as much immunity to things and injuries on that side of the body will take longer to heal.
Good luck with the operation and keep your chin up. Your attitude will affect more than you think. Positive all the way.
I am waiting today to hear if my mum has Cancer, should get the results this afternoon
Sorry to hear about your condition OP
What I would say though is although we havent cured it and the treatments are frankly awful, what does impress/amaze me is how many people I know of who have survived some form of cancer these days
Ok some of the biggies (Lung/Liver etc) are still quite high on the no chance list but a lot of the others seem to have a lot better survival rates than if you looked at say 10-15 years ago
Best of luck with your OP, OP
Sorry to hear about your condition OP
What I would say though is although we havent cured it and the treatments are frankly awful, what does impress/amaze me is how many people I know of who have survived some form of cancer these days
Ok some of the biggies (Lung/Liver etc) are still quite high on the no chance list but a lot of the others seem to have a lot better survival rates than if you looked at say 10-15 years ago
Best of luck with your OP, OP
my great gran has cancer, she was going trough kemo for a while but stopped that because in her opinion it was worse than the cancer. that was over 10 years ago and she was told back then she would be luck to live for another 6 months 
for the record my great gran is now 93 and still seems in good cheer and bounding around the nursing home like a 60 year old.
good luck op and try not to let it get you down.
for the record my great gran is now 93 and still seems in good cheer and bounding around the nursing home like a 60 year old.
good luck op and try not to let it get you down.
My ex-boss went through several cancer treatments. IIRC he woke up one day to find one of his pills was the size of an orange. Tests done and indeed it was, so they whipped that out.
During one of his 6 nonthly hospital visits, something wasn't quite right.....they found a growth inside him...not really sure where. They operated to remove it, and found that this "thing" had hair and teeth. Nice. Anyways, fast forward a couple of years and more tests revealed it had come back. In he goes again to have his lymph glands removed....He's been perfectly fit and healthy ever since and I tihnk that was a good 10 years ago, at least.
Easy for me to say OP, but its not all doom and gloom...people do recover, as I hope you do.
Good luck.
During one of his 6 nonthly hospital visits, something wasn't quite right.....they found a growth inside him...not really sure where. They operated to remove it, and found that this "thing" had hair and teeth. Nice. Anyways, fast forward a couple of years and more tests revealed it had come back. In he goes again to have his lymph glands removed....He's been perfectly fit and healthy ever since and I tihnk that was a good 10 years ago, at least.
Easy for me to say OP, but its not all doom and gloom...people do recover, as I hope you do.
Good luck.
It's a right arse and no mistake and a total and utter game changer.
My wife is going through a battle right now (as documented elsewhere on here) so whilst I can't sympathise directly I do have some idea of the hell you'll be going through. Trust in the medical professionals, they really do know what is best for you and they will try everything they can. The best you can do is steel yourself for the ride and try and live the fullest life you can, everything else is down to the medicine and chance.
If you have a wife and kids make the days count. The worst thing will be not wanting to leave people, but I'm sure you already know that. Do your best to stay positive for your own mental health and those around you. It will not be easy and, as I'm sure you realise, people will tread on eggshells to avoid talking about it or possibly even avoid you as they don't know how the handle it.
Take advantage of counselling, don't be afraid to let it out. You will have dark days, but don't feel guilty about that - it's perfectly natural.
Whether you have many years ahead or not, live those days well.
My wife is going through a battle right now (as documented elsewhere on here) so whilst I can't sympathise directly I do have some idea of the hell you'll be going through. Trust in the medical professionals, they really do know what is best for you and they will try everything they can. The best you can do is steel yourself for the ride and try and live the fullest life you can, everything else is down to the medicine and chance.
If you have a wife and kids make the days count. The worst thing will be not wanting to leave people, but I'm sure you already know that. Do your best to stay positive for your own mental health and those around you. It will not be easy and, as I'm sure you realise, people will tread on eggshells to avoid talking about it or possibly even avoid you as they don't know how the handle it.
Take advantage of counselling, don't be afraid to let it out. You will have dark days, but don't feel guilty about that - it's perfectly natural.
Whether you have many years ahead or not, live those days well.
Cancer - the gift that carries on giving. It is a st, I had dx of breast cancer and 15 lymph nodes in Mar 09, and in September last year they confirmed it was setting up home in my spine and hips, making it secondary cancer which is treatable (initially) but not curable - it's going to get me eventually!!
The primary treatment is pretty awful, but without it - despite the stories to the contrary - the prognosis for it coming back or spreading further is much worse. For me so far, secondary treatment has been a bit easier - hormones which bring back severe menopause symptoms including joint ache, and bone pills which are a PITA to take - fast 5 hours, don't eat or drink or take painkillers 30 mins after taking (even when you're screaming with pain!), stay upright for 1 hour after taking .... Oh yes, and the controlled drug painkillers! Yes, when the treatment gets too bad - I have a couple of chemos in hand, and one more change of hormones) no doubt I'll say enough, but for now heavy morphine derivative keeps me fairly sane, and my days are about 10 hours awake, whish isn't bad when on previous pain drug it was 5 hours - thank you palliative care man! I have little energy, a lot of fatigue, apppetite is up and down, and my brain sometimes a bit iffy - but I still race my beloved Broomstick when I can, I go out, albeit sometimes in a wheelchair or with a stick, I laugh - and yes, I cry too - I just enjoy what time I've got with my ever loving husband (who now works from home as my carer.
Until it goes walkabout to my liver brain and or lungs (breast cancer's other favourite abodes, I'll likely be around for a while - but no-one knows what path its going to take - it's different for everyone - my brother in law - yes men get bc too - was dx with secondaries in December and died 2 weeks after my secondary dx in September - I've already lasted longer than him since sec dx.
Live every day as if it's your last and don't be afraid to talk about it - it does help, tho some people cannoit take you being frank with them - br prepated for that.
Nina
t, I had dx of breast cancer and 15 lymph nodes in Mar 09, and in September last year they confirmed it was setting up home in my spine and hips, making it secondary cancer which is treatable (initially) but not curable - it's going to get me eventually!! The primary treatment is pretty awful, but without it - despite the stories to the contrary - the prognosis for it coming back or spreading further is much worse. For me so far, secondary treatment has been a bit easier - hormones which bring back severe menopause symptoms including joint ache, and bone pills which are a PITA to take - fast 5 hours, don't eat or drink or take painkillers 30 mins after taking (even when you're screaming with pain!), stay upright for 1 hour after taking .... Oh yes, and the controlled drug painkillers! Yes, when the treatment gets too bad - I have a couple of chemos in hand, and one more change of hormones) no doubt I'll say enough, but for now heavy morphine derivative keeps me fairly sane, and my days are about 10 hours awake, whish isn't bad when on previous pain drug it was 5 hours - thank you palliative care man! I have little energy, a lot of fatigue, apppetite is up and down, and my brain sometimes a bit iffy - but I still race my beloved Broomstick when I can, I go out, albeit sometimes in a wheelchair or with a stick, I laugh - and yes, I cry too - I just enjoy what time I've got with my ever loving husband (who now works from home as my carer.
Until it goes walkabout to my liver brain and or lungs (breast cancer's other favourite abodes, I'll likely be around for a while - but no-one knows what path its going to take - it's different for everyone - my brother in law - yes men get bc too - was dx with secondaries in December and died 2 weeks after my secondary dx in September - I've already lasted longer than him since sec dx.
Live every day as if it's your last and don't be afraid to talk about it - it does help, tho some people cannoit take you being frank with them - br prepated for that.
Nina
andy short said:
Hi guys
was wondering if any others on here were fighting this fking horrible condition
i was told last october that i had it, and its been a horrible journey since ,all of december and jan was spent having chemo , 5 days on and two weeks to recover that was hell on earth,everything you have ever heard about it is true,after that i was in for the first tumour to be removed at which piont i was told it has spread to my lymph glands
Am now waiting to go back in on the 18th june to have my lynph glands removed ! i have been told this is not good and will effect me for the rest of my life (how ever long that is).
it wasnt until i was told that i realized just how widespread it is ,now nearly everyone i speak to knows someone or is related to someone who has it. WTF !
so i was wondering if anyone else was going through this aswell ?
Was diagnosed with testicular cancer in 2009, had Chemo and multiple trips to the Surgical Theatre,including removal of some lymph glands - do you know how many they are looking to take out?was wondering if any others on here were fighting this f
king horrible conditioni was told last october that i had it, and its been a horrible journey since ,all of december and jan was spent having chemo , 5 days on and two weeks to recover that was hell on earth,everything you have ever heard about it is true,after that i was in for the first tumour to be removed at which piont i was told it has spread to my lymph glands
Am now waiting to go back in on the 18th june to have my lynph glands removed ! i have been told this is not good and will effect me for the rest of my life (how ever long that is).
it wasnt until i was told that i realized just how widespread it is ,now nearly everyone i speak to knows someone or is related to someone who has it. WTF !
so i was wondering if anyone else was going through this aswell ?
I completed a 100km Charity bike ride yesterday, and so its not always complete doom and gloom
The 1 in 3 statistic is often quoted, and I believe the actual stats are now heading higher than that as people who would have died from other causes now live long enough for cancer to get them, but the treatments are definitely getting better. In my case I was advised that in the 70's there would have been nothing they could do for me, now the survival rate is over 90%
Another one here for testicular back in 96 I won’t lie it’s never going to be easy and your outlook on life changes overnight but with good support you will get through it.
The only lasting side effect
I have to remember to carry loose change in my right hand pocket to balance me out otherwise I tend to circle
Chin up fella
The only lasting side effect
I have to remember to carry loose change in my right hand pocket to balance me out otherwise I tend to circle
Chin up fella
yep it certainly changes your outlook on life a bit.
i had a brain tumour removed about 7 weeks ago, it was a bit unusual in that i was awake for a good part of the op. the tumour was located next to the part of the brain that controls my speech so they needed me awake so they didnt damage any healthy tissue. so a very weird and surreal experience. (wide awake crainiotomy if you want to google/youtube it)
im back at work now and feel fine, had another MRI scan on friday as they couldnt remove everything so depending on what shows up i'll either just have regular scans or start radiography and chemo.
its been a pretty quick journey from diagnosis to treatment for me so ive not really dwelled on it, ive tried to have a positive attitude and just concentrate on getting back to normal as soon as possible, but the constant hospital visits soon starts to wear you down.
i had a brain tumour removed about 7 weeks ago, it was a bit unusual in that i was awake for a good part of the op. the tumour was located next to the part of the brain that controls my speech so they needed me awake so they didnt damage any healthy tissue. so a very weird and surreal experience. (wide awake crainiotomy if you want to google/youtube it)
im back at work now and feel fine, had another MRI scan on friday as they couldnt remove everything so depending on what shows up i'll either just have regular scans or start radiography and chemo.
its been a pretty quick journey from diagnosis to treatment for me so ive not really dwelled on it, ive tried to have a positive attitude and just concentrate on getting back to normal as soon as possible, but the constant hospital visits soon starts to wear you down.
What sort of cancer is it if you don't mind me asking?
I'm going through my fight with melanoma at the mo, and have recently had 48 lymph nodes, parotid gland and the exterior jugular vein removed from the left side of my neck, and I feel perfectly healthy, as I have done throughout. But I've not had to suffer chemo yet. How bad the lymph node removal affects you depends where they are and how many they remove. There's 600+ in your head and neck for example, so 48 less is no bother for me. There is always some effect on the body due to their removal, as they are the body's drain system. In my case this means the left side of my jaw and lower face swells up a bit from time to time, worse if I sleep on my left hand side. The same is true for most bits of the body, but equally your body WILL generate additional channels and bypass the removed bits.
Otherwise best of luck, and don't forget how important your state of mind is. Thinking that you're going to beat it and refusing to let it affect your life or get you down is amongst the best ways of getting through it. If you give up, then it will get to you and get you down. Fight it and at the very least you'll be around for longer, being a PITA and getting some of your hard earned taxes back. Some folk I know think I've not taken my condition as seriously as I should. But equally, fk 'um. It's my condition and I will deal with it my way, which is mainly poking fun at it. I've now got a hole in the head, and my neck. But equally all I need for Halloween now is some green paint and a bolt and I'm away!
I'm going through my fight with melanoma at the mo, and have recently had 48 lymph nodes, parotid gland and the exterior jugular vein removed from the left side of my neck, and I feel perfectly healthy, as I have done throughout. But I've not had to suffer chemo yet. How bad the lymph node removal affects you depends where they are and how many they remove. There's 600+ in your head and neck for example, so 48 less is no bother for me. There is always some effect on the body due to their removal, as they are the body's drain system. In my case this means the left side of my jaw and lower face swells up a bit from time to time, worse if I sleep on my left hand side. The same is true for most bits of the body, but equally your body WILL generate additional channels and bypass the removed bits.
Otherwise best of luck, and don't forget how important your state of mind is. Thinking that you're going to beat it and refusing to let it affect your life or get you down is amongst the best ways of getting through it. If you give up, then it will get to you and get you down. Fight it and at the very least you'll be around for longer, being a PITA and getting some of your hard earned taxes back.
Some folk I know think I've not taken my condition as seriously as I should. But equally, fk 'um. It's my condition and I will deal with it my way, which is mainly poking fun at it. I've now got a hole in the head, and my neck. But equally all I need for Halloween now is some green paint and a bolt and I'm away!Well, yes, I'm sure you'll find more than a few of us here with more a nodding acquainance with the Big C
Personally I first made it's acqaintance courtsey of an unpleasant dose of lung cancer - life expecancy around 6 month and that was nearly two years ago. Next enounter, bone cancer (mainly confined to rib, back, chest, shoulders etc) Then a jolly set of brain tumours, leaving me passed out in various locations whenever they would strike! Then stomach, various glands, knees etc
There don't appear to be any guarantees, hard and fast rules. As has been said, a really positive mental approach is at least as important as deciding what treatments could work for you. And I say that as someone who stands virtually no chance of seeing this year out.
Good luck and I hope to hear of you way into the future.
Personally I first made it's acqaintance courtsey of an unpleasant dose of lung cancer - life expecancy around 6 month and that was nearly two years ago. Next enounter, bone cancer (mainly confined to rib, back, chest, shoulders etc) Then a jolly set of brain tumours, leaving me passed out in various locations whenever they would strike! Then stomach, various glands, knees etc
There don't appear to be any guarantees, hard and fast rules. As has been said, a really positive mental approach is at least as important as deciding what treatments could work for you. And I say that as someone who stands virtually no chance of seeing this year out.
Good luck and I hope to hear of you way into the future.
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