Effing cancer is an effing effer, frankly
Discussion
I posted on this thread a while back when my mum was diagnosed with it. Frankly, the decline has been shocking. Unfortunately now, she's in her final hours. The only crumb of comfort is that she wont be suffering anymore.
Cancer of the gallbladder, which then spread to the liver. There were only 2 chemos she could have, both of which made her far too ill to continue. She's been through some proper s
t operations, having stents fitted to her liver in order for it to drain properly, but now unfortunately, its nearly game over.
Shame for my dad really, he worked away as a HGV driver for the majority of his life, only coming home for 4 days a month. the past 5 or 6 years he's been on UK work so home a bit more, but he retired at the start of the year, with hopes she would get better and they could hook up the caravan and go on some holidays. It wasn't meant to be and its him I feel most sorry for.
I'll go back and read this thread more later on, for now, I best get my arse up the hospital, but this disease is an absolute
Cancer of the gallbladder, which then spread to the liver. There were only 2 chemos she could have, both of which made her far too ill to continue. She's been through some proper s
t operations, having stents fitted to her liver in order for it to drain properly, but now unfortunately, its nearly game over.Shame for my dad really, he worked away as a HGV driver for the majority of his life, only coming home for 4 days a month. the past 5 or 6 years he's been on UK work so home a bit more, but he retired at the start of the year, with hopes she would get better and they could hook up the caravan and go on some holidays. It wasn't meant to be and its him I feel most sorry for.
I'll go back and read this thread more later on, for now, I best get my arse up the hospital, but this disease is an absolute
James_N said:
I posted on this thread a while back when my mum was diagnosed with it. Frankly, the decline has been shocking. Unfortunately now, she's in her final hours. The only crumb of comfort is that she wont be suffering anymore.
Cancer of the gallbladder, which then spread to the liver. There were only 2 chemos she could have, both of which made her far too ill to continue. She's been through some proper st operations, having stents fitted to her liver in order for it to drain properly, but now unfortunately, its nearly game over.
Shame for my dad really, he worked away as a HGV driver for the majority of his life, only coming home for 4 days a month. the past 5 or 6 years he's been on UK work so home a bit more, but he retired at the start of the year, with hopes she would get better and they could hook up the caravan and go on some holidays. It wasn't meant to be and its him I feel most sorry for.
I'll go back and read this thread more later on, for now, I best get my arse up the hospital, but this disease is an absolute
I know exactly what you are going through as this is what my wife died of. She also had the same stent operation to allow the bile to drain. It was a rapid recline and each week she was worse, you could almost see her deteriorating before your eyes. I think the hardest was lying to her we she asked questions like "I will walk again won't I"?Cancer of the gallbladder, which then spread to the liver. There were only 2 chemos she could have, both of which made her far too ill to continue. She's been through some proper s
t operations, having stents fitted to her liver in order for it to drain properly, but now unfortunately, its nearly game over.Shame for my dad really, he worked away as a HGV driver for the majority of his life, only coming home for 4 days a month. the past 5 or 6 years he's been on UK work so home a bit more, but he retired at the start of the year, with hopes she would get better and they could hook up the caravan and go on some holidays. It wasn't meant to be and its him I feel most sorry for.
I'll go back and read this thread more later on, for now, I best get my arse up the hospital, but this disease is an absolute
So sorry and good luck to you all.
Somebody where i used to works summed it up quite well
he did try to pin a speeding ticket on me once, but other than that he was an OK bloke
(incidentally he got it and passed away)
he said to me
"The Ar~~~~les of the world do get it, but your fortunate not to have any in your life so you wouldn't know about it"
he did try to pin a speeding ticket on me once, but other than that he was an OK bloke
(incidentally he got it and passed away)
he said to me
"The Ar~~~~les of the world do get it, but your fortunate not to have any in your life so you wouldn't know about it"
Morningside said:
Mrs Muttleysnoop said:
What really p's me off about the lovely cancer is that the arses of this world never get diagnosed with it.
Good luck to everyone having to deal with it.
Good luck to everyone having to deal with it.
You are right there.It levels all lives in an instant and creates an equal playing field in which its might roller coaster sits. Everyone who rides, as player or as watcher, worries, suffers and experience the deepest lows but highest highs of it's might twists and turns.
...
I remember the first time I tried to visualise the cancer 'rollercoaster' in the days after my wife's diagnosis. In my mind's eye I saw something black, something brooding, something from a horror movie that was all malice and malevolence. I ran in fear of it for a while and it became a brooding nightmare of my worst nightmares - the scene from Jurassic park being chased by a T-Rex. In fact, in the hospital that I my wife stayed in, there was one long corridor that at night, when the hospital was quiet, I ran down as the end I could sense the brooding malevolence of it, the t-rex of cancer chasing us. I remember one evening talking to my lass about my fears and she said to me 'but Russell, you're smarter than it, you don't have to out run it, or out fight it, you are smarter than it and see it for what it is.'
She was right, we are. We are stronger than it, for that is cancer other than cell mutation. It. Doesn't have a 'brain', it lacks intelligence, it's not sentient, it's a disease process whose stop codons don't function - all green lights on a crossroads causing cellular chaos and a pile up.
So that rollercoaster... look at it differently; paint it a different colour, change the way you perceive it, feel it, touch it, sense it, think about it, image it, even taste it... process it and all it brings with a sense difference to what you fear.
My lass died and the process was pretty horrific, but one thing that made me able to function again, today, as a complete human being is that throughout the process, every day and in every way I could, I tried to keep cancer in a place and in a context that I could handle and make sense of.
The first thing that cancer tried to take from you the moment you hear 'sorry, it's cancer...' is your sense of control. The first thing you need to do, before treatment plans even begin is to work out what that means to you and how to place it into the context of your life, so that cancer does not become YOUR LIFE. And to do that you have to live a very conscious existence and be very much in the here and now and live in the present.
Plan for the worst, hope for the best (and never give up hope)... but LIVE today.
It's not cliché, it's how you get to live the best life with cancer.
Afterwards, when your loved one is gone, or you walk away from cancer, far from remission and in to the future, you live with a different mental perspective. It's something like this 'cancer was in my life. It was an interloper and a most unwelcome one. But, we live beyond all that it gave and all that it did.'
I'm a pragmatist. I learned to be through cancer gracing my life with its numerous gifts - and this is no fluffy hippy-speak I write here, it's based on the s
t end of tumours, strokes, blindness, paralysis, bloody haemorrhaging and worse. It's not enough to survive cancer. It's not enough, not for any of you going through it. You deserve more than that and to do that, don't be afraid of it, adapt to it and what it brings and walk tall in all it brings; unbroken. You are the cancer giants, all of you. James_N said:
I posted on this thread a while back when my mum was diagnosed with it. Frankly, the decline has been shocking. Unfortunately now, she's in her final hours. The only crumb of comfort is that she wont be suffering anymore.
Cancer of the gallbladder, which then spread to the liver. There were only 2 chemos she could have, both of which made her far too ill to continue. She's been through some proper st operations, having stents fitted to her liver in order for it to drain properly, but now unfortunately, its nearly game over.
Shame for my dad really, he worked away as a HGV driver for the majority of his life, only coming home for 4 days a month. the past 5 or 6 years he's been on UK work so home a bit more, but he retired at the start of the year, with hopes she would get better and they could hook up the caravan and go on some holidays. It wasn't meant to be and its him I feel most sorry for.
I'll go back and read this thread more later on, for now, I best get my arse up the hospital, but this disease is an absolute
I'm sorry, spend as much time with her as you can & make some good memories, talk to her about her. So she can tell her story, I didn't get chance to learn nearly enough about my Mum xxCancer of the gallbladder, which then spread to the liver. There were only 2 chemos she could have, both of which made her far too ill to continue. She's been through some proper s
t operations, having stents fitted to her liver in order for it to drain properly, but now unfortunately, its nearly game over.Shame for my dad really, he worked away as a HGV driver for the majority of his life, only coming home for 4 days a month. the past 5 or 6 years he's been on UK work so home a bit more, but he retired at the start of the year, with hopes she would get better and they could hook up the caravan and go on some holidays. It wasn't meant to be and its him I feel most sorry for.
I'll go back and read this thread more later on, for now, I best get my arse up the hospital, but this disease is an absolute
So had my 3 weekly appraisal yesterday white platelets are starting to be produced which means the cancer is weakening according to the consultant and is what she would like to see happen 
, on my third cycle of chemo now and side effects are pretty rotten , so I am booked in for a CT and a MRI scan to take a look at how the chemo is doing fingers crossed
, on my third cycle of chemo now and side effects are pretty rotten , so I am booked in for a CT and a MRI scan to take a look at how the chemo is doing fingers crossed 
Good news, Lost soul. Great news, in fact. Absolutely made up for you. Sorry you're struggling with the side effects of the chemo. If it's any consolation at all, the side effects are only temporary. Not much help I know when you're feeling stty. My mate described it as having a heavy cold, but for weeks instead of three days. A cold won't kill you, but you sure feel rotten while you've got it. Keep on keeping on.
tty. My mate described it as having a heavy cold, but for weeks instead of three days. A cold won't kill you, but you sure feel rotten while you've got it. Keep on keeping on. ali_kat said:
James_N said:
I posted on this thread a while back when my mum was diagnosed with it. Frankly, the decline has been shocking. Unfortunately now, she's in her final hours. The only crumb of comfort is that she wont be suffering anymore.
Cancer of the gallbladder, which then spread to the liver. There were only 2 chemos she could have, both of which made her far too ill to continue. She's been through some proper st operations, having stents fitted to her liver in order for it to drain properly, but now unfortunately, its nearly game over.
Shame for my dad really, he worked away as a HGV driver for the majority of his life, only coming home for 4 days a month. the past 5 or 6 years he's been on UK work so home a bit more, but he retired at the start of the year, with hopes she would get better and they could hook up the caravan and go on some holidays. It wasn't meant to be and its him I feel most sorry for.
I'll go back and read this thread more later on, for now, I best get my arse up the hospital, but this disease is an absolute
I'm sorry, spend as much time with her as you can & make some good memories, talk to her about her. So she can tell her story, I didn't get chance to learn nearly enough about my Mum xxCancer of the gallbladder, which then spread to the liver. There were only 2 chemos she could have, both of which made her far too ill to continue. She's been through some proper s
t operations, having stents fitted to her liver in order for it to drain properly, but now unfortunately, its nearly game over.Shame for my dad really, he worked away as a HGV driver for the majority of his life, only coming home for 4 days a month. the past 5 or 6 years he's been on UK work so home a bit more, but he retired at the start of the year, with hopes she would get better and they could hook up the caravan and go on some holidays. It wasn't meant to be and its him I feel most sorry for.
I'll go back and read this thread more later on, for now, I best get my arse up the hospital, but this disease is an absolute
"PHUCK YOU CANCER, YOU PHUCKING PHUCKERY PHUCKER. JUST PHUCK OFF, RIGHT NOW, ALL THE WAY OVER THERE. AND WHEN YOU GET THERE, PHUCK OFF A BIT MORE. THEN KEEP PHUCKING OFF."
Dibble said:
Good news, Lost soul. Great news, in fact. Absolutely made up for you. Sorry you're struggling with the side effects of the chemo. If it's any consolation at all, the side effects are only temporary. Not much help I know when you're feeling stty. My mate described it as having a heavy cold, but for weeks instead of three days. A cold won't kill you, but you sure feel rotten while you've got it. Keep on keeping on.
Thanks Dibble ,for me its a mouth that's so sore I cannot eat the last few days , although the latest meds I have been given seem to be fixing that and cramps in my hands ,the tips of my fingers feel as if they have been beaten and hands and feet are breaking out in a rash , hair has gone a bit funny tty. My mate described it as having a heavy cold, but for weeks instead of three days. A cold won't kill you, but you sure feel rotten while you've got it. Keep on keeping on. 
but in fact is better than it has ever been and apparently I have developed proper eye lashes + nose bleeds but its a small price to pay , it can be a really brutal treatment but I am sure my side affects are minor compared to many Lost soul said:
Dibble said:
Good news, Lost soul. Great news, in fact. Absolutely made up for you. Sorry you're struggling with the side effects of the chemo. If it's any consolation at all, the side effects are only temporary. Not much help I know when you're feeling stty. My mate described it as having a heavy cold, but for weeks instead of three days. A cold won't kill you, but you sure feel rotten while you've got it. Keep on keeping on.
Thanks Dibble ,for me its a mouth that's so sore I cannot eat the last few days , although the latest meds I have been given seem to be fixing that and cramps in my hands ,the tips of my fingers feel as if they have been beaten and hands and feet are breaking out in a rash , hair has gone a bit funny tty. My mate described it as having a heavy cold, but for weeks instead of three days. A cold won't kill you, but you sure feel rotten while you've got it. Keep on keeping on. but in fact is better than it has ever been and apparently I have developed proper eye lashes + nose bleeds but its a small price to pay , it can be a really brutal treatment but I am sure my side affects are minor compared to many 
).
so had a weekend in hospital , turned up on Friday for a blood transfusion and then chemo as planned but felt groggy and very cold , ended up being sent straight to A&E and spent the day being stabilised , then admitted and pumped full of antibiotics and saline all weekend , was released on Monday evening , was bordering neutropenia its a bumpy road and quite a brutal treatment but I am back now and feel much better if a bit weak
Could have been neutropenic sepsis? I had it a couple of times as my neutrophils went down to literally zero, which was pretty much the aim in my treatment. Sounds like you are getting a positive response with the antibiotics and am sure you will be alright. I found a good digital thermometer was really useful in identifying whether I had an infection coming on or not when at home. Mine was hospital surplus stock, try ebay if needed.
I was diagnosed last May 7th, so my anniversary is coming up. Still feel a bit weak/tired at times but life is not bad, I have a new to me boat being delivered this week on my 1 year anniversary, F*** off cancer!
I was diagnosed last May 7th, so my anniversary is coming up. Still feel a bit weak/tired at times but life is not bad, I have a new to me boat being delivered this week on my 1 year anniversary, F*** off cancer!
Biggles111 said:
Could have been neutropenic sepsis? I had it a couple of times as my neutrophils went down to literally zero
I was just under 1 on the neutrophils and my HB was 7;5 
I was wheezing like an old A series doing anything , but after 4 units of red I am strong like bull again Lost soul said:
I was just under 1 on the neutrophils and my HB was 7;5 I was wheezing like an old A series doing anything , but after 4 units of red I am strong like bull again
Yes, good stuff that blood! I got through about 24 units of red and lots of platelets. One of the first things I did on getting better was to go and meet my local blood team to say thanks, I had taken it for granted before. I was wheezing like an old A series doing anything , but after 4 units of red I am strong like bull again Sounds like you're going well, good one!
Biggles111 said:
Lost soul said:
I was just under 1 on the neutrophils and my HB was 7;5 I was wheezing like an old A series doing anything , but after 4 units of red I am strong like bull again
Yes, good stuff that blood! I got through about 24 units of red and lots of platelets. One of the first things I did on getting better was to go and meet my local blood team to say thanks, I had taken it for granted before. I was wheezing like an old A series doing anything , but after 4 units of red I am strong like bull again Sounds like you're going well, good one!
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