Effing cancer is an effing effer, frankly

Effing cancer is an effing effer, frankly

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aspirated

2,539 posts

145 months

Sunday 27th September 2015
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Wow, where does time fly

I've now completed all my active treatment, with radiotherapy finishing midway through June. Didn't eat or drink a single thing from April through to June, surviving by my stomach tube.

Officially been in remission since August 3rd. Still getting used to normal life. The immunotherapy drug is still pretty strong but I just feel really lucky to have survived.

Also celebrated my 19th a fortnight ago.

All the best to everyone in this thread, especially Lost soul, who's grit and determination really pushed me forward even though I'm just reading words on a screen. I hope should mine ever return I have the same attitude.

audikentman

632 posts

241 months

Monday 28th September 2015
quotequote all
aspirated said:
Wow, where does time fly

I've now completed all my active treatment, with radiotherapy finishing midway through June. Didn't eat or drink a single thing from April through to June, surviving by my stomach tube.

Officially been in remission since August 3rd. Still getting used to normal life. The immunotherapy drug is still pretty strong but I just feel really lucky to have survived.

Also celebrated my 19th a fortnight ago.

All the best to everyone in this thread, especially Lost soul, who's grit and determination really pushed me forward even though I'm just reading words on a screen. I hope should mine ever return I have the same attitude.
Well done threads like this keep me positive.

I finished chemo on the 4th of August and have 17 sessions of radio coming in a couple weeks.

fkcancer!

aspirated

2,539 posts

145 months

Monday 28th September 2015
quotequote all
audikentman said:
aspirated said:
Wow, where does time fly

I've now completed all my active treatment, with radiotherapy finishing midway through June. Didn't eat or drink a single thing from April through to June, surviving by my stomach tube.

Officially been in remission since August 3rd. Still getting used to normal life. The immunotherapy drug is still pretty strong but I just feel really lucky to have survived.

Also celebrated my 19th a fortnight ago.

All the best to everyone in this thread, especially Lost soul, who's grit and determination really pushed me forward even though I'm just reading words on a screen. I hope should mine ever return I have the same attitude.
Well done threads like this keep me positive.

I finished chemo on the 4th of August and have 17 sessions of radio coming in a couple weeks.

fkcancer!
Good luck my friend, hope the radio goes well..my 33 consecutive sessions were a killer!

audikentman

632 posts

241 months

Monday 28th September 2015
quotequote all
aspirated said:
Good luck my friend, hope the radio goes well..my 33 consecutive sessions were a killer!
Thanks. I hope its going well for you, stay strong and positive and hopefully you are starting to see a bright future.

Although I'm going through it, its nowhere near what you are experiencing.

I've survived 8 sessions of ABVD chemo, hair starting to grow back. Had the mask made up and got 4 tattoos ready to go in a couple of weeks.

aspirated

2,539 posts

145 months

Wednesday 30th September 2015
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audikentman said:
aspirated said:
Good luck my friend, hope the radio goes well..my 33 consecutive sessions were a killer!
Thanks. I hope its going well for you, stay strong and positive and hopefully you are starting to see a bright future.

Although I'm going through it, its nowhere near what you are experiencing.

I've survived 8 sessions of ABVD chemo, hair starting to grow back. Had the mask made up and got 4 tattoos ready to go in a couple of weeks.
All the best, my last chemo was in March so I've lots of hair now, its so fluffy and everyone wants to feel it! I'll never forget the first time wearing my mask

audikentman

632 posts

241 months

Wednesday 30th September 2015
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aspirated said:
All the best, my last chemo was in March so I've lots of hair now, its so fluffy and everyone wants to feel it! I'll never forget the first time wearing my mask
Mine is coming back, never lost the chest rug though smile

Did you keep the mask after you finished the radio? I'm tempted to keep it, spray it gold and hang it on the wall after I beat the cancer. It can fk off now.

General Price

5,239 posts

182 months

Wednesday 30th September 2015
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Lost soul said:
I am prescribed Fortisip which I s like a milk shake shot with 300 cals so not bad , but I am back full power eating now , have developed an almost fetish for roast pork , pork stews and ice cream in incredible quantities hehe so I am now making weight
Any news Lost Soul,not posted for 4 or 5 months. frown

audikentman

632 posts

241 months

Wednesday 30th September 2015
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aspirated

2,539 posts

145 months

Saturday 3rd October 2015
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audikentman said:
Mine is coming back, never lost the chest rug though smile

Did you keep the mask after you finished the radio? I'm tempted to keep it, spray it gold and hang it on the wall after I beat the cancer. It can fk off now.
I did want to keep it, but they said id have to wait 6 weeks before they could give it to me...and after 6 weeks i just never really bothered. i suppose if the opportunity arose id take it

rolex

3,110 posts

257 months

Sunday 4th October 2015
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At the age of 91 dad's been diagnosed with localised prostate cancer. Undergoing hormone therapy at the moment which basically stops him producing Testosterone which the cancer needs to grow. Two weeks of tablets followed by monthly injections. A week in now taking the drugs and dad so far not experiencing any menopausal side effects. It would be a laugh if it wasn't so tragic.

Edited by rolex on Sunday 4th October 17:18

audikentman

632 posts

241 months

Monday 5th October 2015
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rolex said:
At the age of 91 dad's been diagnosed with localised prostate cancer. Undergoing hormone therapy at the moment which basically stops him producing Testosterone which the cancer needs to grow. Two weeks of tablets followed by monthly injections. A week in now taking the drugs and dad so far not experiencing any menopausal side effects. It would be a laugh if it wasn't so tragic.

Edited by rolex on Sunday 4th October 17:18
Best wishes to you and your Dad. Hope he gets through it ok.

rolex

3,110 posts

257 months

Monday 12th October 2015
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Thank you. Anyone else have relatives undergoing hormone therapy for prostate cancer? Dad just had a few menopausal symptoms hot flushes but coping with it at the moment

Oystercatcher

481 posts

201 months

Monday 12th October 2015
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Relatives? No. Me? Yes...

Triptorelin 3-monthly curently, next injection on Thursday.

Hot flushes can be several times an hour then nothing for 2-3 hours. Wasn't too bad at first, but getting worse...

I have Advanced Prostate Cancer, the fker is slowly munching its way up my spine...

CharlesdeGaulle

26,103 posts

179 months

Monday 12th October 2015
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Good luck Oystercatcher. Hard to know what else to say really, but I hope you beat this fker of a disease.

Oystercatcher

481 posts

201 months

Tuesday 13th October 2015
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Thanks. There's nothing you or anyone can say but I appreciate the thought. I can't beat it, once it's out that's it, it's only a matter of time. 5 years if I'm lucky...

I was referred to Oncology end of May for possible radio or chemo and was told that 'they were trying to be a bit cleverer, more proactive and hit it early'. This idea has come from the US CHAARTED trial which had recently published and preliminary results from the UK STAMPEDE trial. Indications were that giving chemo at the same time as hormone treatment prolonged life by up to 18 months/2 years for men with advanced PC. Normally chemo is given much later once hormone therapy has failed and PSA starts to rise.

Unfortunately for me the NHS won't fund it...

I'm fighting that with the help of my MP. Luckily for me he's a bit of a campaigner, but it's looking like if I want the treatment they say will benefit me I'm going to have to pay for it myself... I'm 57, 3 years off retirement with 40 years worth of pension. I'm fking collecting that!

drivin_me_nuts

17,949 posts

210 months

Tuesday 13th October 2015
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Oystercatcher said:
Thanks. There's nothing you or anyone can say but I appreciate the thought. I can't beat it, once it's out that's it, it's only a matter of time. 5 years if I'm lucky...

I was referred to Oncology end of May for possible radio or chemo and was told that 'they were trying to be a bit cleverer, more proactive and hit it early'. This idea has come from the US CHAARTED trial which had recently published and preliminary results from the UK STAMPEDE trial. Indications were that giving chemo at the same time as hormone treatment prolonged life by up to 18 months/2 years for men with advanced PC. Normally chemo is given much later once hormone therapy has failed and PSA starts to rise.

Unfortunately for me the NHS won't fund it...

I'm fighting that with the help of my MP. Luckily for me he's a bit of a campaigner, but it's looking like if I want the treatment they say will benefit me I'm going to have to pay for it myself... I'm 57, 3 years off retirement with 40 years worth of pension. I'm fking collecting that!
Forgive me for writing this, I hope it does not offend. I stood and watched my lass die over a few months and I learned something from it and from others who fought for every breath every day. Enjoy your pension, enjoy every day you have but don't get so hung up on the fight, so that it becomes the sole focus of your life. The quality of your life is more precious than that.

I hope you understand what I mean and I really hope it hasn't offended you. My best wishes, DMN

Oystercatcher

481 posts

201 months

Tuesday 13th October 2015
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No offence taken, I'm trying to do just that smile

Just caught a little bit of XH558 displaying over Sywell, made my day cloud9

rolex

3,110 posts

257 months

Thursday 15th October 2015
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Just a thought about my father's localised prostate cancer. He's currently undergoing hormone therapy but he has not been offered any radio therapy or chemo. Could it be because of his age at 91 the NHS is not bothering too much with his treatment? Apart from having difficulty urinating, Dad is still fit and active.

Edited by rolex on Thursday 15th October 01:58

CAPP0

19,533 posts

202 months

Tuesday 22nd December 2015
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Just had an email from MrsC. She bumped into the next door neighbours today. We don't see much of them, they're very quiet people, but we always pass the time of day when we do see them.

Anyway, it transpires that having felt dizzy and had headaches for a little while, he took himself off to the doc. He's probably late 40s. After tests, they've told him that he has tumours in his head, his lungs, his liver and his lymph nodes. Immediate course of radio started.

What a hideous thing for him. And of course, whilst awful at any time, somehow worse at this time of year. No idea of prognosis, they didn't say, but with things spread to that extent, I can't help feeling it won't be great.

Just felt a need to share. 53 years ago today my mum died, aged 24, so having the news about the neighbour as well is a little tough.

Quattromaster

2,904 posts

203 months

Tuesday 22nd December 2015
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Below is a bit written by the sister in law of a friend of mine who we said goodbye to last Friday. Read out by the minister at the crem.

UP YOURS CANCER!

It’s been nearly 2 years to the day that you came into our lives, nobody invited you. Like so many others before us, you just turned up with all you’re baggage, you didn’t even knock! You must have seen when you came in the collection of different shoes all jumbled up at the front door, the school blazers, the various coats hanging up on the peg and over the banisters. You must have seen and felt the love of a normal family life all around you. That alone should of made you realize you’d got the wrong house. But it didn’t stop you did it! It didn’t matter who we were, what we were, you knew who you wanted and what you would do to get it, and there was nothing we could do to stop you.
Etiquette certainly wasn’t your thing, once you was in you didn’t take your shoes off like everyone else, instead you left a trail of dirty filthy stenching foot prints wherever you went, your presence was so overwhelming, you suffocated us. No matter what we threw at you there was no relenting, your ever tightening grip over the weeks and months was so immense, it hurt, it hurt so badly. But you wouldn’t understand that, or you simply wouldn’t do it, time and time again, over and over, all those people’s lives you have destroyed. You really are nothing but scum, the pit of the earth.
As your presence and your grip grew stronger, so did your baggage, you was everywhere, a constant reminder, every second, every moment that you would get what you came for. Layer by layer you stripped us all bear of all that we knew and loved.
It took you longer than you’d planned, but you finally got what you came for, you did it! I bet you feel so proud of yourself don’t you? You hung on so tight, you wouldn’t let go, God we tried so hard to free him, we tried with every ounce of strength we had, you simply wanted him and, you just took him. It’s been the hardest battle we have ever fought! You probably think you have won...but let me tell you something. You haven’t!
Never before, have we felt such unconditional love between our family and friends, we have suffered and witnessed the most brutal of all emotions. We have expressed our love to each other far beyond words ever could, we may never of done that in our ‘normal lives’ and for that I’m grateful. I’m grateful for the opportunities we had to enjoy the precious times, times we can cherish forever. You will never take that from us, you will never take his soul, what he believed in, what he loved and all that he stood for; we will always have his courage, his hope and his fight. We will forever have his friendship, and no matter what, you will never ever strip us of our memories, his time with so many will never ever be forgotten. They will be forever in our hearts, forever in our thoughts; always there when we need them, you’ll never get your dirty death ridden hands on them...they are ours for keeps!
I also thank you, as you’re so wrapped up in your own world you probably didn’t even notice the amazing wonderful strangers you've brought into our lives, unlike you, they knocked, wiped their feet and took their shoes off, they always arrived with a smile on their face, with words of wisdom, words of encouragement, words of advice, or a shoulder to cry on, or just to listen, and to help when things got tough, we didn’t know them, but they came and for that I’m truly grateful. Along with friends who have become family, the endless friends who never stopped caring and offering support through any means they could. I thank you from the bottom of my heart for that.
For all the thousands of people you have taken and the countless lives you have destroyed, you are relentless, you make me sick! One day we will find a way to rid you, one day we will be able to shout with glee from the roof tops that you are gone, gone for good. Our doors will be flung open knowing you’ll never let yourself in, with your filthy dirty footprints, and all your baggage.
But for now Cancer, I pray you yourself get Cancer, and you spend an eternity in the deepest darkest depths of Hell living with it, and its suffocating baggage!

fk you Cancer.

A video put together of the convoy at the funeral, some amazing metal there, link below in case anybody wants a look.

https://www.youtube.com/watch?v=GitLslvpdvI

Edited by Quattromaster on Tuesday 22 December 13:45