What's wrong with me?!
Discussion
KTF said:
Was this scan to decide what they are going to do or more of a check before surgery?
Would attempting to reduce the size using radiotherapy first be an option or is that not going to work given that the grey matter around it will also get a dose?
The latter. They said irrespective, the surgery will be the same but also to determine and post-op options.Would attempting to reduce the size using radiotherapy first be an option or is that not going to work given that the grey matter around it will also get a dose?
Radiotherapy not a viable option before surgery, apparently for this; not sure why.
Cheers guys
E65Ross said:
The latter. They said irrespective, the surgery will be the same but also to determine and post-op options.
Ok, I can see why not they said not to go running as you don't really want that moving up and down on the brain stem (assuming it does move).Fingers crossed for the surgery
Thanks everyone
ImI'm still shocked at how I'm still, well, functioning!
ImI'm still shocked at how I'm still, well, functioning!
derin100 said:
Ross
I can't seem to see the pictures you uploaded on my computer but I hope all goes well from here on in!
All the best!
Thanks mate, I know you're in the medical field. If interested, pm me and I'll forward you the images I've posted. I can't seem to see the pictures you uploaded on my computer but I hope all goes well from here on in!
All the best!
I have just skim read the thread, only reading your posts after about 6 pages Ross then it dawned on me, today is the 20th! Like you said, reading from the beginning it's quite shocking, a real eye opener and sends a message to everyone, don't take anything for granted. If you feel ill get it sorted, don't just accept it.
I wish you a full and speedy recovery, hopefully all the waiting will be over soon.
I wish you a full and speedy recovery, hopefully all the waiting will be over soon.
Roller coaster of a story Ross that I only started reading yesterday morning. Getting to the end and finding out that you were, as I was reading, having this latest scan was a 'lump in the throat' moment. Is that a poor turn of phrase? 
Such courage was inspiring to read.
I wish you all the best, and urge you to keep laughing when you can.
Steve
Such courage was inspiring to read.
I wish you all the best, and urge you to keep laughing when you can.
Steve
Heard nothing yesterday sadly. Literally just been sick. Been feeling rough all night, woke up at about 3:30am and haven't slept ad my stomach had been like a washing machine and it's only finally been sick.
Now I'm quite awake. As a treat, Thursday evening I ordered myself a PS4 from Amazon for when I'm off sick.... Expected delivery was Monday but tracking says it's in Southampton as of last night so if I'm really lucky it might arrive today.... Would brighten me up just a little bit!
I will call neuro-ocology department Monday late afternoon if I don't hear anything. On 1 side I don't want to "pester" them
But on the other side I want to know what's going on and I want to get this f
king thing out of me!!
Thanks again for reading/listening. It's really helping me I think
Now I'm quite awake. As a treat, Thursday evening I ordered myself a PS4 from Amazon for when I'm off sick.... Expected delivery was Monday but tracking says it's in Southampton as of last night so if I'm really lucky it might arrive today.... Would brighten me up just a little bit!
I will call neuro-ocology department Monday late afternoon if I don't hear anything. On 1 side I don't want to "pester" them
But on the other side I want to know what's going on and I want to get this f
king thing out of me!! Thanks again for reading/listening. It's really helping me I think
Hi Ross, glad you're keeping it together.
Have you been talked to about the lesser potential post op side effects? Nothing major to worry about IIRC but you may not be able to drive for quite some time so talk to your GP/registrar/consultant about it. Don't volunteer any information to the DVLA without careful consideration first. Oh and DO NOT make plans for getting back to work until well after you're out - although physically you'll be well rested you may feel very tired for some time.
Have you been talked to about the lesser potential post op side effects? Nothing major to worry about IIRC but you may not be able to drive for quite some time so talk to your GP/registrar/consultant about it. Don't volunteer any information to the DVLA without careful consideration first. Oh and DO NOT make plans for getting back to work until well after you're out - although physically you'll be well rested you may feel very tired for some time.
My heart goes out to you mate. I feel ill just reading that.
My ex was diagnosed with a very aggressive breast cancer over a year ago and it has been a hellish time for the family, especially our kids but I have to give it to her, she came through all the nasty drug treatments, chemo and radio with good humour and hopefully it's behind her now. Considering the character she was before diagnosed it has heartened me that she was able to cope so well. I suppose when the chips are getting low we just push a bit harder.
They do wonders these days and you seem a very stoic young chap and I'm sure that he will take this on and smash it.
All the best fella.
My ex was diagnosed with a very aggressive breast cancer over a year ago and it has been a hellish time for the family, especially our kids but I have to give it to her, she came through all the nasty drug treatments, chemo and radio with good humour and hopefully it's behind her now. Considering the character she was before diagnosed it has heartened me that she was able to cope so well. I suppose when the chips are getting low we just push a bit harder.
They do wonders these days and you seem a very stoic young chap and I'm sure that he will take this on and smash it.
All the best fella.
goldblum said:
Yeah you'll be on a waiting list whatever the timeframe before the op actually is.
Which hopefully won't be too long! Goldblum - I had thought of this with work. That letter has brought it home again, as it were.
My dad got all serious saying I ought to make a will etc etc. They didn't mention death
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