What's wrong with me?!
Discussion
Some of the nurses are indeed lovely, but what u wouldn't give to get back to being normal again. Hand on heart I wouldn't take £100M pounds and stay like this over just being normal again.
I'm currently wearing an eye patch to help with the diplopia, I have very bad numbness around my legs and, erm, saddle area and can't feel my bits but at least I can go to the loo (with help sadly!).... Hopefully it's just a hell of a lot of swelling and in the coming weeks and months it'll settle.
I'm petrified, truth be told. But that's not to be unexpected I suppose. I would genuinely end it if there is NO further improvements by another month.... But as long as there are changes over time I can look forward.
I'm currently wearing an eye patch to help with the diplopia, I have very bad numbness around my legs and, erm, saddle area and can't feel my bits but at least I can go to the loo (with help sadly!).... Hopefully it's just a hell of a lot of swelling and in the coming weeks and months it'll settle.
I'm petrified, truth be told. But that's not to be unexpected I suppose. I would genuinely end it if there is NO further improvements by another month.... But as long as there are changes over time I can look forward.
E65Ross said:
I'm petrified, truth be told. But that's not to be unexpected I suppose. I would genuinely end it if there is NO further improvements by another month.... But as long as there are changes over time I can look forward.
Hi RossThe fact you're relatively compus mentis, would you believe, is a bonus. I was mentally cabbaged for months. You'll get through this I promise but it will take time. It's a massive operation and recovery will be slow so don't push yourself trying to post on here. The fact you've had your life saved should be enough for now!
I have to agree with the others - you have shown the most astonishing spirit thus far. Please don't get despondent; the tumour that could have ended your life in misery has gone. You now have 'only' to recover and regain your former strength. It takes a fortnight to heal a cut finger - don't expect a neurological wound to heal more quickly or even quickly at all. Keep your chin up Old Bean!
Ross in short time you will be looking back on this as a past event and a life experience to be bought out at dinner parties and bar mitzvahs. Something to tell the kids.
The days must drag and you must feel crap but its NOT forever and Christ I didn't think you would be posting within 10 days of having major surgery - surely a PH recovery of the year award is due.
I suggest you archive this thread as a fantastic diary of feeling a bit ill to full recovery and on going barge addiction.
The days must drag and you must feel crap but its NOT forever and Christ I didn't think you would be posting within 10 days of having major surgery - surely a PH recovery of the year award is due.
I suggest you archive this thread as a fantastic diary of feeling a bit ill to full recovery and on going barge addiction.
Bit pissed off earlier, they seriously f
ked my feed up, so in 1 week this already skinny person lost 8kgs! I'm well underweight now so that's not going to help recovery.
Saw ent chap who stuck a camera down my nose. 1 of 2 vocal cords not be but suspects it's due to surgery (well, duh). Just saw physios and with a bit of support I walked to the toilet door and have been given permission that I need just one helper to walk me to the loo and also..... A sit down shower!! That'll be heaven! Baby steps, but steps. Just more desperate for the cranial nerve stuff to work again!
ked my feed up, so in 1 week this already skinny person lost 8kgs! I'm well underweight now so that's not going to help recovery. Saw ent chap who stuck a camera down my nose. 1 of 2 vocal cords not be but suspects it's due to surgery (well, duh). Just saw physios and with a bit of support I walked to the toilet door and have been given permission that I need just one helper to walk me to the loo and also..... A sit down shower!! That'll be heaven! Baby steps, but steps. Just more desperate for the cranial nerve stuff to work again!
E65Ross said:
Bit pissed off earlier, they seriously fked my feed up, so in 1 week this already skinny person lost 8kgs! I'm well underweight now so that's not going to help recovery.
Saw ent chap who stuck a camera down my nose. 1 of 2 vocal cords not be but suspects it's due to surgery (well, duh). Just saw physios and with a bit of support I walked to the toilet door and have been given permission that I need just one helper to walk me to the loo and also..... A sit down shower!! That'll be heaven! Baby steps, but steps. Just more desperate for the cranial nerve stuff to work again!
Hiya Ross. Popped into this thread to see how you were getting on - miss your antics in the running thread. Wishing you all the best with the progress.ked my feed up, so in 1 week this already skinny person lost 8kgs! I'm well underweight now so that's not going to help recovery. Saw ent chap who stuck a camera down my nose. 1 of 2 vocal cords not be but suspects it's due to surgery (well, duh). Just saw physios and with a bit of support I walked to the toilet door and have been given permission that I need just one helper to walk me to the loo and also..... A sit down shower!! That'll be heaven! Baby steps, but steps. Just more desperate for the cranial nerve stuff to work again!
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