What's wrong with me?!
Discussion
E65Ross said:
Bit of an update after my parents took my phone away!.... It's been a long time here, I'm still at hospital. I needed another op on my throat (tracheostomy) because I couldn't swallow saliva was getting into my lungs and causing infection after infection). I'm awaiting one more operation to fit a stomach peg so until I can swallow again I'll b3 feeding myself through a tube into my stomach.
My eyes are still poor with diplopia, my tongue is moving MARGINALLY more (and I do mean marginally at best), I have developed an extremely weak swallow (it doesn't even take any saliva down, but I had nothing at all last week so that's progress), my balance is still iffy but markedly better and I can just about walk around myself but feel more confident with a zimmerframe. The numbness in my legs and, erm, private area is still similar, perhaps marginally better again. Drs seem to think most of my problems will settle (whether that'll be 100% or not, who knows) but this will likely be quite a few months rather than weeks.
Good lad. I'm sorry you're landed with a trachy but it sounds like it's very very much for the best. I've got a PEG myself, once it's settled down it's a piece of piss to look after, so much easier than an NG tube and wider bore so you can shove a pureed Christmas dinner down it if you feel up to it. It really sounds like you're doing well, even that you're on here at all talking to us lot is one hell of a good sign. My eyes are still poor with diplopia, my tongue is moving MARGINALLY more (and I do mean marginally at best), I have developed an extremely weak swallow (it doesn't even take any saliva down, but I had nothing at all last week so that's progress), my balance is still iffy but markedly better and I can just about walk around myself but feel more confident with a zimmerframe. The numbness in my legs and, erm, private area is still similar, perhaps marginally better again. Drs seem to think most of my problems will settle (whether that'll be 100% or not, who knows) but this will likely be quite a few months rather than weeks.
Stomach peg being fitted this afternoon so that'll get rid of this nasty nose tube. Walking yesterday really coming along well, I walked a couple of hundred metres in one stint, largely without crutches and at normal walking pace. Still a bit wobbly but the progress in the last 4 days with that has been amazing.
Swallow is not really any better, tongue is moving a touch more (it's very subtle and the only reason I noticed was I can now JUST about lift my tongue high enough for them to get the thermometer under it when they check my temperature. Legs still a bit numb though and not much better.
They seem confident to send me home for a good few hours Xmas day as I've already learned how to feed myself and almost learned what I need to to care for this trachy, all I need to learn now is how to take out and clean the inner tube/canula thing and replace that and change the dressing.
I'm getting mixed views.... Some nurse saying I could be out next week, another saying they usually let trachy patients out on Mondays but because of new year and District nurses being off it may be Monday 5th.... Who knows! How can you upload videos here? I've got a video of me walking. I'll see if I can upload a few pics too.
Swallow is not really any better, tongue is moving a touch more (it's very subtle and the only reason I noticed was I can now JUST about lift my tongue high enough for them to get the thermometer under it when they check my temperature. Legs still a bit numb though and not much better.
They seem confident to send me home for a good few hours Xmas day as I've already learned how to feed myself and almost learned what I need to to care for this trachy, all I need to learn now is how to take out and clean the inner tube/canula thing and replace that and change the dressing.
I'm getting mixed views.... Some nurse saying I could be out next week, another saying they usually let trachy patients out on Mondays but because of new year and District nurses being off it may be Monday 5th.... Who knows! How can you upload videos here? I've got a video of me walking. I'll see if I can upload a few pics too.
Holy f
k. What did they use, a machete?! 
Good to hear you're coming along well. Scary pictures...
If you stay in, can you have visits and maybe a half decent meal on Christmas day?
As has been said before, it's inspiring how much you're keeping your chin up.
Hope you can have as good a Christmas as is possible, in your situation
k. What did they use, a machete?! Good to hear you're coming along well. Scary pictures...
If you stay in, can you have visits and maybe a half decent meal on Christmas day?
As has been said before, it's inspiring how much you're keeping your chin up.
Hope you can have as good a Christmas as is possible, in your situation
Try this
http://www.youtube.com/watch?v=mWHrEz4noC0&sns...
I've managed to put 2kgs back on which is good. I just want to go home and get some decent sleep!
http://www.youtube.com/watch?v=mWHrEz4noC0&sns...
I've managed to put 2kgs back on which is good. I just want to go home and get some decent sleep!
OpulentBob said:
Can I ask what may be a dumb question? Why is one eye of your specs blanked out?
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