What's wrong with me?!
Discussion
So glad I came up to London.
For lunch my brother made me this (I had 2nd helpings too!)
It's potato gnocchi with a cream and Saint Agur cheese sauce, tenderstem broccoli and roasted cherry tomatoes topped with parmesan cheese and bread crumbs. Was absolutely delicious!
We went shopping as well, but time was limited so tomorrow will be more. We went to Fortnum and Mason and I go some florentines as well as some Sicilian blood orange marmalade
My only concern with trachy is there are some bits of phlegm that I can't cough up too easily with the tube blocked, but open I can get it to fly out of the tube (which can be quite amusing! But it's quite thick and not too nice. I'm hoping with rest it'll settle over the next week as the cold settles.
For lunch my brother made me this (I had 2nd helpings too!)
It's potato gnocchi with a cream and Saint Agur cheese sauce, tenderstem broccoli and roasted cherry tomatoes topped with parmesan cheese and bread crumbs. Was absolutely delicious!
We went shopping as well, but time was limited so tomorrow will be more. We went to Fortnum and Mason and I go some florentines as well as some Sicilian blood orange marmalade
My only concern with trachy is there are some bits of phlegm that I can't cough up too easily with the tube blocked, but open I can get it to fly out of the tube (which can be quite amusing! But it's quite thick and not too nice. I'm hoping with rest it'll settle over the next week as the cold settles.
Went to see my GP today, the first time since the surgery. He seemed really quite interested in all the goings-on, as it were.
There were 2 reasons for my visit really, the 1st being that my discharge letter said a blood test revealed normal red blood cell size but low iron and haemoglobin levels. This course have been due to all I've been through but I'm getting a blood test Friday just to check it out and see if it's improved
Secondly, I keep waking up at night f9r a piss. I always have done since I was young and assumed I'd had a weak and/or small bladder but since surgery it's taking the proverbial a bit.... I'm waking up every couple of hours and in total I'm peeing about 1.5 litres of fluid overnight, and not much during the day (even if I don't really drink anything past 6-7pm). He thinks it's due to having a catheter fitted for quite a while and has said to either leave it but when I need to go to the toilet, hold on to it to let the bladder stretch a bit before going.... Or take a medication to allow it to stretch a bit more before I feel the need to go.
I chose the no-medication route and have said if there are no noticeable changes in another few weeks I'll pop back.
Hospital tomorrow all day to get this tracheostomy thing sorted. Hope it goes well so it can come out on Wednesday!
There were 2 reasons for my visit really, the 1st being that my discharge letter said a blood test revealed normal red blood cell size but low iron and haemoglobin levels. This course have been due to all I've been through but I'm getting a blood test Friday just to check it out and see if it's improved
Secondly, I keep waking up at night f9r a piss. I always have done since I was young and assumed I'd had a weak and/or small bladder but since surgery it's taking the proverbial a bit.... I'm waking up every couple of hours and in total I'm peeing about 1.5 litres of fluid overnight, and not much during the day (even if I don't really drink anything past 6-7pm). He thinks it's due to having a catheter fitted for quite a while and has said to either leave it but when I need to go to the toilet, hold on to it to let the bladder stretch a bit before going.... Or take a medication to allow it to stretch a bit more before I feel the need to go.
I chose the no-medication route and have said if there are no noticeable changes in another few weeks I'll pop back.
Hospital tomorrow all day to get this tracheostomy thing sorted. Hope it goes well so it can come out on Wednesday!
E65Ross said:
Went to see my GP today, the first time since the surgery. He seemed really quite interested in all the goings-on, as it were.
There were 2 reasons for my visit really, the 1st being that my discharge letter said a blood test revealed normal red blood cell size but low iron and haemoglobin levels. This course have been due to all I've been through but I'm getting a blood test Friday just to check it out and see if it's improved
Secondly, I keep waking up at night f9r a piss. I always have done since I was young and assumed I'd had a weak and/or small bladder but since surgery it's taking the proverbial a bit.... I'm waking up every couple of hours and in total I'm peeing about 1.5 litres of fluid overnight, and not much during the day (even if I don't really drink anything past 6-7pm). He thinks it's due to having a catheter fitted for quite a while and has said to either leave it but when I need to go to the toilet, hold on to it to let the bladder stretch a bit before going.... Or take a medication to allow it to stretch a bit more before I feel the need to go.
I chose the no-medication route and have said if there are no noticeable changes in another few weeks I'll pop back.
Hospital tomorrow all day to get this tracheostomy thing sorted. Hope it goes well so it can come out on Wednesday!
Did anyone comment on anything pee wise when they were monitoring your 'ins and outs' (fluid balance) in hospital post-op? There were 2 reasons for my visit really, the 1st being that my discharge letter said a blood test revealed normal red blood cell size but low iron and haemoglobin levels. This course have been due to all I've been through but I'm getting a blood test Friday just to check it out and see if it's improved
Secondly, I keep waking up at night f9r a piss. I always have done since I was young and assumed I'd had a weak and/or small bladder but since surgery it's taking the proverbial a bit.... I'm waking up every couple of hours and in total I'm peeing about 1.5 litres of fluid overnight, and not much during the day (even if I don't really drink anything past 6-7pm). He thinks it's due to having a catheter fitted for quite a while and has said to either leave it but when I need to go to the toilet, hold on to it to let the bladder stretch a bit before going.... Or take a medication to allow it to stretch a bit more before I feel the need to go.
I chose the no-medication route and have said if there are no noticeable changes in another few weeks I'll pop back.
Hospital tomorrow all day to get this tracheostomy thing sorted. Hope it goes well so it can come out on Wednesday!
Best of luck tomorrow. Suspect that you'll not be needing the trachy or PEG for much longer - if not this week then still soon.
Well, just woken up and yes, I'm in hospital.
Yesterday was a bit of a polava with 1/2 the people knowing what was going on and the other 1/2 not but eventually all things worked out.
Blocked off the tracheostomy tube and said if my oxygen levels stay all ok (between 95-100%)then the tracheostomy can come out.
I'm currently at 98% and have been flickering between 97 and 100% the whole time.
At 0230 I was woken by nurse to check my blood pressure and she said things were looking very good for me so unless something happens or I suddenly die in the next few hours this should be coming out today at some point.
It's not even a general anaesthetic either! If possible, this clearly the more preferable option and I may even be able to go home today afterwards, who knows.
Yesterday was a bit of a polava with 1/2 the people knowing what was going on and the other 1/2 not but eventually all things worked out.
Blocked off the tracheostomy tube and said if my oxygen levels stay all ok (between 95-100%)then the tracheostomy can come out.
I'm currently at 98% and have been flickering between 97 and 100% the whole time.
At 0230 I was woken by nurse to check my blood pressure and she said things were looking very good for me so unless something happens or I suddenly die in the next few hours this should be coming out today at some point.
It's not even a general anaesthetic either! If possible, this clearly the more preferable option and I may even be able to go home today afterwards, who knows.
Amazing progress. I've still got my Christmas tree to take to the tip and you've had major surgery and have nigh on fully recovered in the same time I've been procrastinating.
Have you got "a new lease of life", as people who have come through major life-threatening stuff say? Has it changed your attitude to things, made you more YOLO (sorry) or anything?
Have you got "a new lease of life", as people who have come through major life-threatening stuff say? Has it changed your attitude to things, made you more YOLO (sorry) or anything?
OpulentBob said:
.Have you got "a new lease of life", as people who have come through major life-threatening stuff say? Has it changed your attitude to things, made you more YOLO (sorry) or anything?
Aswhether I'd call it a new lease of life, I'm not do sure. But it has changed my attitude on a few things in life. It's also made me realise who my true friends are, and what a true friend really means. I've had several distant family members (but biologically very close, and geographically too) try adding me on Facebook and so on once it got out I had a tumour, but when I last saw them a year or more back they I didn't even bother talking to me so I didn't accept and haven't bothered with them. Call me Scrooge It's changed a few things but I'm not sure it's been a dramatic change. The main thing I'd say is that I've learned not to take things for granted..... I mean, even something so simple as being able to swallow, walk, see clearly with your eyes, talk normally and so on. Such simple stuff can have huge implications if they don't work!
Dr's have said tracheostomy will he coming out and I'll be monitored afterwards. Whether that means another night here I've absolutely no idea. I really hope not but if needs must!
All removed but because it's later in the day I've got to stay overnight again, but that's not the end of the world.
Stomach peg has to stay in for minimum 8 weeks but we're going to arrange having that out, it's only been in for 6 weeks so hopefully it'll be out within a few more weeks.
Stomach peg has to stay in for minimum 8 weeks but we're going to arrange having that out, it's only been in for 6 weeks so hopefully it'll be out within a few more weeks.
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