What's wrong with me?!

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E65Ross

Original Poster:

34,941 posts

211 months

Friday 20th February 2015
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hehe

They're a LOT better than they were, that's for sure!

Driller

8,310 posts

277 months

Friday 20th February 2015
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Looking good Ross, impressive stuff after all you've been through!

bint

4,664 posts

223 months

Friday 20th February 2015
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I too haven't popped into PH for a while, having just read your recent run stats I wish I hadn't! I got
pushed tonight doing 3 miles with a friend and averaged 10min miles.

You pooh poohed my initial comments on how your recovery would be weeks in comparison to the months of torture you endured, but you are proof that young and healthy determined people will bounce back quickly so fair play.

E65Ross

Original Poster:

34,941 posts

211 months

Saturday 21st February 2015
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Thanks again for the kind comments everyone. Once again, I can't thank you all enough for your support. This forum has been a great way of getting things off my chest, so to speak.

The last 2-3 weeks have been the most positive weeks for me, tracheostomy out, stomach peg out, eyes considerably better, managed (perhaps stupidly!?) to do a small run.... I'm finally seeing the light, so to speak and can see that in time I should be able to get back to some sort of normality again.

E65Ross

Original Poster:

34,941 posts

211 months

Sunday 22nd February 2015
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I thought this year was supposed to be better for our family...

2014 I had an Uncle have a brain haemorrhage, my nan broke her foot, my grandfather diagnosed and treated for prostate cancer (successfully,I hasten to add!), both my brother and I (twins!) had wisdom teeth infections at the same time (despite living 80 miles apart) and had surgery to have those out within 2 days of each other at different hospitals, my step-father had a heart attack, my aunt ruptured a disc in her low back and then I top it off with a brain tumour

Now last night my mum went into hospital and has suffered a minor heart attack and is in overnight. I feel helpless not being able to get there!

I told her that it's not a competition as to who can have the most serious condition or stay the longest in hospital!

You gotta laugh at it all, or else it's cry instead!

Edited by E65Ross on Sunday 22 February 08:47

br d

8,388 posts

225 months

Sunday 22nd February 2015
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I wish her well Ross, I'm sure she's getting the best of care.

Driller

8,310 posts

277 months

Sunday 22nd February 2015
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Sorry to hear about your mum Ross, good health to her!

As an aside and I'm in no way an expert and sorry if this is nonesense (and probably inappropriate hehe) but if you're identical twins, has anyone discussed the possibilty of screening your brother just in case?

E65Ross

Original Poster:

34,941 posts

211 months

Sunday 22nd February 2015
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Driller said:
Sorry to hear about your mum Ross, good health to her!

As an aside and I'm in no way an expert and sorry if this is nonesense (and probably inappropriate hehe) but if you're identical twins, has anyone discussed the possibilty of screening your brother just in case?
I asked the surgeon this and he said absolutely not to worry. No genetic predisposition for this tumour and said I just had "bad luck"

But a valid point of course

crikey

1,700 posts

210 months

Thursday 26th February 2015
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I came across this thread the other day and have just finished reading it all, I went through something similar a while ago but didn't have the after effects you had, well done for coping so well smile

I was having a few problems with my eyesight (double vision) and hearing, as well as regular headaches. I had an MRI and this was found:



48mm across at it's widest point.

5 weeks later (Nov 2013) I went through an 18 hour operation during which they managed to remove about a third of it, which according to the lead consultant was "enough". A biopsy showed what they suspected, it was a grade 1 meningioma. Benign and very slow growing.

I had some swallowing issues afterwards but was back on solids about 10 days after the op. I also had to learn to walk again, again after 10 days or so I was taking small steps. 15 months later and my balance still isn't back to before, but the op left me deaf in one ear so that affects things a bit too.My eyesight is sorted by having prisms in my glasses, and the headaches have all gone smile

I had 6 weeks of radiotherapy 7 months after the op (once I'd recovered sufficiently from the surgery) which I coped with ok. No hair loss (I was already way ahead of the there smile) or nausea, I just got very tired towards the end of it and coming off the steroids after the radio was bloody horrible.

A scan in October showed the radiotherapy had worked as they'd hoped, I have another scan in May and if all's ok at that one they won't see me for another 12 months.

Aside from the tumour growing in the first place, at no point have I felt anything other than very lucky at every stage with the way things have worked out.

Again, knowing what it's like to go through this sort of thing, I can imagine how much harder it must have been for you. You've coped brilliantly.

E65Ross

Original Poster:

34,941 posts

211 months

Thursday 26th February 2015
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Thanks for sharing your experience, it's amazing, isn't it, how things in the same sort of area can offer wildy different symptoms. 18 hour operation.... Jesus wept!

I'm actually back at Southampton General Hospital at this very moment.... Tracheostomy site STILL weeping and not sealed properly so they said to come back in and get it looked at.

No idea what will happen!

SimesJH

768 posts

150 months

Thursday 26th February 2015
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@Crikey... well,umm...crikey!! Hope you make a full recovery, sir.

Ross: Hope it goes well, and best wishes for your Mum.


br d

8,388 posts

225 months

Thursday 26th February 2015
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Inspirational stuff crikey, I wish you all the best with your continued recovery.

It's amazing to think that we have the technology these days to first find something like that, and then to be able to get into the middle of your head and take it out!


crikey

1,700 posts

210 months

Thursday 26th February 2015
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Thanks.

I have to say I don't see myself as inspirational, as Ross said a while back there's no option but to face up to it and do / have done what needs to be done.

One thing I will say is, and reading Ross's story backs me up, staying positive is absolutely crucial. I am utterly convinced this plays as big a part in recovery as anything.

E65Ross

Original Poster:

34,941 posts

211 months

Thursday 26th February 2015
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So.... Excess granulation tissue is growing which is preventing the site from sealing. I had it partly cauterised today and have to go back again Monday and maybe a few more times after that. If that fails to work it'll be cut out, cauterised again and the sutured up.

Still, worse things could happen I suppose!

dave_s13

13,813 posts

268 months

Friday 27th February 2015
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Wounds like that can take what seems like an age to heal but compared to some folk it'll be a distant memory soon enough. I've seen lots if people with open leg ulcers that are just unable to heal and have been active for decades. Miserable stuff!

As an aside an assuming you've got a spare ten minutes ☺can I have your opinion on this thread please?
http://www.pistonheads.com/gassing/topic.asp?h=0&a...

E65Ross

Original Poster:

34,941 posts

211 months

Friday 27th February 2015
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dave_s13 said:
Wounds like that can take what seems like an age to heal but compared to some folk it'll be a distant memory soon enough. I've seen lots if people with open leg ulcers that are just unable to heal and have been active for decades. Miserable stuff!

As an aside an assuming you've got a spare ten minutes ?can I have your opinion on this thread please?
http://www.pistonheads.com/gassing/topic.asp?h=0&a...
Could be something quite simple like scalene trigger point having developed. Unlikely to be anything to worry about and something a chiropractor should at least be as good as the others at. Comical first reply about being weary about chiropractors and neck stuff. I could get on my high horse and spout a load of research articles and RCTs but I really can't be arsed.

Doesn't hurt when you take a really deep breath in, no? If you look up and turn your head left or right does it hurt more one way? If so, does I hurt more looking to the opposite side?

Off to visit my mum in hospital today. Big bit of burnt granulation tissue fell out of my tracheostomy site earlier! Hehe


Edited by E65Ross on Friday 27th February 09:44

dave_s13

13,813 posts

268 months

Friday 27th February 2015
quotequote all
E65Ross said:
Could be something quite simple like scalene trigger point having developed. Unlikely to be anything to worry about and something a chiropractor should at least be as good as the others at. Comical first reply about being weary about chiropractors and neck stuff. I could get on my high horse and spout a load of research articles and RCTs but I really can't be arsed.

Doesn't hurt when you take a really deep breath in, no? If you look up and turn your head left or right does it hurt more one way? If so, does I hurt more looking to the opposite side?

Off to visit my mum in hospital today. Big bit of burnt granulation tissue fell out of my tracheostomy site earlier! Hehe


Edited by E65Ross on Friday 27th February 09:44
Cheers Ross.

No pain with deep breath.

Stood neutral - no pain
Look up - pain in left armpit (top of bicep)
Look up +right - pain intensifies
Look up +left - pain reduces slightly

Also aching a but when driving.

I've got a good recommendation for a chiropractor that also trains at my Crossfit gym, he's fekin hard to get an appt with though!

E65Ross

Original Poster:

34,941 posts

211 months

Friday 27th February 2015
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Could be scalenes or possibly sternocleidomastoid. Without doing a proper physical exam it really isn't possible to say for certain.

CloaK

12 posts

113 months

Friday 27th February 2015
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br d said:
Inspirational stuff
It is indeed and I thought I had some problems to deal with.

I wish you all the best.

E65Ross

Original Poster:

34,941 posts

211 months

Friday 27th February 2015
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Here's the scar, taken today!