Bowel surgery for Cronh's, any experience

Bowel surgery for Cronh's, any experience

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dumfriesdave

384 posts

137 months

Monday 10th February 2014
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Jam Spavlin said:
I would also advise not watching comedy as laughing hurts too!
Was just about to post the exact same advice.
Speaking from painful experience of lying on couch watching comedy dvds.

Another one - don't sneeze is it feels you are going to burst wide open.

richtea78

5,574 posts

158 months

Tuesday 11th February 2014
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Plus don't strain too hard on the toilet

Not normally an issue anyone has but if you have been hitting the opiates it might be

Good luck.

Rick_1138

Original Poster:

3,673 posts

178 months

Tuesday 11th February 2014
quotequote all
Well got home fine. Be in looked after by the Mrs.

Sleeping in spare room to avoid fidgeting, got 1989 batman on, heaps of pillows holding me up.

Main issues are indigestion, groin throbbing, and still very tender but happy to be home.

Lots of tablets in a bag.

SomersetWestie

402 posts

180 months

Wednesday 12th February 2014
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richtea78 said:
My first meal was too soon after the surgery as I was pushing too hard. Ended up having to be aspirated with an NG tube which was not pleasant and set me back quite a while
Aaaaaah....... i too have been through this when my bits decided to to wake up after the surgery...... not something i'd like to repeat too often either !!!!!

SomersetWestie

402 posts

180 months

Wednesday 12th February 2014
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SomersetWestie said:
Aaaaaah....... i too have been through this when my bits decided to to wake up after the surgery...... not something i'd like to repeat too often either !!!!!
  • NOT to wake up, i should say......

ecain63

10,588 posts

175 months

Thursday 20th February 2014
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Good reading, thanks folks.

I'm due to go in for surgery for bowel cancer (mid part of ascending colon, beside duodenum but not attached) so reading your recovery processes is interesting stuff. I'm coming to the end of chemo number 5 tomorrow (3 week cycles) and due my 6th and final infusion on the 28th. Surgery should be 4 to 6 weeks after that finishes (2 weeks tablets after IV drugs) so we are looking at mid to late april.

Anyone here got experience of this sort of surgery? Can't be that dissimilar to chrones surgery can it?

I'm hoping for keyhole given my age (32) and where i am (Bournemouth - they do keyhole here) but obviously an 'unzip' is a good possibility. How does keyhole compare to major-invasive?

Eddie

richtea78

5,574 posts

158 months

Thursday 20th February 2014
quotequote all
I'm not sure. Mine wasn't key hole and was for Crohns. I don't know what they do to treat bowel cancer honestly.

I don't want to give you information that might be wrong. Good luck with the surgery though

jbudgie

8,918 posts

212 months

Friday 21st February 2014
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ecain63 said:
Good reading, thanks folks.

I'm due to go in for surgery for bowel cancer (mid part of ascending colon, beside duodenum but not attached) so reading your recovery processes is interesting stuff. I'm coming to the end of chemo number 5 tomorrow (3 week cycles) and due my 6th and final infusion on the 28th. Surgery should be 4 to 6 weeks after that finishes (2 weeks tablets after IV drugs) so we are looking at mid to late april.

Anyone here got experience of this sort of surgery? Can't be that dissimilar to chrones surgery can it?

I'm hoping for keyhole given my age (32) and where i am (Bournemouth - they do keyhole here) but obviously an 'unzip' is a good possibility. How does keyhole compare to major-invasive?

Eddie
I have had two operations for bowel cancer,
1) Anterior resection,
2)Right hemi-colectomy.

Think (2) might be similar to what you will be having.

Keyhole doesn't depend on your age but on what they need to get at.

Hasn't the doc told you what to expect ?

Keyhole is a lot quicker to recover from than a zip.

I am twice your age and both ops were 'zip', 26 clips in the last one.



ecain63

10,588 posts

175 months

Friday 21st February 2014
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Nobody has told me anything about surgery yet as the focus has been on shrinking as much as possible the bd tumour. It was 10cm at day 1 and its been heavily battered since with good results. Luckily the cancer is only in one place with minimal influence on surrounding tissue. There was some inflammation of a couple of nearby lymph nodes (which has reduced) but no sign of cancer.

I was only supposed to have 4 rounds of chemo pre-op but they are giving me another 2 as a bonus because the treatment is working so well. The smaller the better im told which is why im hoping its going to be keyhole.

Eddie

jbudgie

8,918 posts

212 months

Saturday 22nd February 2014
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If it's fairly localised , then i assume that keyhole will be the way to go.They will take out the lymph glands close by as well to do pathology on.

Sometimes they dont know until they get inside how much work is needed.

Your age is a good plus point for a quicker recovery.

Be prepared to wake up with a catheter, which is not a problem, but something to ask about.





ecain63

10,588 posts

175 months

Saturday 22nd February 2014
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jbudgie said:
Be prepared to wake up with a catheter, which is not a problem, but something to ask about.
Yeah I think a catheter is fairly standard, but 24hrs with a piss tube isnt really concerning me to be honest. Im just keem to heal as quick as possible because my first child is due the same month. Don't want to be spending all my time in hospital if i can help it.

Watched some hemicolectomy videos last night on YouTube. Interesting viewing!

jbudgie

8,918 posts

212 months

Sunday 23rd February 2014
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Hadn't realised that they showed ops on You Tube smile


The animations seem interesting, not sure that I particularly wanted to see the ops before I went in !!
You must be more of a geek than me .eek

Think you will probably only be in for about 5 days.Fitness is the main thing to help you.

I have always been in longer as I always suffer from an ileus which tends to take 4 or so days to clear.


Gaffer

7,156 posts

277 months

Sunday 23rd February 2014
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Had Crohns since I was 8 or 9 years old (38 now)

Tend to have an episode every 5 years or so till I gave up on the drugs and the restrictive diet, it made me worse by stressing over what I could(n't) eat and I have been fine since 2007 when I was in ICU (had a 48 hour drinking session and put myself into Manchester Royal Infirmary - it was a good weekend..!)

I have refused surgery every time as I don't want the bag

Manage it perfectly well without the interference from doctors and the like

I don't give a toss and just enjoy myself, going to die of something so whatthehell... biggrin


jbudgie

8,918 posts

212 months

Tuesday 25th February 2014
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ecain63 said:
Nobody has told me anything about surgery yet as the focus has been on shrinking as much as possible the bd tumour. It was 10cm at day 1 and its been heavily battered since with good results. Luckily the cancer is only in one place with minimal influence on surrounding tissue. There was some inflammation of a couple of nearby lymph nodes (which has reduced) but no sign of cancer.

I was only supposed to have 4 rounds of chemo pre-op but they are giving me another 2 as a bonus because the treatment is working so well. The smaller the better im told which is why im hoping its going to be keyhole.

Eddie
Let us know how things go Eddie.

nail_it

968 posts

208 months

Tuesday 25th February 2014
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Rick_1138 said:
Well got home fine. Be in looked after by the Mrs.

Sleeping in spare room to avoid fidgeting, got 1989 batman on, heaps of pillows holding me up.

Main issues are indigestion, groin throbbing, and still very tender but happy to be home.

Lots of tablets in a bag.
Any update?
Hope all is okay

ecain63

10,588 posts

175 months

Thursday 27th February 2014
quotequote all
jbudgie said:
ecain63 said:
Nobody has told me anything about surgery yet as the focus has been on shrinking as much as possible the bd tumour. It was 10cm at day 1 and its been heavily battered since with good results. Luckily the cancer is only in one place with minimal influence on surrounding tissue. There was some inflammation of a couple of nearby lymph nodes (which has reduced) but no sign of cancer.

I was only supposed to have 4 rounds of chemo pre-op but they are giving me another 2 as a bonus because the treatment is working so well. The smaller the better im told which is why im hoping its going to be keyhole.

Eddie
Let us know how things go Eddie.
Will do mate. Got round 6 tomorrow, supposed to be the last. Tuesdays pre-chemo check up with the oncologist didnt throw up any more info, but the doc hinted that another 2 sessions could be an option because im doing so well (ie not dying from poisoning yet). Won't know any more until after ct scan mid March.

Eddie

Rick_1138

Original Poster:

3,673 posts

178 months

Tuesday 18th March 2014
quotequote all
nail_it said:
Any update?
Hope all is okay
Yeah, sorry not been keeping up my notes during my 4 week incarceration in my flat hehe.

All seems pretty good, no pain in the abdomen that I used to get so in that respect the surgery is a complete success.

The only issues now are tenderness in the scar (obviously) so sleeping on my front is still too sore but my body wants to do this when I fall asleep so I wake up in the night so tired a lot.

The other issue is that now I no longer have bowel pain, I find that I need the loo suddenly but its not often the runs, so going on trips is stressful, like it was some 10 years ago when I just had diarrhea etc, but hopefully when I go back on my Azathioprene in a few weeks that will settle down again as it worked before it just couldn't stop the scar area pain.

Other thing is just slightly below the base of the scar I get a tender\sharp twinge in the muscle, a friend thinks this could be an anchor stitch for the bowel that's dissolving and movement is still tender in that area but otherwise I get around fine.

Back to work now, doing 3 half days, then 3 full days next week and full time on the 31st boss has been ace and knows I am not taking the piss etc. I was off painkillers 2 weks ago so just take paracetamol or ibuprofen if needs be but that's rare.

Looking forward to seeing the specialist again and getting my meds back so I can plan holidays with mrs and not be so stressed as I have been for over a decade.

Its been great, just hoping the stinging pain I get now and then subsides, buying 3 guinea pigs was maybe a bad move with all the cleaning and bending, but its good exercise, and they are awful cute.

Titanfall is now taking up most of my free time till I go back to work properly, much to my GF's eye rolling smile

Glad I did it though, feel less painful, lost weight\no bloating, and feel more agile.

dumfriesdave

384 posts

137 months

Tuesday 18th March 2014
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Great to hear it's going well.

nail_it

968 posts

208 months

Wednesday 26th March 2014
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Good luck with your post-op progress and hope the urgency improves when meds are re-instated

Edited by nail_it on Wednesday 26th March 17:55

Rick_1138

Original Poster:

3,673 posts

178 months

Tuesday 1st April 2014
quotequote all
Got blood test today, but phoned the specialist last week myself as my GP hadn't, he was happy days for me starting again, so should start tomorrow.

Only thing pissing me off now is the dry skin on my arm I thought was dry skin is in fact ringworm...sigh, never had it before but was driving me barmy this morning, I now have a cream to apply....