Bowel surgery for Cronh's, any experience
Discussion
My diagnosis and surgery was 1988 when 16 (turned 17 whilst in ICU post surgery). Been flaring for last 6 months but I am a terrible patient and didnt get any treatment til a month ago. I was admitted Thursday and Im on TPN feeding to strengthen me ready for surgery monday or tuesday next week. As I am an idiot and left it too long I need to have a temporary Stoma. Growing up it was always my worst nightmare to even contemplate it but its just daft. I jad central line put in last night which was possibly the most unsettling thing I have ever experienced. Last time i had one it was post surgery and I was unconcious.
I would never normally share this sort of stuff but Ive spoken to some youngsters on the ward last couple of days and without fail they are terrified of both the outcomes and the attitude society has to bowel probs and it must contribute to males leaving things later than they should before seeking help.
I would never normally share this sort of stuff but Ive spoken to some youngsters on the ward last couple of days and without fail they are terrified of both the outcomes and the attitude society has to bowel probs and it must contribute to males leaving things later than they should before seeking help.
Don't despair, I had a bag for 20 months and still went snowboarding, wakeboarding, worked, travelled etc. Clearing security at airports and nightclubs was sometimes iffy though.
The reactions , I guess would depend how old you are when you have this done , I was 33 and most of my mates didn't seem to care. it's not really a talking point with girls though.
Are you having the whole lot whipped out or a re-section ?
I forgot about the joys of the central line, it is a very good way to get painkillers inside you though.
The reactions , I guess would depend how old you are when you have this done , I was 33 and most of my mates didn't seem to care. it's not really a talking point with girls though.
Are you having the whole lot whipped out or a re-section ?
I forgot about the joys of the central line, it is a very good way to get painkillers inside you though.
had my illeostemy when I was 18 after 10 years of pretty aggressive crohns. the surgery was my 3rd main lot and the bag wasnt expected, and there was apparently much swearing in the recovery room. I also then lost my phone to a pool of s
t on the 2nd night after it leaked, and the stoma nurses were shocking back then (still only 27)
I was only left with around 2m of small bowel left and a small rectal stump, now nearly 10 years on I have taken the decision to have my stump removed, I couldn't even imagine going back to the hell of NOT having a bag!! yes its not all glitz and glamour but neither is life without it. now the 1st time since I was diagnosed when I was 8 I am not in remission, with no drugs and part of that I believe if having my bag.
Other thing which I think helped and I have often quashed people going on about 'diets', but the only one which is designed solely for crohns is Modulen, did that for 8 weeks or so, and followed a strict reintro diet and found a couple of foods which seem to trigger it, ever since doing that 4 or so years ago I have been on a gradual improvement.
If you ever want to talk or any advice and what bags/products etc I have found to work well for me just PM me
oh and dont fell like you cant do stuff, I'm off to Vietnam next week for a month on my own, already toured round the rest of Asia etc. don't let it stop you from doing anything.
t on the 2nd night after it leaked, and the stoma nurses were shocking back then (still only 27) I was only left with around 2m of small bowel left and a small rectal stump, now nearly 10 years on I have taken the decision to have my stump removed, I couldn't even imagine going back to the hell of NOT having a bag!! yes its not all glitz and glamour but neither is life without it. now the 1st time since I was diagnosed when I was 8 I am not in remission, with no drugs and part of that I believe if having my bag.
Other thing which I think helped and I have often quashed people going on about 'diets', but the only one which is designed solely for crohns is Modulen, did that for 8 weeks or so, and followed a strict reintro diet and found a couple of foods which seem to trigger it, ever since doing that 4 or so years ago I have been on a gradual improvement.
If you ever want to talk or any advice and what bags/products etc I have found to work well for me just PM me
oh and dont fell like you cant do stuff, I'm off to Vietnam next week for a month on my own, already toured round the rest of Asia etc. don't let it stop you from doing anything.
Thanks for the replies, really appreciated.
I am on a surgical warx at mo on day 5 of my TPN diet to get my Albumin levels up pre surgery so despite being prepped and ready to go yesterday morning I am still hanging about.
The worst thing is that I want to eat, but cant and people eating on the ward is sending me crazy and there are no private rooms available to stop the torture.
Staff have been brilliant though.
I am on a surgical warx at mo on day 5 of my TPN diet to get my Albumin levels up pre surgery so despite being prepped and ready to go yesterday morning I am still hanging about.
The worst thing is that I want to eat, but cant and people eating on the ward is sending me crazy and there are no private rooms available to stop the torture.
Staff have been brilliant though.
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