Bowel surgery for Cronh's, any experience

Bowel surgery for Cronh's, any experience

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Discussion

dumfriesdave

384 posts

137 months

Monday 20th January 2014
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Good to hear you have a date Rick.
Hope it goes well for you.....have a beer

Natural to feel apprehensive but just remember you are in safe hands and they know what they are doing.
After the initial post-op recovery time I noticed a big improvement in quality of life...sure you will too.

jbudgie

8,912 posts

212 months

Monday 20th January 2014
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Rick_1138 said:
Update:

Got my Op date through today.

Surgeons Secretary called and gave me the 5th of February.

They do this thing now where if you are fit and able you can come to the hospital on the day of the surgery rather than a day before and hang about waiting smile

Have a pre op Assessment with the surgeon on Monday to discuss the processs and answer any questions, tell me about post op and what I should do etc.

Looking forward to it, but obviously bit scared in case there are any complications and such, and with the unexpected etc.

never had major surgery before, just little things, only been under General twice before, and never for this long as I would imagine it takes an hour or so.
Yes, things have changed re the coming in the day before etc.

Recently had a second op for bowel cancer and they had me come in on the morning of the op and then straight to theatre. As opposed to last time when it was day before.

Had a few people on my ward who had just had the op for Crohns and they seemed to vary in how they recovered. Fitness is a plus point .
How old are you ?

Don't worry about it, there are always people worse off than yourself when you go into hospital, so its nice to try and reassure them.



honest_delboy

1,502 posts

200 months

Monday 20th January 2014
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Oh noes, 5th Feb is national NHS bring your son/daughter to work day ! (I jest)

I'm no expert but I would expect you to be under for longer than an hour, more like 2-3 once they do the re-sections and sew you back up again. Do you know where the incision is going yet? As the guy says above, it's you age weight smoker/non-smoker etc that determines risk. I wouldn't worry, looking at the bariatric programs on the box if they can put those guys under successfully then you'll have no problems.

All the best

Derek

Rick_1138

Original Poster:

3,667 posts

178 months

Tuesday 21st January 2014
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Cheers folks.

Well I am 31, 5' 7" and about 70kg (slimming down apparently smile ). Don't smoke, hardly drink and am reasonably healthy.

Not quite so fit but that's because was put off exercise after being In pain and each time having to go on roids again and piling weight back on.

So shouldn't be too bad re-recovery. Well an hour or so was a guess for op time, 2-3 hours sounds more plausible.

Hopefully get all my questions answered about what to take, what will go on, what to expect pain wise, where the cut will be etc and how to care for myself for first week home etc.

Work is happy days, as have got major audits tomorrow so should have major boxes ticked for completion before I go, did big handover with operations manager and have laptop with me at home so can do stuff after first week back (boss says I don't have too but glad I offered).

I probably wont be too nervous as I am sort of seeing this as going to give me much better quality of life, I may actually be more nervous afterwards with pain, and not being allowed to leave till been to the loo.....laxatives you say!

dumfriesdave

384 posts

137 months

Tuesday 21st January 2014
quotequote all
No laxatives involved Rick - as a result of the operation your bowel shuts down for a few days. Everything returns to normal after a few days (think I was around 4 or days) but they will not release you till they know the bowels are functioning again.
BTW 70kg is a fine weight for someone with Crohn' s- I had a weigh-in at hospital in Dec and managed 52kg fully clothed.

Rick_1138

Original Poster:

3,667 posts

178 months

Tuesday 21st January 2014
quotequote all
dumfriesdave said:
No laxatives involved Rick - as a result of the operation your bowel shuts down for a few days. Everything returns to normal after a few days (think I was around 4 or days) but they will not release you till they know the bowels are functioning again.
BTW 70kg is a fine weight for someone with Crohn' s- I had a weigh-in at hospital in Dec and managed 52kg fully clothed.
When you say 'fine....you mean fat don't you :P

Hehe, yeah I know I am better off than a mate of mine who has it, hes like a rake.

I was 63k6 but had to pile it on with roids.

So hopefully I can get back to cross training and mild weight lifting again to flatten out the stomach and put some muscle on without keeling over in pain smile

I was expecting about 3 days or so after the op anyway so that's not too bad.

jbudgie

8,912 posts

212 months

Tuesday 21st January 2014
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I would expect possibly up to a week as you said in your original post.

They will try and get you out of bed as soon as possible---although you might not feel like doing it !!
Also possibly on an ARP(?) diet initially--although if you feel like I did , then food wont interest you at all at first.

Rick_1138

Original Poster:

3,667 posts

178 months

Tuesday 28th January 2014
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Had my pre op meeting yesterday.

Answered all questions and was quite surprising, apart from the "These things may happen...." bit its pretty easy, right hand side is apparently simpler, less issues with major blood vessels. Plan to get me up the day after the op.

No change to diet, just eat small amounts relatively often. I was given lots of sachets of protein powder stuff to take 3 times a day for 5 days, and 3 carb powder sachets for the day before and one in the morning, basically fill me up with vitamins, and energy as I fast from midnight on the day of the op.

No pre-treatment stuff which is a relief.

Bought a massive lego starship thing from the old republic sets and 2 minicraft things, basically tiny x-wing and tie- interceptor lego sets, and a shedload of dvd's to watch, mainly sci-fi and breaking bad, as I have never seen it.

I am looking forward to it, but also scared if it goes wrong, i.e. complications, but have been told am fit and healthy so recovery should be good.

Just obviously nervous about it as never had major surgery before, and I know that dignity has to stay at the door when in hospital.

Also bit bummed that Robocop comes out while I am in hospital as quite fancy seeing it, even if it will be poo.

Phone camera scar pics will be forthcoming, along with lego build progress smile

honest_delboy

1,502 posts

200 months

Thursday 30th January 2014
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Good luck, you'll be fine. Walk around as much as you can, it'll all help in the long run.

Don't watch Prometheus (surgery scene is a bit too close for comfort)

Rick_1138

Original Poster:

3,667 posts

178 months

Friday 31st January 2014
quotequote all
TBH its the whey protein shakes I have to take 3 a day of that aren't the best, I don't mind them as I took them when doing fitness training, however of all the various flavours I could get, 'Citrus' is vague enough to be worrisome and tastes a lot like what I expect milk and OJ mixed to taste like.

What was wrong with strawberry?

Ah well not long, and looking forward to hopefully being pain\wind free afterwards (as in once recovered).


nail_it

968 posts

208 months

Saturday 1st February 2014
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Try drinking it through a straw. It reduces the taste.

4G63T

2,947 posts

172 months

Saturday 1st February 2014
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I always get really 'good' farts when I have protein shakes.

like, of epic proportions happening every few mins for a good while.

Jam Spavlin

909 posts

185 months

Sunday 2nd February 2014
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Mine 5 days after being done or to be exact Tuesday the fourth of March 2008.

Unfortunately it didn't go as well as it has for some here as I relapsed in 2011 and I am still flaired up currently waiting for a miricle lol!

Anyway this is it now....



Sent from my Samsung galaxy S3 mini........ while sat on the bog which is where a good percentage of my life is spent!

Jam Spavlin

909 posts

185 months

Sunday 2nd February 2014
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Double post!

Edited by Jam Spavlin on Sunday 2nd February 08:12

Rick_1138

Original Poster:

3,667 posts

178 months

Monday 3rd February 2014
quotequote all
Haha, that picture was a baw hair away from inapropes wink

I think I might be getting a different incision as mine is on the right hand side and I get the impression that's where they are going, may also be diagonal??

Thanks for the frank show though, lets me get a better idea what to expect.

Not long now.

Jam Spavlin

909 posts

185 months

Monday 3rd February 2014
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I won't put up the other failed attempts lol!

Only reason I have such a big scar is because I had actually burst and then fused back together so inside was a mess and a lot more had to come out than first thought.

Rick_1138

Original Poster:

3,667 posts

178 months

Monday 3rd February 2014
quotequote all
Jam Spavlin said:
I won't put up the other failed attempts lol!

Only reason I have such a big scar is because I had actually burst and then fused back together so inside was a mess and a lot more had to come out than first thought.
Ah right, I did wonder, hopefully wont be too big so I can 'lie' on a side that hurts less while playing Forza 5 hehe.

Jam Spavlin

909 posts

185 months

Monday 3rd February 2014
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Yeah I found putting a pillow under my back and laying on my side was the most comfortable.

nail_it

968 posts

208 months

Tuesday 4th February 2014
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Hi Jam. Very sorry to read of your situation
What treatment are you currently receiving?

Jam Spavlin

909 posts

185 months

Tuesday 4th February 2014
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At the moment nohing as everything has failed/ had serious side effects so just pain killers (tramadol) and loperamide to try slow me down a bit and a touch of citalopram just to keep me smiling lol.

I'm due to start Ustekinumab once the hospital has got the funding/ethics committee clearance as it's not currently licenced for use on crohns.

Last resort is all out and intravenous feeding which ain't any good at 30 years old!