Bowel surgery for Cronh's, any experience

Bowel surgery for Cronh's, any experience

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richtea78

5,574 posts

159 months

Saturday 8th February 2014
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My first meal was too soon after the surgery as I was pushing too hard. Ended up having to be aspirated with an NG tube which was not pleasant and set me back quite a while


Rick_1138

Original Poster:

3,683 posts

179 months

Saturday 8th February 2014
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Night 3 after surgery....its a bit stingy. Getting up to pea every few hours in a jar loses its appeal quickly. Wound if fine apart from 3 areas, 1 just above the groin hurts like feck especially when walking.

A chest x-ray at midnight was an interesting trip. As was a shot load of blood being taken and new venflon.

This is to check for any chest infections. So tired but tender so hard to relax. Nurses are er friendly and gave me painkillers just now.

It's at this time you realise tablets and bowel pain may have been acceptable to live with lol.

Jam Spavlin

909 posts

186 months

Saturday 8th February 2014
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Think yourself lucky you can get up to pee I had a catheter which was bloody awful!

Any wind yet?

Rick_1138

Original Poster:

3,683 posts

179 months

Saturday 8th February 2014
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I had a catheter for the first 2 days, was fitted during surgery. Removing was weird but not especially painful, more burning. Had some wind. Surgeon came to see me, gave the juniors a bit of a bking for giving me chest infection antibiotics and not regular ones as no real evidence to suggest.

He says I look great and all went well so I get to walk about ward and have some tea now snacks and all being well with an x-ray last night I may get home tomorrow!

Jam Spavlin

909 posts

186 months

Saturday 8th February 2014
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Spot on buddy I'm pleased for you!

Rick_1138

Original Poster:

3,683 posts

179 months

Saturday 8th February 2014
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Cheers chief. Feeling much calmer now. Hopefully get home soon and won't be too many dramas. Looking forward to breaking bad dvd :-).

richtea78

5,574 posts

159 months

Saturday 8th February 2014
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Make sure you are perfectly comfortable before going home. I found going home very difficult. I'd been in hospital for 3 weeks and when I got home I couldn't even walk upstairs. I don't think you have been in for so long though?

Rick_1138

Original Poster:

3,683 posts

179 months

Saturday 8th February 2014
quotequote all
Yeah only in since Wednesday and docs are very happy. Seems doing stuff on right hand side has less complications etc with blood vessels etc.

Hopefully will get good pain relief stuff and plan of action before leaving.

Also bed space is at a premium so if I am okay after tonight what with getting up to pee etc I should be okay. Only issue is I haven't had a no2 yet but have passed wind.

Seems it was less of the small bowel than expected. More the ileum, appendix and start of large. This may make it simpler.

richtea78

5,574 posts

159 months

Saturday 8th February 2014
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Mine was complicated as I got MRSA. As mine was emergency surgery they didn't have time to do all the stuff with the bacteria cream so I was unlucky. Ended up spending over 6 months off work recovering. Didn't say anything before your op as I was very unlucky and didn't want to worry you.

I was in for 3 weeks, home for a week then admitted again for another week while they derided the wound. I now have no belly button which is pretty cool!

Rick_1138

Original Poster:

3,683 posts

179 months

Saturday 8th February 2014
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That sounds pretty harsh. Luckily mine was well planned and had prep etc. So hopefully went well and they knew what to look for from previous MRI and scans. Fingers crossed it's as routine as it seems and take each day as it comes.
Does the first time you go for no2 does it hurt or is it more normal?

honest_delboy

1,505 posts

201 months

Saturday 8th February 2014
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It was rusty red water for the first few attempts. Are you still taking the morphine?

Rick_1138

Original Poster:

3,683 posts

179 months

Saturday 8th February 2014
quotequote all
Nope am on paracetamol and a tablet painkiller. They were quick to get me off the morphine. I don't expect the world's smoothest poo but we will hope it's not too painful.

richtea78

5,574 posts

159 months

Saturday 8th February 2014
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Mine wasn't painful, but it was very liquid. I guess you are used to urgent movements? For me the combination of being slow moving and urgent bowel movements did not turn out well

It was probably worse for the poor bugger who had to clean up though!

GCH

3,993 posts

203 months

Saturday 8th February 2014
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Rick_1138 said:
It's at this time you realise tablets and bowel pain may have been acceptable to live with lol.
That is among the many things i stressed to my consultant this week - that i would rather live on pills forever than have surgery. He wasnt happy with this, and is still trying to push immunosuppresants on me- again, no thanks.

Thankfully i get no side effects from the steroids (and i keep a high intake of calcium for my bones!) and zero symptoms when on them, but its not exactly an ideal thing for the long term, so i am in the process of arranging a fecal microbiota transplantation (also known as FMT). Encouraging results from the limited studies that have been done.
Worth a shot i feel!

Edited by GCH on Saturday 8th February 22:11

richtea78

5,574 posts

159 months

Saturday 8th February 2014
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You would prefer to have someone else's poo than immunosuppressants? You must really not like them!

GCH

3,993 posts

203 months

Saturday 8th February 2014
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Well its not quite like that, as it is really just the bacterial content ... but yes!

I have had good responses to VSL3, again supporting the school of thought that this is all caused by bacteria imbalance, which FMT addresses.


'ew' was pretty much my consultants initial reaction too laugh and i imagine will provoke a similar reaction from most..

richtea78

5,574 posts

159 months

Saturday 8th February 2014
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Been doing some reading, it seems it works for UC but not CD?

Rick_1138

Original Poster:

3,683 posts

179 months

Sunday 9th February 2014
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Well after being very distended and the nurse hadn't known I was supposed to get morphine replacement I ended up going to loo to pass wind. Was in fact the whole event. No dramas just visit loose and asked for a pad incase I miss the next departure. Feel much happier but still very tender. You forget that you are not supposed to be in pain so don't think to ask for pain relief when obviously in distress.

Hopefully can move onto wound pain levelling and getting home in the next week

Rick_1138

Original Poster:

3,683 posts

179 months

Monday 10th February 2014
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Well that's everything back to normal working order at least. Hopefully getting home tomorrow. Just tight and painful under the skin but docs happy with wound.

Main thing now is to relax and for the love of god try not to cough :-.

:-)

Jam Spavlin

909 posts

186 months

Monday 10th February 2014
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I would also advise not watching comedy as laughing hurts too!