Cancer care in the home, free or not?

Cancer care in the home, free or not?

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Discussion

vxr8mate

Original Poster:

1,655 posts

189 months

Thursday 16th October 2014
quotequote all
I've always thought that cancer care was free in the UK; however, I am now finding out it may not be.

Without going in to too much detail we have a close relative with terminal cancer about to be sent home. The hospital have royal fooked up the care package so far culminating in delays and false promises, but they now seem to be making progress.

However, a social worker made a very casual nod to potential costs associated with nursing care at home.

I wondered if anyone here had any experience of this and any costs as a result.

chilistrucker

4,541 posts

151 months

Thursday 16th October 2014
quotequote all
Can only tell you personal experiences.
In 2011 our dad got terminal cancer and was no longer really able to look after himself at home alone, (we'd lost mum to it 4 years earlier.) So between us all, myself, my sister and dad agreed he would move in with my sister. I gave up my dream job as it involved to much travel and time away and i wanted to be around to be with and help care for my dad.
We all managed fine for most of it, but as time went on and dads disease took hold we knew we would need more professional help and we got it. We had regular help from district nurses, macmillan nurses and our local hospice who throughout were outstanding, passionate and immensely helpful in all aspects.
I also believe my sister got carers allowance as she had dad with her at home and cared for him full time whilst all this was going on. I could find out from her if you want how much the carers allowance was, and how we went about getting it?

Throughout all of this, the fantastic help we recieved from those groups mentioned never cost us a single penny, I will never be able to thank these individuals enough.

If you do go down this route, I really recommend contacting your local hospice, whos free knowledge, help and compassion make them worth their weight in gold.

Simon Brooks

1,517 posts

251 months

Friday 17th October 2014
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Lost my dad to cancer just over 2 years ago, he had survived reasonably healthily for nearly 15 years, and managed to maintain a near normal live for the vast majority of this time, however the final 18 months his health deteriorated fairly quickly, the support my mum received from the hospitals, hospice, GP, Macmillan and finally Marie Curie, was superb and the level of care and assistance increased in direct correlation to his decline in health

Definitely speak to the patients GP, who should be able to put you in contact the correct specialist organisations and health care professionals

Not once were we asked to contribute financially.

hornetrider

63,161 posts

205 months

Friday 17th October 2014
quotequote all
vxr8mate said:
However, a social worker made a very casual nod to potential costs associated with nursing care at home.
Shouldn't be any.

AFAIK the patient will be discharged from hospital into the care of the Community nurses, who will manage care in association with MacMillan/Marie Curie etc.

mph1977

12,467 posts

168 months

Saturday 25th October 2014
quotequote all
vxr8mate said:
I've always thought that cancer care was free in the UK; however, I am now finding out it may not be.

Without going in to too much detail we have a close relative with terminal cancer about to be sent home. The hospital have royal fooked up the care package so far culminating in delays and false promises, but they now seem to be making progress.

However, a social worker made a very casual nod to potential costs associated with nursing care at home.

I wondered if anyone here had any experience of this and any costs as a result.
Nursing care will be free whether provided by the NHS, Hospice or one of the cancer charities,

However personal care provided by Social services may be chargable

HD Adam

5,148 posts

184 months

Sunday 26th October 2014
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Simon Brooks said:
Lost my dad to cancer just over 2 years ago, he had survived reasonably healthily for nearly 15 years, and managed to maintain a near normal live for the vast majority of this time, however the final 18 months his health deteriorated fairly quickly, the support my mum received from the hospitals, hospice, GP, Macmillan and finally Marie Curie, was superb and the level of care and assistance increased in direct correlation to his decline in health

Definitely speak to the patients GP, who should be able to put you in contact the correct specialist organisations and health care professionals

Not once were we asked to contribute financially.
I can only echo this.

My father died 2 years ago after an operation for stomach cancer and then declining over the next 4 months.

The level of care and support was outstanding and they allowed him to stay and be treated at home right up to a few days before the end.

No financial contribution was asked for.