I think I have lymphoma
Discussion
It gives you a kick up the arse. I'd wanted to leave for ages before all this and as much as its a cliche you really do realise that life is too short to f*ck about.
Two more long term employees followed me out and one or two other mates have gone on to start businesses and one left a long term partner he didnt like so I think the attitude rubbed off slightly!
Two more long term employees followed me out and one or two other mates have gone on to start businesses and one left a long term partner he didnt like so I think the attitude rubbed off slightly!
Hi. chemo finished (hopefully 
) had a blood test yesterday, then a nice injection of radioactive sugar water for a CT/PET scan, for some reason felt absolute pants after and slept for about 3 hours when I got home.
Meeting with the constant on Friday, will find out then if the lymphoma has been beaten and if I need radiotherapy.
) had a blood test yesterday, then a nice injection of radioactive sugar water for a CT/PET scan, for some reason felt absolute pants after and slept for about 3 hours when I got home.Meeting with the constant on Friday, will find out then if the lymphoma has been beaten and if I need radiotherapy.
Quick update, Fridays meeting ended up being today.
I needed some more Omeprazole (for stomach acid) my GP wouldn't give them to me as the hospital hadn't written to them telling them I was taken them.
So phoned Kings, cut a long story short, was told they had my CT/PET scan in and could I go to this afternoons clinic. I was cr@pping myself tbh, met the oncologist, was told cancer was gone but they current 'best practice' is 3 weeks of radiotherapy to kill it off completely (even though there is 'only' a 10% chance of Hodgkins returning) so now waiting for a letter from either Guys or St Thomas hospital.
I needed some more Omeprazole (for stomach acid) my GP wouldn't give them to me as the hospital hadn't written to them telling them I was taken them.
So phoned Kings, cut a long story short, was told they had my CT/PET scan in and could I go to this afternoons clinic. I was cr@pping myself tbh, met the oncologist, was told cancer was gone but they current 'best practice' is 3 weeks of radiotherapy to kill it off completely (even though there is 'only' a 10% chance of Hodgkins returning) so now waiting for a letter from either Guys or St Thomas hospital.
Nice result 
Think I'd be more than happy to go through a bit of radiotherapy just to be absolutely sure. You're on the home straight.
Pretty poor of your GP though to not just give you a box of Omeprazole, if my GP had taken that attitude I'd be pretty screwed right now as they've still to have a letter from my consultant after my last appointment which was over 5 weeks ago. Luckily he was happy just to write me another prescription based on what I'm currently taking (also Omeprazole and steroids to get my Sarcoidosis under control). Pretty poor state of affairs though.
Think I'd be more than happy to go through a bit of radiotherapy just to be absolutely sure. You're on the home straight.
Pretty poor of your GP though to not just give you a box of Omeprazole, if my GP had taken that attitude I'd be pretty screwed right now as they've still to have a letter from my consultant after my last appointment which was over 5 weeks ago. Luckily he was happy just to write me another prescription based on what I'm currently taking (also Omeprazole and steroids to get my Sarcoidosis under control). Pretty poor state of affairs though.
Thanks, yes they said as I don't smoke, and not a woman the chances of a secondary cancer are much reduced, after radiotherapy, where as if I don't have it, its a 10% chance of a re occurrence if I don't have it, which would then mean a different type of chemo or a stem cell transplant.
The surgery said they needed a letter from the hospital stating that I was taking Omeprazole (what a difference that tablet makes) surgery told me to get a letter faxed to them and they would sign a prescription off, called Kings they said I may as well come in to the clinic as my blood test and scan results were in, also got my Omeprazole and some Co-Trimoxazole so it all turned out for the best
Funny thing will be if I have my radiotherapy at Guys hospital it will be a full circle as thats where Hodgkins Lymphoma was 1st discovered
When I was talking to the oncologist he said the 'best practice was discussed at a Lymphoma conference in Switzerland earlier in the year, a quick Google shows this link, if anyone understands medical terminology and is interested here is the link......
http://www.lymphomahub.com/features/highlights-of-...
the tab showing trials in the UK and around the world is quite interesting.
Edited by audikentman on Thursday 20th August 09:51
Thanks all, the postings on here since April have helped keep me going. Now to wait for the letter concerning radiotherapy.
I may even have to go back to work before the radio starts, I would have preferred to get it all done before I went back but hopefully they will find me a job pushing some paper round the office.
What fantastic news
I would definitely recommend getting the rads for that extra piece of mind. Yes you may get a bit tired from it, get some nausea and you may get a bit of a suntan around the area being treated but it's worth it in the long run. I only had the tanned look from my rads and avoided any other side effects so you may be lucky
Posts like yours about your surgery make me realise how lucky I am with my GP. The hospital regularly delay in updating them on my meds but they prescribe what I need with no fuss including steroids and omeprazole. One thing I do which probably helps is to take the packaging with me so I can show her the exact dose etc and the Velindre pharmacy label.
I would definitely recommend getting the rads for that extra piece of mind. Yes you may get a bit tired from it, get some nausea and you may get a bit of a suntan around the area being treated but it's worth it in the long run. I only had the tanned look from my rads and avoided any other side effects so you may be lucky
Posts like yours about your surgery make me realise how lucky I am with my GP. The hospital regularly delay in updating them on my meds but they prescribe what I need with no fuss including steroids and omeprazole. One thing I do which probably helps is to take the packaging with me so I can show her the exact dose etc and the Velindre pharmacy label.
Firefoot said:
What fantastic news
I would definitely recommend getting the rads for that extra piece of mind. Yes you may get a bit tired from it, get some nausea and you may get a bit of a suntan around the area being treated but it's worth it in the long run. I only had the tanned look from my rads and avoided any other side effects so you may be lucky
Thanks for the tips, I'm looking forward to getting a tan, been avoiding the sun all summer so far, I burnt my nose at the start of the chemo after about an hour in the sun drinking coffee.I would definitely recommend getting the rads for that extra piece of mind. Yes you may get a bit tired from it, get some nausea and you may get a bit of a suntan around the area being treated but it's worth it in the long run. I only had the tanned look from my rads and avoided any other side effects so you may be lucky
Firefoot said:
Posts like yours about your surgery make me realise how lucky I am with my GP. The hospital regularly delay in updating them on my meds but they prescribe what I need with no fuss including steroids and omeprazole. One thing I do which probably helps is to take the packaging with me so I can show her the exact dose etc and the Velindre pharmacy label.
I can't complain about the Doctor, its 1 particular receptionist that seems to run it as her private practice. What a difference omprazole makes to stomach acid, (1 of the side effects of the chemo I guess) I tried the over the counter meds, they made no difference, yet 1 20mg tablet of these a day stops it.audikentman said:
What a difference omprazole makes to stomach acid, (1 of the side effects of the chemo I guess) I tried the over the counter meds, they made no difference, yet 1 20mg tablet of these a day stops it.
Amazing stuff isn't it, for the last few years my digestive system hasn't been in the greatest of states, I've always suffered a bit with indigestion / heartburn but in more recent times have had a bit of what would probably be put down to an irritable bowel. In true bloke style I've just put up with it as it's never seemed bad enough to warrant going to the docs. So after being diagnosed with the Sarcoidosis I got put on steroids to control it + the omprazole (also 20mg) as the steroids can be quite hard on the stomach. I'm like a new man, no indigestion, bowels back to normal, can eat foods that would have normally had me reaching for the Gaviscon during the night without any bother. Not sure if it's any good to you staying on it long term but as and when I come off the steroids I might ask the docs about whether I can keep taking the Omprazole.
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