Discussion
38, had it all over since I was a baby. Done PUVA, light treatment, coal tar, steroid creams, methotrexate, humira. Had varying degrees of success with all but none were a long term solution. The sad fact is that there is no cure. All you can really do is try to manage the symptoms. Keep plaques to a minimum and keep moisturised. I've tried many lotions and potions but the best one I've tried is Glysolid. I don't know if it's available in U.K. I haven't been home for a while but it's cheap to buy and goes a long way.
As already recommended by Hyphen, ask your dermatologist about Protopic. Its licensed as an eczema treatment but can also be very effective for psoriasis. It has completely cleared areas that I'd previously been treating only partially successfully with dovonex (prior to that I found dovobet to be effective but had to stop due to skin thinning).
Hi, if it is itch that is the main problem then it might be worth trying over the counter anti-histamines in the first instance, the more sedative options such as Piriton (chlorpheniramine) can be helpful but might leave you drowsy. There are better (more sedative) options on prescription (Atarax). If you have been through Etanercept and Adalimumab then your options from Derm are likely to be Secukinumab (depending where you are in the UK) or Ustekinumab. Both are pretty good for PsO but if your Dermatologist can access Secukinumab under a PAS then it works faster! Good Luck! D
Been using betnovate for years on my shin when it flares up. I'm having good results with moogoo they have a irritable skin balm for eczema and psoriasis. It mainly eases the redness and itching when I remember to put some on.
(Apologies, dunno how to rotate pics)
ETA: would help to say its available from pharmacies and health shops
(Apologies, dunno how to rotate pics)
ETA: would help to say its available from pharmacies and health shops
Edited by combat echo on Saturday 4th March 21:41
I have been suffering from what various doctors have told me is either seborrheic eczema, or seborrheic dermatitis, or both for a while now. Stared almost 30 years ago after radiation therapy, then faded for a while, but the radiation f***ed up my immune system & I have since been hit with a few health problems, including this, & has been bad for maybe 10 years now. It is mainly on my face & head, around the ears, eyes, jaw line, neck, chest & is starting to appear on my back, legs & arms & groins now.
I hate going out in public, the radiation treatment cost me my hair so I feel really self conscious with dirty great angry red welts all over my face & head. I currently use dovobet, daktacort, epaderm & something I have just forgotten, but is a soap substitute.
I have yet another appointment with a skin clinic next week but I am not holding out any hope for an improvement.
I hate going out in public, the radiation treatment cost me my hair so I feel really self conscious with dirty great angry red welts all over my face & head. I currently use dovobet, daktacort, epaderm & something I have just forgotten, but is a soap substitute.
I have yet another appointment with a skin clinic next week but I am not holding out any hope for an improvement.
Sorry to hear and hope the consultation goes well and you see some improvements.
I had bad psoriasis for the best part of a year. All over me but thankfully not on my face or hands. It still makes you feel massively self conscious though and I spend all summer in long sleeves and trousers.
I had bad psoriasis for the best part of a year. All over me but thankfully not on my face or hands. It still makes you feel massively self conscious though and I spend all summer in long sleeves and trousers.
Speedracer329 said:
I have been suffering from what various doctors have told me is either seborrheic eczema, or seborrheic dermatitis, or both for a while now. Stared almost 30 years ago after radiation therapy, then faded for a while, but the radiation f***ed up my immune system & I have since been hit with a few health problems, including this, & has been bad for maybe 10 years now. It is mainly on my face & head, around the ears, eyes, jaw line, neck, chest & is starting to appear on my back, legs & arms & groins now.
I hate going out in public, the radiation treatment cost me my hair so I feel really self conscious with dirty great angry red welts all over my face & head. I currently use dovobet, daktacort, epaderm & something I have just forgotten, but is a soap substitute.
I have yet another appointment with a skin clinic next week but I am not holding out any hope for an improvement.
I hate going out in public, the radiation treatment cost me my hair so I feel really self conscious with dirty great angry red welts all over my face & head. I currently use dovobet, daktacort, epaderm & something I have just forgotten, but is a soap substitute.
I have yet another appointment with a skin clinic next week but I am not holding out any hope for an improvement.
Fingers crossed though.I have suffered with eczema for the last 10 years, I had not previously had it but it started when my mum got very ill and has stayed with me since. Its not to bad, but is always there and every year without fail around July/August it goes mental, really mental and follows a very specific pattern that I am used to and have learned how to deal with.
Recently my doc says I also have folliculitis, this started end of last year. Both the eczema and now folliculitis are an annoying p.i.t.a, but after reading what some people are dealing with in regards to the psoriasis I'll never moan again.
I saw an episode of the GP program a few weeks back, people with similar issues to mine in the surgery moaning and b
hing about this and that in relation to their skin related issues. Then a young 20 something lad walked into the GP's surgery, he had tracky bottoms and a hoody on, hood was up for what soon became very apparent reasons. He had by far the worst psoriasis I have ever seen, he pulled his tracky bottoms up to show the doc and large flakes of skin just fell onto the surgery floor. My Mrs and myself sat there open mouthed, really felt for the lad but fortunately he seemed to have a pretty positive attitude about it all.Can't even begin to imagine how hard it must be to live with it daily.
I suffer with this on my face. Around my nose under my eyes and flaky skin in my eyebrows. I started washing my face with head and shoulders shampoo and this helps to keep it under control!
I googled using it and it seems others have used it with success. If I'm in the sun it also helps to clear it up. I changed to a different face wash a few months ago and it came back. As soon as I started with head and shoulders, it went away.
I find it strange that this helps but I'll continue using it until I find something else.
I googled using it and it seems others have used it with success. If I'm in the sun it also helps to clear it up. I changed to a different face wash a few months ago and it came back. As soon as I started with head and shoulders, it went away.
I find it strange that this helps but I'll continue using it until I find something else.
Speed/Dms- to give you hope.
I had it on my face many years ago now, went to see various GPs and they were all crap, offering nothing more than E45/Head and shoulder/TGel which did nothing for me.
I then ended up seeing a dermatologist who essentially said that the skin/body was in a cycle of it and this needed to be broken. I personally suspect it occurred because I was renting cheap at the time so using the slum landlords old mattresses and wasn't getting round to washing bedding regularly, but who knows for sure.
Did a food patch test which was clear, he tried the steroid cream which didn't really work. He then gave me Protopic, the tiniest sliver of this cream cleared it within days. Week later was clear. After that it hasn't come back as it was just a case of it being triggered by something and then the body not getting on top of it.
Any dry skin is managed by Cetroben moisturiser and all good
Everyone is different, this worked for me, so just a matter of finding what works for you. Don't waste money on snake oils...
If not doing all ready, these may help:
- get plenty of sleep.
- Avoid all Junk food, eat healthy.
- get tested for allergies and food allergies.
- avoid as many chemicals as you can. So use the Waitrose sensitive/Sanex zero type body washes and hand washes. Use eco type laundry powder and extra rinse.
- If you suspect dust mites may be an issue: change bedding at least once a week and wash at 90. If mattress/pillow is old then replace and put on those zipped dust mite covers for both. (pricey, so shop around) or get Foam ones which I'm guessing they can't live in. Get a Hepa vacuum and use regularly and if humidity is high then a dehumidifier.
- Hot showers/baths followed by immediately putting on moisturiser.
Keep your chins up, been there and know what it is like, but it is just a matter of finding what works for you.
I had it on my face many years ago now, went to see various GPs and they were all crap, offering nothing more than E45/Head and shoulder/TGel which did nothing for me.
I then ended up seeing a dermatologist who essentially said that the skin/body was in a cycle of it and this needed to be broken. I personally suspect it occurred because I was renting cheap at the time so using the slum landlords old mattresses and wasn't getting round to washing bedding regularly, but who knows for sure.
Did a food patch test which was clear, he tried the steroid cream which didn't really work. He then gave me Protopic, the tiniest sliver of this cream cleared it within days. Week later was clear. After that it hasn't come back as it was just a case of it being triggered by something and then the body not getting on top of it.
Any dry skin is managed by Cetroben moisturiser and all good
Everyone is different, this worked for me, so just a matter of finding what works for you. Don't waste money on snake oils...
If not doing all ready, these may help:
- get plenty of sleep.
- Avoid all Junk food, eat healthy.
- get tested for allergies and food allergies.
- avoid as many chemicals as you can. So use the Waitrose sensitive/Sanex zero type body washes and hand washes. Use eco type laundry powder and extra rinse.
- If you suspect dust mites may be an issue: change bedding at least once a week and wash at 90. If mattress/pillow is old then replace and put on those zipped dust mite covers for both. (pricey, so shop around) or get Foam ones which I'm guessing they can't live in. Get a Hepa vacuum and use regularly and if humidity is high then a dehumidifier.
- Hot showers/baths followed by immediately putting on moisturiser.
Keep your chins up, been there and know what it is like, but it is just a matter of finding what works for you.
Edited by hyphen on Tuesday 14th March 10:19
I get it on my scalp. I avoid shampoos and shower gels with sodium laureth sulphate and sodium lauryl sulphate in and also had The York Test a few years ago which identified some food intolerances which were aggravating it. Mostly it doesn't bother me but if I go even a little more than 24 hours without washing my hair my scalp gets very flaky and itchy.
I’ve had Psoriasis for the last 20 years or so. It’s never been horrendous but i reckon, at their worst, my flare-ups cover about 25% of my body. Having tried various topical steroids over the years without huge success and getting sick of leaving greasy stains everywhere, I saw the Dermo in October and have been on Acetretin pills since the . They are only 10mg, but seem to be gently reducing the plaques. They are not as effective as other, but the good thing is that you can still drink alcohol while taking them; entertaining clients is quite important in the line of work I’m in so this was a major lifestyle consideration.
In addition, I was prescribed Enstillar spray which makes a dramatic difference. For me, it’s far more effective than both Dovobet and Dovonex.
I hate having P. It’s horrible when people point and ask if you’ve been chewed by mosquitos. Sometimes, in the summer, if I’m having a flare up, I can’t bear to go outside in my shorts as I hate the way my skin looks
In addition, I was prescribed Enstillar spray which makes a dramatic difference. For me, it’s far more effective than both Dovobet and Dovonex.
I hate having P. It’s horrible when people point and ask if you’ve been chewed by mosquitos. Sometimes, in the summer, if I’m having a flare up, I can’t bear to go outside in my shorts as I hate the way my skin looks
i've been struggling i changed Derm as the side effect to the drugs were getting ridiculous,and the doctor didn't care. i saw a new Derm who I've had another biopsy, and she said it looked like HIV (in fairness it does) so had another blood test which i would have to wait 8 weeks for, but i did one myself as it is pretty ridiculous to wait 8 weeks to find out. I don't have it.
Mine is classed as severe, hopefully when i go back in January should know what it is but i am going to ask about this treatment i saw, Almirall Skilarence.
http://www.pharmatimes.com/news/nice_backs_new_tre...
Mine is classed as severe, hopefully when i go back in January should know what it is but i am going to ask about this treatment i saw, Almirall Skilarence.
http://www.pharmatimes.com/news/nice_backs_new_tre...
schmalex said:
In addition, I was prescribed Enstillar spray which makes a dramatic difference. For me, it’s far more effective than both Dovobet and Dovonex.
That stuff is absolutely superb. Tried it a short while ago but doc says I cannot stay on it. Going back to see if I can to a month on month off or something, the two Dovo's are rather lame.I don't have many goes of the san lamp ;eft apparently.
I used to have Psoriasis, Really badly, it affected my arms wrists and fingers, my legs (especially behind my knees) and I tried lots of things to get rid of it.
I also had a back problem that had been annoying me for a while.
In the end I tried something that I thought was utter bks, I went to see a faith healer.
The woman I saw was elderly and had been a healer for many years, I went under the recommendation of a friend who believes in crystals, ley lines and other things I mock her for. I only went because I was curious as to what would happen and to be honest I was treating it as a bit of an opportunity to say "I told you it was rubbish" when it inevitably failed to do anything.
Yeah, about that....
She put her hands on me and said something about me being stressed and out of balance, her hands felt hot on my back and then it was done.
never had it since, I remain sceptical but the fact remains I don't have any patches at all. I have no idea what happened, my bad back cleared up for a few years as well.
Flame me if you like, i'm not telling lies but I have no idea what happened. my best guess is that it is a strong placebo effect but if the end result is that I don't itch then I don't care.
I also had a back problem that had been annoying me for a while.
In the end I tried something that I thought was utter b
ks, I went to see a faith healer. The woman I saw was elderly and had been a healer for many years, I went under the recommendation of a friend who believes in crystals, ley lines and other things I mock her for. I only went because I was curious as to what would happen and to be honest I was treating it as a bit of an opportunity to say "I told you it was rubbish" when it inevitably failed to do anything.
Yeah, about that....
She put her hands on me and said something about me being stressed and out of balance, her hands felt hot on my back and then it was done.
never had it since, I remain sceptical but the fact remains I don't have any patches at all. I have no idea what happened, my bad back cleared up for a few years as well.
Flame me if you like, i'm not telling lies but I have no idea what happened. my best guess is that it is a strong placebo effect but if the end result is that I don't itch then I don't care.
i wish i could see a faith healer but 70% is hard to clear up. I have looked at parasite treatments, as there is the thinking that parasites have lived in the gut for millennia and now we don't have them the body is reacting elsewhere, the skin. There are drugs that are being developed to mimic this, but you can but a course of parasite to ingest currently but it is very new.
Edited by The Spruce goose on Sunday 10th December 14:57
Very mild sufferer on occasions. But not since I discovered unrefined shea butter. Rub a small amount in your hands and it melts into an oil. Just rub it in.
https://www.amazon.co.uk/Shea-butter-1kg-Certified...
https://www.amazon.co.uk/Shea-butter-1kg-Certified...
OP, Ive had it on my lower leg(S) for a good few years, and been treating with Betnovate.
Howver, Ive recently been struggling with very bad Acid reflux and have started eating lots of full on probiotics - ie, Kefir smoothie with Apple cider vinegar (with mother), aloe vera juice plus additional capsules of good bacteria - seems to have made a huge difference to both my itchiness and aslo toenail fungus....
Howver, Ive recently been struggling with very bad Acid reflux and have started eating lots of full on probiotics - ie, Kefir smoothie with Apple cider vinegar (with mother), aloe vera juice plus additional capsules of good bacteria - seems to have made a huge difference to both my itchiness and aslo toenail fungus....
When I get flareups I use a 15% Lugols Iodine (ebay), paint it on it goes yellow do it few times a day and within a week I get massive improvement.
I've had most steroids, ointments, puva, protopic, atarax and more, but always fall back to Lugols Iodine its a real old treatment from the 1800's doctors used to say in olden times when all else fails give them Lugols Iodine. I also take a small amount orally just add a few eyedropper drops to water and swallow, you can up the oral intake slowly it wanted. YMMV ect...
I've had most steroids, ointments, puva, protopic, atarax and more, but always fall back to Lugols Iodine its a real old treatment from the 1800's doctors used to say in olden times when all else fails give them Lugols Iodine. I also take a small amount orally just add a few eyedropper drops to water and swallow, you can up the oral intake slowly it wanted. YMMV ect...
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