Psoriasis

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Discussion

Terminator X

15,103 posts

205 months

Monday 11th December 2017
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Davey S2 said:
Sorry to hear and hope the consultation goes well and you see some improvements.

I had bad psoriasis for the best part of a year. All over me but thankfully not on my face or hands. It still makes you feel massively self conscious though and I spend all summer in long sleeves and trousers.

Sun helps though? Mine almost but not quite disappears during the course of Summer.

TX.

GordonL

258 posts

202 months

Monday 11th December 2017
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I’ve had it over 40 years. It covered about all my lower abdomen and the usual elbows knees etc. As most people find, it got a bit better in the sun, so I started thinking about it, why did this happen?
It couldn’t be the UV because even unexposed areas got a bit better, so I thought it must be Vit D, since we synthesise this from UV on the skin. As an experiment I tried taking Vit D supplements and my skin is now almost completely clear, I’d say abou 95% gone.
Might be worth a try since the tablets are dirt cheap and there aren’t any significant contra indications to Vit D.

anonymous-user

55 months

Monday 11th December 2017
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the problem is Vit D and creams etc only alleviate the symptoms of PS. The white blood cells attacking the skin cells, this produces the PS. Vitamin D wouldn't stop the attack. ''Dr. Olbricht says that vitamin D deficiency doesn't cause psoriasis, but it may impair the body's ability to keep skin healthy. In fact, researchers found that vitamin D deficiency was common in people with chronic plaque psoriasis.''

The biggest problem I find is when you say you have it people go, ''oh I had that when I was stressed', but it went away''. Great. But when you have it from 8 until 37 it is more severe. I also think without a biopsy a lot of skin condition are misdiagnosed as PS, so that is why a lot are cured from various treatments.

gweaver

906 posts

159 months

Monday 11th December 2017
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IIRC Vitamin D does play a role in regulating the immune system.
Deficiency is also common in the UK, with little consensus on what constitutes enough.
Along with diet, exercise and stress management, it's one of the basic things that anyone with a chronic condition could/should experiment with.
Not saying there's a silver bullet, but improving immune system function, even just a little bit, has got to be a good thing.

anonymous-user

55 months

Monday 8th January 2018
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Well after my second biopsy looks like I have Pityriasis rubra pilaris , which gets misdiagnosed as psoriasis, but is different and rarer. At least i have an answer.

Edited by The Spruce goose on Monday 15th January 12:48

Google [bot]

6,682 posts

182 months

Thursday 31st October 2019
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I’m going to bump this as a reminder for tomorrow. I have a lot of input to give.

Zirconia

36,010 posts

285 months

Thursday 31st October 2019
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Whilst bumped.
Consultant now has me on a metatrexate that requires liver functioned checked regular (plus other possible side effects). Seems to work but the dose is balanced between max effect and liver going wonky. At the moment it seems to be working for the better but need to attack a few patches with Enstiller (sp?).

anonymous-user

55 months

Thursday 31st October 2019
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I had mex injections 12.5 at end , didn't do much really but mine is different I think. Much better than pills.

schmalex

13,616 posts

207 months

Thursday 31st October 2019
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Mine is flaring up at the moment. My skin feels like it’s on fire frown

MitchT

15,877 posts

210 months

Thursday 31st October 2019
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Forgot to mention when I posted in March 2017 - cold weather aggravates it. Must emigrate!

Google [bot]

6,682 posts

182 months

Friday 1st November 2019
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MitchT said:
Forgot to mention when I posted in March 2017 - cold weather aggravates it. Must emigrate!
I’m in aus, admittedly just coming out of winter, but not sure it makes much difference.

Substantiated post to come.

magarta

32 posts

95 months

Friday 1st November 2019
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My Mum has had this for decades and she'd tried everything.

The only thing that has ever affected it has been sunshine and diet. She has now nailed her diet which has pretty much completely cleared the lot. She cut out loads of fruits, veg and alcohol. It's now at the point that when she eats these things the next day her skin is up. Then when she stops, it goes.

There is a website https://www.flaym.io/ where she got a lot of info from and which details the specific food groups that can cause it. Good luck.

Squadrone Rosso

2,757 posts

148 months

Friday 1st November 2019
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I have psoriatic arthritis. You get psoriasis on your joints rather than on your skin although skin flare ups happen.

I’m on Methotrexate, Sulfasalazine & Otezla. The first two helped massively but the latter (since May) is making me ill.

Methotrexate is a hypertoxic drug, previously used as chemotherapy. If your liver & kidneys can tolerate it, it’s worth a go.


pavarotti1980

4,918 posts

85 months

Friday 1st November 2019
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Squadrone Rosso said:
I have psoriatic arthritis. You get psoriasis on your joints rather than on your skin although skin flare ups happen.

I’m on Methotrexate, Sulfasalazine & Otezla. The first two helped massively but the latter (since May) is making me ill.

Methotrexate is a hypertoxic drug, previously used as chemotherapy. If your liver & kidneys can tolerate it, it’s worth a go.
If you have tried apremilast and it has failed due to adverse events is it not worth asking to switched to a JAK inhibitor like tofacitinib?

TwigtheWonderkid

43,402 posts

151 months

Friday 1st November 2019
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TwigtheWonderkid said:
Very mild sufferer on occasions. But not since I discovered unrefined shea butter. Rub a small amount in your hands and it melts into an oil. Just rub it in.

https://www.amazon.co.uk/Shea-butter-1kg-Certified...
Did anyone try my suggestion? Any luck. It's still working for me. Use it every morning and having suffered with mild psoriasis for years and dry skin in general, my skin has been perfect since I discovered it.

schmalex

13,616 posts

207 months

Friday 1st November 2019
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I haven’t tried it, but have just put an order in, so will report back. Does it sink in quickly, or do you run the risk of greasy patches on your shirts etc?

coldel

7,892 posts

147 months

Friday 1st November 2019
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Squadrone Rosso said:
I have psoriatic arthritis. You get psoriasis on your joints rather than on your skin although skin flare ups happen.

I’m on Methotrexate, Sulfasalazine & Otezla. The first two helped massively but the latter (since May) is making me ill.

Methotrexate is a hypertoxic drug, previously used as chemotherapy. If your liver & kidneys can tolerate it, it’s worth a go.
I have psoriatic arthritis too, swelling and pain in all my joints with all the dry skin issues (except my back thank god!) am on 12.5mg of methotrexate a week with a folic acid supplement. Completely cleared it up. I have a blood test every 4 weeks to keep an eye on my vitals which are operating normally, have really cut back the beer though, which is a good thing!

slipstream 1985

12,227 posts

180 months

Friday 1st November 2019
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Googlebot i had similar on the palms of my hands a few years ago (i have chronic eczema and alot of scars from it all over ) it was a bit of pomfolitis or something like that. blisters ont he palm that came from under the skin a wept and burst. Are you washing your hands after using any steroid creams as i found it was too much cream remaining on my palms from rubbing other bits of the body brought it on. took a year or so to go back to think palm skin same for the soles of my feat. changing socks twice a day and getting rid of old shoes helped alot as well.

TwigtheWonderkid

43,402 posts

151 months

Friday 1st November 2019
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schmalex said:
I haven’t tried it, but have just put an order in, so will report back. Does it sink in quickly, or do you run the risk of greasy patches on your shirts etc?
You may need to watch that. I only have problems with my face so don't apply it to my body. You only have to use it quite sparingly.

Witchfinder67

1 posts

54 months

Saturday 2nd November 2019
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Hi,

Just adding my experience to this thread. I had continuous bouts of psoriasis/seborrheic dermatitis for many years (scalp/forehead/nose) and tried many moisturisers to no avail. I found this thread on using Nizoral shampoo to wash your face, and my experience mirrors theirs. It basically cured the problem very quickly.

https://www.reddit.com/r/SkincareAddiction/comment...

When first used on angry red skin patches, it stings and there is a feeling of tightness. Then a few hours later the red colour fades and there is the remarkable feeling of the skin healing from underneath, and returning to health. No other treatment did this.