Psoriasis

[Trophy Husband]

I use T Gel shampoo and wash my face with it. Mine gets angry at this time of year which, even though I've suffered with it on my face for 30 years, always catches me out. I then use Oilatum bath oil as a balm directly applied morning and evening. Helps to reduce the vividness and itching. I love when spring arrives because mine calms right down right through to Autumn.
The English translation from the Welsh is "the healthy man's disease". The thinking is that the skin is the largest organ and that psoriatic skin is carrying out vital cleansing of toxins. Old wives tale maybe but interesting nevertheless.

[deebs]

Dragging up an old thread, rather than start a new one. TLDR - psorasis is on the clinical conditions list for covid19 vaccine ( https://www.gov.uk/government/publications/covid-1...

I have psoriasis that covers circa 60% of my body, no current treatment, early last year I had private treatment and was on aceterin awaiting an appointment with an NHS "psorasis clinic" ( i actually had a letter with an appointment for April - cancelled and no updates etc). I'm personally otherwise fit and healthy (5'11, 12.5 stone, exercise, eat OK etc). I've had psorasis for 30 years and gone through periods of treatment/no treatment. Very little makes a difference for me personally.

I have a saved google search out of interest on covid19 and psorasis, given that most people who end up in hospital with covid they say is to due the immune response: we all know psorasis is an autoimmune disorder, which results in the immune system responding (to nothing? something?) and replacing skin cells at 5 times or so the normal rate, it seemed interesting to see throughout this if anything popped up.

The vaccine list came up in this search as psoriasis is listed on the conditions list for priority vaccination. I haven't seen anything else that would have led me to believe this would be the case, isolated medical reports of outbreaks of psorasis for people who have a history post-infection, which is quite common with other infections and people with a history of psorisis.

Anyone else picked up any news or studies that might justify why it appears on the list? "Psorisis" covers a lot of different cases, from someone with one small patch that comes and goes based on stress to others who have significant coverage and it never goes anywhere. Could understand anyone who is undertaking immunosuppressive treatment for it being on the list, but everyone with psorasis seems broad?

[JFReturns]

Hi Deebs, interested in your post but the link does not work would you mind double checking it please?

[anonymous-user]

Very interested in this also although I am on the list due to autoimmune issues but I hadn't heard that psoriasis was on the list ( I am currently on Acitretin also....did you get side effects?)

[deebs]

JFReturns said:

Hi Deebs, interested in your post but the link does not work would you mind double checking it please?

Hi JFKReturns, sorry about the link, try this one:

https://www.gov.uk/government/publications/covid-1...

[deebs]

catweasle said:

Very interested in this also although I am on the list due to autoimmune issues but I hadn't heard that psoriasis was on the list ( I am currently on Acitretin also....did you get side effects?)

Hi catwealse - Acitretin did nothing for me until the dose was upped to 50mg from memory, initally it was 25, no side effects but not any improvement in the skin either. At 50mg it smoothed the skin out and just left red patches and I started to feel like I was getting headaches, however I had alot of other things going on at the time and it might have been coincidince. I only stopped taking them when they ran out as I had an appointment for the NHS psorasis clinic a week or two later , who after initial assessment had agreed to start me on stronger stuff. Covid hit and I thought it would be a few months wait, which has turned into a year, probably with many more months before I get back, so my GP has agreed I can go back on the acitrein, subject to bloods.

I never experienced the dry lips, the most obvious side effect was very small peeling of skin on my fingers.

[anonymous-user]

deebs said:

catweasle said:

Very interested in this also although I am on the list due to autoimmune issues but I hadn't heard that psoriasis was on the list ( I am currently on Acitretin also....did you get side effects?)

Hi catwealse - Acitretin did nothing for me until the dose was upped to 50mg from memory, initally it was 25, no side effects but not any improvement in the skin either. At 50mg it smoothed the skin out and just left red patches and I started to feel like I was getting headaches, however I had alot of other things going on at the time and it might have been coincidince. I only stopped taking them when they ran out as I had an appointment for the NHS psorasis clinic a week or two later , who after initial assessment had agreed to start me on stronger stuff. Covid hit and I thought it would be a few months wait, which has turned into a year, probably with many more months before I get back, so my GP has agreed I can go back on the acitrein, subject to bloods.

I never experienced the dry lips, the most obvious side effect was very small peeling of skin on my fingers.

Many thanks for the detailed response.

I was started on 10mg and it made a slight difference......then upped to 20mg and it made a considerable difference but lips split and got infected and face & finger tips shed very badly and became sore............changed to taking them immediately after evening meal helped a bit for a while but then sore lips / fingers came back......... so now reduced to 10mg again and, although not drastically improved, there is "some" improvement but seems to go up and down like a yoyo for no apparent reason....not sure I will continue after this course runs out in a month or so.

I do also have other linked autoimmune issues so it gets complicated....thanks for taking the time to respond.

[anonymous-user]

i think ps has been added, looks recently, as the high potential of a
Cytokine release syndrome .

I'm on the Clinically vulnerable list through I guess PRP, I was last on methotrexate over a year ago.

This was the big problem really people see a skin issue but the problem is more deeper than that.

[steveT350C]

There was another psoriasis thread a few years ago that I posted on.

I used to get it following tonsillitis. Ended up about 70% covered, but not above neck. Strong oral steroids did get it under control, nasty drug though, and a year later and another tonsil flare up and I got it all back again.

Four sessions of acupuncture cleared it up completely and I’ve never had it since.

Acupuncturist had trained for 4 years in China, she warned me off GPs that can do a 6 week course.

The feeling I got after the needle sessions was almost spiritual, a feeling of lightness and warmth. Resonated with the post above about faith healing and mentioning energies being out of balance.

[loggo]

My wife suffers on knees and elbows.

Three weeks in Tenerife sorts it for about 3 months

And repeat.

Pre Covid obviously.

[Google [bot]]

I don’t know if this anecdote is of any use to anyone, or indeed if it is just coincidence.

I’ve been on a pretty high level of cyclosporine for two years (while it ruins my kidneys). When I miss a tablet or two, my particular brand of ps flares up.

4 months ago I gave up gluten, have had no medication and am mostly free of symptoms/flares. That’s got to be worth a try if you’re suffering.

[deebs]

Been a while since I posted about acietrian, I've been back on it at 50mg for months now and unlike last time when I ran out after a few months, then couldn't get back into dermatology because it was COVID war time, the length of time seems to making a decent difference. Still a long way to go though to get to clear.

My hands (including palms) have peeled, not badly enough to be sore (yet) but alot. The soles of my feet are pretty horrible, I play football 3 times a week and effectively the entire sole of my feet has removed itself as huge slices of skin. Which I know is a pretty disgusting image, sorry. I was wondering if anyone else has experienced this, and any tips on how to deal with it, other than stop playing which I don't want to do.

[Google [bot]]

deebs said:

Been a while since I posted about acietrian, I've been back on it at 50mg for months now and unlike last time when I ran out after a few months, then couldn't get back into dermatology because it was COVID war time, the length of time seems to making a decent difference. Still a long way to go though to get to clear.

My hands (including palms) have peeled, not badly enough to be sore (yet) but alot. The soles of my feet are pretty horrible, I play football 3 times a week and effectively the entire sole of my feet has removed itself as huge slices of skin. Which I know is a pretty disgusting image, sorry. I was wondering if anyone else has experienced this, and any tips on how to deal with it, other than stop playing which I don't want to do.

The only comment I'd make is it sounds like you have Palmoplanter Pustulosis (PPP) as opposed to general psoriasis. There's a lot of talk that it is similar to psoriasis but could be an entirely different condition, still an autoimmune disorder but not necessarily the same thing. I've been through hell with it and am now completely clear, the thing is I can't give a roadmap of how that happened with any substance. Feel free to pm me.

[deebs]

Google [bot] said:

deebs said:

Been a while since I posted about acietrian, I've been back on it at 50mg for months now and unlike last time when I ran out after a few months, then couldn't get back into dermatology because it was COVID war time, the length of time seems to making a decent difference. Still a long way to go though to get to clear.

My hands (including palms) have peeled, not badly enough to be sore (yet) but alot. The soles of my feet are pretty horrible, I play football 3 times a week and effectively the entire sole of my feet has removed itself as huge slices of skin. Which I know is a pretty disgusting image, sorry. I was wondering if anyone else has experienced this, and any tips on how to deal with it, other than stop playing which I don't want to do.

The only comment I'd make is it sounds like you have Palmoplanter Pustulosis (PPP) as opposed to general psoriasis. There's a lot of talk that it is similar to psoriasis but could be an entirely different condition, still an autoimmune disorder but not necessarily the same thing. I've been through hell with it and am now completely clear, the thing is I can't give a roadmap of how that happened with any substance. Feel free to pm me.

Thanks for your post. I've had plaque psoriasis for 30 years, non typically it doesn't come and go, covers a fair percentage of the body and doesn't particularly react to sunlight. Never had an issue with hands or feet until the dose of acietrian was boosted about 6 weeks ago, and peeling is listed as a side effect. While I don't rule out what you've said it does feel unlikely given that context, which obviously you didn't know when posting! Cheers

[deebs]

deebs said:

Google [bot] said:

deebs said:

Been a while since I posted about acietrian, I've been back on it at 50mg for months now and unlike last time when I ran out after a few months, then couldn't get back into dermatology because it was COVID war time, the length of time seems to making a decent difference. Still a long way to go though to get to clear.

My hands (including palms) have peeled, not badly enough to be sore (yet) but alot. The soles of my feet are pretty horrible, I play football 3 times a week and effectively the entire sole of my feet has removed itself as huge slices of skin. Which I know is a pretty disgusting image, sorry. I was wondering if anyone else has experienced this, and any tips on how to deal with it, other than stop playing which I don't want to do.

The only comment I'd make is it sounds like you have Palmoplanter Pustulosis (PPP) as opposed to general psoriasis. There's a lot of talk that it is similar to psoriasis but could be an entirely different condition, still an autoimmune disorder but not necessarily the same thing. I've been through hell with it and am now completely clear, the thing is I can't give a roadmap of how that happened with any substance. Feel free to pm me.

Thanks for your post. I've had plaque psoriasis for 30 years, non typically it doesn't come and go, covers a fair percentage of the body and doesn't particularly react to sunlight. Never had an issue with hands or feet until the dose of acietrian was boosted about 6 weeks ago, and peeling is listed as a side effect. While I don't rule out what you've said it does feel unlikely given that context, which obviously you didn't know when posting! Cheers

Toiling a bit with it (the peeling) now. Stopped playing football in the hope that would help the feet, hasn't seen a massive improvement. The hands, any time I come into contact with anything that causes friction they go bad. I was out on the motorbike the other day, heated grips on, might had been gripping the handles too tightly but skin on my hands just went, particularly right, being the accelerator and a twisting action. So far it's not had a dramatic effect on the patches of psoriasis (which are elsewhere, not hands/feet). Due back to dermatology in 6-7 weeks from memory, will update if anyone is interested.

[pork911]

what creams do you use?

[deebs]

pork911 said:

what creams do you use?

To be honest, more or less just E45 constantly on the patches, reduces the dryness significantly for me, and the tablets are supposed to be doing the business of reducing (or better, eliminating) them. Context though - covers 40-50% of my body, including more or less my entire forearms and most of my legs up to my thigh. It's a big area to cover. Slowly got worse over the years, arrived in small patches aged 5, now 37 and it's been ever present. Doesn't wax and wane, doesn't fade in the sun, stress etc doesn't seem to have any impact it's just there, all the time. What about yourself?

A poster mentioned keto, and I've long had the theory that something I'm eating is contributing to it, I've tried a few diet restrictions like going gluten free (sister is coeliac, which is also auto immune, could there be a link?) , Sugar free, diary free etc at different times over the years, but not considered keto. Will look into it!

[egomeister]

I'm not a psoriasis sufferer myself but have seen this probiotic treatment which might be of interest: https://axisbiotix.com/

Having use a probiotic for another issue with good results I'm sold on the potential of this type of treatment, so maybe it's worth a try.

[pork911]

On creams, a friend uses epaderm daily and salycilic (spelling?) For flare ups. They had it terribly bad a few years back and had a load of light therapy then some pills that sounded quite serious (regular blood tests?) The worst cleared and so far seems just maintenance with creams alone.