Thank you to all the blood donors
Discussion
admire anyone who takes the time out to run a marathon.SWH said:
GhiaX said:
It is, and donation made. I've also posted your link on my FB account. Good luck in April 
Cool, thank you very much, very kind 
Still alive... 6hrs 6min, quite a feeling completing that!
Right knee somewhat painful, no grinding noises so hopefully ok still... Could be interesting tackling stairs for a few days however. Minimal blisters though, so that's a bonus.
Knackered and in need of some food now, family had a great day watching, GOSH put on an excellent reception and much appreciated sports massage area afterwards too!
Here's a finish photo for you:
Right knee somewhat painful, no grinding noises so hopefully ok still... Could be interesting tackling stairs for a few days however. Minimal blisters though, so that's a bonus.
Knackered and in need of some food now, family had a great day watching, GOSH put on an excellent reception and much appreciated sports massage area afterwards too!
Here's a finish photo for you:
Ok... been a while and I think this would be a suitable place to finish off the thread...
Went back to GOSH yesterday for the little man's follow up consultant appointment, one year after being declared in remission.
SWH Jnr did brilliantly, even allowed the nurse to take his blood pressure (first time ever) and stood on the scales by himself without a moment's fuss. He also made it into the consultant's room without totally going off on one, which is a pretty significant moment really.
SWH Jnr is now discharged from GOSH care
There is of course a small chance things can return, and the long term effects of Rituximab are unknown, so we'll retain open access to the local hospital and if there is the opportunity for a blood test (as in, he's very ill will something else, etc) then a full blood count sent up to the GOSH consultant would be a good scheme.
The ultra-rare haemolytic anaemia he had (there's one more case now, making it the 5th!) could get triggered again by another nasty illness, only a tiny chance of course, and there is a small possibility it could be bubbling along at a very low level and his body is compensating for it.... although given the thorough examination of his spleen he allowed her to do (yes, it was a day of firsts) that seems even less likely.
Exiting the room, I prompted him to say thank you, or some such, and... understated comment of the day moment from the three and a half year old, no idea where this came from as I don't think I've heard him say it before, or having brainwashed him into thinking it's a good thing to say leaving someones house etc.... "Thank you for having me!"
So, there we go, all done
Went back to GOSH yesterday for the little man's follow up consultant appointment, one year after being declared in remission.
SWH Jnr did brilliantly, even allowed the nurse to take his blood pressure (first time ever) and stood on the scales by himself without a moment's fuss. He also made it into the consultant's room without totally going off on one, which is a pretty significant moment really.
SWH Jnr is now discharged from GOSH care
There is of course a small chance things can return, and the long term effects of Rituximab are unknown, so we'll retain open access to the local hospital and if there is the opportunity for a blood test (as in, he's very ill will something else, etc) then a full blood count sent up to the GOSH consultant would be a good scheme.
The ultra-rare haemolytic anaemia he had (there's one more case now, making it the 5th!) could get triggered again by another nasty illness, only a tiny chance of course, and there is a small possibility it could be bubbling along at a very low level and his body is compensating for it.... although given the thorough examination of his spleen he allowed her to do (yes, it was a day of firsts) that seems even less likely.
Exiting the room, I prompted him to say thank you, or some such, and... understated comment of the day moment from the three and a half year old, no idea where this came from as I don't think I've heard him say it before, or having brainwashed him into thinking it's a good thing to say leaving someones house etc.... "Thank you for having me!"
So, there we go, all done
Fab update! Well done Little SWH, and parents of course - horrible storm to weather but you seem to have managed it. Really pleased to hear that he coped with being back at the hospital too, I remember your posts from last year where he was terrified basically of just being in/near the building!
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