6 week premature daughter

6 week premature daughter

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Discussion

Obiwonkeyblokey

5,399 posts

240 months

Tuesday 4th February 2014
quotequote all
Thanks for your messages. Unfortunately he has severe PVL ( Brain Damage caused by cysts in the white matter of his brain which appeared about two weeks after birth) The outlook isn't good as its likely he will have some form of Cerebal Palsy, but with a brain injury time will tell. He's a lovely little fella though and other than that he is putting on weight and breathing and swallowing unaided which is a relief.

Zyp

14,695 posts

189 months

Tuesday 4th February 2014
quotequote all
Obiwonkeyblokey said:
Thanks for your messages. Unfortunately he has severe PVL ( Brain Damage caused by cysts in the white matter of his brain which appeared about two weeks after birth) The outlook isn't good as its likely he will have some form of Cerebal Palsy, but with a brain injury time will tell. He's a lovely little fella though and other than that he is putting on weight and breathing and swallowing unaided which is a relief.
All the best to you and your family, sounds like you're going through the ringer at the moment.





Edited by Zyp on Tuesday 4th February 22:51

jontysafe

Original Poster:

2,351 posts

178 months

Tuesday 4th February 2014
quotequote all
Absolutely all the best to you and yours.


Mr E

21,616 posts

259 months

Tuesday 4th February 2014
quotequote all
Obiwonkeyblokey said:
Thanks for your messages. Unfortunately he has severe PVL ( Brain Damage caused by cysts in the white matter of his brain which appeared about two weeks after birth) The outlook isn't good as its likely he will have some form of Cerebal Palsy, but with a brain injury time will tell. He's a lovely little fella though and other than that he is putting on weight and breathing and swallowing unaided which is a relief.
Bloody hell. The very best of luck, I'm certain he's a cracking lad.

so called

9,086 posts

209 months

Wednesday 5th February 2014
quotequote all
All the very best wishes Obiwonkeybloke to you and your wife and little boy.

My son was 7 weeks early and 5lb 1oz. Dropped down to 4.14 but quickly up again.
Got his Masters in computer game design a couple of years ago and his girlfriend is expecting their first child.
And he's taller than me!

HughS47

572 posts

134 months

Wednesday 5th February 2014
quotequote all
The desalts and bradycardias will settle with age, 35-36 weeks should see those settle, but given the omniflow they may not take off the monitors for a while yet. Really pleased to hear the feeds etc are going well - so many mums say they are keen to BF and then do nothing about it in terms of expressing or regular BFing. Pleased to hear you've had her out of the cot and settling with you, it all sounds like its going well so far.

jontysafe

Original Poster:

2,351 posts

178 months

Wednesday 5th February 2014
quotequote all
Thank you Hugh. Just back again and a very happy daddy. The last 48 hrs she has come off the omniflow, and off any O2 support at all. She's out of the incubator and into a heated cot. She was on an apnoea monitor last night but doesn't need it anymore. She's started breast feeding but needs some pretty serious topping up from expressing.
My wife is exhausted but the support from the nurses in SCBU has been utterly faultless.

jontysafe

Original Poster:

2,351 posts

178 months

Monday 10th February 2014
quotequote all
I have some fantastic news, my daughter is coming home.
Bloody amazing how quickly they get better once they get a hold of themselves. She should be here in an hour or so. I've been madly hoovering and tidying for a couple of hours.

Can't quite believe it.

Zyp

14,695 posts

189 months

Monday 10th February 2014
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clap

jeevescat

880 posts

211 months

Monday 10th February 2014
quotequote all
Ahoy there matey, just stumbled on this thread.

Fantastic news the girls are coming home, be warned my girls are dropping hints to come visit!!

Mr E

21,616 posts

259 months

Monday 10th February 2014
quotequote all
jontysafe said:
Can't quite believe it.
Now starts the hard bit. Good luck...

jontysafe

Original Poster:

2,351 posts

178 months

Monday 10th February 2014
quotequote all
Indeed here starts the hard work!

J you are always welcome chez moi! Will get them settled and give you a call.


bint

4,664 posts

224 months

Tuesday 11th February 2014
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Best of luck now they're home!

jontysafe

Original Poster:

2,351 posts

178 months

Tuesday 11th February 2014
quotequote all
Thank you bint and mr e.

I was late for a meeting this morning because I was having a cuddle!

Mr E

21,616 posts

259 months

Wednesday 12th February 2014
quotequote all
jontysafe said:
Thank you bint and mr e.

I was late for a meeting this morning because I was having a cuddle!
Then you arrived exactly when you intended to.
/end gandalf

jontysafe

Original Poster:

2,351 posts

178 months

Thursday 23rd October 2014
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A wee update to this thread. Little one is still very dinky at 14lbs at 9 months but she`s unstoppable, strong as an ox and as confident as her elder brother is shy.

In other news my wife is 2 months pregnant!

Kermit power

28,642 posts

213 months

Thursday 23rd October 2014
quotequote all
jontysafe said:
A wee update to this thread. Little one is still very dinky at 14lbs at 9 months but she`s unstoppable, strong as an ox and as confident as her elder brother is shy.

In other news my wife is 2 months pregnant!
All three of ours went through SCBU, as my wife is diabetic, which tends to lead to big, early babies who then go through sugar withdrawal as their blood sugars drop back to normal from the typically higher level of their mother.

Should your second go through SCBU for any reason, I can suggest, unless you want to be glared at by every woman in the place, whether a mother or a nurse, not to repeat the conversation that I had...

Nurse: Aw, isn't she a beautiful little thing.
Me: I bet you say that about all the babies!
Nurse: But they are all beautiful!!!
Me: No they're not! Look at that one! It's hideous!
Nurse, wife, other mothers, other nurses etc... GLACIAL GLARE!

It was hideous though. hehe Think ET in a nappy!

bint

4,664 posts

224 months

Thursday 23rd October 2014
quotequote all
Second? This is 4th or 3rd at least re reading the OP !!

14lb sounds good, steady and even. Good luck to you with the next (rather you than me, I'm still finding 1 tough!)

jontysafe

Original Poster:

2,351 posts

178 months

Friday 7th November 2014
quotequote all
Very sad today frown

I'm bloody away again and my wife went for her 12 week scan.

Sonographer went very quiet which is never good news.

I'm rushing back to be with her. But being 10 hrs away when I heard.

Poor little mite

blueg33

35,843 posts

224 months

Friday 7th November 2014
quotequote all
jontysafe said:
Very sad today frown

I'm bloody away again and my wife went for her 12 week scan.

Sonographer went very quiet which is never good news.

I'm rushing back to be with her. But being 10 hrs away when I heard.

Poor little mite
Hope its nothing as bad as you are fearing. Good luck