5 Year Old Cancer Patient Abducted By Parents From Hospital!

5 Year Old Cancer Patient Abducted By Parents From Hospital!

Author
Discussion

Mojocvh

16,837 posts

261 months

Monday 1st September 2014
quotequote all
"It is a shame"

No, it is anything but "a shame"

chris1roll

1,689 posts

243 months

Monday 1st September 2014
quotequote all
The more I think about this the angrier I get!

And from the BBC:

[b] The Proton Therapy Centre (PTC) in Prague, Czech Republic, which received a request from Brett King on 20 August, said it can treat Ashya immediately if he is eligible.

Iva Tatounova, director of strategy at PTC Czech, said: "The centre is keen on starting the treatment in a few days. The costs would be dealt with later on."

She said the centre would need the necessary medical documentation before they could agree on the appropriateness of treatment, which usually costs £60,000 - £65,000 for children. [/b]

So assessment for the proton treatment is now being delayed. From the sounds of it if 'the authorities' get their way he'll be flown back here to get radiotherapy instead!

Edited by chris1roll on Monday 1st September 18:39

NoNeed

15,137 posts

199 months

Monday 1st September 2014
quotequote all
So most people are angry as I am. Question now is what can we realistically do about it as government wheels turn very slowly and the sooner these parents get back to the child the better.

I'm thinking a facebook campaign

actually I'm think riot but can't make that sound appealing.

Octoposse

2,153 posts

184 months

Monday 1st September 2014
quotequote all
QuantumTokoloshi said:
NoNeed said:
tangerine_sedge said:
NoNeed said:
Few stories have angered me as much as this one the whole system stinks.
Agreed.

It appears that Parents have control right up to the point that they disagree with the hospital, then their guardianship is replaced by the local authority.

Nothing I've seen about this case indicates that the parents have neglected their son, or have intended harm in any way. Everything I've seen about the hospital indicates self-righteous spitefulness and a 'we know best' attitude.

I can't understand why an arrest-warrant has been placed on the parents - what crime have they actually committed, other than daring to take control of the situation and seek an alternative medical solution?
I don't know about you but I seem to be unable to calm my anger at this.

While these loving parents are in handcuffs I don't think I ever will.
I feel the same, especially contrasted with the long term systematic neglect by the state, in Rotherham. It does conjure up images of an Orwellian nature.
Yes to all the above - I feel sick for the family and for the first time ashamed to be a public servant in this country.

0000

13,812 posts

190 months

Monday 1st September 2014
quotequote all
NoNeed said:
So most people are angry as I am. Question now is what can we realistically do about it as government wheels turn very slowly and the sooner these parents get back to the child the better.

I'm thinking a facebook campaign

actually I'm think riot but can't make that sound appealing.
There's a petition here but I don't think anyone's under any illusions as to the effectiveness of those though, sadly.

anonymous-user

53 months

Monday 1st September 2014
quotequote all
What on earth is the system doing to these people, issuing an international arrest warrant is such arrogant behaviour and the end result, a lonely child in a foreign hospital and still not receiving treatment.

It is an appauling situation, the parents should be released immediately. I really can't believe this has happened as it is so cruel.

VolvoT5

4,155 posts

173 months

Monday 1st September 2014
quotequote all
This situation makes me quite angry and also incredibly sad. The little boy is now stuck in a foreign hospital where he cannot have contact with anyone familiar. How can this be a good outcome, what the hell are the police and NHS trying to achieve here, I mean are they really going to force the whole family back to the UK and then force this child to have medical treatment that the parents do not consent to?

The latest news suggests the clinic they want to take him to is ready and prepared to go ahead if appropriate.
http://www.bbc.co.uk/news/uk-england-29009883 said:
The Proton Therapy Centre (PTC) in Prague, Czech Republic, which received a request from Brett King on 20 August, said it can treat Ashya immediately if he is eligible.

Iva Tatounova, director of strategy at PTC Czech, said: "The centre is keen on starting the treatment in a few days. The costs would be dealt with later on."

Russ T Bolt

1,686 posts

282 months

Monday 1st September 2014
quotequote all
0000 said:
NoNeed said:
So most people are angry as I am. Question now is what can we realistically do about it as government wheels turn very slowly and the sooner these parents get back to the child the better.

I'm thinking a facebook campaign

actually I'm think riot but can't make that sound appealing.
There's a petition here but I don't think anyone's under any illusions as to the effectiveness of those though, sadly.
I signed this one for what it's worth
https://www.change.org/p/police-reunite-ashya-with...

I agree with many of the above points.
I can't believe the wealthy/powerful people who couldn't back the McCanns quickly enough are conspicuous by their absence.

Just watched the Hampshire PCC on TV trying to justify the Police action.
For a politician I think he has completely misread the public reaction to this.

NoNeed

15,137 posts

199 months

Monday 1st September 2014
quotequote all
0000 said:
NoNeed said:
So most people are angry as I am. Question now is what can we realistically do about it as government wheels turn very slowly and the sooner these parents get back to the child the better.

I'm thinking a facebook campaign

actually I'm think riot but can't make that sound appealing.
There's a petition here but I don't think anyone's under any illusions as to the effectiveness of those though, sadly.
Signed



I hope others do too.

Russ T Bolt

1,686 posts

282 months

Monday 1st September 2014
quotequote all
On Southern News they have just said that Portsmouth Council have a hearing arranged for Wednesday I think they said to place Ashya under their control or some such thing. Outrageous.

Bill

52,485 posts

254 months

Monday 1st September 2014
quotequote all
VolvoT5 said:
The latest news suggests the clinic they want to take him to is ready and prepared to go ahead if appropriate.
http://www.bbc.co.uk/news/uk-england-29009883 said:
The Proton Therapy Centre (PTC) in Prague, Czech Republic, which received a request from Brett King on 20 August, said it can treat Ashya immediately if he is eligible.

Iva Tatounova, director of strategy at PTC Czech, said: "The centre is keen on starting the treatment in a few days. The costs would be dealt with later on."
That's a different clinic, the Kings are in Spain. And they don't yet know if he is suitable.

JensenA

5,671 posts

229 months

Monday 1st September 2014
quotequote all
A hospital consultant was on the radio this morning talking about this case.

PTC is a recognised treatment but for only a small percentage of Brain tumours.

The Kids case would have been reviewed and deemed suitable or unsuitable

The case is then passed to a review committee to review the decision.

The decision is made on purely clinical evidence, cost does not come into it.


Aysha (?). Was deemed unsuitable for PTC after going through the above procedure.

kowalski655

14,600 posts

142 months

Monday 1st September 2014
quotequote all
...As it costs too much most likely

johnxjsc1985

15,948 posts

163 months

Monday 1st September 2014
quotequote all
would a hospital consultant come out and say Yes that treatment is worth looking at but we can't afford to do it.
I would suggest the urgency of the parents and the hospital are not the same

s2art

18,937 posts

252 months

Monday 1st September 2014
quotequote all
JensenA said:
The decision is made on purely clinical evidence, cost does not come into it.

Really? That flies in the face of the evidence on other NHS matters. What is NICE for if its not about cost benefit analysis of possible treatments? We know that there are expensive cancer drugs that the NHS will not prescribe due to NICE analysis. In fact its fatuous to claim cost is not an issue.

johnxjsc1985

15,948 posts

163 months

Monday 1st September 2014
quotequote all
I hope that sufficient public pressure is applied so a sensible outcome for the boy and his family is found. Lets hope they are reunited and he is treated for his illness and that we don't see anymore Policemen involved in a family matter

JensenA

5,671 posts

229 months

Monday 1st September 2014
quotequote all
s2art said:
JensenA said:
The decision is made on purely clinical evidence, cost does not come into it.

Really? That flies in the face of the evidence on other NHS matters. What is NICE for if its not about cost benefit analysis of possible treatments? We know that there are expensive cancer drugs that the NHS will not prescribe due to NICE analysis. In fact its fatuous to claim cost is not an issue.
I was simply recounting the words of the consultant who was interviewed on Radio.

I'm sure cost is a factor in a lot of cases, but why shouldn't it be?

Perhaps if cost was not a factor, the they might have said "PTC is only successful in a small percentage of people with cancer type X, and he's got Cancer type Y, I know it costs costs £100,000, but sod it, let's give it a go anyway"





chris1roll

1,689 posts

243 months

Monday 1st September 2014
quotequote all
Russ T Bolt said:
I signed this one for what it's worth
https://www.change.org/p/police-reunite-ashya-with...

I agree with many of the above points.
I can't believe the wealthy/powerful people who couldn't back the McCanns quickly enough are conspicuous by their absence.

Just watched the Hampshire PCC on TV trying to justify the Police action.
For a politician I think he has completely misread the public reaction to this.
The change.org one above is the one most likely to be taken notice of, as they will be personally handing it in.
It looks to have really taken off, in the past 5 minutes its increased by 200 signatures, now over 50k and counting.

Eclassy

1,201 posts

121 months

Monday 1st September 2014
quotequote all
JensenA said:
The decision is made on purely clinical evidence, cost does not come into it.
Same decision was reached on a number of cases which I posted and the decision was later proven to be wrong.

http://m.bbc.co.uk/news/uk-29002221


The woman (Tracy Laycock) in the video on this BBC page called it a lottery. Her 7 year old was provisionally put on the proton beam approved list and was told if a younger patient who needed it MORE was found, her son would be taken of the list. Luckily that didnt happen and her son got the required proton beam treatment.

It is all about COSTS.

Money over LIVES.

Edited by Eclassy on Monday 1st September 22:04

JensenA

5,671 posts

229 months

Monday 1st September 2014
quotequote all
Eclassy said:
JensenA said:
The decision is made on purely clinical evidence, cost does not come into it.
Same decision was reached on a number of cases which I posted and the decision was later proven to be wrong.


The woman (Tracy Laycock) in the video on this BBC page called it a lottery. Her 7 year old was provisionally put on the proton beam approved list and was told if a younger patient who needed it MORE was found, her son would be taken of the list. Luckily that didnt happen and her son got the required proton beam treatment.

It is all about COSTS.

Money over LIVES.
For the second time, those were the words of a consultant, not my opinion.
But anyway, if you feel,so strongly, put your money where your mouth and indignation is, and donate every single spare penny you have to the fund to help save this Kid.