5 Year Old Cancer Patient Abducted By Parents From Hospital!
Discussion
Eclassy said:
Breadvan72 said:
Wootabulous! Radiotherapy doesn't fry your brain, but reading some stuff on the internet might! As for trying to shift a holiday property in Spain in a hurry, good luck with that!
BS.... You know what I mean by 'fry your brain' basic radiotheraphy would have damaged surrounding tissue which will inturn lead to other organ failure. PBT minimises this risk.I think proton therapy is amazing. I work closely with a few guys who led Birminghams bid to become a proton center. Modern photon therapy is also pretty astonishing though - check out VMAT and Tomotherapy.
The simple truth is that if there was a clear clinical case for this kid to get protons then he would have got them on the nhs. My guess, and it is a guess without knowing details, is that there's next to no difference between protons and photons for him.
carinaman said:
Did I hear it correctly lastnight, that the 'battery' that could have expired at any moment was swapped for the one in their car? Ashya's food pump was powered by a 12V car battery? The same as the 12V car batteries that some PHers buy online?
At least they said the battery could run out of charge and not explode. So the plumbing between the pump and patient is transparent or translucent so it's operation can be determined by a simple visual inspection?
Can't they get the parents on a theft charge for the food pump and battery?
Yeah, that'd learn 'em. At least they said the battery could run out of charge and not explode. So the plumbing between the pump and patient is transparent or translucent so it's operation can be determined by a simple visual inspection?
Can't they get the parents on a theft charge for the food pump and battery?
JuniorD said:
hairykrishna said:
The simple truth is that if there was a clear clinical case for this kid to get protons then he would have got them on the nhs.
Exactly this. s2art said:
How do you know? Perhaps it was something along the lines of 'Its not clear cut and the cost is huge, cost benefit analysis says no'.
Because, as far as I'm aware, that's not how it works on an individual patient treatment level. The NHS funds treatment with protons when a clinician deems it necessary. If a clinician decides that there's a clear benefit for a individual patient if they receive protons then that's what they get.I've met couple of neurosurgeons and an oncologist through my work - this is essentially what they've told me in the past. They decide on whatever's best within the options available. Some options aren't of course, which is a compromise that has to be made. The no go options are normally very expensive new drugs where the efficacy evidence is marginal.
I also asked this very question of the director of medical physics at a big NHS trust over coffee this morning. He told exactly what I said i.e. if the team treating the kid decided there was a clear clinical case then he would have got them on the nhs.
I know all of these people pretty well and I don't think this is pr flannel. None of them are afraid of criticising the nhs system.
Edited by hairykrishna on Friday 5th September 17:31
The wardship judgment, which is admirably clear.
http://www.judiciary.gov.uk/wp-content/uploads/201...
http://www.judiciary.gov.uk/wp-content/uploads/201...
Breadvan72 said:
The wardship judgment, which is admirably clear.
http://www.judiciary.gov.uk/wp-content/uploads/201...
Admirably clear and precise.http://www.judiciary.gov.uk/wp-content/uploads/201...
IANAL and my experience of the legal profession leaves me with mixed feelings at best.
I must say though that the judgement in this case seems exemplary, clear, well considered and compassionate, everything you would hope for in fact.
A tragic situation for the boy and his family but at least now they are able to move forward without being embroiled in a drawn out court action.
I must say though that the judgement in this case seems exemplary, clear, well considered and compassionate, everything you would hope for in fact.
A tragic situation for the boy and his family but at least now they are able to move forward without being embroiled in a drawn out court action.
hairykrishna said:
The simple truth is that if there was a clear clinical case for this kid to get protons then he would have got them on the nhs. My guess, and it is a guess without knowing details, is that there's next to no difference between protons and photons for him.
My understanding is that there isn't a suitable facility available in the UK yet. They are building one in Manchester and one in London, but they won't be open until 2018. As you say, there may be one in Birmingham eventually too.Clearly his parents are desperate for the poor lad, which is why they wanted to take him to the Proton Therapy Centre in Prague.
Murph7355 said:
carinaman said:
BBC Radio 4 News 20.00 - The NHS are paying for the Proton Beam treatment in the Czech Republic.
And then we wonder why we have a massive deficit, national debt and why the NHS is fubar'd... This doesn't of course mean that the delaying in trement due to the running off stuff haven't changed the clinical picture in favour of proton beam due to the delay in commencing the second stage of treatment after the removal / debulking of the tumour..
Edited by mph1977 on Saturday 27th September 11:15
Beati Dogu said:
hairykrishna said:
The simple truth is that if there was a clear clinical case for this kid to get protons then he would have got them on the nhs. My guess, and it is a guess without knowing details, is that there's next to no difference between protons and photons for him.
My understanding is that there isn't a suitable facility available in the UK yet. They are building one in Manchester and one in London, but they won't be open until 2018. As you say, there may be one in Birmingham eventually too.Clearly his parents are desperate for the poor lad, which is why they wanted to take him to the Proton Therapy Centre in Prague.
It's important for patients like Aysha to get treatment quickly. It's also important that once started he doesn't miss any fractions.
Edited by hairykrishna on Saturday 27th September 11:05
MarshPhantom said:
Tax avoidance?
You mean the act of people paying the amount of tax they are legally obliged to? No, I don't think that has anything to do with us spending 100bn more than we take in or being over 1tn in debt. Paying the Czechs for medical treatment that our medical professionals didn't think was the best approach before the kid's parents absconded won't help though.
Still, I'm sure the tax you elect to overpay this year will go some way to offsetting the bill
mph1977 said:
Murph7355 said:
carinaman said:
BBC Radio 4 News 20.00 - The NHS are paying for the Proton Beam treatment in the Czech Republic.
And then we wonder why we have a massive deficit, national debt and why the NHS is fubar'd... May be if the family weren't threatened or felt threatened?
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