Communicating and dementia

Communicating and dementia

Author
Discussion

Kiltie

Original Poster:

7,504 posts

246 months

Tuesday 21st July 2015
quotequote all
I struggle to figure out how best to talk to my dad on the days when he's not with it.

When he's talking nonsense, I never know if it's best to challenge him or play along.

I'm ashamed to say that, often, my reaction depends on how frustrated I am.

I suppose there are three different scenarios to which I have specific ways of responding.
  1. If he's just talking nonsense to nobody in particular, I pretty much ignore and let him get on with it.
  2. If he's talking nonsense directly to me, I try and change the subject on to something connected to reality.
  3. If he's asking for something specific to be done but it's nonsense, I try and say the thing isn't necessary as I reckon that leaving stuff unresolved could be a source of anxiety.
Has anyone had any experience they could share?

Edited by Kiltie on Tuesday 21st July 23:32

Ruskie

3,989 posts

200 months

Tuesday 21st July 2015
quotequote all
Did you see the program called 'Dementiaville' on channel 4 a few weeks back? Well worth a look.

When I talk with people with dementia I tend to agree with whatever they are talking about. Definitely keep calm and patient though, don't forget it's not his fault.

Kiltie

Original Poster:

7,504 posts

246 months

Wednesday 22nd July 2015
quotequote all
I saw a programme with a chap who kept saying "clonkers" was that the one?

I didn't watch it all I'm afraid. I'll see if I can still get it on catch-up.

mph1977

12,467 posts

168 months

Wednesday 22nd July 2015
quotequote all
Ruskie said:
Did you see the program called 'Dementiaville' on channel 4 a few weeks back? Well worth a look.

When I talk with people with dementia I tend to agree with whatever they are talking about. Definitely keep calm and patient though, don't forget it's not his fault.
once a certain point has been reached as dementia progresses, you cannot adequately bring someone with dementia to the 'reality' of today;s time and date , relationship dynamics etc ...

at that point the least stressful approach for all is to tolerate their reality ...

if someone;s short term memory is shot - which is really qite common in people with dementia or patchy - every time you tell them something they don;t remember it;s like experiencing the event for the first time ...

oh the joys of mental capacity and best interests assessment in people with dementia ...

one way to imagine dementia is that someone has gone round a complex set of circuits randomly loosening connections, pulling wires out and so on ... so everyone's progression is difficult

longshot

3,286 posts

198 months

Wednesday 22nd July 2015
quotequote all
I spend a day each week helping care for someone with Alzheimers.

When she is not making any sense I find a slow nod and a Mmm seems to satisfy.

As a side note, we have recently discovered that 50s/60s music works wonders when things are bad.
In our care, Elvis.
Does an amazing job of raising her mood, particularly if we get up and dance a little. (That's us not her).

Kiltie

Original Poster:

7,504 posts

246 months

Wednesday 22nd July 2015
quotequote all
Nice. smile

mph1977

12,467 posts

168 months

Wednesday 22nd July 2015
quotequote all
longshot said:
I spend a day each week helping care for someone with Alzheimers.

When she is not making any sense I find a slow nod and a Mmm seems to satisfy.

As a side note, we have recently discovered that 50s/60s music works wonders when things are bad.
In our care, Elvis.
Does an amazing job of raising her mood, particularly if we get up and dance a little. (That's us not her).
this is also something to remember todays 'old' people are often big band / rock and roll era people... (someone who is 80 today was born in 1935 and would have been starting work / going out / courting in the mid 1950s)

where i work the elvis / rat pack / big band CDs get plenty of play ...

WinstonWolf

72,857 posts

239 months

Wednesday 22nd July 2015
quotequote all
Kiltie said:
I struggle to figure out how best to talk to my dad on the days when he's not with it.

When he's talking nonsense, I never know if it's best to challenge him or play along.

I'm ashamed to say that, often, my reaction depends on how frustrated I am.

I suppose there are three different scenarios to which I have specific ways of responding.
  1. If he's just talking nonsense to nobody in particular, I pretty much ignore and let him get on with it.
  2. If he's talking nonsense directly to me, I try and change the subject on to something connected to reality.
  3. If he's asking for something specific to be done but it's nonsense, I try and say the thing isn't necessary as I reckon that leaving stuff unresolved could be a source of anxiety.
Has anyone had any experience they could share?

Edited by Kiltie on Tuesday 21st July 23:32
Never challenge him, if he's talking bks only one of you is aware of it, just let him get on with it. The best thing to do is agree and smile pleasantly, he will not remember the conversation anyway.

My 75 year old dad often asks after his mother (when his speech is intelligible), we just tell him she's popped to Sainsburys as we've found that answer satisfies him. The truth no longer matters, you just need to put their mind at rest at that moment in time. White lies will become your friend in time smile

longshot

3,286 posts

198 months

Wednesday 22nd July 2015
quotequote all
WinstonWolf said:
Never challenge him, if he's talking bks only one of you is aware of it, just let him get on with it. The best thing to do is agree and smile pleasantly, he will not remember the conversation anyway.

My 75 year old dad often asks after his mother (when his speech is intelligible), we just tell him she's popped to Sainsburys as we've found that answer satisfies him. The truth no longer matters, you just need to put their mind at rest at that moment in time. White lies will become your friend in time smile
Sad that it is, lies do become an essential tool in your arsenal.

You say and do whatever is needed at any particular time to satisfy their questions and to keep them happy and calm.

You are essentially looking after a child ( and an often petulant and mardy one at that) and all the things you employ with a child tend to work.

IMO anyway.





mph1977

12,467 posts

168 months

Wednesday 22nd July 2015
quotequote all
WinstonWolf said:
Never challenge him, if he's talking bks only one of you is aware of it, just let him get on with it. The best thing to do is agree and smile pleasantly, he will not remember the conversation anyway.

My 75 year old dad often asks after his mother (when his speech is intelligible), we just tell him she's popped to Sainsburys as we've found that answer satisfies him. The truth no longer matters, you just need to put their mind at rest at that moment in time. White lies will become your friend in time smile
absolutely - challenging someone with moderate to advanced dementia will just cause problems ...


mph1977

12,467 posts

168 months

Wednesday 22nd July 2015
quotequote all
longshot said:
WinstonWolf said:
Never challenge him, if he's talking bks only one of you is aware of it, just let him get on with it. The best thing to do is agree and smile pleasantly, he will not remember the conversation anyway.

My 75 year old dad often asks after his mother (when his speech is intelligible), we just tell him she's popped to Sainsburys as we've found that answer satisfies him. The truth no longer matters, you just need to put their mind at rest at that moment in time. White lies will become your friend in time smile
Sad that it is, lies do become an essential tool in your arsenal.

You say and do whatever is needed at any particular time to satisfy their questions and to keep them happy and calm.

You are essentially looking after a child ( and an often petulant and mardy one at that) and all the things you employ with a child tend to work.

IMO anyway.
you aren;t looking after 'a child' you are looking after a grown adult with dementia ... that said a lot of the distraction and reassurance techniques are very similar / alomost identical to those you might use with a young child ... as their immediate needs are the same ...

Hoofy

76,358 posts

282 months

Wednesday 22nd July 2015
quotequote all
mph1977 said:
longshot said:
I spend a day each week helping care for someone with Alzheimers.

When she is not making any sense I find a slow nod and a Mmm seems to satisfy.

As a side note, we have recently discovered that 50s/60s music works wonders when things are bad.
In our care, Elvis.
Does an amazing job of raising her mood, particularly if we get up and dance a little. (That's us not her).
this is also something to remember todays 'old' people are often big band / rock and roll era people... (someone who is 80 today was born in 1935 and would have been starting work / going out / courting in the mid 1950s)

where i work the elvis / rat pack / big band CDs get plenty of play ...
thumbup

Also do things like put together a scrapbook of images and fashion from when they were young adults. Things like family photos including the family at home and holiday snaps can help.

longshot

3,286 posts

198 months

Wednesday 22nd July 2015
quotequote all
mph1977 said:
longshot said:
WinstonWolf said:
Never challenge him, if he's talking bks only one of you is aware of it, just let him get on with it. The best thing to do is agree and smile pleasantly, he will not remember the conversation anyway.

My 75 year old dad often asks after his mother (when his speech is intelligible), we just tell him she's popped to Sainsburys as we've found that answer satisfies him. The truth no longer matters, you just need to put their mind at rest at that moment in time. White lies will become your friend in time smile
Sad that it is, lies do become an essential tool in your arsenal.

You say and do whatever is needed at any particular time to satisfy their questions and to keep them happy and calm.

You are essentially looking after a child ( and an often petulant and mardy one at that) and all the things you employ with a child tend to work.

IMO anyway.
you aren;t looking after 'a child' you are looking after a grown adult with dementia ... that said a lot of the distraction and reassurance techniques are very similar / alomost identical to those you might use with a young child ... as their immediate needs are the same ...
I know I'm not looking after a child. I was just trying to put over the 'flavour'

mph1977

12,467 posts

168 months

Wednesday 22nd July 2015
quotequote all
Hoofy said:
mph1977 said:
longshot said:
I spend a day each week helping care for someone with Alzheimers.

When she is not making any sense I find a slow nod and a Mmm seems to satisfy.

As a side note, we have recently discovered that 50s/60s music works wonders when things are bad.
In our care, Elvis.
Does an amazing job of raising her mood, particularly if we get up and dance a little. (That's us not her).
this is also something to remember todays 'old' people are often big band / rock and roll era people... (someone who is 80 today was born in 1935 and would have been starting work / going out / courting in the mid 1950s)

where i work the elvis / rat pack / big band CDs get plenty of play ...
thumbup

Also do things like put together a scrapbook of images and fashion from when they were young adults. Things like family photos including the family at home and holiday snaps can help.
yep, also helps if you can get family to annotate the pictures if they feature family and friends and it can then be used by care staff to support conversations and the like ...

mph1977

12,467 posts

168 months

Wednesday 22nd July 2015
quotequote all
longshot said:
I know I'm not looking after a child. I was just trying to put over the 'flavour'
it;s a dignity issue , if staff were to use that terminology in relation to someone with dementia they would, rightly , be censured, you can't force lay people ot change terminology , only try and encourage the use of appropriate terminology ...

Robatr0n

12,362 posts

216 months

Wednesday 22nd July 2015
quotequote all
As others have mentioned, it's best just to play along. If you're dismissive and get upset they will have absolutely no idea why you're cross with them and then they can become quite difficult.

It's so upsetting to witness someone you hold so close go through this so you have my deepest and most heartfelt sympathies.

longshot

3,286 posts

198 months

Wednesday 22nd July 2015
quotequote all
mph1977 said:
it;s a dignity issue , if staff were to use that terminology in relation to someone with dementia they would, rightly , be censured, you can't force lay people ot change terminology , only try and encourage the use of appropriate terminology ...
You make me want to scream.

WinstonWolf

72,857 posts

239 months

Wednesday 22nd July 2015
quotequote all
longshot said:
mph1977 said:
longshot said:
WinstonWolf said:
Never challenge him, if he's talking bks only one of you is aware of it, just let him get on with it. The best thing to do is agree and smile pleasantly, he will not remember the conversation anyway.

My 75 year old dad often asks after his mother (when his speech is intelligible), we just tell him she's popped to Sainsburys as we've found that answer satisfies him. The truth no longer matters, you just need to put their mind at rest at that moment in time. White lies will become your friend in time smile
Sad that it is, lies do become an essential tool in your arsenal.

You say and do whatever is needed at any particular time to satisfy their questions and to keep them happy and calm.

You are essentially looking after a child ( and an often petulant and mardy one at that) and all the things you employ with a child tend to work.

IMO anyway.
you aren;t looking after 'a child' you are looking after a grown adult with dementia ... that said a lot of the distraction and reassurance techniques are very similar / alomost identical to those you might use with a young child ... as their immediate needs are the same ...
I know I'm not looking after a child. I was just trying to put over the 'flavour'
That's the best analogy, my dad is now like a 6' toddler weeping

mph1977

12,467 posts

168 months

Wednesday 22nd July 2015
quotequote all
longshot said:
mph1977 said:
it;s a dignity issue , if staff were to use that terminology in relation to someone with dementia they would, rightly , be censured, you can't force lay people ot change terminology , only try and encourage the use of appropriate terminology ...
You make me want to scream.
for raising an important dignity in care issue ?

for daring to point out a Dignity in Care issue ? one, which if you were the partner/ child / advocate for someone with Dementia you'd likely object to ...

longshot

3,286 posts

198 months

Wednesday 22nd July 2015
quotequote all
I used 1 word as a guide.
You took it literally and have shaken it to death.
I'm not talking about in care