Absence epilepsy with fits / seizures - my 4 year old

[DSLiverpool]

Little spud had a fit in feb, ambulance, hozzy he was in a deep sleep but vital signs ok, once had woke up he was right as rain no memory of it and running about. Tests at alder hey where had had an "absence " whilst on camera. Test results show absence epilepsy but the fits are unusual, he is on 4ml of epilin since last week. He had another seizure today poor little man, no fit but very distressing - anyone been through this, were hoping he grows out of it or we can control it better.

[DSLiverpool]

Cheers - did you ever fit or throw up during an episode?

[DSLiverpool]

Ozzie Dave said:

Hi There,
Yes our daughter started seizures at 4-5Y/O, first one we saw was a grand mal, lasted 4-5hrs! helicopter evac from the hospital to a specialist ped. teaching hospital not possible due to inability to transfer due to strength, so the brought the specialists to us. One of the most frightening days of our life. Tara is now 10 and is on Tegretol & Kepra after further testing showed she had upto 250 seizures a day, most being absent seizures, except when she is coming down with something like a cold or suchlike, then its usually a hospital trip.
We made the mistake of not pushing for an EEG because most seizures we put down to 'daydreaming' Do Not assume that, that assumption caused further damage I wont go into here.
When Tara comes around afterwards she is often confused and tired, vomits, and can have latent paralysis of the limbs and face, limbs are shortlived, the face can last for upto a week or two.
Rule 1 find a GOOD neurologist, one you feel happy with and does not treat you as a moron, secondly find a support group (even net based) of people going/been through this to give suggestions , not on medication but on specialists and questions to ask.
Above all learn how to deal with medically, its not a condition you want to get involved in unprepared.
Regards
Dave

Thanks for that it's very appreciated as we scrabble for info, we are lucky to be near two very good hospitals with child neuro units, Jamie is booked in for a MRI (he had an EEG after the first attack) ASAP - his last seizure was called a "focal" one it was horrible to witness!

[DSLiverpool]

harry010 said:

Can anyone give an idea as to what an EEG involves?

Our 15 month old son had a seizure on Good Friday and has to have a sleep deprived eeg as it cannot be explained - all tests normal, no temperature etc. W

Don't know what sleep deprived is but they put 15 electrodes on his head and filmed him doing some tests and blowing a windmill for 3 minutes - it took 25 mins in total and he didn't mind at all - didn't hurt but he is 4 - hope it goes well.