Discussion
Good Evening PH,
Since birth my brother has had severe learning and physical disabilities, he doesn't have a diagnosis, but its brain damage from being starved of oxygen at birth. He needs 24 hour care and can't do anything for himself. When he was younger he loved his food. If he knew pudding was ready he wouldn't eat the rest of the meal. Even to the point when he would stop when he heard the fridge open.
The last year or so things have taken a turn for the worse. He has stopped eating and it's a struggle to get him to eat anything. Even pudding type things which he used to love. Feeding him used to be the last 'normal' part of his life. He doesn't enjoy eating.
He is very underweight, and was recently ill and lost 2kg (lucky sod in a way!), he currently weighs 42.1kg and is 166cm tall, giving him a BMI of 15.2.
It was mentioned a while ago about tube feeding, something my parents weren't keen on as they've heard not brilliant things about it. Most of the children at his school are tube fed and there is always someone moaning of injections or how its been taken out by mistake.
Does anyone have any experience of tube feeding? If the doctors say my brother needs it, my parents won't stop it, we all want whats best for him, but want to try and get as much advice as possible on it all.
Thanks for any replies
.
Since birth my brother has had severe learning and physical disabilities, he doesn't have a diagnosis, but its brain damage from being starved of oxygen at birth. He needs 24 hour care and can't do anything for himself. When he was younger he loved his food. If he knew pudding was ready he wouldn't eat the rest of the meal. Even to the point when he would stop when he heard the fridge open.
The last year or so things have taken a turn for the worse. He has stopped eating and it's a struggle to get him to eat anything. Even pudding type things which he used to love. Feeding him used to be the last 'normal' part of his life. He doesn't enjoy eating.
He is very underweight, and was recently ill and lost 2kg (lucky sod in a way!), he currently weighs 42.1kg and is 166cm tall, giving him a BMI of 15.2.
It was mentioned a while ago about tube feeding, something my parents weren't keen on as they've heard not brilliant things about it. Most of the children at his school are tube fed and there is always someone moaning of injections or how its been taken out by mistake.
Does anyone have any experience of tube feeding? If the doctors say my brother needs it, my parents won't stop it, we all want whats best for him, but want to try and get as much advice as possible on it all.
Thanks for any replies
.Shaw Tarse said:
Sounds like it, basically a tube plumbed in.
Then (probably overnight) attach it to a pump that will feed a liquid containing nutrients.
Sounds familiar from what I've heard parents doing. Do you also get fed (if thats the right word?) during the day as well? Sure I've seen some of the kids at his school with something going on at lunch time.Then (probably overnight) attach it to a pump that will feed a liquid containing nutrients.
Thanks for all the replies, JJ55 please pass my thanks on to your other half for me.
He has seen someone from SALT a few times, he has also had x-rays to check his swallow (had to drink something that they could track down his throat etc).
The school he is at are fantastic, they keep a check on things. The doctors have said tube feeding is something we have to have in the back of our minds.
Its been useful to hear that its not all bad news and they are quite easy to look after. On the plus side we won't have to worry about him sneezing with a mouthful of food!
He has seen someone from SALT a few times, he has also had x-rays to check his swallow (had to drink something that they could track down his throat etc).
The school he is at are fantastic, they keep a check on things. The doctors have said tube feeding is something we have to have in the back of our minds.
Its been useful to hear that its not all bad news and they are quite easy to look after. On the plus side we won't have to worry about him sneezing with a mouthful of food!
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