Leukaemia

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pitboard

Original Poster:

512 posts

111 months

Wednesday 18th May 2016
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My one year old grandson has just been diagnosed. Has anyone got any information/experience they would care to share?

pitboard

Original Poster:

512 posts

111 months

Thursday 19th May 2016
quotequote all
He is in the teaching hospital in Palma, Mallorca. He has AML and started chemotherapy today. Fingers crossed.
Very many thanks for the kind wishes.
I'll keep you posted.

pitboard

Original Poster:

512 posts

111 months

Monday 23rd May 2016
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Thanks for that, Brett. Blood transfusions and platelets perked him up no end, and his liver and spleen have returned to normal. My son can't speak too highly of the treatment at Palma. A bedroom has been available for him and his wife, they have had visits from a social worker and a psychologist and Rory is getting a couple of hours play therapy a day to alleviate the boredom
.

pitboard

Original Poster:

512 posts

111 months

Tuesday 8th November 2016
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It's been a long haul. After two months chemotherapy in Palma he was in remission then we brought him back to England for stem cell/bone marrow transplant which the Mallorcam oncologist was insistent he needed. His counterpart over here thought different and said that three courses of remission chemotherapy would do the trick.
Within a month his cancer count was back to 70% so we were back to square one. To cut a long story short he was sent home on Friday. "Nothing more we can do".
With the help of Macmillan, we are getting a second biopsy done next week and his notes are being sent to some hotshot boffin in Glasgow.
Others may have given up. We can't.

pitboard

Original Poster:

512 posts

111 months

Wednesday 16th November 2016
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The roller coaster continues. The hotshot boffin considers that Rory may benefit from a new American drug she is testing, designed especially to with the vicious cancer cells normal chemo can't handle. Treatment starts on Friday. I'll keep you posted

pitboard

Original Poster:

512 posts

111 months

Friday 2nd December 2016
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Rory died peacefully during the night. Too special for this horrid world, as my wife said.
We are at Martin House Children's Hospice in Yorkshire. A wonderful place staffed by marvellous people.

pitboard

Original Poster:

512 posts

111 months

Monday 12th December 2016
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A final footnote. Very many thanks for your kind messages. It’s Rory’s funeral tomorrow. I returned from the local aerodrome to pick up a mourner who had flown in from Berlin, to find my wife in tears.
She’d had a phone call from home in Ireland to say that her brother had died.
The only conclusion I can draw is that God is a spiteful, vindictive, callous bd.