I think I have lymphoma
Discussion
Was given the news today I have Hodgkin lymphoma.
Hodgkin lymphoma is the most common blood cancer in young adults aged between 15 and 35 years.
But Hodgkin lymphoma can affect people of any age. After young adults, the most frequently affected age group are the over 55s. It is extremely rare in young children.
Hodgkin lymphoma risk is 41% higher in obese people (body mass index [BMI] 30+)
Hodgkin lymphoma risk is 10-15% higher in ever-smokers, compared with never-smokers
1,650 people are diagnosed with Hodgkin lymphoma in the UK every year
Bummer I'm a 49 year old man, never smoked and a BMI of 25, I guess no one told my white blood cells.
Hodgkin lymphoma is the most common blood cancer in young adults aged between 15 and 35 years.
But Hodgkin lymphoma can affect people of any age. After young adults, the most frequently affected age group are the over 55s. It is extremely rare in young children.
Hodgkin lymphoma risk is 41% higher in obese people (body mass index [BMI] 30+)
Hodgkin lymphoma risk is 10-15% higher in ever-smokers, compared with never-smokers
1,650 people are diagnosed with Hodgkin lymphoma in the UK every year
Bummer I'm a 49 year old man, never smoked and a BMI of 25, I guess no one told my white blood cells.
audikentman said:
Was given the news today I have Hodgkin lymphoma.
Hodgkin lymphoma is the most common blood cancer in young adults aged between 15 and 35 years.
But Hodgkin lymphoma can affect people of any age. After young adults, the most frequently affected age group are the over 55s. It is extremely rare in young children.
Hodgkin lymphoma risk is 41% higher in obese people (body mass index [BMI] 30+)
Hodgkin lymphoma risk is 10-15% higher in ever-smokers, compared with never-smokers
1,650 people are diagnosed with Hodgkin lymphoma in the UK every year
Bummer I'm a 49 year old man, never smoked and a BMI of 25, I guess no one told my white blood cells.
I am really sorry to hear that but have every hope you can beat it.Hodgkin lymphoma is the most common blood cancer in young adults aged between 15 and 35 years.
But Hodgkin lymphoma can affect people of any age. After young adults, the most frequently affected age group are the over 55s. It is extremely rare in young children.
Hodgkin lymphoma risk is 41% higher in obese people (body mass index [BMI] 30+)
Hodgkin lymphoma risk is 10-15% higher in ever-smokers, compared with never-smokers
1,650 people are diagnosed with Hodgkin lymphoma in the UK every year
Bummer I'm a 49 year old man, never smoked and a BMI of 25, I guess no one told my white blood cells.
Cancer doesn't care about statistics, I was 30, supremely fit & never smoked, but it still got me. At the time it was pretty rare (almost 30 yrs ago), but sadly it does seem to be on the increase.
Have they told you what the treatment will entail yet?
Thanks for the kind words, it was what I was expecting, they just needed the biopsy to determine if it was Hodgkin's or Non Hodgkin's yes pretty sure I'm going to kick its arse, consultant told me I have everything going in my favour, fit, healthy (apart from this)
I think people are getting diagnosed with it more rather than ignoring lumps and pain etc, also treatment and the NHS really seem to be on the ball on cancer now, its only been 2 months since I 1st went to see the doctor.
30 years ago would you have got a group of men talking about the subject? Hopefully my tale may make others see a doctor over a lump or cough rather than just ignoring it.
No treatment plan yet, they are going to call, it was the consultant/surgeon who carried out my biopsy that saw me today.
I think people are getting diagnosed with it more rather than ignoring lumps and pain etc, also treatment and the NHS really seem to be on the ball on cancer now, its only been 2 months since I 1st went to see the doctor.
30 years ago would you have got a group of men talking about the subject? Hopefully my tale may make others see a doctor over a lump or cough rather than just ignoring it.
No treatment plan yet, they are going to call, it was the consultant/surgeon who carried out my biopsy that saw me today.
audikentman said:
Thanks for the kind words, it was what I was expecting, they just needed the biopsy to determine if it was Hodgkin's or Non Hodgkin's yes pretty sure I'm going to kick its arse, consultant told me I have everything going in my favour, fit, healthy (apart from this)
I think people are getting diagnosed with it more rather than ignoring lumps and pain etc, also treatment and the NHS really seem to be on the ball on cancer now, its only been 2 months since I 1st went to see the doctor.
30 years ago would you have got a group of men talking about the subject? Hopefully my tale may make others see a doctor over a lump or cough rather than just ignoring it.
No treatment plan yet, they are going to call, it was the consultant/surgeon who carried out my biopsy that saw me today.
Yes indeed, I was the subject in many examinations by doctors to student doctors, but I didn't mind.I think people are getting diagnosed with it more rather than ignoring lumps and pain etc, also treatment and the NHS really seem to be on the ball on cancer now, its only been 2 months since I 1st went to see the doctor.
30 years ago would you have got a group of men talking about the subject? Hopefully my tale may make others see a doctor over a lump or cough rather than just ignoring it.
No treatment plan yet, they are going to call, it was the consultant/surgeon who carried out my biopsy that saw me today.
I never once had a negative thought & I don't think you should either. I had mainly radiotherapy, top half of my body with a really cool (not) waistcoat with lead blocks in pockets to protect my organs, & then at the end intensive radiotherapy to the area around the lump. I honestly can't remember if I had chemo too, but my mum says I did & she was there!
I remember I lost my appetite & couldn't eat anything, & when I tried I threw it straight back up, so even though I was fit & didn't have any fat I lot almost 3 stone all told. I also had a horrible metallic taste in my mouth which was there for quite a long time, even after the treatment, & I felt a bit out of it. Like a zombie, & was only vaguely aware of things going on around me. My hair didn't fall out until my treatment ended either. I thought I had gotten away with it but no such luck. It now only grows in patches like baby hair & falls out if I rub my scalp. It also fell out under my arms & hasn't grown back there either.
But that is it, & in my opinion a small price to pay for getting the all clear.
Good luck, keep positive, & keep coming back here, if only to concentrate the mind :-)
Had my treatment plan meeting yesterday at Kings, also got to see my PET/CT scan results, that opened my eyes, I have 1 lymph nodes swollen that I didn't even suspect, 1 between my lungs and 1 under my left arm pit. Confirmed I had Hodgkins Lymphoma level 2A. Back to Kings tomorrow to sign the consent forms, they have to give you a 'cooling off period' who knew?
Then start Chemo on Tuesday. 4 cycles (8 treatments) 1 week treated 1 week off, will take 16 weeks. After that some Radiotherapy. That's the next 4 - 5 months of 2015 sown up then. I'm gonna smash it!
Gonna check all my policies this weekend
audikentman said:
Bummer I'm a 49 year old man, never smoked and a BMI of 25, I guess no one told my white blood cells.
I wouldn't take this as a negative, it's why you will be in the best shape for your chemo regime, and why your body has the best chance of healing.Best of luck to you and your family.
Thanks for the kind wishes. The way I see it, I'm ill, Kings are going to make me better.
Poxy lymph glands are making 1 last stand, had terrible night sweats and the lump under my arm seems to get more prominent since I had the biopsy results, they know their time is nearly up.
I'm gonna smash this.
Poxy lymph glands are making 1 last stand, had terrible night sweats and the lump under my arm seems to get more prominent since I had the biopsy results, they know their time is nearly up.
I'm gonna smash this.
All the best my dad was diagnosed with non Hodgkins in 1975 he too was in his 40's things were a bit different back then regarding treatment they removed his spleen and he had to have radiotherapy, he always had to be aware of it checking for lumps and night sweats at the time they said he'd only see 8 years max, he actually did 37 years it's coming up to 3 years since he passed away, he never really talked much about it just worked and was on the go all the time kept his mind occupied,
Had my 1st (of 8 over 16 weeks) chemo session yesterday, all went well. Got there for a 9am appointment, given a cocktail of 7 anti sickness pills, 1 of 1 type, 3 of another, and 3 of another, cannula in my arm, 4 different liquids (ABVD) and a bag of saline. Had a light meal at home, bed about 10, woke up this morning about 4.30am slightly acidy stomach took my cocktail of 6 different drugs this morning, 2 slices of toast and tea, writing this at 8.15 and feel fine.
1 down 7 to go.
1 down 7 to go.
Edited by audikentman on Wednesday 29th April 08:23
Best of luck OP what brand of HL do you have? I've been a year diagnosed with NLPHL but am not undergoing treatment at the moment as I'm not experiencing any noticeable symptoms. Have had a couple of biopsies and an the lymph node that was noticed originally removed. I'm in for ABVD and/or radiotherapy at some point but as this flavour of HL is slow moving they are happy to leave me until its progressed further. Just under the haematology docs for regular checkups now until diverting kicks off.
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