Just got diagnosed with IBS

Just got diagnosed with IBS

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Z064life

Original Poster:

1,926 posts

248 months

Sunday 1st April 2018
quotequote all
So I've had a history of minor haemerhoids that have always required treating (grade 1-2 that didn't respond to suppositories, and had injections).

On my last round of this, I asked for a colonoscopy (as I was sedated so may as well get the whole thing checked and not just sigmoidoscopy). The dr noticed a polyp which was removed and the analysis came back and it showed it was a nueroma (bundle of nerves).

Before this surgery and after, I get spasms and contractions in my bowel and also in the anus area (which dr didn't seem too worried about).

Anyway, dr said I have IBS. That explains a lot of the wierd behaviour with my bowels as of late, such as:

- Not feeling empty after a bowel movement and going 30 mins later, sometimes just to pass wind (feeling bloated)
- Different consistency in bowel movement
- More wind than usual

Etc...

So I don't know where to start really. Maybe I have a food intolernace? What do you advise to manage this? I have got peppermint oil capsules and of course, no more fizzy drinks! (Sucks for a non alcohol drinker lol).


Thanks!

inabox

291 posts

191 months

Sunday 1st April 2018
quotequote all
I find it's quite hard because ibs covers so many symptoms. When mine started I had constant cramps and strange reactions to food, even getting drunk from milk!

I found the best way to help my ibs was to reduce stress through meditation and mindfulness (I know... but it really did help). When I was chronic the low FODMAP diet sorted me out.

Good luck, dude

So

26,271 posts

222 months

Sunday 1st April 2018
quotequote all
Z064life said:
So I've had a history of minor haemerhoids that have always required treating (grade 1-2 that didn't respond to suppositories, and had injections).

On my last round of this, I asked for a colonoscopy (as I was sedated so may as well get the whole thing checked and not just sigmoidoscopy). The dr noticed a polyp which was removed and the analysis came back and it showed it was a nueroma (bundle of nerves).

Before this surgery and after, I get spasms and contractions in my bowel and also in the anus area (which dr didn't seem too worried about).

Anyway, dr said I have IBS. That explains a lot of the wierd behaviour with my bowels as of late, such as:

- Not feeling empty after a bowel movement and going 30 mins later, sometimes just to pass wind (feeling bloated)
- Different consistency in bowel movement
- More wind than usual

Etc...

So I don't know where to start really. Maybe I have a food intolernace? What do you advise to manage this? I have got peppermint oil capsules and of course, no more fizzy drinks! (Sucks for a non alcohol drinker lol).


Thanks!
IBS means you've got something wrong with your gut, but the medics don't know what it is.

There will probably be foods that your gut doesn't like and removing them will help. You can find out what they are by using an elimination diet, or by getting tested (look up both).

You might be able to improve things by improving your gut flora. This involves removing the foods you don't get on with, eating foods that improve gut bacteria (fermented foods for example) and taking probiotics. Glutamine helps heal the gut too.

An easy(ish) thing to do is cut our caffeine. Caffeine stimulates the gut, which exacerbates the problem you have.

Amitriptyline might also be worth looking into.

SAS Tom

3,401 posts

174 months

Sunday 1st April 2018
quotequote all
Realistically all IBS means is that you have something wrong but they don’t know what.

Things I found that helped;

Work out whether fibre is good or bad for your symptoms. I was told to eat as much fibre as possible for the first year or so until I saw the gastroenterologist who said avoid fibre as that was making things worse. I saw an immediate improvement from that.

Keep an eye on what you eat and what effect it has. It can be quite hard to work out what exactly is the problem but you’ll slowly work things out.

The doctors can be quite keen to keep handing various tablets out and send you on your way. I didn’t really see any improvement from any of them so if you don’t then don’t feel the need to keep taking them.

The best thing I found to take when things are bad is Loperamide also labelled up as anti diarrhoea tablets. They settle my stomach down pretty quickly and make everything bareable again. Just bare in mind things will be pretty solid when you go to the toilet!

I’ve been suffering for about 6 years now, 2 of those were pretty unbareable where I would go weeks at a time unable to even get out of bed. Now everything is as under control as it can be but it’s always there.

So

26,271 posts

222 months

Sunday 1st April 2018
quotequote all
SAS Tom said:
Realistically all IBS means is that you have something wrong but they don’t know what.

Things I found that helped;

Work out whether fibre is good or bad for your symptoms. I was told to eat as much fibre as possible for the first year or so until I saw the gastroenterologist who said avoid fibre as that was making things worse. I saw an immediate improvement from that.

Keep an eye on what you eat and what effect it has. It can be quite hard to work out what exactly is the problem but you’ll slowly work things out.

The doctors can be quite keen to keep handing various tablets out and send you on your way. I didn’t really see any improvement from any of them so if you don’t then don’t feel the need to keep taking them.

The best thing I found to take when things are bad is Loperamide also labelled up as anti diarrhoea tablets. They settle my stomach down pretty quickly and make everything bareable again. Just bare in mind things will be pretty solid when you go to the toilet!

I’ve been suffering for about 6 years now, 2 of those were pretty unbareable where I would go weeks at a time unable to even get out of bed. Now everything is as under control as it can be but it’s always there.
How old are you, Tom?

SAS Tom

3,401 posts

174 months

Sunday 1st April 2018
quotequote all
So said:
SAS Tom said:
Realistically all IBS means is that you have something wrong but they don’t know what.

Things I found that helped;

Work out whether fibre is good or bad for your symptoms. I was told to eat as much fibre as possible for the first year or so until I saw the gastroenterologist who said avoid fibre as that was making things worse. I saw an immediate improvement from that.

Keep an eye on what you eat and what effect it has. It can be quite hard to work out what exactly is the problem but you’ll slowly work things out.

The doctors can be quite keen to keep handing various tablets out and send you on your way. I didn’t really see any improvement from any of them so if you don’t then don’t feel the need to keep taking them.

The best thing I found to take when things are bad is Loperamide also labelled up as anti diarrhoea tablets. They settle my stomach down pretty quickly and make everything bareable again. Just bare in mind things will be pretty solid when you go to the toilet!

I’ve been suffering for about 6 years now, 2 of those were pretty unbareable where I would go weeks at a time unable to even get out of bed. Now everything is as under control as it can be but it’s always there.
How old are you, Tom?
Just turned 26.

I see your comment about Amitriptyline. I tried this but it was awful, it pretty much knocked me out and the only reason it fixed the problem was because I was asleep most of the time. Obviously it works for some people but in my opinion it doesn’t help solve the problem, just hides it and isn’t a long term solution.

From what I’ve learnt about my own situation diet is the key. You can’t get rid of the problem completely but knowing what works for you is important. Even just knowing what you can have when it flares up can make the difference of being able to function and not wanting to leave the house for weeks at a time.

So

26,271 posts

222 months

Sunday 1st April 2018
quotequote all
SAS Tom said:
So said:
SAS Tom said:
Realistically all IBS means is that you have something wrong but they don’t know what.

Things I found that helped;

Work out whether fibre is good or bad for your symptoms. I was told to eat as much fibre as possible for the first year or so until I saw the gastroenterologist who said avoid fibre as that was making things worse. I saw an immediate improvement from that.

Keep an eye on what you eat and what effect it has. It can be quite hard to work out what exactly is the problem but you’ll slowly work things out.

The doctors can be quite keen to keep handing various tablets out and send you on your way. I didn’t really see any improvement from any of them so if you don’t then don’t feel the need to keep taking them.

The best thing I found to take when things are bad is Loperamide also labelled up as anti diarrhoea tablets. They settle my stomach down pretty quickly and make everything bareable again. Just bare in mind things will be pretty solid when you go to the toilet!

I’ve been suffering for about 6 years now, 2 of those were pretty unbareable where I would go weeks at a time unable to even get out of bed. Now everything is as under control as it can be but it’s always there.
How old are you, Tom?
Just turned 26.

I see your comment about Amitriptyline. I tried this but it was awful, it pretty much knocked me out and the only reason it fixed the problem was because I was asleep most of the time. Obviously it works for some people but in my opinion it doesn’t help solve the problem, just hides it and isn’t a long term solution.

From what I’ve learnt about my own situation diet is the key. You can’t get rid of the problem completely but knowing what works for you is important. Even just knowing what you can have when it flares up can make the difference of being able to function and not wanting to leave the house for weeks at a time.
Have you tried cutting out caffeine?

SAS Tom

3,401 posts

174 months

Sunday 1st April 2018
quotequote all
So said:
SAS Tom said:
So said:
SAS Tom said:
Realistically all IBS means is that you have something wrong but they don’t know what.

Things I found that helped;

Work out whether fibre is good or bad for your symptoms. I was told to eat as much fibre as possible for the first year or so until I saw the gastroenterologist who said avoid fibre as that was making things worse. I saw an immediate improvement from that.

Keep an eye on what you eat and what effect it has. It can be quite hard to work out what exactly is the problem but you’ll slowly work things out.

The doctors can be quite keen to keep handing various tablets out and send you on your way. I didn’t really see any improvement from any of them so if you don’t then don’t feel the need to keep taking them.

The best thing I found to take when things are bad is Loperamide also labelled up as anti diarrhoea tablets. They settle my stomach down pretty quickly and make everything bareable again. Just bare in mind things will be pretty solid when you go to the toilet!

I’ve been suffering for about 6 years now, 2 of those were pretty unbareable where I would go weeks at a time unable to even get out of bed. Now everything is as under control as it can be but it’s always there.
How old are you, Tom?
Just turned 26.

I see your comment about Amitriptyline. I tried this but it was awful, it pretty much knocked me out and the only reason it fixed the problem was because I was asleep most of the time. Obviously it works for some people but in my opinion it doesn’t help solve the problem, just hides it and isn’t a long term solution.

From what I’ve learnt about my own situation diet is the key. You can’t get rid of the problem completely but knowing what works for you is important. Even just knowing what you can have when it flares up can make the difference of being able to function and not wanting to leave the house for weeks at a time.
Have you tried cutting out caffeine?
Interesting you say that as you’ve got me thinking.

I’m not a big tea/coffee drinker and never have been. I do find though that tea makes me very bloated now and haven’t had any for ages. Coffee I could maybe have a 1 or 2 cups before i notice a difference. I do drink coke fairly often though and have no issues. I’ve recently used some energy gels with caffeine whilst cycling and not noticed a difference there either.

Just as an example for the op of how weird it can be, I have found that cows milk has a slight effect with cereal but I’m not lactose intolerant. Pasta has a big effect but gluten free pasta is ok. There is no difference between other normal and gluten free foods and I’m not diagnosed as gluten intolerant.

Z064life

Original Poster:

1,926 posts

248 months

Monday 2nd April 2018
quotequote all
So I know that lamb can constipate me. In fact, one place I had it really slowed down my BMs to pebbles and I strained enough to get piles again. So I avoid lamb at that place. Lamb at home or other restaurants is ok. I can't think of any particular trigger foods. Jacket potatoes as of late seems to be a bit hit and miss.

I am going to keep a food diary and diary of the effect on my BMs and see if i can sense a pattern.

I don't have it as bad as described in this thread. It's bad enough missing a BM in a day as it makes me anxious about the next one. I find that I need to eat fairly heavily to feel the need to pass a BM, and drink lots of water.

So

26,271 posts

222 months

Monday 2nd April 2018
quotequote all
SAS Tom said:
So said:
SAS Tom said:
So said:
SAS Tom said:
Realistically all IBS means is that you have something wrong but they don’t know what.

Things I found that helped;

Work out whether fibre is good or bad for your symptoms. I was told to eat as much fibre as possible for the first year or so until I saw the gastroenterologist who said avoid fibre as that was making things worse. I saw an immediate improvement from that.

Keep an eye on what you eat and what effect it has. It can be quite hard to work out what exactly is the problem but you’ll slowly work things out.

The doctors can be quite keen to keep handing various tablets out and send you on your way. I didn’t really see any improvement from any of them so if you don’t then don’t feel the need to keep taking them.

The best thing I found to take when things are bad is Loperamide also labelled up as anti diarrhoea tablets. They settle my stomach down pretty quickly and make everything bareable again. Just bare in mind things will be pretty solid when you go to the toilet!

I’ve been suffering for about 6 years now, 2 of those were pretty unbareable where I would go weeks at a time unable to even get out of bed. Now everything is as under control as it can be but it’s always there.
How old are you, Tom?
Just turned 26.

I see your comment about Amitriptyline. I tried this but it was awful, it pretty much knocked me out and the only reason it fixed the problem was because I was asleep most of the time. Obviously it works for some people but in my opinion it doesn’t help solve the problem, just hides it and isn’t a long term solution.

From what I’ve learnt about my own situation diet is the key. You can’t get rid of the problem completely but knowing what works for you is important. Even just knowing what you can have when it flares up can make the difference of being able to function and not wanting to leave the house for weeks at a time.
Have you tried cutting out caffeine?
Interesting you say that as you’ve got me thinking.

I’m not a big tea/coffee drinker and never have been. I do find though that tea makes me very bloated now and haven’t had any for ages. Coffee I could maybe have a 1 or 2 cups before i notice a difference. I do drink coke fairly often though and have no issues. I’ve recently used some energy gels with caffeine whilst cycling and not noticed a difference there either.

Just as an example for the op of how weird it can be, I have found that cows milk has a slight effect with cereal but I’m not lactose intolerant. Pasta has a big effect but gluten free pasta is ok. There is no difference between other normal and gluten free foods and I’m not diagnosed as gluten intolerant.
Coke obviously has caffeine, CO2 and either sugar or artificial sweetener in it. All of which can irritate the gut.

oddman

2,304 posts

252 months

Monday 2nd April 2018
quotequote all
Take a look at FODMAP diet

A lot of people who are 'gluten sensitive' and IBS could probably benefit. To do with the way your bowels and bugs process complex sugars.

As Harvard Medical School are behind the link it isn't a load of new age woo.

Also keep symptoms under review especially if they are outside of IBS pattern - not unreasonable to want regular colonoscopy after a one off found an abnormality

halfpenny43

1,016 posts

236 months

Wednesday 18th July 2018
quotequote all
Sorry to hear your struggles OP.

I'm also recently diagnosed with IBS, and as someone else suggested - they cannot find out what is wrong.
I've have tests for bugs, viruses, worms, parasites, allergies to dairy, wheat, colonoscopies, gastroscopy. Other than a few non-dangerous polyps that were found somewhere inside and removed, everything came back normal.

These past few weeks have been probably the worst I've suffered. Cramps, bloating and that moment when you think it's a fart and realise it's not and have to run for the bathroom. I travel a lot for work - so being on a plane for 19 hours is like a nightmare.
No food, plenty of water and a box of loperomide are my friends.

I've reduced fatty foods - as I noticed that fried, or foods containing higher fat agitated - even things like mayo, heavy or creamy sauces or soups were causing issues. And I have stopped eating carbs at night so heavy high carb foods are not trying to digest whilst I sleep.
I've also in the past few months cut out milk in tea and coffee as I found that I was feeling abnormally bloated after a coffee or cup of tea. That has helped too.

Some Dr's tell me to get a different job with less stress and less travel - but not sure you can get those on prescription smile

Started with some new pills called Duspatal - supposed to prevent the digestive tract from spasming. I found that they have made things worse. Not keeping anything in my stomach. So have stopped them before I travel tomorrow to the US.

A friend who's daughter has IBS has also recommended the FODMAP diet along with taking active probiotics (she uses PuraDyme) and taking a natural remedy called "5HTP". I've not looked into any of these but will certainly do some research as this is getting to be miserable.

Will certainly be watching this post with interest.

freenote

784 posts

168 months

Wednesday 18th July 2018
quotequote all
Has IBS for probably at least a decade from late teens. Tried all sorts.

What eventually sorted it was treating an underlying anxiety. Treated with anti-depressants which I still take and have no intention of stopping.
Made a massive difference to anxiety and bouts of mild depression and IBS is pretty much a thing of the past for me.
I have been on the pills for 5/6 years now and I think they're great. Different for everyone though.

Yell_M3

389 posts

200 months

Wednesday 18th July 2018
quotequote all
My father was diagnosed with IBS, nothing helped, doctor dismissed him time after time. When he ended up in A&E a year later due to the pain it was found to be bowel cancer. Get checked!

The Ferret

1,147 posts

160 months

Wednesday 18th July 2018
quotequote all
Probably won't apply to you, but it's worth noting all the same as it will no doubt to some.

Nicotine is well known for stimulating the bowel. However, nicotine replacement in the form of anything you put in your mouth that ends up in the gut is another matter altogether (chewing gums, lozenges, sprays etc).

Too much and it will literally clean you out in a matter of hours, you will not leave the house during the episode. If anyone has read the "Agent Picolax" story - the effects are broadly the same. laugh

I found out the hard way. Ended up on Amitryptyline as it was the only thing that could counter what the nicotine was doing, and it was completely unnecessary.

The 2 important lessons here are to never ingest nicotine, and always be honest with your GP if you do and get IBS symptoms. That last bit could have saved me a lot of grief furious

PWeston

157 posts

75 months

Wednesday 18th July 2018
quotequote all
A good place to start would be intermittent fasting combined with an elimination type diet. IF alone will allow the gut lining much more time in recovery rather than constantly having to process food.

This IS curable but you may find you'll spend a good while researching and establishing what'll work for you - your GP will be absolutely no use to you that is for sure.

Were it me I would:
- IF as aforementioned
- Avoid all refined sugars
- stop taking any medication for the issue (it won't solve any underlying issue)

halfpenny43

1,016 posts

236 months

Thursday 19th July 2018
quotequote all
The Ferret said:
Too much and it will literally clean you out in a matter of hours, you will not leave the house during the episode. If anyone has read the "Agent Picolax" story - the effects are broadly the same. laugh

The 2 important lessons here are to never ingest nicotine, and always be honest with your GP if you do and get IBS symptoms. That last bit could have saved me a lot of grief furious
I stopped smoking about 20 years ago, and have never taken any form of nicotine substitute.
I have however taken Picolax . . . . . everything in the story is true biggrinbiggrinbiggrin


PWeston said:
Were it me I would:
- IF as aforementioned
- Avoid all refined sugars
- stop taking any medication for the issue (it won't solve any underlying issue)
When you say IF - for how long are you fasting and are you only taking in clear liquids to keep hydrated (i.e. water, consomme ?)
Understand the medication won't solve the underlying issue - but it does help fix the immediate symptom - particularly when needing to pop imodium or similar remedy.

SimNugget

580 posts

170 months

Thursday 19th July 2018
quotequote all
I was put on the low FODMAP diet and it is a struggle but there was a really good app that allowed you to scan barcodes and track your progress.

In the end I was told to take Symprove which made a huge difference. It’s not on Prescription so is pricey but well worth it. Just make sure you get the mango flavour as it is the least rank of the two. You have to stick with the whole 12 week’s as you won’t feel any better until weeks 5-6.

The key is avoiding your triggers, sadly mine is stress, alcohol and spicy food.

Simon

rossub

4,440 posts

190 months

Thursday 19th July 2018
quotequote all
I’ve had it all my life and have only just recently tried Loperamide (anti diarrhoea capsules).

I take a couple before having meals I know cause instant bowel emptying and it’s stopped it in its tracks. It’s going to give me a new lease of life, as I can now eat out worry free if I take them first.

High liquid fat content is my trigger - chicken legs, gravy, mayonnaise. Body just doesn’t seem to want to process it.


rossub

4,440 posts

190 months

Thursday 19th July 2018
quotequote all
I’ve had it all my life and have only just recently tried Loperamide (anti diarrhoea capsules).

I take a couple before having meals I know cause instant bowel emptying and it’s stopped it in its tracks. It’s going to give me a new lease of life, as I can now eat out worry free if I take them first.

High liquid fat content is my trigger - chicken legs, gravy, mayonnaise. Body just doesn’t seem to want to process it.