Discussion
TheAngryDog said:
I haven't experienced a migraine since the attack in March / April. I have spoken with my GP today and we are reducing my dosage of Amitriptyline from 30mg daily to 20mg daily for the next 3 weeks, with a view to drop that to 10mg if I haven't had an attack. Here's hoping as I suffer with some of the side effects so hopefully I can come off them.
I previously posted on here b because I was having daily migraines during jan/feb/march, and was on all the associated tablets/sprays. One day in March I realised I hadn't had a migraine in a couple of days and that wears it, nothing more since. No idea what caused them but hopefully they won't return. Got a little stock of sprays in the cars just in case, mind.
I’m taking Amitriptyline at night to help prevent them, and no side effects for the past 18months.
I was still getting around 1 or 2 a month, until September when it started to creep up to one a week on average.
No change in meds but I decided to get both my daith ear piercings done.... snd no migraine now since end of October. Even if it is a placebo effect, it’s a welcome one at present.
I was taking Zolmitriptan as I’d found that Sumitriptan didn’t touch mine and the Zolmitriptan works pretty well, although gave me a bit of a stomach ache.
I was still getting around 1 or 2 a month, until September when it started to creep up to one a week on average.
No change in meds but I decided to get both my daith ear piercings done.... snd no migraine now since end of October. Even if it is a placebo effect, it’s a welcome one at present.
I was taking Zolmitriptan as I’d found that Sumitriptan didn’t touch mine and the Zolmitriptan works pretty well, although gave me a bit of a stomach ache.
Hi, hope this helps someone,i suffered from age 16 to 58 with migraines having one every 3 to 4 days,just like my mother,so always thought it was hereditory, tried just about every drug avail, starting with ergotamine it was dreadfull but did work sometime, i listened to a radio 4 prog about a guy eating 8 bananas a day something to do with magnesium, i tried everything diet ,was teetotal for 20 yrs because alcohol always gave me a migraine,about 8 yrs ago listened to a prog with Dr Michael Mosley about the effect of magnesium on migraine, just thought i would try it ,started taking 500mg tablet every day, hey presto cured, now can drink,its good fun making up for lost time,worth a try.
burn1 said:
Hi, hope this helps someone,i suffered from age 16 to 58 with migraines having one every 3 to 4 days,just like my mother,so always thought it was hereditory, tried just about every drug avail, starting with ergotamine it was dreadfull but did work sometime, i listened to a radio 4 prog about a guy eating 8 bananas a day something to do with magnesium, i tried everything diet ,was teetotal for 20 yrs because alcohol always gave me a migraine,about 8 yrs ago listened to a prog with Dr Michael Mosley about the effect of magnesium on migraine, just thought i would try it ,started taking 500mg tablet every day, hey presto cured, now can drink,its good fun making up for lost time,worth a try.
Very interesting! Can you tell me where you’re buying yours from please. I read the same re magnesium but it noted not all supplements are the same, something to do with absorption.Have just read the thread to see if there's any mention of this, but it seems not...
PB Jnr 2 was taken by ambulance to hospital yesterday as she had suddenly become very distressed, could hardly speak, had tingling in her arm, and wasn't making too much sense when she did speak. This is the second time this has happened - after the first, almost exactly a year ago - all sorts of tests were done, and nothing untoward was discovered.
However, internet searching has thrown up this paper amongst others, and the symptoms observed are exactly as described - Acute Confusional Migraine...
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC58360...
Anyone else experienced this, or know someone who has??
In our instance, we think the extreme symptoms that were on display were simply the end part of the migraine that had started about two days earlier.
PB Jnr 2 was taken by ambulance to hospital yesterday as she had suddenly become very distressed, could hardly speak, had tingling in her arm, and wasn't making too much sense when she did speak. This is the second time this has happened - after the first, almost exactly a year ago - all sorts of tests were done, and nothing untoward was discovered.
However, internet searching has thrown up this paper amongst others, and the symptoms observed are exactly as described - Acute Confusional Migraine...
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC58360...
Anyone else experienced this, or know someone who has??
In our instance, we think the extreme symptoms that were on display were simply the end part of the migraine that had started about two days earlier.
I've had migraines since I was 16, I'm now 45.
Triggers for me are caffeine, fatigue and dehydration.
It sounds ridiculous but when my sight goes and I get the aura I sit upside down for 5-10 minutes. This usually restores my vision and gets rid of the aura. I'm just left with a sore head for a day or two.
Triggers for me are caffeine, fatigue and dehydration.
It sounds ridiculous but when my sight goes and I get the aura I sit upside down for 5-10 minutes. This usually restores my vision and gets rid of the aura. I'm just left with a sore head for a day or two.
had them on and off for about the last 10 years .the main triggers for me can be stress,certain foods and drinks ,driving and especially at night but it can be very difficult to pinpoint triggers
Taking painkillers with the earliest symptoms of an attack can definitely help
The worst one by far was after crashing car and having to deal with everything then spending an hour in a recovery truck trying hard not to be sick all over there seats .should have probably just taken a sleep in a field for a bit ...
Taking painkillers with the earliest symptoms of an attack can definitely help
The worst one by far was after crashing car and having to deal with everything then spending an hour in a recovery truck trying hard not to be sick all over there seats .should have probably just taken a sleep in a field for a bit ...
Used to get aura migraines in my teens sometimes several a month, I worked out it was sugary cereal for breakfast which I stopped having when I started work and no more migraines. Always still suffered them but only every couple of years or so, until last month when I had three in two weeks. No changes to anything, apart from doing a 10k the day before on two occasions.... been to the doc had blood tests which has revealed only slightly high cholesterol which I’m going to deal with (too many ready meals and crap during lockdown). I’m wondering whether the dehydration after a run might have contributed so am watching that along with a poorer diet which is being addressed.
Had em for 10 straight years - 3-4 a week lasting up to 24 hours - the most miserable experience ..... had tests, did diets, tried to id triggers and stuff
In the end, my wife identified aspartame in Robinsons barley water might be to blame - cured overnight - amazing
Google aspartame, its in all diet drink and loads of other stuff
Jus t my experience
In the end, my wife identified aspartame in Robinsons barley water might be to blame - cured overnight - amazing
Google aspartame, its in all diet drink and loads of other stuff
Jus t my experience
stut4 said:
i'm a regular sufferer with aura. sometimes get 1 every 3 months, other times i've had 4 in a week. 
Spoke to a friend who is a GP - he told me ask for a drug called Zolmitriptan.
Tiny little disperable tablets which go under the tongue. Usually within 30 mins of taking one, the symptoms have subsided.
fantastic little drugs, but apparently very expensive - hence why they try and prescribe sumatripan instead (i tried those for 2 years and they only eased things). These new ones actually stop it for me (still feel a crap, but no where near as bad as without them).
The only thing that has worked for me. I get the most terrifying Aura /paralysis. Spoke to a friend who is a GP - he told me ask for a drug called Zolmitriptan.
Tiny little disperable tablets which go under the tongue. Usually within 30 mins of taking one, the symptoms have subsided.
fantastic little drugs, but apparently very expensive - hence why they try and prescribe sumatripan instead (i tried those for 2 years and they only eased things). These new ones actually stop it for me (still feel a crap, but no where near as bad as without them).
Also in my mid 30s they were really bad and I was treated with Propanol / 6 month bursts which then cleared them for a year or two at a time
Horrible horrible things
I actually had a stroke last year and it was found I have raised Lupus Anticoagulant (sticky blood)....... so I now take Aspirin. Migraines have disappeared and my consultant thinks this may have been the cause. Wish I’d known this 30 years ago!!
Good luck and see a migraine specialist if you can
My Mrs has migraines all her life.... she used to get BAD migraines every couple of months. Attacks that would render her completes bed bound and useless for two to three days. Not being able to move, talk or eat....just throw up! She now hardly gets them at all.....the answer....diet, salt and water.
IF YOU ARE SERIOUS ABOUT NOT HAVING MIGRAINES AGAIN READ THIS BOOK....
https://www.amazon.co.uk/Fighting-Migraine-Epidemi...
It pretty much cured her...however, she will occasionally have a glass of wine, alcohol is a massive trigger in most people, so she does get them after dinner parties etc when she really wants a tipple but they’re still no where near as bad as before.
IF YOU ARE SERIOUS ABOUT NOT HAVING MIGRAINES AGAIN READ THIS BOOK....
https://www.amazon.co.uk/Fighting-Migraine-Epidemi...
It pretty much cured her...however, she will occasionally have a glass of wine, alcohol is a massive trigger in most people, so she does get them after dinner parties etc when she really wants a tipple but they’re still no where near as bad as before.
Gary C said:
owowowowowowowowowowowo
my head hurts
I have got one of my nightshift migraines.
I do worry as I get past 54 that shifts are doing me more harm than good
What sort of job? my head hurts
I have got one of my nightshift migraines.
I do worry as I get past 54 that shifts are doing me more harm than good
I.e. desk, factory or emergency services?
On nights/following your nutrition goes to crap I've noticed.
Interestingly I've taken magnesium supplements for years now but only 100 strength a day.....think I've under done it.
I have had epilepsy all my life.
Last year I was getting a lot of migraines and then I had a full blown fit.
Handed my licence into the DVLA and got a CT scan after speaking to the gp.
I changed my medication from tegratol (been on all my life) to Eppilum and so far I have not had any more ill effects since.
Now only got to wait until june and I can hopefully get my licence back.
Stress, too much caffine and not eating enough at the right times seems to set me off.
I found Costa coffee and cafe nero would set me off but starbucks, greggs or mcdonalds wont.
A true espresso blend is too much but a strrngth 3 or 4 type coffee is fine.
Last year I was getting a lot of migraines and then I had a full blown fit.
Handed my licence into the DVLA and got a CT scan after speaking to the gp.
I changed my medication from tegratol (been on all my life) to Eppilum and so far I have not had any more ill effects since.
Now only got to wait until june and I can hopefully get my licence back.
Stress, too much caffine and not eating enough at the right times seems to set me off.
I found Costa coffee and cafe nero would set me off but starbucks, greggs or mcdonalds wont.
A true espresso blend is too much but a strrngth 3 or 4 type coffee is fine.
Hugo Stiglitz said:
Can anyone help? I've driven strong espressos all my life then 4yrs ago the aura migraines started after I had caffeine, approx 2hours after.
Why?!!
I've not been able to drink tea or coffee since.
But I can drink porter or stout with caffeine in...
Try cafitere ground coffee rather than esspresso ground. It has worked for me. It doesnt seem quite as potent with caffine to me. Why?!!
I've not been able to drink tea or coffee since.
But I can drink porter or stout with caffeine in...
Migraines can be enormously frustrating when it comes to triggers and types...
I spent years trying to identify what caused mine, people telling me it was sugar/coffee/red wine etc - ended up to be hormone fluctuations and raised Lupus Anticoagulant levels which they believe is linked migraine although this is a very recent area of interest so no large studies have taken place - my specialist thinks I have APS which explains the lifetime of severe migraine that include going completely blind for a day and getting total paralysis on my right side. https://pubmed.ncbi.nlm.nih.gov/3145136/
There are many different types of migraine and headaches though... some are a one off as a direct effect from things like dehydration or illness and some are linked to systemic conditions - some are triggered by specific environmental or food things.
That's why it's so hard to generalise and help people - However these guys have some great info that might be useful.
https://www.nationalmigrainecentre.org.uk/
https://www.migrainetrust.org/
I spent years trying to identify what caused mine, people telling me it was sugar/coffee/red wine etc - ended up to be hormone fluctuations and raised Lupus Anticoagulant levels which they believe is linked migraine although this is a very recent area of interest so no large studies have taken place - my specialist thinks I have APS which explains the lifetime of severe migraine that include going completely blind for a day and getting total paralysis on my right side. https://pubmed.ncbi.nlm.nih.gov/3145136/
There are many different types of migraine and headaches though... some are a one off as a direct effect from things like dehydration or illness and some are linked to systemic conditions - some are triggered by specific environmental or food things.
That's why it's so hard to generalise and help people - However these guys have some great info that might be useful.
https://www.nationalmigrainecentre.org.uk/
https://www.migrainetrust.org/
Hugo Stiglitz said:
What sort of job?
I.e. desk, factory or emergency services?
On nights/following your nutrition goes to crap I've noticed.
Interestingly I've taken magnesium supplements for years now but only 100 strength a day.....think I've under done it.
12 hr shifts in a control room. Our shift pattern is 2x12hr days then 2x12 hour nights then 5 off, but last set I was training for 2 days, then straight into the shifts and that doesn't help.I.e. desk, factory or emergency services?
On nights/following your nutrition goes to crap I've noticed.
Interestingly I've taken magnesium supplements for years now but only 100 strength a day.....think I've under done it.
My problems have always been sleep and hydration related. Lack of fluids tend to give me normal headaches, but if I push it, it will develop, but sleep is the real killer. and its not always being tired but the upset to sleeping patterns. If I try and force a sleep, it hurts.
Mind you, I have worked shifts for 20+ years now so have a pretty good handle on it, but it gets harder as you get older.
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