T1 diabetics thread
Discussion
bonerp said:
I lost my license 5 years ago due to retinopathy. Its taken this long for DVLA to allow me to take a driving assessment after them being told by eye specialists (their independent) and mine, and my gp etc that I'm ok to drive. So today I have my first lesson as a refresher and a couple more booked before my assessment!
I am so excited I can't tell you.
However this is a serious comment....keep your BG's in check. Work hard to get better control. I'm now on a pump and its made the world of difference to my control. Everyone has a right to better control and access to a pump. Being without a license for 5 years is hard. I have a 16 yr old daughter who has missed out as a result. Eat better, and medicate effectively. DVLA will use any excuse to keep you out of a car.
I have had fairly extensive laser surgery for retinopathy. As long as I pass a field vision test the DVLA are happy. The only other reason I have heard of the DVLA taking away a licence is due to severe hypos which require assistance from another person.I am so excited I can't tell you.
However this is a serious comment....keep your BG's in check. Work hard to get better control. I'm now on a pump and its made the world of difference to my control. Everyone has a right to better control and access to a pump. Being without a license for 5 years is hard. I have a 16 yr old daughter who has missed out as a result. Eat better, and medicate effectively. DVLA will use any excuse to keep you out of a car.
mike9009 said:
PositronicRay said:
Corso Marche said:
Type 1 for 21 years now. Another sibling is type 1 since the age of 9.
I need to get serious about exercise, weight gain over the last 2-3 years has been pronounced, and in the last 6 months my blood sugars are quite high in the morning, it seems my basal evening/overnight dose isn't performing as it used to. Daytime and evening are still ok though.
It's a tricky one this, I tend to increase my basal, seems to sort it for a while, then night time hypos start, so peg it back to where it was.I need to get serious about exercise, weight gain over the last 2-3 years has been pronounced, and in the last 6 months my blood sugars are quite high in the morning, it seems my basal evening/overnight dose isn't performing as it used to. Daytime and evening are still ok though.
Stress sends everything haywire too.
I've started splitting my basal now 50/50 am/pm. It took a couple of days to settle seems to be working, early days though.
Edited by PositronicRay on Tuesday 12th February 08:45
Mike
So I've pegged it back down and split the dose am/pm, it's taken a week or so to settle down but I've now started to tweak it up again. If need be I can run with a different day/night time doses.
I haven't fitted for a few yrs, when I did I don't think it was basal related. Just out of my normal routine and screwing up.
PositronicRay said:
I'm pleased, that thar Christmas is finished, BS has been all over the place.
Off to the clinic on the 17th with a view to petitioning for a freestyle libra.
Yep, I have had an up and down Xmas too (more up than down though....).Off to the clinic on the 17th with a view to petitioning for a freestyle libra.
I had some good news though as I am now booked for cataracts operation at the end of Jan!
I might start petitioning for a Libra soon too. My biggest issue is when I test my BS and get a figure I am not sure whether my level is rising or falling. I think Libra will show this? I always air on the side of caution so my BS tend to run high. This usually happens after work or before bed......
Mike
PositronicRay said:
I'm pleased, that thar Christmas is finished, BS has been all over the place.
Off to the clinic on the 17th with a view to petitioning for a freestyle libra.
I’m the same with Christmas. I’ve had a libre for 18 months, most of it self funded but the last 3 months have been on the NHS. It’s absolutely brilliant bit of kit.Off to the clinic on the 17th with a view to petitioning for a freestyle libra.
Feirny said:
PositronicRay said:
I'm pleased, that thar Christmas is finished, BS has been all over the place.
Off to the clinic on the 17th with a view to petitioning for a freestyle libra.
I’m the same with Christmas. I’ve had a libre for 18 months, most of it self funded but the last 3 months have been on the NHS. It’s absolutely brilliant bit of kit.Off to the clinic on the 17th with a view to petitioning for a freestyle libra.
I'm impressed you managed to get NHS to fund. After self funding I'd have thought they'd be reluctant.
PositronicRay said:
Feirny said:
PositronicRay said:
I'm pleased, that thar Christmas is finished, BS has been all over the place.
Off to the clinic on the 17th with a view to petitioning for a freestyle libra.
I’m the same with Christmas. I’ve had a libre for 18 months, most of it self funded but the last 3 months have been on the NHS. It’s absolutely brilliant bit of kit.Off to the clinic on the 17th with a view to petitioning for a freestyle libra.
I'm impressed you managed to get NHS to fund. After self funding I'd have thought they'd be reluctant.
PositronicRay said:
Feirny said:
PositronicRay said:
I'm pleased, that thar Christmas is finished, BS has been all over the place.
Off to the clinic on the 17th with a view to petitioning for a freestyle libra.
I’m the same with Christmas. I’ve had a libre for 18 months, most of it self funded but the last 3 months have been on the NHS. It’s absolutely brilliant bit of kit.Off to the clinic on the 17th with a view to petitioning for a freestyle libra.
I'm impressed you managed to get NHS to fund. After self funding I'd have thought they'd be reluctant.
Corso Marche said:
My sister started with the Libra earlier in 2019, self-funded. She's well impressed. Considering it myself, but waiting to see if any other companies bring similar offerings to market in 2020 before I do.
That must be unusual to have T1 siblings. Any genetic connection? There is a few cases in my dad's side of the family of T1 diabetes, so it's obviously familial. My (younger) sister was diagnosed as a kid at the age of nine. Despite being older I didn't develop T1 until I was 19. In our generation a few other relatives all developed it as kids. No sign of it at all in my mum's family.
NoNeed said:
I have had the same, self funded for some time then the consultant said he would help me get it on the NHS as he liked to help people that wanted to help themselves it also means I can manage my shift working better too
If anyone want’s to get the NHS cost of their current set up please drop me a PM or post here - test strips, lancets, insulin etc etc all add up to a total cost which may be higher than the total cost of the libre device. When these costs are presented it may help persuade your prescriber. pharmvrs said:
NoNeed said:
I have had the same, self funded for some time then the consultant said he would help me get it on the NHS as he liked to help people that wanted to help themselves it also means I can manage my shift working better too
If anyone want’s to get the NHS cost of their current set up please drop me a PM or post here - test strips, lancets, insulin etc etc all add up to a total cost which may be higher than the total cost of the libre device. When these costs are presented it may help persuade your prescriber. I use 2 machines, one for the house and one for walking & working.
Accu-chek mobile and Accu-chek compact
ETA
Based on economics I should be in with a shout, I'm doing circa 200 finger picks a month.
Edited by PositronicRay on Wednesday 1st January 16:13
Can you still get the cassettes for the AccuCheck Mobile? I used mine for the last time a few days ago. I've been told the cassettes have been dropped by AccuCheck so the most convenient meter I've ever had is now defunct.
You don't realise just how convenient it made life until you go back to using separate strips, finger pricker, and the meter.
You don't realise just how convenient it made life until you go back to using separate strips, finger pricker, and the meter.
Corso Marche said:
Can you still get the cassettes for the AccuCheck Mobile? I used mine for the last time a few days ago. I've been told the cassettes have been dropped by AccuCheck so the most convenient meter I've ever had is now defunct.
You don't realise just how convenient it made life until you go back to using separate strips, finger pricker, and the meter.
Yes, you can. It’s the Compact that are no longer available.You don't realise just how convenient it made life until you go back to using separate strips, finger pricker, and the meter.
That's interesting. My sister uses a pharmacy over 1 hour away from me and they told her last summer they could no longer get the cassettes for the Mobile.
Then in September my pharmacy told me the same thing. I bought some myself elsewhere, but finished the last cassette a few days ago.
Looks like I'll be asking some more pressing questions in the pharmacy in coming days!
Then in September my pharmacy told me the same thing. I bought some myself elsewhere, but finished the last cassette a few days ago.
Looks like I'll be asking some more pressing questions in the pharmacy in coming days!
Corso Marche said:
That's interesting. My sister uses a pharmacy over 1 hour away from me and they told her last summer they could no longer get the cassettes for the Mobile.
Then in September my pharmacy told me the same thing. I bought some myself elsewhere, but finished the last cassette a few days ago.
Looks like I'll be asking some more pressing questions in the pharmacy in coming days!
Yes, I pick up a script most months. Then in September my pharmacy told me the same thing. I bought some myself elsewhere, but finished the last cassette a few days ago.
Looks like I'll be asking some more pressing questions in the pharmacy in coming days!
Just a quick follow up:
Mobile cassettes: £9.99 per 50 tests (Still available in UK and Ireland but supplies can be sporadic)
Lancets generally £2-3 per 100
Needles generally £2-3 per 100
Sharpsbox £1 per 1litre size
Humalog cartridges per 5 pack £28.31, kwikpen pack of 5 £29.46
Lantus cartridges and solostar pen per 5 pack £37.77
Levemir flexpen for 5 pens £42.00
There is the potential with the libre device that you use less insulin as the glucose control is better.
Mobile cassettes: £9.99 per 50 tests (Still available in UK and Ireland but supplies can be sporadic)
Lancets generally £2-3 per 100
Needles generally £2-3 per 100
Sharpsbox £1 per 1litre size
Humalog cartridges per 5 pack £28.31, kwikpen pack of 5 £29.46
Lantus cartridges and solostar pen per 5 pack £37.77
Levemir flexpen for 5 pens £42.00
There is the potential with the libre device that you use less insulin as the glucose control is better.
pharmvrs said:
Just a quick follow up:
Mobile cassettes: £9.99 per 50 tests (Still available in UK and Ireland but supplies can be sporadic)
Lancets generally £2-3 per 100
Needles generally £2-3 per 100
Sharpsbox £1 per 1litre size
Humalog cartridges per 5 pack £28.31, kwikpen pack of 5 £29.46
Lantus cartridges and solostar pen per 5 pack £37.77
Levemir flexpen for 5 pens £42.00
There is the potential with the libre device that you use less insulin as the glucose control is better.
ThxMobile cassettes: £9.99 per 50 tests (Still available in UK and Ireland but supplies can be sporadic)
Lancets generally £2-3 per 100
Needles generally £2-3 per 100
Sharpsbox £1 per 1litre size
Humalog cartridges per 5 pack £28.31, kwikpen pack of 5 £29.46
Lantus cartridges and solostar pen per 5 pack £37.77
Levemir flexpen for 5 pens £42.00
There is the potential with the libre device that you use less insulin as the glucose control is better.
Cheaper than I thought, how much does the NHS pay for libre sensors?
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