T1 diabetics thread

Author
Discussion

PositronicRay

Original Poster:

27,001 posts

183 months

Friday 24th January 2020
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mike9009 said:
Looks like accu chem discontinued it in December.

https://www.accu-chek.co.uk/help/blood-glucose-met...
Ahh that explains it, it was a pretty clunky old thing. I'm using a mobile too, so stick with it for a while.

NoNeed

15,137 posts

200 months

Monday 16th March 2020
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PositronicRay said:
Good news is my cgm training is Friday. The bad news Mrs PR doesn't want me to attend the clinic due to C19.

Boris on his hind feet saying people with serious conditions not to have any social contact, for 12 weeks. I'm T1 and 61 y/o.
I'm T1 and 48 and I don't know if I should stay at home or not, I did attend an appointment last week though

jimmsy

422 posts

127 months

Monday 16th March 2020
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I’m a T1 and have been since 2001, I use the Dexcom G6 (self funded) and a Meditronic pump.

Pump was a big improvement for me, the adjustability off background insulin solved a lot of problems. Stability of my levels now is amazing. Dexcom I couldn’t live without now, once you’re on it you rely upon it. I started with the libre but swapped to the Dexcom as my wife loved the idea of middle of the night alarms and being able to see my level herself “live”.

Feirny

2,514 posts

147 months

Monday 16th March 2020
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I’ve just logged on to post in this about people’s thoughts on their diabetes and C19.

My upcoming appointments have been cancelled and I’ve been advised to isolate as much as possible. My issue is that my parter is off on maternity with our 3 month old daughter and I don’t paid sick pay.

Stay safe anyway people.

mike9009

6,991 posts

243 months

Monday 16th March 2020
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I am a reasonably healthy T1 of 46 years of age. I was diagnosed aged 7 years old.

I have never had the flu, tonsillitis, etc. - my immune system is pretty robust.

However, I have the option to work from home for the medium term, so I think from next week I will. My concern, is if I do catch this my normal control will go out the window. I believe viruses can do weird things to blood sugar levels, according to my T1 work colleagues.

The only caveat is, if I catch it now, I can build my immune system a little, ready for the next mutation/ strain.

Anyone staying at work?


Mike

PositronicRay

Original Poster:

27,001 posts

183 months

Tuesday 17th March 2020
quotequote all
mike9009 said:
I am a reasonably healthy T1 of 46 years of age. I was diagnosed aged 7 years old.

I have never had the flu, tonsillitis, etc. - my immune system is pretty robust.

However, I have the option to work from home for the medium term, so I think from next week I will. My concern, is if I do catch this my normal control will go out the window. I believe viruses can do weird things to blood sugar levels, according to my T1 work colleagues.

The only caveat is, if I catch it now, I can build my immune system a little, ready for the next mutation/ strain.

Anyone staying at work?


Mike
As a T1 your immune system is compromised. If I'm getting a cold often BS levels increase before any other symptoms present.

Sometimes it seems, no matter how much insulin you use levels just don't come down, even if not eating. Careful though, they can just crash.

I have issued a ketone testing kit too, the problem is it has a very short shelf life. So not really possible to keep one in the house.

jimmsy

422 posts

127 months

Tuesday 17th March 2020
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For bringing down sugar levels when you have a cold/virus raising them is to increase the background by 50%, rather than more fast acting. If you’re on a 12 hour or less background this is easier, if you’re on a once a day like Lantus then it can be more difficult. Works well for me though. You can also do a brisk walk to increase your body’s insulin sensitivity, around 30 minutes does the trick, as long as you feel well enough!

PositronicRay

Original Poster:

27,001 posts

183 months

Tuesday 17th March 2020
quotequote all
jimmsy said:
For bringing down sugar levels when you have a cold/virus raising them is to increase the background by 50%, rather than more fast acting. If you’re on a 12 hour or less background this is easier, if you’re on a once a day like Lantus then it can be more difficult. Works well for me though. You can also do a brisk walk to increase your body’s insulin sensitivity, around 30 minutes does the trick, as long as you feel well enough!
Good tip.

I'm always worried about overdoing it though.

dirty doug

483 posts

195 months

Tuesday 17th March 2020
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T1 49yo

watching & reading at the mo.

currently still working at work but contingencies currently being ironed out for WFH

to gym or not to gym though now that is the question...?

PositronicRay

Original Poster:

27,001 posts

183 months

Tuesday 17th March 2020
quotequote all
dirty doug said:
T1 49yo

watching & reading at the mo.

currently still working at work but contingencies currently being ironed out for WFH

to gym or not to gym though now that is the question...?
I probably wouldn't go to the gym, but maybe some running or walking.

dirty doug

483 posts

195 months

Tuesday 17th March 2020
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PositronicRay said:
I probably wouldn't go to the gym, but maybe some running or walking.
That was my current thinking.

May try to see quite how often I can clean the car...
Pistonheads - detailing matters wink

PositronicRay

Original Poster:

27,001 posts

183 months

Wednesday 18th March 2020
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Now this is the daft thing. Libre freestyle CGM authorised 2 months ago, but need to wait for training (due Fri this week)

Lady calls, due to C19 training cancelled, not to worry I'll email you the presentation. Any probs just call.


If so simple they could have done this months ago. Will C19 mean we work smarter?

Corso Marche

1,718 posts

201 months

Wednesday 18th March 2020
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PositronicRay said:
If so simple they could have done this months ago. Will C19 mean we work smarter?
You'd hope it'd deliver at least some benefit anyhow. We can function and work much smarter as a society if people would just stop and think every so often rather than persist in the habits and work processes of a lifetime.

Brainpox

4,055 posts

151 months

Thursday 19th March 2020
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jimmsy said:
For bringing down sugar levels when you have a cold/virus raising them is to increase the background by 50%, rather than more fast acting. If you’re on a 12 hour or less background this is easier, if you’re on a once a day like Lantus then it can be more difficult. Works well for me though. You can also do a brisk walk to increase your body’s insulin sensitivity, around 30 minutes does the trick, as long as you feel well enough!
When I did the DAFNE course in 2012 they said that for severe illness you may need to inject a full day's worth of insulin every two hours to keep your levels in check.

Brainpox

4,055 posts

151 months

Thursday 19th March 2020
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mike9009 said:
Anyone staying at work?


Mike
Yep, frontline NHS, not enough PPE to go round - pretty much inevitable that I will get it at some point.

PositronicRay

Original Poster:

27,001 posts

183 months

Sunday 22nd March 2020
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My freestyle is up and running, what a great bit of kit.

The screen is a bit small on the reader is awkward, and the diary seems limited. TCurrently using a food diary on my android tablet and transferring data manually. (I don't have a smart phone.

What do you folks do?

Feirny

2,514 posts

147 months

Sunday 22nd March 2020
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So we’re on the list of people to self isolate for 12 weeks then. I’ll 100% be doing it as my immune system isn’t great as it is.

i4got

5,649 posts

78 months

Sunday 22nd March 2020
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Feirny said:
So we’re on the list of people to self isolate for 12 weeks then. I’ll 100% be doing it as my immune system isn’t great as it is.
Have you see a definitive list of those impacted? Is it available online? TIA


Gray S

17 posts

91 months

Sunday 22nd March 2020
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I'm T1 and 65, had diabetes for 40 years. Good control is essential. My younger brother got diabetes a few years before me, but control was not good and he only made it to 55. I tried to get freestyle libre on NHS, I was doing just over 7 finger pricks per day, but was told I had to prove over 8 per day for a minimum of 3 months before they would consider me. My control has been very good for many years often 46-49 HBA1C, but finger pricking gets painful, so I have been buying the freestyle libre for about a year. I had a few sensor failures early on and recently have had three in a row give inaccurate readings. If you get a message that the sensor cannot be read and try again in 10 minutes make sure you compare readings with a finger prick regularly afterwards and check for error readings. Abbot are meant to be sending some replacements but not arrived yet, current sensor is only about 2 out and seems to have settled down, but i'm keeping on checking. Please also be aware that the sensors lag behind actual blood sugar quite significantly at times, but even so are very useful to improve control as you can see what has been happening.
Despite my best efforts of to keep healthy I have been fighting a rare cancer for nearly a year and outcome is looking bleak. So try to stay healthy, but have some fun as well, if you can.

Feirny

2,514 posts

147 months

Sunday 22nd March 2020
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i4got said:
Feirny said:
So we’re on the list of people to self isolate for 12 weeks then. I’ll 100% be doing it as my immune system isn’t great as it is.
Have you see a definitive list of those impacted? Is it available online? TIA
I don't know if it's online yet, I've been informed by my mother who works for the NHS in a senior capacity.