Discussion
TroubledSoul said:
That's the sort of real world experience I need. I just moved to 36mg this morning so yeah, your dose would be quite high for me at this point. I'm on the prolonged release version.
What is a high dose level?My daughter is on Methylphenidate, titrated over 6 weeks to 40mg and has been on that level for 3 months, the only difference being to tweak the timing of her taking the meds to 9am rather than 7.30am so it lasts her school day.
TheHeadhunter said:
TroubledSoul said:
That's the sort of real world experience I need. I just moved to 36mg this morning so yeah, your dose would be quite high for me at this point. I'm on the prolonged release version.
What is a high dose level?My daughter is on Methylphenidate, titrated over 6 weeks to 40mg and has been on that level for 3 months, the only difference being to tweak the timing of her taking the meds to 9am rather than 7.30am so it lasts her school day.
TheHeadhunter said:
What is a high dose level?
My daughter is on Methylphenidate, titrated over 6 weeks to 40mg and has been on that level for 3 months, the only difference being to tweak the timing of her taking the meds to 9am rather than 7.30am so it lasts her school day.
I'm not sure as I have very limited experience of it thus far, but I was started on 18mg and now on 36mg. In a week I'll be moved up to 54mg and then I have my first review...My daughter is on Methylphenidate, titrated over 6 weeks to 40mg and has been on that level for 3 months, the only difference being to tweak the timing of her taking the meds to 9am rather than 7.30am so it lasts her school day.
Woodrow Wilson said:
TheHeadhunter said:
TroubledSoul said:
That's the sort of real world experience I need. I just moved to 36mg this morning so yeah, your dose would be quite high for me at this point. I'm on the prolonged release version.
What is a high dose level?My daughter is on Methylphenidate, titrated over 6 weeks to 40mg and has been on that level for 3 months, the only difference being to tweak the timing of her taking the meds to 9am rather than 7.30am so it lasts her school day.
Moving the timing to 9am was a game changer as well.
TheHeadhunter said:
shirt said:
Ritalin or Concerta? The former comes in both immediate and extended release flavours, the latter is extended release only.
Elvanse is better imho than Concerta but you can t beat Ritalin for if you need to be on it for a short but immediate time frame.
Neither. Metyrol?Elvanse is better imho than Concerta but you can t beat Ritalin for if you need to be on it for a short but immediate time frame.
TheHeadhunter said:
Woodrow Wilson said:
TheHeadhunter said:
TroubledSoul said:
That's the sort of real world experience I need. I just moved to 36mg this morning so yeah, your dose would be quite high for me at this point. I'm on the prolonged release version.
What is a high dose level?My daughter is on Methylphenidate, titrated over 6 weeks to 40mg and has been on that level for 3 months, the only difference being to tweak the timing of her taking the meds to 9am rather than 7.30am so it lasts her school day.
Moving the timing to 9am was a game changer as well.
I'm four weeks in to titration, 18, 36 then 72mg modified release Methylphenidate. Taken at around 8am.
Certainly got mild headaches, increased anxiety, and feel like I've had a couple of strong coffees if im a bit late for lunch.
But while I do feel a bit more alert and edgy, I'm still very easily distracted and struggle to focus on things at work tha I need to do but dont really want to.
dhutch said:
Obviously secondhand information, but can you (or anyone else on simialar meds) describe the effect?
I'm four weeks in to titration, 18, 36 then 72mg modified release Methylphenidate. Taken at around 8am.
Certainly got mild headaches, increased anxiety, and feel like I've had a couple of strong coffees if im a bit late for lunch.
But while I do feel a bit more alert and edgy, I'm still very easily distracted and struggle to focus on things at work tha I need to do but dont really want to.
I'd echo the alert but still putting off certain work tasks. I've just moved onto the 36mg. Getting more stuff done that I actually want to do though. I find I feel alert but haven't really noticed any negative side effects thus far.I'm four weeks in to titration, 18, 36 then 72mg modified release Methylphenidate. Taken at around 8am.
Certainly got mild headaches, increased anxiety, and feel like I've had a couple of strong coffees if im a bit late for lunch.
But while I do feel a bit more alert and edgy, I'm still very easily distracted and struggle to focus on things at work tha I need to do but dont really want to.
Hasn't really been the transformation I imagined but I'm definitely more functional and productive.
dhutch said:
Obviously secondhand information, but can you (or anyone else on simialar meds) describe the effect?
I'm four weeks in to titration, 18, 36 then 72mg modified release Methylphenidate. Taken at around 8am.
Certainly got mild headaches, increased anxiety, and feel like I've had a couple of strong coffees if im a bit late for lunch.
But while I do feel a bit more alert and edgy, I'm still very easily distracted and struggle to focus on things at work tha I need to do but dont really want to.
I'm not sure that I can describe it satisfactorily.I'm four weeks in to titration, 18, 36 then 72mg modified release Methylphenidate. Taken at around 8am.
Certainly got mild headaches, increased anxiety, and feel like I've had a couple of strong coffees if im a bit late for lunch.
But while I do feel a bit more alert and edgy, I'm still very easily distracted and struggle to focus on things at work tha I need to do but dont really want to.
I had stopped taking it over a year ago as I wasn't noticing a difference when I took it or didn't take it.
I re-started taking the medication this week. .
It may not have been the best approach, but I did a couple of days of 1 tablet (36mg) , then two (72mg).
I did feel a bit light headed at times last week, and had a late afternoon "crash", but I was also quite tired and I knew I had taken the medication. I felt a bit off-colour yesterday, this could have been unconnected.
I did feel that I was a bit more productive last week, but was this due to feeling a bit of pressure and the placebo
effect or was this due to less distraction? Very hard to tell.
From what I understand, the stimulants are supposed to provide some of the stimulation that novelty and inquisitiveness seeks.
I've been off them again all weekend because they bungled my second prescription and ive run out.
But yeah, makes me feel better knowing its been quite mixed for others too.
Some describe it as completely transformation, and while I know it often isn't, its interesting to see some firsthand accounts.
But yeah, makes me feel better knowing its been quite mixed for others too.
Some describe it as completely transformation, and while I know it often isn't, its interesting to see some firsthand accounts.
dhutch said:
TheHeadhunter said:
Woodrow Wilson said:
TheHeadhunter said:
TroubledSoul said:
That's the sort of real world experience I need. I just moved to 36mg this morning so yeah, your dose would be quite high for me at this point. I'm on the prolonged release version.
What is a high dose level?My daughter is on Methylphenidate, titrated over 6 weeks to 40mg and has been on that level for 3 months, the only difference being to tweak the timing of her taking the meds to 9am rather than 7.30am so it lasts her school day.
Moving the timing to 9am was a game changer as well.
I'm four weeks in to titration, 18, 36 then 72mg modified release Methylphenidate. Taken at around 8am.
Certainly got mild headaches, increased anxiety, and feel like I've had a couple of strong coffees if im a bit late for lunch.
But while I do feel a bit more alert and edgy, I'm still very easily distracted and struggle to focus on things at work tha I need to do but dont really want to.
She titrated from 10 to 20 to 30 to 40, very roughly going up 10mg a week.
We noticed a difference before she did, after she moved to 20mg. We thought she seemed more chilled and less reluctant to 'get moving'. (Her ADHD is purely 'inattentive')
It was summer so she wasn't at school, so there was a notable lifestyle difference, but the change was evident, even if moderately slight.
She noticed a difference once she got to 40mg. She described it as feeling more grounded.
On that basis, we left it until she was back at school (her consultant's advice) and as soon as she was, she felt a notable difference. Concentration, organisation and emotional regulation.
The two biggest aspect were at the check-in with the consultant at the end of her first month back at school, she advised she could feel it wearing off early afternoon - after lunch which ends at 2pm. Not a crash, but just wearing off.
We were given the choice of changing meds, adding a 10mg top-up, or the consultant's recommendation of moving her medication time from 7.30am to 9am (so the school had to administer, annoyingly). We went with that and it's worked perfectly. She is fine until the 4pm school end, and is also fine once she gets home and on with study.
The second were the two times when she didn't take the medication. The first was when there wasn't a second member of staff to supervise the taking, and she then forgot to go back (because she hadn't taken her meds!), she forgot she hadn't taken her meds, but noticed within 90mins and even her teachers noticed. My daughter said she just felt lacking in control "as if she hadn't taken her meds"....then realised she hadn't taken them. The teacher (Psychology A-Level) said she could tell immediately, she just seemed not there, but also hyper-involved in any discussion (there are only 4 in her Psych class to easy to spot).
The other time she hadn't taken it was when she was going to a party and would be drinking - it was a Saturday so no need to be particularly 'on it', but she just said she felt like she wasn't grounded all day and had to really concentrate.
She's not had any physical side-effects, no headaches, nausea, jitters.
dhutch said:
Very interesting, thanks for sharing.
Is that straight methylphenidate, or modified release?
Apologies for the slight delay, had to review my browser of the site following the ongoing investigation into my Internet usage at work .
Modified release. 40mg.Is that straight methylphenidate, or modified release?
Apologies for the slight delay, had to review my browser of the site following the ongoing investigation into my Internet usage at work .
We looked at straight with the consultant, and then adding a top up, but by tweaking the timings, the modified release is working great. She is a different person and really happy.
Thought I would wake this thread up with an update on my son and his experience with ADHD360 as it may help others.
I was contacted by ADHD360 after expressing my concern at their poor aftercare which he had paid for expecting a years support as outlined on their website at the time.
His situation was that in 12 months he had only 2 contacts with ADHD360 for their so called aftercare and support. For which he paid an additional £600 for. Outwith the contacts for his prescription and medication.
ADHD 360 when they spoke to me, were full of apologies and said they were looking into it and that somebody would contact my son and discuss the situation and how they can help.
That was almost 2 months ago and he hasn’t received a call from them. He has since stopped his medication due to what he described as a lack of support for an adult with ADHD and a waste of money. He now gets support through privately.
I have launched a formal complaint with ADHD 360 as their website is misleading and it describes some of the supportive as self-directed which can be a struggle for somebody who is Neurodiverse to do.
On a positive note, the assessment and triage for medication was done quickly. However, I would strongly advise anybody to look very carefully into what support is available for the person with ADHD through this organisation and possibly others. The patient is paying for support that was misleading as it was not available in the way that was originally described to my son.
I was contacted by ADHD360 after expressing my concern at their poor aftercare which he had paid for expecting a years support as outlined on their website at the time.
His situation was that in 12 months he had only 2 contacts with ADHD360 for their so called aftercare and support. For which he paid an additional £600 for. Outwith the contacts for his prescription and medication.
ADHD 360 when they spoke to me, were full of apologies and said they were looking into it and that somebody would contact my son and discuss the situation and how they can help.
That was almost 2 months ago and he hasn’t received a call from them. He has since stopped his medication due to what he described as a lack of support for an adult with ADHD and a waste of money. He now gets support through privately.
I have launched a formal complaint with ADHD 360 as their website is misleading and it describes some of the supportive as self-directed which can be a struggle for somebody who is Neurodiverse to do.
On a positive note, the assessment and triage for medication was done quickly. However, I would strongly advise anybody to look very carefully into what support is available for the person with ADHD through this organisation and possibly others. The patient is paying for support that was misleading as it was not available in the way that was originally described to my son.
Yesterday I found my secondary school reports from 1991 - 1996 and I honestly don't know how to process what I've read. This is the first time I've really read them.
Here are some of the comments:
"Must concentrate at all times" (appears repeatedly)
"Lacks concentration" / "easily distracted"
"Capable boy who lacks confidence in his own abilities"
"Capable but content to do as little as possible"
"Has a poor attitude to his work and this is holding him back"
"Sometimes lazy and says he cannot do the question before he even tries it"
"Gives up too easily"
"Forgets work" / "needs to organise his practical work more efficiently"
"Hands in scruffy work" / "satisfactory if a little untidy"
But then there's a comment from my year 10 maths teacher: "Excellent examination result. It reflects the efforts he has made with his work".
The pattern is so clear now. Five years of multiple teachers independently documenting the same struggles. Executive dysfunction, inconsistent performance, organisational issues, the classic "capable but..." and every single one of them interpreted it as laziness or bad attitude.
Years of being told I wasn't trying hard enough.
I know awareness of ADHD, especially inattentive type, was much lower in the 90s. I understand they might not have known to look for it. But I still feel incredibly angry and let down. The pattern was there in black and white, year after year, a bright kid struggling consistently in specific ways.
Despite all of it, I've worked all my life, I've been self-employed for 20 years as a software developer/engineer, got a degree in education and a masters in Computing. A lovely family and home etc. Part of me is proud of what I've achieved. Part of me is absolutely furious, grieving for a kid who just needed someone to see what was actually happening. Another part of me feels relief because these reports are objective proof when I doubt my diagnosis (which happens).
I was diagnosed in my 40's BTW.
Here are some of the comments:
"Must concentrate at all times" (appears repeatedly)
"Lacks concentration" / "easily distracted"
"Capable boy who lacks confidence in his own abilities"
"Capable but content to do as little as possible"
"Has a poor attitude to his work and this is holding him back"
"Sometimes lazy and says he cannot do the question before he even tries it"
"Gives up too easily"
"Forgets work" / "needs to organise his practical work more efficiently"
"Hands in scruffy work" / "satisfactory if a little untidy"
But then there's a comment from my year 10 maths teacher: "Excellent examination result. It reflects the efforts he has made with his work".
The pattern is so clear now. Five years of multiple teachers independently documenting the same struggles. Executive dysfunction, inconsistent performance, organisational issues, the classic "capable but..." and every single one of them interpreted it as laziness or bad attitude.
Years of being told I wasn't trying hard enough.
I know awareness of ADHD, especially inattentive type, was much lower in the 90s. I understand they might not have known to look for it. But I still feel incredibly angry and let down. The pattern was there in black and white, year after year, a bright kid struggling consistently in specific ways.
Despite all of it, I've worked all my life, I've been self-employed for 20 years as a software developer/engineer, got a degree in education and a masters in Computing. A lovely family and home etc. Part of me is proud of what I've achieved. Part of me is absolutely furious, grieving for a kid who just needed someone to see what was actually happening. Another part of me feels relief because these reports are objective proof when I doubt my diagnosis (which happens).
I was diagnosed in my 40's BTW.
TheBinarySheep said:
But then there's a comment from my year 10 maths teacher: "Excellent examination result. It reflects the efforts he has made with his work".
What changed here? Was it the ability/care of the Maths teacher to see the previous pattern or was it purely a solo effort on your part, "knowing" you had the ability.I never score highly on ADHD tests but suspect it, but always score highly on Autism tests. Until recently I've always felt I've underachieved. I did well in school but that was purely sheer will power on my part, I never liked school at all and but somehow got through it. I now feel the same about employment so really would love to make the jump to self-employment/business owner.
EastMidsEng said:
What changed here? Was it the ability/care of the Maths teacher to see the previous pattern or was it purely a solo effort on your part, "knowing" you had the ability.
I never score highly on ADHD tests but suspect it, but always score highly on Autism tests. Until recently I've always felt I've underachieved. I did well in school but that was purely sheer will power on my part, I never liked school at all and but somehow got through it. I now feel the same about employment so really would love to make the jump to self-employment/business owner.
Hard to put a finger on it, but I remember in year 8 I decided to put some effort it. I got moved from the middle sets to top sets in everything for the start of year 9. I couldn't sustain the effort though. I'm going to guess that after my first years performance I got the mother of all bI never score highly on ADHD tests but suspect it, but always score highly on Autism tests. Until recently I've always felt I've underachieved. I did well in school but that was purely sheer will power on my part, I never liked school at all and but somehow got through it. I now feel the same about employment so really would love to make the jump to self-employment/business owner.
king at home (provided some urgency).There's one comment from my business studies teacher "Exam result reflects the amount of work needed. Has a very casual approach to his work and must endeavour to commit himself to raise standards. His behaviour at times is immature.". Makes me laugh because while I'm very much still immature, I probably know more about business at this point in my life than she did.
Honestly, I'm not entirely sure how I got to where I am today. I think it's a mix of always being willing to work hard and stubbornly following what's interested me since I was 11. In my early career I bounced between factory jobs, but I kept pursuing my passion for IT and programming on the side. Eventually I caught a break around age 23 with a local company where I handled their IT, built their websites, and created internal tools. When that business folded (marriage breakdown between the owners), I took a chance on freelancing in 2006 and haven't looked back.
Freelancing has been brilliant for how my brain works. I can follow my interests, jump on new technologies when they catch my attention, and client deadlines provide the structure I need to actually deliver. All that jumping around has made me a generalist rather than a specialist, but that's exactly what my clients value, that plus my approach to problem-solving and my willingness to push back when something doesn't make sense. I use the term 'push back' lightly, normally it involves some choice swear words.
Edited by TheBinarySheep on Tuesday 20th January 12:06
I've just started my ADHD journey. Been having marriage problems since December (it's been years really) but I properly brought it to a head in Jan and we started marriage counselling. During these sessions the counsellor gave me an ADHD questionnaire to fill out and both my wife and I helped fill it out and honestly it was shocking how prevalent it was to my life.
I have always thought something was amiss with how my mind worked, I even considered Bi-polar as an old colleague had it and when he had a big episode last year (ended up sectioned again) there were some similarities but massively exaggerated in my case.
So with the above in mind I have paid for an assessment with Psychiatry UK yesterday and completed all the forms and just await a date for assessment which hopefully will be 2-3 weeks.
I'm listen to the "ADHD Adults Podcast" and there just seems to be more and more light bulb moments going off for me.
I have always thought something was amiss with how my mind worked, I even considered Bi-polar as an old colleague had it and when he had a big episode last year (ended up sectioned again) there were some similarities but massively exaggerated in my case.
So with the above in mind I have paid for an assessment with Psychiatry UK yesterday and completed all the forms and just await a date for assessment which hopefully will be 2-3 weeks.
I'm listen to the "ADHD Adults Podcast" and there just seems to be more and more light bulb moments going off for me.
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