Patulous eustachian tube disorder part 3.
Discussion
I haven't posted here for a while as my PET has been pretty much non existent. That has changed in the last week. I used to get bad symptoms in my left ear (eustachian tube wide open) so I had bioplastique injected into it. My right ear wasn't that bad so didn't have any injected into that one. Last Thursday the eustachian tube in my right ear went wide open. It didn't happen again until today. I already have an appointment, hopefully with the specialist for July, I just hope that either this doesn't happen again or it happens on the day I see the specialist so that we can decide a plan of action. I really do not fancy another operation but I also do not fancy having to go through this in its current guise. Just needed to get that off my chest.
My biggest concerns are that it goes wrong and leaves me in a position I was in after my last injection which made me really sensitive to low frequency sounds, or that means I have an issue with my right ear feeling blocked and meaning I still have autophony.
It's quite upsetting tbh.
My biggest concerns are that it goes wrong and leaves me in a position I was in after my last injection which made me really sensitive to low frequency sounds, or that means I have an issue with my right ear feeling blocked and meaning I still have autophony.
It's quite upsetting tbh.
Just had an interesting hour. The hearing in my left ear went robotic. My own voice also sounded robotic to me. Louder ringing in my left ear and also dulled hearing. Seems to be subsiding now but I have not experienced this for nearly 14 months so was a bit unexpected tbh. Anyone else had robotic hearing?
Back to the eustachian tube being wide open. The most annoying part was that it happe6 earlier, I managed to close it by eating, and then 6 and a half hours later it reopened after eating. I did have an appointment to see the ENT specialist on the 26th of July but for some reason that has now been changed to the 17th of September. Not sure why and the hospital just told me to call my gp, which I tried but they didn't bother to answer the phone on the several times I tried to call throughout the day.
So that was a complete waste of time. My incompetent GP wrote to the wrong ENT, so when I got there I saw someone who has no experience with my condition.
He is going to write to the ENT that I usually see and ask him to make an appointment with me. Miserable doesn't even come close.
He is going to write to the ENT that I usually see and ask him to make an appointment with me. Miserable doesn't even come close.
abzmike said:
No one else seems to be responding, so good luck, hope it goes well!
Cheers. Ah I don't mind, it's such an uncommon disorder that that most people will not have heard of it let alone know anyone who suffers from it. Proceedure is simple, just putting a big needle up through the roof of my mouth and injecting bioplastique into the eustachian tube to fatten it up. The body absorbs it over time so I'll need further top ups. The worst bit is that I could end up being hyper sensitive to noise again, but I think it is a a slim chance of that happening. I hope lol. Gassing Station | Health Matters | Top of Page | What's New | My Stuff