Another quality of life case

[miniman]

http://news.bbc.co.uk/1/hi/health/477

I'm sure many of you have seen this already. Very sad indeed. I'm not a parent so I can't really comprehend what must be going through these people's thoughts at the moment, but I honest to God cannot see how anyone could possibly think that this poor child has any kind of "reasonable quality of life". The baby is almost totally paralysed and can only breath via a machine. Another article said that some children with this disease live as long as 8 or 9 years. Surely that's nothing more than a life sentence.

Like I said, I'd hate to be the parent in this case. But is there really any quality of life here?

[Jaglover]

miniman said:

http://news.bbc.co.uk/1/hi/health/477 I'm sure many of you have seen this already. Very sad indeed. I'm not a parent so I can't really comprehend what must be going through these people's thoughts at the moment, but I honest to God cannot see how anyone could possibly think that this poor child has any kind of "reasonable quality of life". The baby is almost totally paralysed and can only breath via a machine. Another article said that some children with this disease live as long as 8 or 9 years. Surely that's nothing more than a life sentence. Like I said, I'd hate to be the parent in this case. But is there really any quality of life here?

I would agree with you.

With advances in medical technology we can keep such babies alive, but should we?

[wedge girl]

It's a difficult one to call, every fibre of my body, says tlet the baby go, but.... my Daughter has a half sister who when she was born waa diagnosed with Sterge Faber (sp?) The prognosis was not good, she died several times in the early years, and her parents were told she would never walk or talk.

She is now 5, she walks talks and attends 'normal' school she is also a very happy little girl.