So my wife has been disagnosed with Psoriatic Arthritis
Discussion
We are a relatively young husband and wife with 6 month young baby girl. I've been out for few drinks with some friends and I really can't comprehend how much my life is going to change. We sort of new this was on the cards as my wife as been very stiff and sore these past few months and has trouble moving etc (we did some research).
I'm a relatively new guy here. Needless to say I am scared, we are both 32 years old and I can appreciate our lives are about to change, never mind the most beautiful girl we have.
I just wanted to get this off my chest and tell someone. It's late I know but I was told not to come home until now as I'm such a cry baby at the best of times and my wife needed a while on her own. Baby is with the inlaws in case anyone thinks we have abandoned her!
I'm sure we'll survive, there are worse off about all of us but we just never imagined it would happen to "us".
Good night all.
PS if there are any doctors than can help us please get in touch.
Ciaran
I love my wife.
I'm a relatively new guy here. Needless to say I am scared, we are both 32 years old and I can appreciate our lives are about to change, never mind the most beautiful girl we have.
I just wanted to get this off my chest and tell someone. It's late I know but I was told not to come home until now as I'm such a cry baby at the best of times and my wife needed a while on her own. Baby is with the inlaws in case anyone thinks we have abandoned her!
I'm sure we'll survive, there are worse off about all of us but we just never imagined it would happen to "us".
Good night all.
PS if there are any doctors than can help us please get in touch.
Ciaran
I love my wife.
From reading the, admittedly probably very dodgy, article on Wikipedia, it sounds like normal arthritis but generally found in people with the skin condition psoriasis (I hope there isn't one for eczema sufferers!)
My Mum was diagnosed with arthritis of the jaw a few months ago. She had been in total agony for over a week as she thought it was toothache, agony that was further compounded by 2 migraines in 3 days as a result of only getting 3 hours of sleep a night for nearly 10 days.
She was given painkillers and anti-inflammatories. She took 2 of the painkillers but once those had worn off the anti-inflams had kicked in and she felt much better.
She does get small flare ups, but otherwise she is back to normal and perfectly healthy. It doesn't stop her doing anything or going anywhere and it certainly doesn't affect her looking after my sisters.
My Mum was diagnosed with arthritis of the jaw a few months ago. She had been in total agony for over a week as she thought it was toothache, agony that was further compounded by 2 migraines in 3 days as a result of only getting 3 hours of sleep a night for nearly 10 days.
She was given painkillers and anti-inflammatories. She took 2 of the painkillers but once those had worn off the anti-inflams had kicked in and she felt much better.
She does get small flare ups, but otherwise she is back to normal and perfectly healthy. It doesn't stop her doing anything or going anywhere and it certainly doesn't affect her looking after my sisters.
Bizarre. Exactly the same happened to my cousin and his wife about 2 months ago.
Kid around 9 months ago, she was diagnosed Rhumatoid Arthritis (sp) just recently. It's really not ideal, but apparently the new drugs etc. they have are meant to be much better than in ye old days!
Feel for you chap, try to give her as much rest as possible and see what the consultants say - until then it's too complicated to call.
Stu
Kid around 9 months ago, she was diagnosed Rhumatoid Arthritis (sp) just recently. It's really not ideal, but apparently the new drugs etc. they have are meant to be much better than in ye old days!
Feel for you chap, try to give her as much rest as possible and see what the consultants say - until then it's too complicated to call.
Stu
Edited by stuthemong on Friday 28th November 23:04
It's absolute madness, pills for the swelling, pills for the pain, pills for the sleeping etc - she is more afraid of getting addicted to the bloody things.
She has psoriasis and has done for years although the last while it's got worse and this has brought on the arthritis. Apparently there is not much we can do. As Chris Kamara says unbelievable jeff"
She has psoriasis and has done for years although the last while it's got worse and this has brought on the arthritis. Apparently there is not much we can do. As Chris Kamara says unbelievable jeff"
Might not be the end of the world as you know it, I will probably end up with arthritis at some point in my life as it is common in my family. Best thing to do is follow the advice of medics, try not to get too far down in the dumps as you could find the OH is capable of doing most things as normal for many years to come.
Cold weather makes these things a little worse as does over exertion but the worst never stays around too long.
Cold weather makes these things a little worse as does over exertion but the worst never stays around too long.
I have been struggling with stiff joints in my hands for sometime now and not done much beyond looking up info on the net (typical guy) do not want to face the possibilities, there looks to be quite alot of info out there on the net:
The Psoriasis and Psoriatic Arthritis Alliance
0870 770 3212
www.paalliance.org
Arthritis Care
0808 800 4050
www.arthritiscare.org.uk
Arthritis Research Campaign
0870 850 5000
www.arc.org.uk
I am sure it is very worrying, but get in contact with the above, at the very least they will give some advice in both dealing with the condition and comming to terms with it.
All the best and good luck.
The Psoriasis and Psoriatic Arthritis Alliance
0870 770 3212
www.paalliance.org
Arthritis Care
0808 800 4050
www.arthritiscare.org.uk
Arthritis Research Campaign
0870 850 5000
www.arc.org.uk
I am sure it is very worrying, but get in contact with the above, at the very least they will give some advice in both dealing with the condition and comming to terms with it.
All the best and good luck.
stuthemong said:
Bizarre. Exactly the same happened to my cousin and his wife about 2 months ago.
Kid around 9 months ago, she was diagnosed Rhumatoid Arthritis (sp) just recently. It's really not ideal, but apparently the new drugs etc. they have are meant to be much better than in ye old days!
Feel for you chap, try to give her as much rest as possible and see what the consultants say - until then it's too complicated to call.
Stu
Cheers fella, apparently this is what the doc originally thought it was but he said we are beyond this, what ever that means. I know we'll get through it but my wife is just so upset about not being to lift our daughter in the mornings, play with her without being in pain etc rather than the discomfort she may be in.Kid around 9 months ago, she was diagnosed Rhumatoid Arthritis (sp) just recently. It's really not ideal, but apparently the new drugs etc. they have are meant to be much better than in ye old days!
Feel for you chap, try to give her as much rest as possible and see what the consultants say - until then it's too complicated to call.
Stu
Edited by stuthemong on Friday 28th November 23:04
kendalmint said:
I have been struggling with stiff joints in my hands for sometime now and not done much beyond looking up info on the net (typical guy) do not want to face the possibilities, there looks to be quite alot of info out there on the net:
The Psoriasis and Psoriatic Arthritis Alliance
0870 770 3212
www.paalliance.org
Arthritis Care
0808 800 4050
www.arthritiscare.org.uk
Arthritis Research Campaign
0870 850 5000
www.arc.org.uk
I am sure it is very worrying, but get in contact with the above, at the very least they will give some advice in both dealing with the condition and comming to terms with it.
All the best and good luck.
Thanks! I have actually just emailed some doc in Amsterdam that has written a few articles on the subject. The Psoriasis and Psoriatic Arthritis Alliance
0870 770 3212
www.paalliance.org
Arthritis Care
0808 800 4050
www.arthritiscare.org.uk
Arthritis Research Campaign
0870 850 5000
www.arc.org.uk
I am sure it is very worrying, but get in contact with the above, at the very least they will give some advice in both dealing with the condition and comming to terms with it.
All the best and good luck.
There will be others that suffer the same or very similar conditions, why don't you see if there is a support group out there. It may help. Hopefully the symptoms will settle down soon and it can be controlled. A support group may know of some natural remedies that will help the psoriasis especially. My friend has suffered psoriasis for years and I know diet can help her.
It can't be easy esp with a young un but I'm sure it'll improve. Best wishes
ETA didn't see the helpful links someone has already posted!
It can't be easy esp with a young un but I'm sure it'll improve. Best wishes
ETA didn't see the helpful links someone has already posted!
Edited by becksW on Friday 28th November 23:18
http://www.amazon.co.uk/Mind-Body-Prescription-Joh...
Worth a read, buy it secondhand for a few ££, I use it for my dodgy spine, definitely helps..
Worth a read, buy it secondhand for a few ££, I use it for my dodgy spine, definitely helps..
Ciaran said:
We are a relatively young husband and wife with 6 month young baby girl. I've been out for few drinks with some friends and I really can't comprehend how much my life is going to change. We sort of new this was on the cards as my wife as been very stiff and sore these past few months and has trouble moving etc (we did some research).
I'm a relatively new guy here. Needless to say I am scared, we are both 32 years old and I can appreciate our lives are about to change, never mind the most beautiful girl we have.
I just wanted to get this off my chest and tell someone. It's late I know but I was told not to come home until now as I'm such a cry baby at the best of times and my wife needed a while on her own. Baby is with the inlaws in case anyone thinks we have abandoned her!
I'm sure we'll survive, there are worse off about all of us but we just never imagined it would happen to "us".
Good night all.
PS if there are any doctors than can help us please get in touch.
Ciaran
I love my wife.
Hi, I'm a doc, albeit an eye doc, but I have treated patients with psoriatic arthropathy, as it can present with eye problems too, particularly uveitis or iritis. It is a condition that can be treated with a variety of medications, and people lead normal lives, but sometimes get flare ups, which can be problematic. Some of the resources below are useful, but feel free if you have any detailed questions.I'm a relatively new guy here. Needless to say I am scared, we are both 32 years old and I can appreciate our lives are about to change, never mind the most beautiful girl we have.
I just wanted to get this off my chest and tell someone. It's late I know but I was told not to come home until now as I'm such a cry baby at the best of times and my wife needed a while on her own. Baby is with the inlaws in case anyone thinks we have abandoned her!
I'm sure we'll survive, there are worse off about all of us but we just never imagined it would happen to "us".
Good night all.
PS if there are any doctors than can help us please get in touch.
Ciaran
I love my wife.
Osteo Arthritis is the most common form - old people suffer from this
Rheumatoid Arthritis is less common but its the soft tissues and people of any age can get this , roughly 1 in 200 I'm told
Your wifes type sounds like a very agressive form of Arthritis , I was this year diagnosed with Rheumatoid Arthritis and to be honest its frightening when its bad as you just can't do the things you always took for granted , at the moment the specialists are trying to find the right doseage of Methotextrate to counteract its affects but I cope reasonably well. When its bad its difficult to get out of a car , pull your clothes on etc - in short most of the things you need to do on a daily basis - she will need help .One of the worse things is the looks you get from old people when you can't move out of their way quickly in doorways etc.. NO sod that - thats actually quite liberating come to think of it !
Anyway I hope you can find another method of treatment , one thing I did find out recently is that although the NHS don't immediately tell you are the other forms of treatments that are expensive (to them), if I fit a certain criteria and have tried all the other drugs I can then go onto Biological medicenes , expensive but effective I am told , I don,t know if this applies in your wifes case but its worth talking to other specialists as I found out , Good Luck mate , wish you two well.
Rheumatoid Arthritis is less common but its the soft tissues and people of any age can get this , roughly 1 in 200 I'm told
Your wifes type sounds like a very agressive form of Arthritis , I was this year diagnosed with Rheumatoid Arthritis and to be honest its frightening when its bad as you just can't do the things you always took for granted , at the moment the specialists are trying to find the right doseage of Methotextrate to counteract its affects but I cope reasonably well. When its bad its difficult to get out of a car , pull your clothes on etc - in short most of the things you need to do on a daily basis - she will need help .One of the worse things is the looks you get from old people when you can't move out of their way quickly in doorways etc.. NO sod that - thats actually quite liberating come to think of it !
Anyway I hope you can find another method of treatment , one thing I did find out recently is that although the NHS don't immediately tell you are the other forms of treatments that are expensive (to them), if I fit a certain criteria and have tried all the other drugs I can then go onto Biological medicenes , expensive but effective I am told , I don,t know if this applies in your wifes case but its worth talking to other specialists as I found out , Good Luck mate , wish you two well.
Ciaran said:
It's absolute madness, pills for the swelling, pills for the pain, pills for the sleeping etc - she is more afraid of getting addicted to the bloody things.
She has psoriasis and has done for years although the last while it's got worse and this has brought on the arthritis. Apparently there is not much we can do. As Chris Kamara says unbelievable jeff"
Sorry to hear this. It might be worth looking at trying elimination diets, and omega 3 supplements on top of any conventional medical intervention.She has psoriasis and has done for years although the last while it's got worse and this has brought on the arthritis. Apparently there is not much we can do. As Chris Kamara says unbelievable jeff"
This story seems to have been doing the rounds a lot lately. No idea if it is just media hype, and will sink below the surface never to be heard of again:
http://www.telegraph.co.uk/health/3264423/Monthly-...
http://www.telegraph.co.uk/health/3264423/Monthly-...
I'm sorry to hear of your situation, I've been in your place as well, all be it with my (now ex) wife having Rheumatoid Arthritis.
I don't know if it is the same with Psoriatic Arthritis, but these are some of the things we have/had to deal with:
Rheumatoid Arthritis can be brought on by stress. My ex started suffering with it, after her pregnancy with our first girl was very traumatic, leading to an emergency section, and closely followed by having to have her gall bladder removed, again under traumatic circumstances. Best to try and keep her as stress free as possible, as stress on top of the pain will never be a good combination.
She generally keeps it under control with her medication, however, you can tell when she has forgotten to take it, as it almost immediately causes her problems, but it then takes a couple of weeks before she is feeling back to "normal".
It will get worse over time, but there will be times when she doesn't feel like she has it. These are the times when she is most likely to forget her medication.
There will be times when she will need help, I still help my ex, as on occations she cannot cope with 2 lively children (8 and 4), as she can barely get out of bed without assistance. Be there to help her, as I wasn't and that is what partly lead to us splitting up.
She will get depressed from time to time, particularly during the "flair up" times. She will need support during these times.
Don't let the Arthritis be an excuse not to do things, my ex will still sit in a car for hours on end to go on holiday, will still run around with the children when she is able to, go on theme park rides, most things really, when she is not in pain.
Rheumatoid Arthritis goes into "remission" when pregnant, due to the higher hormone levels in the body. If it is the same with Psoriatic Arthritis, start planning and practacing for a big family!!! :-)
I wish you, your OH, and little one well for the future, I know it might look very bleak now, but as things become clearer, they may not be as bad as you fear.
I don't know if it is the same with Psoriatic Arthritis, but these are some of the things we have/had to deal with:
Rheumatoid Arthritis can be brought on by stress. My ex started suffering with it, after her pregnancy with our first girl was very traumatic, leading to an emergency section, and closely followed by having to have her gall bladder removed, again under traumatic circumstances. Best to try and keep her as stress free as possible, as stress on top of the pain will never be a good combination.
She generally keeps it under control with her medication, however, you can tell when she has forgotten to take it, as it almost immediately causes her problems, but it then takes a couple of weeks before she is feeling back to "normal".
It will get worse over time, but there will be times when she doesn't feel like she has it. These are the times when she is most likely to forget her medication.
There will be times when she will need help, I still help my ex, as on occations she cannot cope with 2 lively children (8 and 4), as she can barely get out of bed without assistance. Be there to help her, as I wasn't and that is what partly lead to us splitting up.
She will get depressed from time to time, particularly during the "flair up" times. She will need support during these times.
Don't let the Arthritis be an excuse not to do things, my ex will still sit in a car for hours on end to go on holiday, will still run around with the children when she is able to, go on theme park rides, most things really, when she is not in pain.
Rheumatoid Arthritis goes into "remission" when pregnant, due to the higher hormone levels in the body. If it is the same with Psoriatic Arthritis, start planning and practacing for a big family!!! :-)
I wish you, your OH, and little one well for the future, I know it might look very bleak now, but as things become clearer, they may not be as bad as you fear.
Thanks everyone for your words of support!
We have been told by the specialist that my wife will have to go into hospital for 5 days to get some injections - I wonder if they are the ones mentioned in the telegraph article?
I'll also see if I can buy that book on amazon.
I'm sure she will be delighted to know that getting pregnant eases the pain - she already wanted loads of kids!
We have been told by the specialist that my wife will have to go into hospital for 5 days to get some injections - I wonder if they are the ones mentioned in the telegraph article?
I'll also see if I can buy that book on amazon.
I'm sure she will be delighted to know that getting pregnant eases the pain - she already wanted loads of kids!
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