Discussion
Loads of new stuff in the media today about Long Covid. Another tool one assumes designed to make the masses follow the rules.
Does it really exist or is it just a case that some peoples recovery time like any other infection is longer than others. It's definitely going to be the new Fibromyalgia though and will cost us all a great deal in the next few years. So sort sighted of the Government, using a tool to control now that will go on long after everyone has been vaccinated.
Maybe I'm just too cynical ?
Does it really exist or is it just a case that some peoples recovery time like any other infection is longer than others. It's definitely going to be the new Fibromyalgia though and will cost us all a great deal in the next few years. So sort sighted of the Government, using a tool to control now that will go on long after everyone has been vaccinated.
Maybe I'm just too cynical ?
I had trouble reaching a full breath for about 6 months after having it. A bit short of breath when exercising now however I think that’s due to a drop in fitness and weight gain brought on by a combo of comfort eating and lack of exercise due to my usual walking/exercise areas becoming covid danger spots e.g forestry sites, national trust sites 
I posted about someone i know who used to winter train in my pool who was severely affected, but of course the usual suspects just laughed about it and said it was bulls
t. I've not posted about his situation for a few months, due in part to the nature of the responses, but mainly because it all took a nasty turn about 6 weeks ago as he attempted to take his own life.
His case is severe, i hope very rare indeed, but is very sad for him and all who know him. He's completely broken now.
He is in his 30's and has in his mind lost everything he used to live for.
He is now getting some proper help emotionally and physically and is no longer living alone. Medically, he is still in a bad way, with lung ad kidney damage which will only get better to some degree.
I only know specifically 13 people who have had it, 9 were pretty poorly at home for a few weeks, but realtively ok, including a portly ex smoker in her 40s and a guy of 50 with Progressive MS.
One guy needed hospital help for 2 days, oxygen and blood monitoring as he had a PE.
My long covid mate is in a bad way. Another guy 60 or late 50s, seemingly fit, big traveller, passed away from it, after being in ICU for several weeks in late May. The inquest into his death is this month.
Final person has it at the moment, 11 year old lad of a friend of ours, he seems right as ninepence in himself, but has mild tonsilitis, and has lost his sense of taste. But he is fine otherwise at day 4.
It suggests to me that this is a "grotty" disease in most people i know, or near nil disease in kids. But for some it seems like a lottery as to how they are affected and the outcomes may well depend on how and when they are treated?
I wont go into details on the long covid lad, nor the guy that died, but from what i understand both had certain treatments that have now been superceded by other methods. Which is positive news for the rest of us, as they learn and try new things, the treatments and outcomes improve for us all.
I still reckon the best course of action is to try to avoid catching it for as long as possible.
t. I've not posted about his situation for a few months, due in part to the nature of the responses, but mainly because it all took a nasty turn about 6 weeks ago as he attempted to take his own life. His case is severe, i hope very rare indeed, but is very sad for him and all who know him. He's completely broken now.
He is in his 30's and has in his mind lost everything he used to live for.
He is now getting some proper help emotionally and physically and is no longer living alone. Medically, he is still in a bad way, with lung ad kidney damage which will only get better to some degree.
I only know specifically 13 people who have had it, 9 were pretty poorly at home for a few weeks, but realtively ok, including a portly ex smoker in her 40s and a guy of 50 with Progressive MS.
One guy needed hospital help for 2 days, oxygen and blood monitoring as he had a PE.
My long covid mate is in a bad way. Another guy 60 or late 50s, seemingly fit, big traveller, passed away from it, after being in ICU for several weeks in late May. The inquest into his death is this month.
Final person has it at the moment, 11 year old lad of a friend of ours, he seems right as ninepence in himself, but has mild tonsilitis, and has lost his sense of taste. But he is fine otherwise at day 4.
It suggests to me that this is a "grotty" disease in most people i know, or near nil disease in kids. But for some it seems like a lottery as to how they are affected and the outcomes may well depend on how and when they are treated?
I wont go into details on the long covid lad, nor the guy that died, but from what i understand both had certain treatments that have now been superceded by other methods. Which is positive news for the rest of us, as they learn and try new things, the treatments and outcomes improve for us all.
I still reckon the best course of action is to try to avoid catching it for as long as possible.
poo at Paul's said:
I posted about someone i know who used to winter train in my pool who was severely affected, but of course the usual suspects just laughed about it and said it was bullst. I've not posted about his situation for a few months, due in part to the nature of the responses, but mainly because it all took a nasty turn about 6 weeks ago as he attempted to take his own life.
His case is severe, i hope very rare indeed, but is very sad for him and all who know him. He's completely broken now.
He is in his 30's and has in his mind lost everything he used to live for.
He is now getting some proper help emotionally and physically and is no longer living alone. Medically, he is still in a very bad way, with lung ad kidney damage which will only get better to some degree.
I only know specifically 13 people who have had it, 9 were pretty poorly at home for a few weeks, but realtively ok, including a portly ex smoker in her 40s and a guy of 50 with Progressive MS.
One guy needed hospital help for 2 days, oxygen and blood monitoring as he had a PE.
My long covid mate is in a bad way. Another guy 60 or late 50s, seemingly fit, big traveller, passed away from it, after being in ICU for several weeks in late May. The inquest into his death is this month.
Final person has it at the moment, 11 year old lad of a friend of ours, he seems right as ninepence in himself, but has mild tonsilitis, and has lost his sense of taste. But he is fine otherwise at day 4.
It suggests to me that this is a "grotty" disease in most people i know, or near nil disease in kids. But for some it seems like a lottery as to how they are affected and the outcomes may well depend on how and when they are treated?
I wont go into details on the long covid lad, nor the guy that died, but from what i understand both had certain treatments that have now been superceded by other methods. Which is positive news for the rest of us, as they learn and try new things, the treatments and outcomes improve for us all.
I still reckon the best course of action is to try to avoid catching it for as long as possible.
I remember your original post and some of the responses, there are some on here who behave like attack dogs when anyone pops up with an opinion that challenges their own. As a centre lefty remainer I know the feeling!t. I've not posted about his situation for a few months, due in part to the nature of the responses, but mainly because it all took a nasty turn about 6 weeks ago as he attempted to take his own life. His case is severe, i hope very rare indeed, but is very sad for him and all who know him. He's completely broken now.
He is in his 30's and has in his mind lost everything he used to live for.
He is now getting some proper help emotionally and physically and is no longer living alone. Medically, he is still in a very bad way, with lung ad kidney damage which will only get better to some degree.
I only know specifically 13 people who have had it, 9 were pretty poorly at home for a few weeks, but realtively ok, including a portly ex smoker in her 40s and a guy of 50 with Progressive MS.
One guy needed hospital help for 2 days, oxygen and blood monitoring as he had a PE.
My long covid mate is in a bad way. Another guy 60 or late 50s, seemingly fit, big traveller, passed away from it, after being in ICU for several weeks in late May. The inquest into his death is this month.
Final person has it at the moment, 11 year old lad of a friend of ours, he seems right as ninepence in himself, but has mild tonsilitis, and has lost his sense of taste. But he is fine otherwise at day 4.
It suggests to me that this is a "grotty" disease in most people i know, or near nil disease in kids. But for some it seems like a lottery as to how they are affected and the outcomes may well depend on how and when they are treated?
I wont go into details on the long covid lad, nor the guy that died, but from what i understand both had certain treatments that have now been superceded by other methods. Which is positive news for the rest of us, as they learn and try new things, the treatments and outcomes improve for us all.
I still reckon the best course of action is to try to avoid catching it for as long as possible.
They’re talking about long COVID affecting 20% of patients, as a bald statistic that is deeply concerning but there’s clearly more detail that needs to come out. I fully agree with you about therapies, for me that is the best long term solution.
I had post viral fatigue after getting glandular fever about ten years ago. In fact I would say I've never been quite right after it and I've spoken to others in the same boat. Maybe just the shock of being that run down for a while knocks the spark of life out of you?
Ongoing post-viral effects, especially with a new virus, won't be well understood. I was involved in trials after my glandular fever episode and I gave a lot of blood away to science. They still didn't know everything about the Epstein-Barr virus.
Saying that, I could see the Long Covids being used by malingers as a reason to take more time off work, etc.
Ongoing post-viral effects, especially with a new virus, won't be well understood. I was involved in trials after my glandular fever episode and I gave a lot of blood away to science. They still didn't know everything about the Epstein-Barr virus.
Saying that, I could see the Long Covids being used by malingers as a reason to take more time off work, etc.
NapierDeltic said:
I had post viral fatigue after getting glandular fever about ten years ago. In fact I would say I've never been quite right after it and I've spoken to others in the same boat. Maybe just the shock of being that run down for a while knocks the spark of life out of you?
Ongoing post-viral effects, especially with a new virus, won't be well understood. I was involved in trials after my glandular fever episode and I gave a lot of blood away to science. They still didn't know everything about the Epstein-Barr virus.
Saying that, I could see the Long Covids being used by malingers as a reason to take more time off work, etc.
Ongoing post-viral effects, especially with a new virus, won't be well understood. I was involved in trials after my glandular fever episode and I gave a lot of blood away to science. They still didn't know everything about the Epstein-Barr virus.
Saying that, I could see the Long Covids being used by malingers as a reason to take more time off work, etc.
I don’t think having a virus like this combined with bombardment of negative news, orders to stay at home etc has helped with recovery.
NapierDeltic said:
I had post viral fatigue after getting glandular fever about ten years ago. In fact I would say I've never been quite right after it and I've spoken to others in the same boat.
I have had exactly the same experience, I've never been the same since. Every time I get the flu now it hits me harder & takes longer to get over. I'm just about getting over the flu after first getting it 2 months ago, I've tested negative for covid twice, but its really wiped me out. poo at Paul's said:
I posted about someone i know who used to winter train in my pool who was severely affected, but of course the usual suspects just laughed about it and said it was bullst. I've not posted about his situation for a few months, due in part to the nature of the responses, but mainly because it all took a nasty turn about 6 weeks ago as he attempted to take his own life.
His case is severe, i hope very rare indeed, but is very sad for him and all who know him. He's completely broken now.
He is in his 30's and has in his mind lost everything he used to live for.
He is now getting some proper help emotionally and physically and is no longer living alone. Medically, he is still in a bad way, with lung ad kidney damage which will only get better to some degree.
I only know specifically 13 people who have had it, 9 were pretty poorly at home for a few weeks, but realtively ok, including a portly ex smoker in her 40s and a guy of 50 with Progressive MS.
One guy needed hospital help for 2 days, oxygen and blood monitoring as he had a PE.
My long covid mate is in a bad way. Another guy 60 or late 50s, seemingly fit, big traveller, passed away from it, after being in ICU for several weeks in late May. The inquest into his death is this month.
Final person has it at the moment, 11 year old lad of a friend of ours, he seems right as ninepence in himself, but has mild tonsilitis, and has lost his sense of taste. But he is fine otherwise at day 4.
It suggests to me that this is a "grotty" disease in most people i know, or near nil disease in kids. But for some it seems like a lottery as to how they are affected and the outcomes may well depend on how and when they are treated?
I wont go into details on the long covid lad, nor the guy that died, but from what i understand both had certain treatments that have now been superceded by other methods. Which is positive news for the rest of us, as they learn and try new things, the treatments and outcomes improve for us all.
I still reckon the best course of action is to try to avoid catching it for as long as possible.
One of my best friends had COVID back in March - he wasn't ill enough to be admitted to hospital although it was a close run thing. He has lost significant amounts of lung function and is so unwell that he has quit his job at a major pharmaceutical company as he just can't cope. He's 38. t. I've not posted about his situation for a few months, due in part to the nature of the responses, but mainly because it all took a nasty turn about 6 weeks ago as he attempted to take his own life. His case is severe, i hope very rare indeed, but is very sad for him and all who know him. He's completely broken now.
He is in his 30's and has in his mind lost everything he used to live for.
He is now getting some proper help emotionally and physically and is no longer living alone. Medically, he is still in a bad way, with lung ad kidney damage which will only get better to some degree.
I only know specifically 13 people who have had it, 9 were pretty poorly at home for a few weeks, but realtively ok, including a portly ex smoker in her 40s and a guy of 50 with Progressive MS.
One guy needed hospital help for 2 days, oxygen and blood monitoring as he had a PE.
My long covid mate is in a bad way. Another guy 60 or late 50s, seemingly fit, big traveller, passed away from it, after being in ICU for several weeks in late May. The inquest into his death is this month.
Final person has it at the moment, 11 year old lad of a friend of ours, he seems right as ninepence in himself, but has mild tonsilitis, and has lost his sense of taste. But he is fine otherwise at day 4.
It suggests to me that this is a "grotty" disease in most people i know, or near nil disease in kids. But for some it seems like a lottery as to how they are affected and the outcomes may well depend on how and when they are treated?
I wont go into details on the long covid lad, nor the guy that died, but from what i understand both had certain treatments that have now been superceded by other methods. Which is positive news for the rest of us, as they learn and try new things, the treatments and outcomes improve for us all.
I still reckon the best course of action is to try to avoid catching it for as long as possible.
Two other people I know of have had strokes following/during COVID and obviously have serious long term problems as a result. One of these two people was a keen marathon runner in his mid 50s.
Covid is real and has real consequences for real people.
Gogoplata said:
I have had exactly the same experience, I've never been the same since. Every time I get the flu now it hits me harder & takes longer to get over. I'm just about getting over the flu after first getting it 2 months ago, I've tested negative for covid twice, but its really wiped me out.
My wife and I both had glandular fever last year. I got better really quite quickly (took a while for my spleen to go back to normal size), and I was back to running etc after about four months. My wife is only just about right now but still complains of being very tired etc.
There's a link between Epstein Barr and MS, so that's something for us to maybe look forwards to.
Harry H said:
Isn't that what debate is all about. Yes I have formed an opinion but open to be persuaded otherwise. Wouldn't this place be pointless if we all just agreed with each other all the time.
So have our anecdotes done enough to persuade you that it's real? Or do you imagine we all work at a government bot farm? Harry H said:
Does it really exist or is it just a case that some peoples recovery time like any other infection is longer than others.
Isn't that what Long Covid is, an unusually long recovery time. Months, maybe years. Or perhaps permanent damage to one or more of the body's systems or organs? Why does this particular version of post viral fatigue require its own label? It's not unusual for virus sufferers to be affected by ongoing issues even when the initial symptoms have been defeated. The way some are banging this drum it's as though "Long Covid" is a previously unheard of and unique ailment.
I don't understand why there is suddenly so much alarm surrounding this when thousands, if not millions, of ME/CFS sufferers have been ignored for decades.
If you want some anecdotes of ME/CFS my own daughter is still affected by CFS a couple of years after being hit by glandular fever. She's in her late twenties, fit and otherwise healthy and teaches dance in her evenings. She's had a round of all the NHS can offer but still gets wiped out requiring a couple of days of bed rest.
A friend in her early thirties is a very talented singer/songwriter who was struck down by ME and Crohns in her teens which has impacted her entire life since then. She's been bedridden, used a wheelchair and still can have weeks of being unable to function properly. A day's normality is followed by a week's recovery. A five minute walk is an achievement to be celebrated. A bit of lippy and a quick hairbrush and you'd never know how ill she really is.
But neither of those scenarios have required the country to take note or to be shut down. Neither of those scenarios will make the news, be discussed on forums or have concerned looking MPs debating in the Commons.
Apart from having a good publicist, what is special about "Long Covid"?
I don't understand why there is suddenly so much alarm surrounding this when thousands, if not millions, of ME/CFS sufferers have been ignored for decades.
If you want some anecdotes of ME/CFS my own daughter is still affected by CFS a couple of years after being hit by glandular fever. She's in her late twenties, fit and otherwise healthy and teaches dance in her evenings. She's had a round of all the NHS can offer but still gets wiped out requiring a couple of days of bed rest.
A friend in her early thirties is a very talented singer/songwriter who was struck down by ME and Crohns in her teens which has impacted her entire life since then. She's been bedridden, used a wheelchair and still can have weeks of being unable to function properly. A day's normality is followed by a week's recovery. A five minute walk is an achievement to be celebrated. A bit of lippy and a quick hairbrush and you'd never know how ill she really is.
But neither of those scenarios have required the country to take note or to be shut down. Neither of those scenarios will make the news, be discussed on forums or have concerned looking MPs debating in the Commons.
Apart from having a good publicist, what is special about "Long Covid"?
Cold said:
Why does this particular version of post viral fatigue require its own label? It's not unusual for virus sufferers to be affected by ongoing issues even when the initial symptoms have been defeated. The way some are banging this drum it's as though "Long Covid" is a previously unheard of and unique ailment.
I don't understand why there is suddenly so much alarm surrounding this when thousands, if not millions, of ME/CFS sufferers have been ignored for decades.
If you want some anecdotes of ME/CFS my own daughter is still affected by CFS a couple of years after being hit by glandular fever. She's in her late twenties, fit and otherwise healthy and teaches dance in her evenings. She's had a round of all the NHS can offer but still gets wiped out requiring a couple of days of bed rest.
A friend in her early thirties is a very talented singer/songwriter who was struck down by ME and Crohns in her teens which has impacted her entire life since then. She's been bedridden, used a wheelchair and still can have weeks of being unable to function properly. A day's normality is followed by a week's recovery. A five minute walk is an achievement to be celebrated. A bit of lippy and a quick hairbrush and you'd never know how ill she really is.
But neither of those scenarios have required the country to take note or to be shut down. Neither of those scenarios will make the news, be discussed on forums or have concerned looking MPs debating in the Commons.
Apart from having a good publicist, what is special about "Long Covid"?
Usually after a virus you can get back to work, go out and see friends, have a drink etc. which help you recover. Under Covid terror many are unable to do these things which probably doesn’t help recovery due to drops in fitness levels, poor mental state etc. Although I’m guessing they’re still going for the “this is the most dangerest virus to ever roam the planet!!!one1!” angle.I don't understand why there is suddenly so much alarm surrounding this when thousands, if not millions, of ME/CFS sufferers have been ignored for decades.
If you want some anecdotes of ME/CFS my own daughter is still affected by CFS a couple of years after being hit by glandular fever. She's in her late twenties, fit and otherwise healthy and teaches dance in her evenings. She's had a round of all the NHS can offer but still gets wiped out requiring a couple of days of bed rest.
A friend in her early thirties is a very talented singer/songwriter who was struck down by ME and Crohns in her teens which has impacted her entire life since then. She's been bedridden, used a wheelchair and still can have weeks of being unable to function properly. A day's normality is followed by a week's recovery. A five minute walk is an achievement to be celebrated. A bit of lippy and a quick hairbrush and you'd never know how ill she really is.
But neither of those scenarios have required the country to take note or to be shut down. Neither of those scenarios will make the news, be discussed on forums or have concerned looking MPs debating in the Commons.
Apart from having a good publicist, what is special about "Long Covid"?
I don't deny that Long Covid exists for some but how many other common illnesses have long term effects that aren't given scary names?
I fear that Long Covid is going to be used as justification for continued restrictions even after a bulk of the vulnerable have been vaccinated and the death rate has been decreased.
I fear that Long Covid is going to be used as justification for continued restrictions even after a bulk of the vulnerable have been vaccinated and the death rate has been decreased.
NapierDeltic said:
I had post viral fatigue after getting glandular fever about ten years ago. In fact I would say I've never been quite right after it and I've spoken to others in the same boat. Maybe just the shock of being that run down for a while knocks the spark of life out of you?
Ongoing post-viral effects, especially with a new virus, won't be well understood. I was involved in trials after my glandular fever episode and I gave a lot of blood away to science. They still didn't know everything about the Epstein-Barr virus.
Glandular fever can really hammer you.Ongoing post-viral effects, especially with a new virus, won't be well understood. I was involved in trials after my glandular fever episode and I gave a lot of blood away to science. They still didn't know everything about the Epstein-Barr virus.
If you were going to hide yourself away, in fear of the long term consequences of a virus, Glandular fever would be the one. it took YEARS to recover fully and, once I got a bit older, I have had the occasional recurrence, though nothing like as bad of course.
Covid-19 seems to have about 1.5% having post viral fatigue after a few months so in that sense "Long Covid" does exist. Nothing like as bad as the rates with it after glandular fever though (from memory 10% six months after infection)
Edited by JagLover on Friday 18th December 11:48
Cold said:
Why does this particular version of post viral fatigue require its own label? It's not unusual for virus sufferers to be affected by ongoing issues even when the initial symptoms have been defeated. The way some are banging this drum it's as though "Long Covid" is a previously unheard of and unique ailment.
I don't understand why there is suddenly so much alarm surrounding this when thousands, if not millions, of ME/CFS sufferers have been ignored for decades.
If you want some anecdotes of ME/CFS my own daughter is still affected by CFS a couple of years after being hit by glandular fever. She's in her late twenties, fit and otherwise healthy and teaches dance in her evenings. She's had a round of all the NHS can offer but still gets wiped out requiring a couple of days of bed rest.
A friend in her early thirties is a very talented singer/songwriter who was struck down by ME and Crohns in her teens which has impacted her entire life since then. She's been bedridden, used a wheelchair and still can have weeks of being unable to function properly. A day's normality is followed by a week's recovery. A five minute walk is an achievement to be celebrated. A bit of lippy and a quick hairbrush and you'd never know how ill she really is.
But neither of those scenarios have required the country to take note or to be shut down. Neither of those scenarios will make the news, be discussed on forums or have concerned looking MPs debating in the Commons.
Apart from having a good publicist, what is special about "Long Covid"?
It took years for ME to be recognised, it also afflicts (relative to COVID) a small proportion of the population and is subjected to the usual remarks and prejudice by those who label it a malingerers disease. I don't understand why there is suddenly so much alarm surrounding this when thousands, if not millions, of ME/CFS sufferers have been ignored for decades.
If you want some anecdotes of ME/CFS my own daughter is still affected by CFS a couple of years after being hit by glandular fever. She's in her late twenties, fit and otherwise healthy and teaches dance in her evenings. She's had a round of all the NHS can offer but still gets wiped out requiring a couple of days of bed rest.
A friend in her early thirties is a very talented singer/songwriter who was struck down by ME and Crohns in her teens which has impacted her entire life since then. She's been bedridden, used a wheelchair and still can have weeks of being unable to function properly. A day's normality is followed by a week's recovery. A five minute walk is an achievement to be celebrated. A bit of lippy and a quick hairbrush and you'd never know how ill she really is.
But neither of those scenarios have required the country to take note or to be shut down. Neither of those scenarios will make the news, be discussed on forums or have concerned looking MPs debating in the Commons.
Apart from having a good publicist, what is special about "Long Covid"?
I’m not sure that long COVID is being labelled as special, it’s novel and obviously the disease is dominating our lives at the moment, so it’s little surprise that each and every aspect is subject to enquiry.
JmatthewB said:
I don't deny that Long Covid exists for some but how many other common illnesses have long term effects that aren't given scary names?
I fear that Long Covid is going to be used as justification for continued restrictions even after a bulk of the vulnerable have been vaccinated and the death rate has been decreased.
Social media and the media started to be full of talk of "long covid" once many of the general public figured out that the average age of death with Covid was higher than general life expectancy.I fear that Long Covid is going to be used as justification for continued restrictions even after a bulk of the vulnerable have been vaccinated and the death rate has been decreased.
There seems to be a process of labelling anything caused by Covid-19 as new and scary even if it is entirely normal for a viral infection. Post viral fatigue is one example as is heart inflammation.
and yes they will be looking for an excuse to extend restrictions.
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