Help needed- Can anyone sign petition to save MS respite?
Discussion
The MS Society has decided to close its four respite centres in the UK. They believe they can help more people with advice and individualised breaks. But this will mean a tremendous loss of expertise that each of the centres has built up. These centres can cope so well with people most severely affected by MS and this closure will leave them and their families with nowhere for a break.
Please sign the petition in the hope that the MS Society will reconsider their decision.
Thanks
http://www.gopetition.com/petition/38939.html
Please sign the petition in the hope that the MS Society will reconsider their decision.
Thanks
http://www.gopetition.com/petition/38939.html
I suspect it comes down to funding. I actively support community sport (rugby) and the Little Havens children's hospice.
Both of these causes have had all their Lottery funding withdrawn in favour of that Great White Elephant - the 2012 Olympics.
In the case of Little Havens, they now need to raise £3m a year from donations in order to keep going. Not easy in the present climate.
Both of these causes have had all their Lottery funding withdrawn in favour of that Great White Elephant - the 2012 Olympics.
In the case of Little Havens, they now need to raise £3m a year from donations in order to keep going. Not easy in the present climate.
Mobile Chicane said:
I suspect it comes down to funding. I actively support community sport (rugby) and the Little Havens children's hospice.
Both of these causes have had all their Lottery funding withdrawn in favour of that Great White Elephant - the 2012 Olympics.
In the case of Little Havens, they now need to raise £3m a year from donations in order to keep going. Not easy in the present climate.
Wondered if it was just redistribution of funding within the society. Where would the money come from to keep the respite centre open? They are vital, but it mustn't come from a research budget for example...Both of these causes have had all their Lottery funding withdrawn in favour of that Great White Elephant - the 2012 Olympics.
In the case of Little Havens, they now need to raise £3m a year from donations in order to keep going. Not easy in the present climate.
Is the petition to the govt/lottery to sustain funding at current level, or to the MS Society?
I don't know if I might bow to the MS Society's experience on how to distribute its funds
It was my mum that posted that on my user. It is the MS society chosing to close it, but claim its not to do with funds. However they have been very backhand in the way it is done. J.K Rowling is no longer connected with the society, as she didn't like the way it was being ran. She recently gave 10 mil to help research, so its not for lack of caring. The Society claimed that the Princess Royal Trust for Carers gave full backing to the closuer of the centres. Which was completely fabricated. They also sent out a questioaire but the questions were solely focused on getting the answers they had wanted. They claim it is not for money reasons they are closing the respite centres, they want to be able to give a more varied service, which will help a few people who are not needing the level of care a respite centre offers. But will be of no use to the people suffering with suvere MS.
I have first hand experiance of a respite centre, Leuchie, in North Berwick near Edinburgh. My dad has MS and uses there for respite. I went on the family weeks they ran which allowed my dad to stay at the respite centre whilst the kids were taken paintballing, go karting, fishing... Every child there had a mother or father that suffered from MS. So none of them felt awkward like alot of kids would have if it was a regular holiday. I was ten the first time I went and there was about 15 kids there with there familys. All the staff are brilliant and got to know my dad, and his needs very well. The respite is more for my mum who is a full time carer. And allows her a break 3 times a year. My dad has tried other places but none have been as good as this one. They all seem to be more nursing home like in the way they are run. Im now 20 so no longer go to stay. But my dad still uses the centre and it will be a real shame for it to close, and alot of people will suffer.
If anyone want more info about this or MS just ask or PM me and I will be more than happy to oblige. Leuchie is set in an old country house leased by the owners for 1p a year. A very nice building in a nice part of the country. http://www.leuchie.com/
The petition is being sent to the MS head quarters and the Scottish Government, possibly westminster but Im not 100% sure.
I have first hand experiance of a respite centre, Leuchie, in North Berwick near Edinburgh. My dad has MS and uses there for respite. I went on the family weeks they ran which allowed my dad to stay at the respite centre whilst the kids were taken paintballing, go karting, fishing... Every child there had a mother or father that suffered from MS. So none of them felt awkward like alot of kids would have if it was a regular holiday. I was ten the first time I went and there was about 15 kids there with there familys. All the staff are brilliant and got to know my dad, and his needs very well. The respite is more for my mum who is a full time carer. And allows her a break 3 times a year. My dad has tried other places but none have been as good as this one. They all seem to be more nursing home like in the way they are run. Im now 20 so no longer go to stay. But my dad still uses the centre and it will be a real shame for it to close, and alot of people will suffer.
If anyone want more info about this or MS just ask or PM me and I will be more than happy to oblige. Leuchie is set in an old country house leased by the owners for 1p a year. A very nice building in a nice part of the country. http://www.leuchie.com/
The petition is being sent to the MS head quarters and the Scottish Government, possibly westminster but Im not 100% sure.
Edited by Celt on Sunday 19th September 01:42
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