Discussion
Ex's mum has it, as does a friend.
Sadly, there is no cure, and it can be very debilitating. Its not well understood, the medical profession appears to ignore it. Its an achievement to be diagnosed.
I think the only thing you can (currently) do is just offer all the support you can.
Its horrible not having anything more positive to say, but its better to be realistic than offer false hope - but there is research being done, and hopefully in time it will be much better understood.
Sadly, there is no cure, and it can be very debilitating. Its not well understood, the medical profession appears to ignore it. Its an achievement to be diagnosed.
I think the only thing you can (currently) do is just offer all the support you can.
Its horrible not having anything more positive to say, but its better to be realistic than offer false hope - but there is research being done, and hopefully in time it will be much better understood.
it's one of the two ( possibly related) conditions where some of the support groups are associated with a reduced function, and increased progression ...
it's also one of those conditions where daring to suggest there is a somatic and/or functional component is likely to get you shot down by the 'truthers' ...
it's also one of those conditions where daring to suggest there is a somatic and/or functional component is likely to get you shot down by the 'truthers' ...
As the others have said, horrible condition.
My Mum has had it for several years, and once she had been diagnosed, and that was a battle, the doctors have been very helpful with the little resources they have for the condition. But sadly their efforts were not hugely successful. She has now started going to a private specialist in London which treats her with an injection which has been a massive improvement.
I can get the details if you like?
My Mum has had it for several years, and once she had been diagnosed, and that was a battle, the doctors have been very helpful with the little resources they have for the condition. But sadly their efforts were not hugely successful. She has now started going to a private specialist in London which treats her with an injection which has been a massive improvement.
I can get the details if you like?
Megaflow said:
As the others have said, horrible condition.
My Mum has had it for several years, and once she had been diagnosed, and that was a battle, the doctors have been very helpful with the little resources they have for the condition. But sadly their efforts were not hugely successful. She has now started going to a private specialist in London which treats her with an injection which has been a massive improvement.
I can get the details if you like?
i think it would be interesting to know what the injection is and where it;s being given , from a general point of view ... My Mum has had it for several years, and once she had been diagnosed, and that was a battle, the doctors have been very helpful with the little resources they have for the condition. But sadly their efforts were not hugely successful. She has now started going to a private specialist in London which treats her with an injection which has been a massive improvement.
I can get the details if you like?
'trigger point' injections of local anaesthesia does appear to have some support within the mainstream, but is not universally accepted ( for instance it's not mentioned on the NHS pages of fibromyalgia) but some of the other treatments offered are pure wibble ... (alternative medicine that works is just called 'medicine')
http://www.nhs.uk/Conditions/Fibromyalgia/Pages/Tr...
I would like to also know as my girlfriend has recently been diagnosed with this and as already mentioned, so days can be worse than others. It took about 6 months just for her to get diagnosed with it.
Not looking for the sympathy but for a girl of 25 she shouldn't struggle to get up off the sofa of pick her son up and on her bad days she can't even do this and its difficult to watch her in pain.
Not looking for the sympathy but for a girl of 25 she shouldn't struggle to get up off the sofa of pick her son up and on her bad days she can't even do this and its difficult to watch her in pain.
Right then. Apologies for the delay, I have got some information.
Mum has been having Trigger Point injections under Professor John Davies at FMS Clinic. He also works out of Guy's Hospital in London under the NHS, but apparently there is a sizeable waiting list.
He has helped Mum immensely.
Mum has been having Trigger Point injections under Professor John Davies at FMS Clinic. He also works out of Guy's Hospital in London under the NHS, but apparently there is a sizeable waiting list.
He has helped Mum immensely.
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