MS - what's it like to live with?
Discussion
I appreciate this is a wide area as symptoms and impact to daily life vary a great deal from individual to individual.
But I am interested to hear from those who have been diagnosed and how they cope, is it a life changer?
How was the diagnosis process? Long winded or pretty quick.
Thanks,
Simon
But I am interested to hear from those who have been diagnosed and how they cope, is it a life changer?
How was the diagnosis process? Long winded or pretty quick.
Thanks,
Simon
SimNugget said:
But I am interested to hear from those who have been diagnosed and how they cope, is it a life changer?
I don't have MS but I have seen many patients with it. It ranges from very mild (almost no outward signs) to complete paralysis: no movement apart from some movement of the head.Why do you ask?
There are loads of conditions with overlapping symptoms, so having symptoms consistent with MS does not mean that a person has MS.
You are most unlikely to have MS.
I was investigated for MS, going through the usual battery of tests, but no diagnosis was made.
The process of diagnosis can be protracted, with neurologists often reserving judgment until they see what patterns of symptoms occur over time.
What symptoms are you experiencing?
You are most unlikely to have MS.
I was investigated for MS, going through the usual battery of tests, but no diagnosis was made.
The process of diagnosis can be protracted, with neurologists often reserving judgment until they see what patterns of symptoms occur over time.
What symptoms are you experiencing?
Edited by Jazzer on Thursday 3rd October 12:14
Diagnosed 3 & bit years ago, nice 40th b/day present!!
Is it a life changer? it can be if you let it.
My biggest problems are "weapons grade fatigue" & neuropathic pain. Both managed with a nice cocktail of drugs(and loads of caffeine).
Had a couple of relapses, bad one last year, had me off work for a few months and beginning of September had optic neuritis again. This time my vision went quite badly in right eye, all blurred with muted colours. Seen to have recovered from it though as i can see the target boss clearly again at 60yds(Archery is my escape from MS).
Fatigue has meant that i've cut down to a 4 day week, i need friday off to relax & leave me fit to do stuff over the weekend with the kids.
Heat is a killer for me, too warm a room set the neuro pain off, feels like sunburn when its bad. Cant stand the weight of clothes on my shoulders.
On the good side, i see a neurologist who's running the Sativex(cannabis based drug) trials in my area. Tastes like crap but you get the nice mellow feeling, downside is i get the munchies.
I hope your clear, i would not wish this on anyone. I know too many folk with MS who are in a much worse state & way younger than me.
Is it a life changer? it can be if you let it.
My biggest problems are "weapons grade fatigue" & neuropathic pain. Both managed with a nice cocktail of drugs(and loads of caffeine).
Had a couple of relapses, bad one last year, had me off work for a few months and beginning of September had optic neuritis again. This time my vision went quite badly in right eye, all blurred with muted colours. Seen to have recovered from it though as i can see the target boss clearly again at 60yds(Archery is my escape from MS).
Fatigue has meant that i've cut down to a 4 day week, i need friday off to relax & leave me fit to do stuff over the weekend with the kids.
Heat is a killer for me, too warm a room set the neuro pain off, feels like sunburn when its bad. Cant stand the weight of clothes on my shoulders.
On the good side, i see a neurologist who's running the Sativex(cannabis based drug) trials in my area. Tastes like crap but you get the nice mellow feeling, downside is i get the munchies.
I hope your clear, i would not wish this on anyone. I know too many folk with MS who are in a much worse state & way younger than me.
Wife has relapsing/remitting, diagnosed in 2010 at aged 36, but looking back symptoms have been present since about 2004. Generally not life changing but she does suffer with fatigue and some mild pain in arm and hand, and had a couple of bouts of optic neuritis.
There are many different levels of MS though, and men and women can suffer different symptoms of course. It's made her much more aware of trying to stay as healthy as possible. She could sleep for hours (not sure if it's related), so she tends to make sure she retires early to bed.
There are many different levels of MS though, and men and women can suffer different symptoms of course. It's made her much more aware of trying to stay as healthy as possible. She could sleep for hours (not sure if it's related), so she tends to make sure she retires early to bed.
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