bit of a shock
Discussion
i had a bit of a shock today, a good friend has been ill and having tests as she was struggling with speech, breathing etc. we all thought it would be an infection or something that was cured with drugs. she dropped the bombshell today, she has been diagnosed with motor neuron disease.
i'm not 100% sure why i'm posting this, but i think i just need to get it off my chest so to speak, f
k no.
i don't know much about it but will be on google shortly, but i think the thing that scares / concerns me so much is a good friend who has a fierce intellect will probably end up in a wheelchair and struggle to communicate.
my wife was just about to start a business with her, but that won't happen now.
sometimes you just need to type it so you can accept it.
sorry for the ramble
i suspect this may get moved but its not me as the subject as such.
i'm not 100% sure why i'm posting this, but i think i just need to get it off my chest so to speak, f
k no.i don't know much about it but will be on google shortly, but i think the thing that scares / concerns me so much is a good friend who has a fierce intellect will probably end up in a wheelchair and struggle to communicate.
my wife was just about to start a business with her, but that won't happen now.
sometimes you just need to type it so you can accept it.
sorry for the ramble
i suspect this may get moved but its not me as the subject as such.
Sorry to hear your news, all the information you need is here http://www.mndassociation.org/
Make sure your friend does everything she wants now, this is a fast illness.
Make sure your friend does everything she wants now, this is a fast illness.
...and more constructively than my first post.
Be a good friend, don't dissapear. Visit often, even when (especially when) it becomes hard. Go out for day trips with them and help. If they've a partner who's caring for them, they too will need support, a great deal of it. Just be there.
Be a good friend, don't dissapear. Visit often, even when (especially when) it becomes hard. Go out for day trips with them and help. If they've a partner who's caring for them, they too will need support, a great deal of it. Just be there.
Yeah, nasty shock. I'm sorry to hear it.
Yes, she'll use a chair and yes, speech will at some point be difficult, and then impossible. It won't change who she is, what she enjoys, what she's interested in. A very close mate is probably nearing the end of her life after having MND for 7 and a half years, succeeded in seeing her daughter to adulthood (she's a single mum, her kid was 10 when she was diagnosed), even now still has a social life, lives in her own place with support which has ramped up from an hour or 2 a week at first to now, 24/7 - but it's largely the same team of people so she knows them well and they work well together.
What I'm getting at is, this isn't the end of her life, it's not even the beginning of the end. I don't know what the business she and your missus were planning is, but don't necessarily rule it out - obviously it depends hugely what it is and what her intended role is, of course. Think Stephen Hawking - even losing speech totally doesn't shut off communication and obviously that means that some people in some situations can keep up some sort of professional role - they are of course the lucky few, but it's possible.
Yes, she'll use a chair and yes, speech will at some point be difficult, and then impossible. It won't change who she is, what she enjoys, what she's interested in. A very close mate is probably nearing the end of her life after having MND for 7 and a half years, succeeded in seeing her daughter to adulthood (she's a single mum, her kid was 10 when she was diagnosed), even now still has a social life, lives in her own place with support which has ramped up from an hour or 2 a week at first to now, 24/7 - but it's largely the same team of people so she knows them well and they work well together.
What I'm getting at is, this isn't the end of her life, it's not even the beginning of the end. I don't know what the business she and your missus were planning is, but don't necessarily rule it out - obviously it depends hugely what it is and what her intended role is, of course. Think Stephen Hawking - even losing speech totally doesn't shut off communication and obviously that means that some people in some situations can keep up some sort of professional role - they are of course the lucky few, but it's possible.
thank you all, my wife is very upset about it, we both are.
i can't stop thinking what her husband has to look forward to, he is devoted to her and one of the nicest lads you could meet.
anyway yes looking into it we will be there for them both (my wife has been friends with her since secondary school).
Me personally I am looking at ways I can help with a background in IT.
Cheers, we will be there when they want us.
i can't stop thinking what her husband has to look forward to, he is devoted to her and one of the nicest lads you could meet.
anyway yes looking into it we will be there for them both (my wife has been friends with her since secondary school).
Me personally I am looking at ways I can help with a background in IT.
Cheers, we will be there when they want us.
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