Haemangioma
Author
Discussion

JustDerv

Original Poster:

296 posts

237 months

Saturday 25th January 2014
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Hi, just hoping for any advice on this. My Daughter has a large haemangioma birthmark on her back, taking up about a sixth of her back in size.

Now she is approaching her 17th birthday and is starting to feel self-conscious about it. When she was little we were assured that most of these fade with time and it has seemed to 'flatten' over time but still very obvious when she wears backless dresses or a bikini.

She has approached her Dr who has referred her to a plastic surgeon (not NHS) who wants consultation fees of £300 before giving a decision of what to do (if anything). My question is, is it worth paying these fees or not, I don't mind paying £300 for her but not if they just turn round and say can't do anything but that's £300 anyway! Apparently she cannot have it dealt with by the NHS as it is purely cosmetic.

Is there was some way of finding out what her options are, but not paying silly money just to be told there is nothing that can be done? As she is now going on for 17, it is starting to affect her and she feels self-conscious about it.

Many thanks.

Driller

8,310 posts

307 months

Sunday 26th January 2014
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Surely she could be seen by someone on the NHS for that?

drfrank

785 posts

231 months

Sunday 26th January 2014
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This is a congenital skin lesion and I treat lots of them !
You should ask your GP to apply for funding to your local CCG for a plastic surgery appt for assessment on the NHS.
Despite the redness and bulkiness resolving relatively early you can often be left with some skin redundancy.

ChasW

2,162 posts

231 months

Sunday 26th January 2014
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My niece had a similar issue. It was treated on the NHS with the Op performed at Great Ormond Street. With one of my own kids we had the need for some minor plastic surgery. Initially the funding request was turned down but the GP and consultant were persistent and they got the decision over-turned eventually. The point being that sometimes pressure needs to be applied to the system to get what you should be entitled to.

JustDerv

Original Poster:

296 posts

237 months

Sunday 26th January 2014
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Thanks for the informative replies. Yes I thought with it being a birthmark affecting her self-confidence that she would at least be assessed on the NHS. Apparently the last time she saw the Dr he said that the local health care trust wouldn't.

DrFrank, what does the local CCG mean? As she is now 17 she tends to have Dr appointments without me present obviously, so any tips I could pass onto her before she next approaches her Dr?

Many thanks again, this is what I love about PistonHeads!

HughS47

613 posts

163 months

Sunday 26th January 2014
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Clinical commisioning group - i'm pretty sure they make decisions on allocations of funding for GP referrals and the like...As said, you should be able to build a case for NHS treatment via your GP.
Did she have treatment with propanolol when she was smaller?

JustDerv

Original Poster:

296 posts

237 months

Sunday 26th January 2014
quotequote all
No, she has not had any treatment in the past. We were told that they mostly disappear as she gets older, so it was a case of wait and see.

She did have a small one on her forehead too, that one shrank and flattened as she got older and as she grew is 'moved' up her forehead so the remaining slight redness is now hidden by her hair. We did hope that the one on her back would fade in the same way.

The other thing about it is that when she was about 6 or 7 it got knocked and bled for a week or so on and off, this has resulted in the mark looking different at the top and bottom, i.e. not a uniform colour/texture - which seems to make it look worse than it is (if you see what I mean! It's quite difficult to describe).

drfrank

785 posts

231 months

Sunday 26th January 2014
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She needs to go back to the GP and ask him/her to apply to the exceptional cases panel at the CCG for funding.
It is the CCG that holds the purse strings !
(Propranolol treatment wasn't appreciated/discovered for the treatment of haemangiomas 17 years ago so she didn't miss out !!)

JustDerv

Original Poster:

296 posts

237 months

Sunday 26th January 2014
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Thanks, I've passed those details to her and she is going to make an appointment to speak to her GP next week. Will keep you updated.