Tongue cancer
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Discussion

PostHeads123

Original Poster:

1,180 posts

164 months

Monday 13th August 2018
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Went to see hygienist late Saturday as part of her cleaning she did a oral cancer check, she found something on the underside of my tongue and advised me to see docs asap, I managed to get appointment for Wednesday but I'm cr*pping it, as I wouldn't be surprised if it is as for 20 years I used to smoke rollups with no filter (I haven't for 5 years now), and my dad in the last 2 years has suffered from lung cancer and now brain cancer. I had a bit of mild discomfort on the side of the tongue it is for a few months now but I thought it was a tooth, for the last month I've also had a mild sore throat that has not gone.

Anyone experience of tongue cancer is it easily treatable if caught early ?

rossub

5,946 posts

219 months

Monday 13th August 2018
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The first thing to realise is that there’s nothing you can do to make finding out whatever is wrong any quicker now, as you’ve got that Wednesday appointment. I know it’s easy for me to say, but don’t panic until you know for sure it’s something serious. No point worrying overly about something until there’s definitely something to worry about.

Absolutely avoid Dr Google, or you’ll send yourself into a state. I’ve been there several times and learnt my lesson. Trust the NHS to do its job. If the Doctor is concerned, you’ll be fast tracked for diagnosis.

shotta287

893 posts

123 months

Monday 13th August 2018
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Agreed^

Don’t diagnose yourself based off Google. It’s the worst thing you can do. Been down that road plenty of times and it adds unnecessary stress.

Fingers crossed for you.

billshoreham

358 posts

154 months

Monday 13th August 2018
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i am currently recovering from tongue cancer. Last spring (2017) I had a pain in my throat that made eating very painful, I also had a lump at the very back of my upper tongue.
I had it diagnosed and was not surprised when the consultant took a look and said; there and then, that he would be amazed if the results came back negative for a tumour. To precis, had some back teeth out, had 30 sessions of radiotherapy. Fine while it was happening but really difficult when they stopped it. Lost all taste and the ability too swallow. Had to rely on soft food and couldn't taste it anyway, the pain was also an inhibitor. Had a heavy liquid morphine script that also became a problem to get off. I did not recover in the expected timeline and my consultant suspected, as I did, that the radiotherapy had not worked. Two biopsies (3 months) later I got an all clear. I was surprised how difficult I found it. I am gradually getting my appetite back and I can taste quite a bit more now.I cannot produce saliva so have to be careful re oral hygiene and carry a water bottle about. I do not think my experience was typical and most people apparently recover in about 6 months and get their taste back fully in about a year. Saliva and dry mouth will take longer to mend.
Reading back it sounds pretty grim, but you can recover and rarely need surgery. As cancer goes ( i have had it in 4 different places at different times) it is one of the easier ones but having said that I hope its something else in your case. Good luck.

billshoreham

358 posts

154 months

Monday 13th August 2018
quotequote all
and definitely stay off google.

FocusRS3

3,411 posts

120 months

Tuesday 14th August 2018
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billshoreham said:
i am currently recovering from tongue cancer. Last spring (2017) I had a pain in my throat that made eating very painful, I also had a lump at the very back of my upper tongue.
I had it diagnosed and was not surprised when the consultant took a look and said; there and then, that he would be amazed if the results came back negative for a tumour. To precis, had some back teeth out, had 30 sessions of radiotherapy. Fine while it was happening but really difficult when they stopped it. Lost all taste and the ability too swallow. Had to rely on soft food and couldn't taste it anyway, the pain was also an inhibitor. Had a heavy liquid morphine script that also became a problem to get off. I did not recover in the expected timeline and my consultant suspected, as I did, that the radiotherapy had not worked. Two biopsies (3 months) later I got an all clear. I was surprised how difficult I found it. I am gradually getting my appetite back and I can taste quite a bit more now.I cannot produce saliva so have to be careful re oral hygiene and carry a water bottle about. I do not think my experience was typical and most people apparently recover in about 6 months and get their taste back fully in about a year. Saliva and dry mouth will take longer to mend.
Reading back it sounds pretty grim, but you can recover and rarely need surgery. As cancer goes ( i have had it in 4 different places at different times) it is one of the easier ones but having said that I hope its something else in your case. Good luck.
Wow well done you Sir for the battles you have no doubt faced and beating them

PostHeads123

Original Poster:

1,180 posts

164 months

Tuesday 14th August 2018
quotequote all
billshoreham said:
i am currently recovering from tongue cancer. Last spring (2017) I had a pain in my throat that made eating very painful, I also had a lump at the very back of my upper tongue.
I had it diagnosed and was not surprised when the consultant took a look and said; there and then, that he would be amazed if the results came back negative for a tumour. To precis, had some back teeth out, had 30 sessions of radiotherapy. Fine while it was happening but really difficult when they stopped it. Lost all taste and the ability too swallow. Had to rely on soft food and couldn't taste it anyway, the pain was also an inhibitor. Had a heavy liquid morphine script that also became a problem to get off. I did not recover in the expected timeline and my consultant suspected, as I did, that the radiotherapy had not worked. Two biopsies (3 months) later I got an all clear. I was surprised how difficult I found it. I am gradually getting my appetite back and I can taste quite a bit more now.I cannot produce saliva so have to be careful re oral hygiene and carry a water bottle about. I do not think my experience was typical and most people apparently recover in about 6 months and get their taste back fully in about a year. Saliva and dry mouth will take longer to mend.
Reading back it sounds pretty grim, but you can recover and rarely need surgery. As cancer goes ( i have had it in 4 different places at different times) it is one of the easier ones but having said that I hope its something else in your case. Good luck.
Thanks, I have the appointment at 10am tomorrow with doc and then will take it from there, I had just put it down to being run down and tired and a dodgy tooth, I'm hoping what ever this is under my tongue is a sore of some sorts but it doesn't hurt when I touch it and I do feel a small lump its under the tongue right at the back were the tongue meets the throat, the throat discomfort though I've had 5-6 weeks and I've had lot of jaw ache. I'm hoping for the best and that I'm worried over nothing but my previous life style of smoking rollups and family history make me worried.

My dads lung cancer they were sure was from smoking and he gave up at 40, got lung cancer at 75, had a lung removed, then 3 lots of chemo and got the all clear. About 12 months later though he crashed his car and remembers his right arm just before the crash started to do its own thing, this is when they found the cancer had gone to his brain, its terminal he is currently just had his second lot of chemo for it but is really suffering this time.


Edited by PostHeads123 on Tuesday 14th August 11:33

popeyewhite

23,017 posts

149 months

Tuesday 14th August 2018
quotequote all
billshoreham said:
i am currently recovering from tongue cancer. Last spring (2017) I had a pain in my throat that made eating very painful, I also had a lump at the very back of my upper tongue.
I had it diagnosed and was not surprised when the consultant took a look and said; there and then, that he would be amazed if the results came back negative for a tumour. To precis, had some back teeth out, had 30 sessions of radiotherapy. Fine while it was happening but really difficult when they stopped it. Lost all taste and the ability too swallow. Had to rely on soft food and couldn't taste it anyway, the pain was also an inhibitor. Had a heavy liquid morphine script that also became a problem to get off. I did not recover in the expected timeline and my consultant suspected, as I did, that the radiotherapy had not worked. Two biopsies (3 months) later I got an all clear. I was surprised how difficult I found it. I am gradually getting my appetite back and I can taste quite a bit more now.I cannot produce saliva so have to be careful re oral hygiene and carry a water bottle about. I do not think my experience was typical and most people apparently recover in about 6 months and get their taste back fully in about a year. Saliva and dry mouth will take longer to mend.
Reading back it sounds pretty grim, but you can recover and rarely need surgery. As cancer goes ( i have had it in 4 different places at different times) it is one of the easier ones but having said that I hope its something else in your case. Good luck.
Hi Bill. Like you I've just recovered from tongue cancer (squamous cell carcinoma). Finished chemo/radio last September. 3/35 sessions. Saliva is now almost fine, I find sugar free gum helps a lot. Taste has not totally returned by any means, I was told it's entirely down to the individual and may never fully return. Not really that bothered to be honest it's a small sacrifice to live with and at least my buds get chocolate ice cream. Had to have some tooth work done post-treatment so fingers crossed concerning osteoradionecrosis.

Piginapoke

5,994 posts

214 months

Friday 17th August 2018
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I hope everything turned out ok for you